Nice to see that people seem to be returning to normal and that those of you that are having your first Tax are not faring too badly either. If only there was a crystal ball that could tell us exactly how we were going to feel and for how long ? It's such a nice feeling getting back to normal, I just keep thinking now that this time next cycle my side effects will be disappearing and not coming back ... can't wait... they can do one and really wont be missed !
Had a bit of a mixed weekend although mainly becasue of migraine rather than anything else ... have headaches anyway so don't think it was particularly linked to chemo but who knows, anyway Saturday wiped out but better yesterday and fine today.
Have been out all day today, meeting re work. Up until now I've had a sick note too but have been doing some work at home, external meetings etc (I work in a school so I've not been in much, lots of germs I want to keep away from) but have had to get my sick note changed to a fit note that specifies I am fit to work, light duties, home working etc as wildpurl says, employers shouldn't be letting you work without the medical clearance. Again, for me, work is about keeping things as normal as possible. To be honest I'm not being that productive but enjoy thinking that I am lol
Still have a burnt feeling in my mouth but taste coming back and its much easier to eat and drink and enjoy doing so.
Have also been looking at a week's holiday mid July, after last chemo and before rads start but not booked anything yet .... does anyone know if I'm going to have any problem with travel insurance?
Lovewine, how do you feel about meeting up sometime this week or early next. I'm happy to come over that way, I have a friend in Lutterworth that I am hoping to catch up with soon, so I could meet you and then go on there either before or after ??
Can't keep up with individual posts but hi to Nellie, as someone else has said, this particular thread is so helpful and a lovely sociable supportive group too.
Have a good evening
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Oh and one helpful tip my friend did give me for Tax was to keep moving each day. She said the first cylce of Tax she was resting a lot and on day 4 had a car journey and then a lot of sitting around at a friends and the aches and pains hit her really hard. She said that after that she made sure she walked every day and was more active and things were much better and cycles 5 and 6 were easier.
She also did the black nail varnish thing. I'm still not sure about this as i've read elsewhere not to use nail varnish so you can monitor what's going on. I think the dark varnish thing is something to do with a uv light reaction with Tax. Anyway, part of me rather likes the idea of bringing out the inner goth! Will have a think...
Back from the first Tax and, hurray, no allergic reaction (my main worry). I took my friend who has been through all this herself and we had a good chat and a laugh so I have to say it wasn't an unpleasant couple of hours! My blood results were so surprising that I thought the nurse had put the decimal stops in the wrong places and asked her to double check but they were right so WBC, platelets and neuts higher than pre-chemo which makes me feel very happy. Those GCFS injections must be working.
Welcome Nellie and good luck for the Tax. As you can see, just done the first Tax and got through that although I'm well aware that the side effects will come later! Like you I fared pretty well on FEC with very few side effects so coming in to Tax with the strong feeling that my luck is surely going to run out. I just keep reminding myself we are all individuals and we will all react differently. Also, one person is highly unlikely to get ALL the side effects going so all we can do is wait and see. I'm finding this board really lovely and supportive so I hope you do too. Btw, I have never heard or read anything about tooth loss. Maybe it's very rare or could perhaps be related to other underlying problems?
Wildpurl - hoping the working from home going ok -well done for doing that. I keep saying to work I could do some from home but I have been signed off for 6 months and they have been very good at keeping work away from me!
Rosie - that's wonderful that you are booking a holiday. It's great to have something to look forward to. I was due to take my daughter to NZ to visit my sister on a big mum and daughter trip this summer and we have obviously had to cancel so my goal is to get there next summer instead.
Jackie - good luck for Thursday. Even though we've done chemo already and know what to expect on a certain level, putting a new drug in the mix brings on all those anxieties and what ifs again. It seems relentless sometimes.
I hope everyone else is doing ok today and that aches and pains are diminishing for those further along in the cycle.
I am new to this forum. I am 47 and had Triple negative grad 3 diagnoised in Jan. Seeking support to get through the taxotare, having done pretty well on the fec. Had my treatment on friday and was ok until sunday when I crashed big time. Feeling very brain dead and concerned about my ability to drive safely, and wondering how long the aches and pains will usually go on for. With the fec things got better pretty quickly altough took a day or two longer each time. Also how many of you have been facing tooth loss issues? My doctors never mentioned it at all but I know several people it has happened to. Any tips.
I've just been catching up with posts from the weekend.
Joan - really sorry to hear you ended up spending time in hospital but glad it was a short visit and hope you continue to feel better over the next few days.
Glad to hear that some of you have now turned the corner and finding things manageable and sorry to hear it's not been so good for others - hope it improves soon.
I've had a busy weekend with visiting friends and then having boyfriend and his two children to stay so three lively under 8s in the house and then a lovely visit from an old school friend of mine. The house is suddenly quiet so a bit of clearing up and then an early night for me. Daughter is with her dad.
I haven't heard anything after my bloods on Thursday so assuming all systems go for tomorrow morning and have started taking the dreaded Dexamethasone. Just want to get it over and done with now - i've spent too long thinking about it and reminding myself that everyone is individual and I shouldn't try to guess what might happen. Still, I can't help but think that I got off relatively lightly on the FEC with few physical side effects (mental ones worse for me) so surely my turn is coming with the Tax!
It has been really helpful to read about all experiences - most of you seem to be one step ahead of me. Rosie, especially your words on how quickly your adverse reaction was dealt with.
So, chemo round 4, Tax round 1.....bring it on!
I woke at 1.45 and went down to watch the second half of England Match. I had left DH asleep watching previous match but had turned the volume right down. When I went down he was changing the channel obviously only just woken uo so he then saw the second half. I made tea. We then watched second half and went to bed. I took sleeping pill at 3.30am and managed to sleep through to 6.45am! I was lucky to get back to sleep after this early morning adventure. I do hope the next match wont be so late!!!
Got to take my last steroids today so I expect my mood will change tomorrow. Day 2 of injections.I am very happy to inform all you ladies that I will be going down the realms of the prunes and all bran today. After all my toilet issues last month I can hardly believe that I can now I can eat what I like and now planning to have to break the constipation! What an amazing change around.
Looking forward to getting my wig restyled on Tuesday and picking up some dresses that I left with the dressmaker on Wednesday as they gape round the arms. I lost 3/5 stone with Slimmimg World last year before being diagnosed. Over the last month I lost another /5 stone due to not being able to keep anything inside. She charges 12 euros for each one but both the dresses were new last year from BHS online. Have a busy week planned hope I will be up to it. Got to drive the car twice to Paphos, attend the Talent show from 6-8pm at school on Friday. That's going to be a challenge as all the children and parents will want to speak to me. Then on Saturday night we have the leavers prom for the secondary and I need to make an appearance there!
Do hope you are all managing a good weekend. Hope you finish your gardening Wilpurl you sound very self sufficient! New potatoes yum!!! xxxxxx