Morning All
Had a terrible night - unconfortable, too hot (but too cold with fan) and not enough sleep. I was on the verge of calling the hospital for advice/reassurance this morning as still feeling bad and then, whilst waiting for my supermarket delivery to arrive first, realised i was actually feeling a etter! The headache has shifted and other aches and pains seem to be subsiding. I still had nausea but remembered i have a whole bag of anti-sickness pills so took one (it does say as necessary on my med card). At last, light at the end of the tunnel, for this cycle anyway.
Jackie - glad it went well and you've been doing ok.
Lovewine - thanks for the headache tip. i am a bit headache prone in general and tbh a couple of paracetamol extra usually do the job but it's great to know about this one for future reference.
Wildpurl - a day's work and then gardening. Hats off to you. I usually grow a lot of veg in my garden but just gave up on the idea this year as I was starting to feel stressed about not getting prep done and seeds in in time.
Booksandwine - thanks for the NZ tips, will check them out.
Rosie - how frustrating! I know that everything seems even more frustratiing at the moment. We're going through so much we just want some basic things to run smoothly. I get frustrated every Thursday morning waiting for the district nurse to do my PICC. "Any time between 10 and 1" (messes up the whole day sometimes). Or on one occasion "I can't make it until 3,30". Does it not occur to them that I may have cancer but I still have a life and responsibilities and school pick ups to do! Grrrr.
Rachel - good luck for your first Tax. The only thing I can say with any certainty is that everyone is different. I know others have found Tax preferable but I'd rather have FEC back. I was only ever sick on the day of treatment itself and then functioning pretty well after that. Tax last week brought aches and pains on day 4 which are only just improving now, day 9. I've had paracetamol and ibuprofen. I was also given tramadol but it made me throw up! I've had nausea for a few days, worse than the FEC, when everyone else seems nausea-free with Tax. I do wonder though if this is more a result of achy stomach muscles combined with a residual cough and a horrible dry throat with a horrible taste in my mouth. Not a great combination. I do agree with the others though that the tiredness can knock you for six. I have never felt lethargy like it. Can I reach over for that glass of water on my bedside table? Errr, no, I'll do in later. As for the nails, i've painted mine a dark colour (currently black). My understanding of the "dark" polish advice is that Tax is light sensitive (you'll see it's in an opaque bag in the hospital) and so the dark polish helps to block out the light from getting to the nails and therefore lessens the damage. tbh, i highly suspect it's just the luck of the draw but i'm willing to give it a go.
Lisa - your "bored of this now" comment just about sums up how i'm feeling. It's my most overused phrase. I said to my 7-year old last night "It's really boring being ill you know" and she replied "yes, i know Mummy, you say it so often it must be true"!
Have good days if you can.
x
