Hi Rosie, and all other ladies,
Hello Rosie, its amazing that you have managed to get on line so soon after surgery! I am really pleased that the hospital staff are looking after you well and keeping you comfortable. I wish you speedy recovery, I know you have lots to do and to think about.
I am thinking about going into work for a few hours tomorrow but will see how I feel outside today I am attending the hospital to have my PICC line flushed and re-dressed this afternoon. My mouth is still feeling furry inside and no tastebuds, cereal, tea, rice potatoes bread all yuk, but still managed to gain about 9lb in weight so far since the begining of my treatment, I am not sure if its the steroids, thyroid problem or just greedy me, time will tell. I have an appointment for the Endocrine dept end of next month, I really hope that I don't need yet more surgery, it would be the 7th in 4 years and somehow the throat area is quite scary.
Good to see all you ‘week three’rs managing to get to work I am very impressed with your energy.
Rolicarpit I hope you like your new school it’s not often one gets the chance to work in one!
Jackie sorry to hear you are having a rough time sleeping and have temperature issues again. The temperature thing is such a worry as getting it wrong could have such serious consequences. I hope it’s just the chemo making it a little high and it will settle soon.
Cassie I am glad you are over the worst - I agree wobbly legs must be a side effect as I had them too. Disappointing about the dress from China - we got my daughters prom dress from one of the online Chinese shops but it also had a base in the uk so we could return stuff which was handy. I have just checked and they also do wedding dresses so if you’re still looking: https://www.sexyher.co.uk/Wedding_dresses-8.html
Louise I think it would be nice to have a new hobby! Let’s hope we notice and appreciate all the spare time we will have without appointments and not let it just disappear into the daily grind.
I had my radiotherapy planning meeting yesterday which went well and I have joined the tattoo club - feel a real rebel!! Unfortunately no sign of a break in treatment - they want me to start three weeks after chemo. I asked to delay the start by 4 weeks to have a long weekend away with DH and be able to do things with my daughters for the last 2 weeks of the summer holidays. But all the oncologist would say is that it was not ideal but up to me. I am very frustrated as I have no idea of the importance of starting straight away or the significance of delaying by a few weeks and she did not offer any guidance. I should have asked her what she would have done in the circumstances! Think this is one to get my medic brother to ask his colleagues to make sure I don’t make a stupid decision.
She was very sympathetic about my reaction to the first Tax dose explaining that they had lowered it for the second. When I had felt so terrible and called the ambulance the bloods the hospital took showed massive drops in blood counts and impaired liver function. I don’t know if I am just intolerant or they gave me too much, but it was good to know it wasn’t just me being pathetic!
Wishing everyone a good day,
Great to hear from you so soon - It was very strange without you yesterday! Excellent news that the operation went smoothly and you are comfortable and being looked after. You can’t really ask for more at this stage. I hope you have a restful day and DH manages to visit soon.
Hi Ladies I hope you are all well and enjoying the weather? Well Thursday looms large again and I will be a zombie. 5th FEC of 6 and to be honest dreading it but can not wait for it all to be done and dusted. Although also wondering what hobby I can take up to replace it! What with all the tests and the hospital appointments we are all going to have a lot of time on our hands. Funny how many of us take solace in the garden. How good will it be to say " I had cancer and I have the radiotherapy tatoos to prove it ! " Waiting to see how long they leave between last chemo and radiotherapy hoping to get a break. Can we swim in this lull between treatments?
Had such a snigger the other day met a lady I have not seen since all this started. She said I looked well and hadnt I lost a lot of weight! You would thing the bandanna was a give away plus I can not walk far now and look like a 90 year old lady. I told her its the worst possible way to loose weight and I was happier fat!
Teenagers ecstatic that I am having a tattoo as they now think this opens the door for them! Both are pierced and enjoy festivals but we have banned below the waist and extreem ear lobes! Honestly they both do the piercings themselves i need one of those metal detectors that they wave over you before you go on a plane! Loving all the talk about weddings can not wait till my kids reach that age Lord alone knows what they will look like!
I too have a problem with teary eyes and aches and pains at the moment especially in the shoulders and neck area also loss off taste. TAX 2 day 6 I hope I have turned the corner now. I did manage a quick outing of shopping and a lunch out at our lovely local Spanish restaurant on Saturday with my eldest daughter although I must say I did not really enjoy the food as much as usual, with no taste buds working, I enjoyed getting out for a while but was so exhausted after getting back home, its only about half a mile walk but I am obviously so unfit now, it is really frustrating, my knees were creaking I swear and very wobbly.
Sunday we decided to have another look online at wedding dresses, bridesmaid dresses and some cravats for the groom and male page boys best man etc, which was nice and we have ordered quite a few things. This is the second wedding dress the first one was custom made in China but not very good quality or fit, so my daughter has put it on ebay! We have had very good reports from may different people that have had dresses made in China, but it did not work for us. Teal and white is the colour scheme at present, so here hoping to more sucesss this time, we ordered litlle ivory dresses for the two little bridesmaids with teal sashes, Debenhams and BHS being the suppliers at least anything can be returned this time if it is not right. My younger daughter will probably need several inches chopped off the bottom of the chief bridesmaid dress as she is a 5ft 2in size 8, lucky girl, or wear sky high shoes! Hope all goes well Rosie and you are not too uncomfortable when you return home, the Chemo SE's hopefully a thing of the past.
Love to all Cassie x
Hope everyone has a few things lined up today, not sure about all that ironing though Lovewine ... take it easy! Jackie, I got up at 9.00 ish on Saturday and was back in bed at 10 lol, so I wouldnt worry too much just do whatever your body needs you to, sorry you had a rubbish nights sleep. It's so random, I slept really well on Saturday night (8 hours!!!) but then last night was fitful and sweaty, up at 1, 4 and 6 ... very annoying. This time last year I was recovering from a hysterectomy and couldnt sleep during that time either, took me ages to get a sleep pattern back, but it did return so there's hope for us yet!
Well, I'm off to the new school today.. exciting, hope everyone has a good day.
See you soon
Hi Lovewine, we are going on Friday so a few days yet, let me know if you fancy meeting up although I know its your week for appointments, if not maybe we could catch up when I come back and you will have had your last chemo by then too and be on the road to recovery
Just a brief response before we leave for our birthday lunch.
Wildpurl re runny eyes. The oncologist said it was because chemo affects the tear ducts so theyt don't perform their usual function of draining the tears away. I think I assumed that they produced the tears but not so apparently.
Rosie, sorry you're suffering bad side effects from the TAX although good you got some sleep. Hope being under sedation for the op will mean the side effects are not noticeable.
All the lovely food so many of you are describing is mouthwatering and must mean the sense of taste is returning. I have also found that for the first time the horrible taste in the mouth has reduced, if not completely disappeared. On the other hand, despite now being in week 3 of TAX my fingers and feet are still numb and tingly. I also have raised blood sugat levels so have to have a fasting blood test on Tuesday. After that may have to cut out the sweet stuff so plan to have a nice dessert today!
Rosie - wishing you all the very best of luck and some more for tomorrow .. you are an inspiration, I will be thinking about you the next few days.
sounds like everyone else is getting on with life at the moment which is lovely, it's so nice to read all the things people are doing and planning to do as it's a real indicator that we're all feeling ok and soon you will be feeling ok after the last chemo and will just keep getting better. I've said it before but will say again what an amazing feeling it is to know you're not going to experience the side effects again and I'm wishing the next few weeks away for you all so you can experience it too ! Good luck to those who are going for last chemos this week.
Nellie - I think the same as you about fitness, I'm managed to convince myself its the low blood count and lack of red cells that make me feel so unfit and Wildpurl Im so impressed with your continued efforts to be exercising I just havent been able to do it but have some plans for when I get back from holiday to get back into some exercise ...must shift the wight I've put on for a start !
Rads planning on Friday was completely fine apart from the lack of choice of tattoos, no butterflys or dolphins or anything just 3 small dots, how disappointing lol ... start on 28th July and last one on 25th August
Very jealous of peoples harvests from their gardens, did manage to get some potatos and a few broad beans from ours yesterday which were lovely but most of the potaoes have been attacked by something underground. We will however have plenty of apples, damsons, plums and greengages later on. My nan is coming to stay for a few days in August and I intend to make use of her jam making skills !
Well ... not got a lot planned today, need to sort washing for holiday and chill out.
Hope you all have a great day