Sorry I did not mean to miss anyone out thanks also to Nellie, Rolicarpit, EAM28 but the list is getting longer....
Hi All, I have not has too much time to post as I went into work for four hours yesterday but am off today I am expectig a delivery and have the gas inspection people coming, believe it or not I feel guilty for not being in work.
Its good to hear you all supporting each other.
Rosie good to hear you have at last had some rest, and yes I deffinatly would ask for a months supply of the sleeping tablet that they gave you so if you need then they are there, I know all sleeping tablets are addictive but used sensibly and when needed are life savers, you will be much stronger for at least 5 hours sleep at night.
Lovewine what a blow when you thought it was all over 😞
Thanks to Wildpurl, Jackie and Joan for all your support
No sign of an early post from you Rosie so I hope that means you have had a proper night’s sleep and nothing else. I hope all your attachments are bearable - I do so hate cannulas. I whacked mine badly (klutz!) after my op and caused a huge bleed under the skin and I now have a funny permanent lump in the vein called a knot (don’t know what it actually is) Not a problem except one less vein for the chemo.
Lovewine how disappointing and worrying for you to be given such news I agree I assumed the chemo would zap everything. I live in fear of my follow up appointment next week as I am not convinced everything is quite right under my arm either. Two more Tax sessions - I think I would pack my bags! Brave you.
Cassie what an incredible list of ops - you really have been through it recently. I really hope your thyroid worries turn out to be minor it would be incredibly bad luck to have yet more procedures.
Wildpurl I am sure your bloods are ok - the machine had broken when I did mine last time and they said they would call with the results but didn’t. I went to chemo as normal and nobody questioned anything so I assume they were ok!? Good luck with the delightful steroids - wicked evil things but I guess they work!
Joan I am glad to hear you had a good birthday. Drain cleaner down the PICC line sounds yucky! I sympathise over the waiting, maddening to be told the consultant called when you know he quite definitely did not. It is so frustrating - I hate it when we end up having to get husbands to help fight our corner; it’s quite a relief when they do but should not be necessary in the first place.
Jackie I hope the SEs are not too bad this time. The taste thing is a real bind I ended up putting Worcester sauce on almost everything last time. I was permanently hungry as I couldn’t face eating a lot of things but have more than made up for it since! Dread to think how much weight I have put on!
Rolicarpit I hope the cat is OK!! I took my two dogs for their final follow up yesterday and am glad to say all is well. Mum has had 3 operations since Christmas so has been in the wars too, and pup has a skin allergy to something which I have struggled to keep under control. He’s doing ok on half a piriton twice a day but not ideal as it must also make him sleepy. I have been told I can try him on clarytin so he can have the rest of my packet! Magic stuff obviously! I hope you enjoy your holiday.
Think that’s everyone for now.
I have promised myself I will actually do some jobs today and not just sit about - so we’ll see!
Good luck for the day ahead everyone.
Wildpurl and Lovewine. No, no answers yet, very frustrating. Yesterday had unanticipated visit to the hospital because the PICC line was blocked so the District Nurse couldn't do my bloods. fortunately all sorted with the equivalent of drain cleaner! Husband took the opportunity to try to find out what was happening about the report; he was told that a consultant had rung me on Friday. Well no, I sat by the phone all Friday and there was no call and no message. He has now gone on holiday. The other one was apparently around yesterday but no-one knew where he was or how to contact him! Today he is in another hospital so wouldn't be able to contact me! We have asked either that he ring, or email me, or we have an appointment on Friday when I am due last chemo. I think if nothing has happened by then my husband will be making a real fuss in the clinic.
Lovewine, just seen your post. How disappointing and frustrating. More TAX or mastectomy, devil and the deep blue sea. And the uncertainty is probaby the worst thing of all, you just don't know what to prepare yourself for.
Wildpurl, hope your bloods were OK and you get the go-ahead for Friday. At least you had the excuse of chemo brain when you made your banana cake. a while ago I made one of my most reliable puddings when some friends came to support (chocolate layer pudding sponge with a layer of chocolate sauce underneath). It took far longer than usual to cook and didn't taste right although everyone bravely ate it, though no-one had seconds. I was mystified and thought it must be because I had moved it between ovens. it ws only when I went to make my Xmas puddings that I realised that I had mistakenly filled my SR flour canister with icing sugar! Fortunately the diabetic guest passed on it.
I had a lovely weekend with the family but absolutely knackered on Monday. Really missing my i-pad, means I can't get on line to this forum unless I go and sit a the computer, which is one reason I haven't posted. Hope will get it fixed on friday. My birthday today. Got a funny card from husband with a picture of two nurses and a drip, and the text 'At her request the birthday girl was about to be hooked up to a drip full of Pinot Grigio' I wish. Off to reflexology this afternoon. .
Rosie, so pleased the op is over and amazed that you have felt well enough to get on line. Hope you manage to get some sleep tonight and that tomorrow you will be in your own bed. But at least you have been able to eat your beloved Marmite. I'm one of the can't stand it brigade while my husband loves it.
Cassie, what a rough time you have had with all those ops. You must be something of an expert on hospitals now. I hope you don't need to have yet more surgery. I had wobbly legs all through FEC, it's been rather better with TAX.
Nellie, I'm glad you managed to get some independent advice on the interval between chemo and radiotherapy; it helps to have a tame oncologist to consult. No wonder you felt so terrible after your first TAX, it obviously had a major effect.
Well done those of you who have managed to go to work. And TiJ tennis? Amazing.
Apologies to those I have missed.
Out all day tomorrow and Friday so hope I don't miss too much.
Ooooh! Good news! Dear Big Bro asked a Professor about the gap between Chemo and Radiotherapy. Basically 12 weeks is the cut off and it does not matter when you start within that time. The most important thing is to not have any days off. As the time my oncologist suggested included a bank holiday, and a day the hospital is closed due to the Nato summit I am better off delaying anyway. There is a God!!
Tlj - Tennis??!!! I feel really bad now - more effort on my part required to get out and about. I sit and think what I would like to do, then go for a nap instead! I’m not sure if I am actually tired or if I pushed myself a bit I would manage to do more. Half of me says I am perfectly normal and healthy, then the other half says I was filled full of poison last week so I’m not!
Cassie I am sorry you may have Thyroid issues to deal with in the future. I believe drugs can modify a lot of thyroid function but even in a worst case scenario the operation although delicate is very superficial and recovery rapid so try not to worry too much. You really have been in the wars to have 7 ops in 4 years - quite impressive!
Lovewine I hope bloods were OK? LAST ONE! I wont miss the needles when its all over!
Anyway it is light enough now to go and water the garden. I was upset to find a lot of my greenhouse tomatoes have blossom end rot due to erratic watering which I have had to pick off. There are still quite a lot left though and they are just starting to redden - yum!
Have a good day everyone,
Morning Rosie - still posting in the wee small hours I see! - wish i could bring you a cup of tea with cold milk!
I hope you can get out of bed if you need - is there a button for emergencies?
I can’t sleep on my back either so I know what you mean, I guess you can’t lie on all the drains and wound sites. I hope you have managed some sleep though. Did the blood go in ok over night?
How is DH managing with his wound? He will have had to drive even if it’s very sore so I hope it has started to heal up quickly.
Bye for now
Evening ladies,just popping in to say a quick hello! Have been trying to catch up - only one more page to go but tired now so will post properly tomorrow.
So glad the big op is over for you rosie & hope youre not feeling too groggy or tender. Even though not been on - i was thinking about you on monday.
Hope all ok you lovely lot,catch up tomorrow.