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Anyone due to start chemo April 14??

Lovewine
Member

Re: Anyone due to start chemo April 14??

Lovely to hear from you Joan, hope your recovery is quick, mo Hayder books are very gripping and gruesome! Jackie recommended them after I read " eeny meeny" which is a richard and judy book which I also enjoyed!(gruesome too) , I have started with mo Hayders first book of the jack caffrey series which is called " Birdman" I am now reading the 2nd one.
Jackie, yes we would make good hospital companions! I now recognise a hospital letter a mile off and have almost panic attacks bringing myself to open them! Is your appointment on 18th august to discuss surgery or the actual date of operation? Hope you have a nice evening with your son after football, at least you has some time to recover when feeling not so great, it must be very hard when you have younger children to look after, I have had tingling in my hands and feet too.
Have noticed also my nails are disgusting - brown halfway down,they look awful.
Jos, sounds like you are busy with all those appointments, we all seemed to have had our share of being down in the dumps, not surprising really is it with all thats going on for us all. I can relate to wanting normality, I have found that very important from the start of all this.
Rosie, hope you have had a good day so far, people do say strange things don't they! Surely it's obvious you are not able to get about visiting at the moment! When I was feeling sick on chemo, various people said how they would like to take me out to lunch to cheer me up!
Wildpurl, hope you accomplished what you wanted to do today? And your shopping trip to marks and spencer was successfull!
Havnt heard from Eam for a while?
hope you are ok and maybe busy with your little girl? Hope everyone else is doing well.

rosie14
Member

Re: Anyone due to start chemo April 14??

Joan so glad that you are back home and do hope that results will be positive. Sorry you picked up a cold. You were lucky to get away with no drain! The pressure bandages are quite tight and I have found them very hot in this climate but it does give you a sense of security!
Get plenty of rest it will be good to,be in your own bed tonight! X
joan47
Member

Re: Anyone due to start chemo April 14??

Goodness, I've only been off the forum for a couple of days and suddenly there are loads of posts. Jackie, welcome back. We had been wondering whether you were OK. Sorry you have been down in the dumps. Jos too. I think several of us experienced that after the end of chemo.

Back home now from hospital. All went to plan and treated very well so just have to wait now to see if successful. I'm OK although like a couple of other ladies I have picked up a cold. Have to wear an elastic pressure bandage round boobs for 5 days because I am at greater risk of bruising because of having the blood thinning injections but fortunately got away without having a drain. For those of you having a wire guided WLE it was quite time consuming but otherwise OK. I had mine through a mammogram but fortunately they use less pressure than usual. The radiologist was much more positive about my MRI results than anyone else has been which gave me a bit of a boost but the surgeon is still hedging his bets. I hadn't realised that when they do a WLE they remove tissue right back to the chest wall, so I think I' may have quite a dent. Also discovered that I am anaemic, though not sufficient to need a transfusion. Think that May be why I have been feeling so tired and wobbly. On the positive side though my blood sugar level is back to normal, so it looks as if the raised level was caused by the steroids. I was also relieved that they only required me to remove the nail varnish from one nail so I didn't have them bitten to pieces before I got into the operating room. Mind you, that nail looked pretty disgusting, very brown halfway up.

Jackie, I have numbness and tingling in my fingers and feet, especially on the soles. I have been told it is peripheral neuropathy. What a shame about your LGFB course. But it might be more beneficial anyway once you are over the effects of chemo. I went earlier on and although there were some useful tips I haven't been able to use many of them other than filling in my eyebrows because my eyes have been so sore and runny that putting makeup anywhere near them had been impossible.

Lovewine, good luck for tomorrow. It's natural to be anxious about surgery but for me so far it has been fine.

Rollicarpit, good news about your hair. I have no sign of new growth yet although what remained after chemo seems to be growing.

Reading has bend my lifeline through all this. Currently having a binge on detective novels, linked to a book group meeting discussing fictional detectives and their sidekicks. Ha et read any Mo Hayder, though, are they very gruesome?

Rosie, hope you continue to recover and that OH doesn't have to have a skin graft. You certainly seem to be getting out and about. I could almost taste those grapes.

Wildpurl, hope the weather is good for your projected trip to Polesden Lacey.

rosie14
Member

Re: Anyone due to start chemo April 14??

Jos good to catch up with you sorry you have been feeling down in the dumps too. Do you think it is because you are still suffering from your oral thrush and that could be getting you down. You seem to have been really busy with appointments and getting things sorted. The counselling sessions sound very good our families must get very fed up with living life in the cancer zone. Several people I have seen recently have said I wanted to come and see you but I didn't like to intrude. Another last night at the restaurant said if you get fed up come and have a coffee with me I am always in the house. She lives 2 Kms away how did she think I was going to get there? Drive !!!!! Walk!!!!' I don't think so!
Hope everyone is having a good day! Xx
jos
Member

Re: Anyone due to start chemo April 14??

Hello All

 

I've been off the Board for a few days dealing with appointments and general non-cancer life problems!  Just had a quick catch up with posts.

 

Joan - I hope surgery has gone well.  I have been told I might have a wire-guided op.  I think I was given a tentative date for 2nd surgery (LICAP flap reconstruction) as I am keen to get it done whilst my sister is here from NZ and can look after me (and small daughter) post op.  Of course, it does depend on how well the first one goes. 

 

Lovewine - good luck with appointment on Thursday.

 

Wildpurl - Snowden in September!  Go for it!  I'm ER+ and have cut down massively on dairy although I figure if I find alternatives the majority of the time, the odd cheese sandwich or ice cream won't make too much of a difference.

 

Rosie - sorry to hear about the stitches but glad you are having a nice time with your son.

 

Lisa - glad you are doing pretty well.  Must be exciting to have the new school.

 

Jackie - really sorry to hear you have been down in the dumps.  I have been too these past few weeks.  My low moods seem to have been connected to coming off the steroids each cycle but now they are popping up randomly, I think partly the cancer and partly other challenging things going on in life.  The Maggie's Centre offers some free counselling so I've had one assessment session and am on the waiting list for a semi-regular appointment.  I think it will help to be able to talk everything through with someone outside of my family and friends.

 

I seem to have lots of appointments still.  Saw breast care nurse last week to go over surgery, saw oncologist yesterday and have just come back from pre-op appointment which was efficient and straightforward.  Tomorrow is the appointment with the radiologist and next week another appointment with the surgeon.  I still have not decided whether to have node clearance surgically or have radiotherapy to the nodes after surgery. I am leaning towards radiotherapy as long as there is not considered to be a big difference in rates of recurrence. Other than that all is ok.  I feel quite well, if a little tired, and am walking and doing exercises every day.  My hair is sprouting, eyebrows and nails hanging on in there!  Oral thrush still not gone.  Planning to return to work on 1st October but on 3 days a week and some of that working from home.  Just want to get back to some kind of normality now.

 

I hope you all have a good day, whatever you have planned.

 

x

rosie14
Member

Re: Anyone due to start chemo April 14??

They need to do a heart trace Lovewine to make sure the chemo drugs haven't effected the heart. The first 4 chemo sessions caused me an issue and that is why I haven't had herceptin yet.
Jackie don't worry about surgery especially if you have had a c section! You will feel better once you have had your surgery appointment and can prepare for whatever you will be having.
Enjoy having your son back! Sorry you are having wig problems can you change the parting yourself? I had tingling in hand and feet and numbness it's quite alarming but comes with a build up,of chemo it was also worse after surgery! It's much better now although still get tingling in some toes from time to time! Hope your poor dog is better soon I guess the tablets upset his stomach?
Jackie09
Member

Re: Anyone due to start chemo April 14??

Morning everyone,

Lovewine - yes I'm a chemo before op girl! I've got my first surgery appt on 18th Aug. My lump was 66mm and one of the reasons they suggested chemo first was to try to shrink it so I could maybe have a lumpectomy rather than mx. I haven't really felt it since dx, but the onc said it was getting swishy and shrunk a little. TBH I don't think I mind having a mx as long as all the lump is gone. I am super anxious about surgery as I haven't had any before (except C - section and I was so tired they could have done anything!). And you're so right - there doesn't seem to be any end to it. I think we would be much happier attending appointments together - we both know exactly how the other is feeling! Sometimes I think my husband will have to drag me into the hospital :(. Am glad you are enjoying the books - I have just read the latest Chris Carter book (series about LA detective) which might just be my favourite - highly recommended.
Wildpurl - yes that's the time frame I'm in. I so looked forward to reaching my last cycle I really don't know what happened. I think it's a combination of the reassurance of treatment and the unknown of the next step. Enjoy your lazy day today. I have my son back from his nannies now. He stayed while I had my bad week. He's just off to football this a.m. so will be entertaining him this p.m.
Rosie - glad your meal was a success. Your trips out keep reminding me of our holidays in Cyprus - especially when you said you were sat in a beach bar! My wig certainly got a test yesterday with the wind - luckily it passed. I'm not too happy about the front - I'm sure some of the strands have come out and it's obvious. I went back to the shop, and had it washed and blow dried - he made the parten poker straight which has made it even worse. I felt really cross, as when I first got it, I really loved it as it looked just like my own hair.

My hair is starting to grow back - but my eye lashes are coming out. Not sure what is happening to my depleted brows though - they seem to be sprouting in some areas but not others!! My nails sometimes feel sore, but have been persevering with the navy polish. One toe nail is going black. Is anyone else experiencing tingling in their hands/feet? I think it maybe peripheral nueropathy? On the sleep side - I took sleeping tablets whilst on the gscf injections - but not sure how well they worked. But this did coincide with our dog being poorly. He got so excited with the thought of a walk, he jumped off one too many steps. We have a slate floor which meant he skidded and he hurt his leg. He was given some pretty strong meds - the vet said it would be similar to us feeling "high". The past couple of nights he's been barking to go out at about 4a.m. with a runny tummy. So that hasn't helped. But touch wood these last 2 nights have been uninterrupted - not even for a wee! So am hoping that continues.
Hope everyone has good days x x
Lovewine
Member

Re: Anyone due to start chemo April 14??

Yes Rosie, you definitely need time to get over everything! I have just had an appt come in post for 2 days before my surgery for a heart scan! Prior to starting herceptin the letter says!!
Wildpurl, know what you mean about shopping, I couldn't wait to get in to marks and Spencer's last week! Good luck with trousers!
rosie14
Member

Re: Anyone due to start chemo April 14??

Wildpurl clothes shopping sounds good at M&S hope you manage to find some suitable trousers!
Wildpurl
Member

Re: Anyone due to start chemo April 14??

Morning ladies, I have enjoyed a nice lie in this morning.
I'm glad you enjoyed your meze rosie.
Now I have a day off to myself I find myself wanting to get out and do something, I quite fancy going clothes shopping! M&S have some nice work trousers I fancy trying on.
It is a nice day so far, a walk might be enjoyable and I have Pilates this afternoon. Oh dear, decisions, decisions!
Right, I had better get on with something!
I hope you all have good days.
rosie14
Member

Re: Anyone due to start chemo April 14??

Good luck tomorrow Lovewine hope you get away with as little surgery as possible!
It will be good to work and take your mind off appointment for a while! DH is worried about ripping his wound open as stitches have been taken out and it is only just holding!if it doesn't he will have to g
Have a skin graft and we don't want that!
Nothing has been said about radiotherapy yet or herceptin. I think I need at least another 2 weeks to get over my ordeal!
Don't work too hard!!!!
Lovewine
Member

Re: Anyone due to start chemo April 14??

Morning Rosie, glad you had a sweat free evening, I think the wig really adds to it too, what have you got planned today? And yes Thursday is when I see the breast surgeon and also have ultra sound on lump to establish what she is going to be doing! Appointments seem to be coming thick and fast at the moment, that adds to my anxiety( I think I am correct in saying you feel the same Jackie?)-I want to run away from the hospital, but know I can't!!
I am working for a while today again so that takes my mind off things a little, hope you are healing well and also D/H is doing well too, when do you expect to start radiotherapy and herceptin? Have a good day today.
rosie14
Member

Re: Anyone due to start chemo April 14??

Lovewine I couldn't read a murder before sleep I can't even watch Crimewatch!!!! My books are far more light reading.
Lovewine Thursday seem to ring a bell,for you is this when you are having surgery or is it an appointment prior to,surgery. It is only natural to be anxious about your surgery but you won't know anything about it until you wake up,and it is over! I keep,saying to everyone please don't be put of by my track record as I had surgery just one week after final chemo and although both the surgeon and myself never mentioned or blamed this I know that it must be responsible as I used to,heal so quickly.
Wildpurl your plans with NT sound good I hope it doesn't rain for you! My goodness preparing the spare bedroom for decorating that sounds like a mammoth task! Glad your ankles have stopped swelling so much Pilates will help won't it?
Your list for the day sounds like one for the week. Don't overdo it will you?!
Have a good day everyone ! Xxx
rosie14
Member

Re: Anyone due to start chemo April 14??

Managed it Lovewine we sat outside which was a little cooler and I had two chilled diet cokes!
Hi Louise thank you for your advice re bras. I could have worn one of my old ones and stuffed it out on the one side the left side is so padded that is already has a mound!!!! So glad to hear you are coming out of the chemo fog I am sure radiotherapy won't be as bad! I am supposed to have radiotheraphy also but because of ongoing complications following initial surgery am not yet in a fit state.
Hi Jackie yes we did mange to find a pleasant spot and I didn't sweat once!
That's great that you have finished chemo too you must be feeling so much better now and you taste will be returning and also you will find you sleep better!
Sorry you didn't find your look good course and I can quite understand your fear of getting your wig wet! Whilst in UK at the wedding waiting ing outside the church my hat blew off and I was terrified that the wig might follow!
I have just deleted the rest of my post so,I will post this and start a new one!!!!! X
Lovewine
Member

Re: Anyone due to start chemo April 14??

Evening Wildpurl, strangely I seem to have a cold too, my eyes watered badly the last couple of weeks, that has now stopped thankfully.
You seem to have a busy day planned tomorrow, hope you accomplish what you want to do!
It's nice to have an outing though to look forward to, my plan is to do more exploring/walking and visiting new places when i am hopefully up to a better stamina than at the moment!
Wildpurl
Member

Re: Anyone due to start chemo April 14??

Evening everyone.

 

Jackie, I am sorry you have been feeling low. I went through a very low period the first two weeks after my final chemo, and I think we can all empathise with your feelings.

 

Rosie it sounds as though you are healing well and also enjoying having your son and his fiancee staying. Enjoy your meze!

Lovewine I too have a kindle and read every night before going to sleep and in the morning if I am not getting up to go to work. I find it very relaxing.

 

Lisa I so agree that if people see you in the building they think you are well and fit to do the job! I have to hide or go our for a walk to get a lunch break otherwise people just keep coming to see me. Glad to hear that the fitness improves in due course.

 

I have tomorrow off and I have a huge list of things I want to do, housework, gardening, Pilates, cooking - might have to get a bit more realistic. My eyes have stopped watering  which is really good, however I appear to have a cold now, which is quite irritating. My ankles are still swelling but less than last week. 

 

We are hoping to go to Polesden Lacey this weekend with our NT membership, unless it is wet in which case we will go somewhere that is more house than garden. Polesden Lacey has both, with walks you can do around the grounds, and a nice coffee shop. On Saturday I am going to start preparing the spare room for decorating, only washing down and starting to do some filling, we will see how I get on.

 

Joan, I hope all went well today and that you are now recovering.

Lovewine
Member

Re: Anyone due to start chemo April 14??

Hi Jackie, I hadn't realised you Also had chemo before surgery? So you there are a few of us left after Rosie and Joan have now had theirs( Joan hope you are recovering well) there seems to be yourself, jos and me!
Have you had a date and what surgery are you having? Must confess I am getting very anxious about mine now! There just seems no end to all the worry and anxiety. Hope you are not so " Down" today?
On a lighter note, must thank you for recommending the mo Hayder books, I am really enjoying them and find a good gruesome murder a distraction before sleep!
Jackie09
Member

Re: Anyone due to start chemo April 14??

That sounds like a lovely evening Rosie - I hope you find a nice breezy spot. You always help with your thoughtful comments x x
Hi Louise, glad you're feeling a bit better. I had my last one 31st July and had my first outing today!
Lovewine - thank you fir thinking of me x. I was saddened to read of your limbo re your chemo. I know how much we all have looked forward to the end - but as we have all come to recognise - this is no straightforward path.
Joan - hope your op went well today

I was supposed to be on a look good feel better course today. The hospital grounds are huge and in typical fashion, I couldn't have found a spot further from where I needed to be. Despite having a geography degree I couldn't find where I needed to be! I got so tired walking around looking I gave up - plus I got caught in a mini down pour and was worried about my wig!
This has taught me my energy levels are very low so I need to make sure I get out with the dog to build myself back up ready for my op!
Have a lovely evening everyone. X x
Louise3721
Member

Re: Anyone due to start chemo April 14??

Hi Rosie if u can't wear your prosthesis try a moulded padded normal bra it works well. Ladies found some fab bras that actually fit after no luck with M and S John Lewis. Asda are great fit and fab price plus very pretty.

Finally coming out of chemotherapy fog radiotherapy next month
Lovewine
Member

Re: Anyone due to start chemo April 14??

Oh Rosie, no wine with mezze- like having strawberries without cream! Hope you are going to make up for it when you have finished antibiotics!! Still be nice though to get out with D/H and family, you will be hot though with dressing and a scarf! Not to mention the wig!
rosie14
Member

Re: Anyone due to start chemo April 14??

Going out for a meze tonight will have to make a bit of an effort on the appearance front it has been very hot today! Will have to wear the wig can't wear my mastectomy bra with the post op stuffing as I am bound up on the left side. So will have to drape scarf round my neck. At least when I was in UK I could wear them both. I have to keep,the latest dressing on until Thursday . DH asked if I could drink wine with the new antibiotics and the surgeon said absolutely not!!!! So,that's another 4 dry days! A meze without wine HMmmmmm!
rosie14
Member

Re: Anyone due to start chemo April 14??

Lisa and Wildpurl I know the NT tea rooms have very good cakes!!!'
rosie14
Member

Re: Anyone due to start chemo April 14??

Lovewine a very good plan to make time for yourself so important after all we are going through! Yes I am HER 2 poss !
Dont work too hard today !!!!
rosie14
Member

Re: Anyone due to start chemo April 14??

Lisa our son and his fiancée are with us for 9 days they have been here since Friday. He is being a great help and doing some of the jobs that DH and I are unable to do . He is going to wash the dog soon!
rolicarpit
Member

Re: Anyone due to start chemo April 14??

Lovewine... Have a good day at work, don't overdo it though !
rolicarpit
Member

Re: Anyone due to start chemo April 14??

Hi Wildpurl ... We have just joined the national trust too after our holiday down South, even though there aren't many properties in this part of the world, it was still worth it whilst we were away. It seems good value and usually good tea shops ! Hope you get to visit this weekend?
rolicarpit
Member

Re: Anyone due to start chemo April 14??

Hi Rosie, I think my hair has been growing for about a month or so now, although it's only the last week or so that anyone else has been able to tell, I didn't use the cold cap either so lost it all. It's still fairly fluffy and no where near enough to do anything with but am proud of my little bit all the same haha. Will see how I get on in the next couple of weeks re work and then probably a return to work plan of reduced hours from the beginning of term but I know from experience once you're in the building, people see you as fit and well and fully able to do your job which I'm not sure I am at the moment.

How long is your son and family with you for?
Lovewine
Member

Re: Anyone due to start chemo April 14??

Hi Lisa, sounds like you are getting back to some kind of " normal " life and feeling stronger, that's great, I am still in the Coconut phase! My nails are awful too, really brown and ridged, no eyebrows/lashes either.
Rosie, sounds like a relaxing day in store, that will be lovely, I think hair starts to grow quite soon after chemo finishes, but maybe yours has stayed in hiding with all your tribulations over last couple of weeks!
Regarding dairy and ER+ I think a lot of ladies cut it out as Wildpurl says because of the hormones from pregnant cows is not supposed to be good if you are oestrogen positive! I am not ER +, am HER2+ so mine is more a personal choice for animal welfare concerns! I think you are HER2+ too Rosie?
I am too at the stage of feeling like I have climbed a mountain when going up a few stairs, but I feel a little stronger each day, am working most of today, so will be tired tonight! Since this illness I have rediscovered how much I enjoy reading , I was bought a kindle for my birthday in June and now read in the evening and first thing in the morning- I make a cup of coffee and take it back to bed and read for an hour instead of rushing around doing chores before I leave for work- making time for myself for a change!!
Jackie, hope you are ok, Joan , all the best and am sure I speak for us all on the April thread we will be thinking of you today.
Wildpurl, have you decided where you are visiting this weekend with your national trust membership?
rosie14
Member

Re: Anyone due to start chemo April 14??

Hi Lisa good to hear from you. Glad you are feeling better and have more energy. I still feel the stairs are the mountain stage getting washes dressed and making breakfast wears me out I am ready for another sleep! Glad to hear your hair is coming back I am pretty sure that mine isn't! Do we know how long after chemo it grows back I didn't have a cold cap!
Hopefully your nails will improve soon!
Don't get sucked in full time too soon ace yourself it is very energy draining. I know by 10.30 on the first day of term I had forgotten all about the holiday and needed another holiday!!!
rolicarpit
Member

Re: Anyone due to start chemo April 14??

Good morning everyone,

 

Joan good luck for today, hope all goes well, Im sure it will.

 

Rosie - glad to see that you are on the mend, sounds like it has been a bit of a journey but you are clearly made of strong stuff and its lovely to read that you enjoyed the wedding and were able to get there and back safely. 

 

Lovewine, appts definitely rasie the anxiety levels, hopefully Thursday will put some of your anxieties to rest, was really pleased to read that you didnt have to have any more chemo, must have been such a relief.

 

Wildpurl - hope your ankles are settling down, sounds like you are getting out and about and being very productive. I know what you mean about fitness but just wanted to say it does get better, I defintiely feel fitter and can manage stairs etc now without feeling like Ive just done a mountain stage of the tour de france !

 

I'm doing pretty well, starting to feel a bit more normal again, we took occupation of our new school yesterday ... very exciting and a little scary but a great day, lots to do now though ! Im still not sure about how and when I will return to work properly but am able to think more clearly about it all now. Most of the effects of the chemo have now gone, sleeping better, less anxiety and mood is good. The only left over bits are my nails are shocking ... all brown and nasty but getting better, tiredness is still getting me although less so now I can generally sleep through the night and not sure how much of that to attribute to radiotherapy anyway adn the worst part for me is hot flushes ... hoping they are going to stop or at least settle down soon. My hair is definitiely making a come back and looks like its normal colour as far as I can tell, just going past the coconut head phase lol ... eyebrows and eyelashes still distinctly missing but can't have everything !

 

Anyway, hope that everyone else is doing OK and enjoying various holidays and normal days. Have a good day all

 

Lisa

rosie14
Member

Re: Anyone due to start chemo April 14??

Wildpurl I haven't heard about the milk issue. I use skimmed milk and low fat yoghurt and I don't eat much cheese tends to be feta if I do!
Hope you all have a good day DH has some meetings this am son and fiancée are planning a relaxing morning round the pool!
I shall enjoy sitting in my reclining chair in the shade! Got to go and get up now that's a feat in itself I have to sponge the top half as I have a dressing for the next 3 days and shower the bottom half! At least I can manage myself now and DH doesn't have to wash me!
Positive thoughts and all good wishes to Joan today! Xxxxx
rosie14
Member

Re: Anyone due to start chemo April 14??

Jackie it's lovely to see your post so sorry you are feeling down in the dumps can we ladies help you? Sending positive thoughts to you! Xxx
rosie14
Member

Re: Anyone due to start chemo April 14??

Lovewine I went to bed at 11pm in the end I am now managing to concentrate on reading and able to sit up in bed so this helps with the sleeping. Since the chemo is out of my body I have managed to stay in bed after getting out to the toilet my mind doesn't seem to be racing as much! Also I have had to get used to sleeping on my back!
Wildpurl
Member

Re: Anyone due to start chemo April 14??

Hi Lovewine, I switched to soya milk quite a few years ago as I prefer the taste. I use it on cereal and in coffee sometimes but I still cook savoury foods and make sauces with cows milk. I do eat yogurts as well, and a little cheese. Since I read the report about the study of the effects of consuming high fat dairy on recurrence rates in ER+ women I have been much more careful about how much cheese and yogurt I eat. This is thought to be linked to oestrogen in high fat dairy because the cows are pregnant. You are right that this is also an animal welfare issue, so more than one reason for avoiding.
Lovewine
Member

Re: Anyone due to start chemo April 14??

Hi jackie lovely to hear from you , sorry you have been feeling low, think we all sympathise with how you feel, take care of yourself.
Jackie09
Member

Re: Anyone due to start chemo April 14??

Hi ladies,

Joan - Just wanted to pop on to wish you the very best of luck tomorrow and to let you know I will be thinking of you x x

Haven't posted in a while - been feeling very down in the dumps - but have been reading as ever! X x
Lovewine
Member

Re: Anyone due to start chemo April 14??

Envious of your late lunch Rosie! Far more exciting than kitchen cupboards , the grape vines sound lovely, nice and shady too.i will be going to bed about 10.00 p.m too, tired from all my cleaning activity!
Wildpurl, like the sound of cake and latte, have you cut out dairy since being diagnosed? I have soya milk as don't like the way cows are continually pregnant, havnt drank milk for a while because of the animal welfare issue!
rosie14
Member

Re: Anyone due to start chemo April 14??

Ha ha Lovewine loved the way you dried out!!!
Wildpurl
Member

Re: Anyone due to start chemo April 14??

Well done for doing your cupboards Lovewine, I also find that housework and gardening is good for taking my mind off things. I'm sure you will feel OK once you know exactly what is happening.

Joan, good luck for tomorrow, I'm sure it will all go well.

Rosie glad you have the old stitches out at least and hopefully the new ones will come out soon. You and DH just need to rest and recuperate! It's good your son and fiancée are doing a lot of the stretching and lifting jobs.

I have been at work today, don't feel too tired and ankles only slightly swollen. Also think I am managing stairs a little better, still breathless at top but not so much. Went for a walk at lunch time and got caught in a downpour, had to shelter under a tree! Afterwards I needed a soya latte and a piece of cake to help me dry out 😉

Looking forward to a nice relaxing evening now.
rosie14
Member

Re: Anyone due to start chemo April 14??

Joan be thinking of you tomorrow and hope all goes well. Glad you have a new breast care nurse who is more reliable!
Lovewine well doe for getting those cupboards tidy I was supposed to do mine before surgery but I was either too tired or too hot!!'
I am feeling very tired tonight and will probably go to bed at 10.00pm. We had a very late lunch in the hills on the way back from Limassol.as we had son and his fiancée with us. We sat under an amazing grapevine with bunches and bunches of grapes hanging down, we were given some at the end of the meal. They were deliciously sweet!
Hope you all have a good evening! Xx
Lovewine
Member

Re: Anyone due to start chemo April 14??

Joan, will be thinking of you tomorrow, hope everything goes smoothly with your surgery! A 2 hour sleep will do you good!
Rosie, poor you and D/H it's a long process for healing! At least you have your son and fiancée to take your mind off things a little.
Yes you are right about the uncertainty , I find it the worse thing to deal with, have kept busy and managed to clean out all my cupboards and now feeling quite virtuous!!
joan47
Member

Re: Anyone due to start chemo April 14??

Rosie, what a pity you are still having to cope with stitches. Hopefully they will be out next week. Also that your husbands anxieties about your back prove unfounded.

Lovewine. Hope everything goes well on Thursday. It is the uncertainty I think that is the worst. Well done for tackling your kitchen cupboards. I had intended to do a bit of gardening this afternoon but instead slept for two hours!

Administration in the private hospital seems no better than in the NHS. Had a letter today confirming my op tomorrow but telling me (wrongly) to come in 2 hours later than I had previously been told. Fortunately I was able to check with the breast care nurse. I was also relieved that my new breast care nurse at the NHS hospital rang today and confirmed that she would be doing the follow up.

Hope everyone else is doing well.
rosie14
Member

Re: Anyone due to start chemo April 14??

Lovewine hopefully the appointment on Thursday will make you feel less anxious it's the next part of the journey to beat the cancer! Hope you succeeded with your cupboard tidying?
I have been to see surgeon today he took out all old remaining stitches but but new ones in the holes he had left on Friday I just knew he would! So stitches for another 7-10 days! DH had his taken out bit is terrified of his back as it is only just holding. He has some plastic stitches and dressing for 2 days! What a slow process we are both experiencing . Still as long as we get mended. Luckily son and his fiancée are doing a lot of outs stretching and lifting jobs!
Lovewine
Member

Re: Anyone due to start chemo April 14??

Morning everyone, nice sunny day here after yesterday's wind and rain, am working half the day today and then trying to get some order back in my kitchen! Tidying and cleaning out cupboards .
Hope everyone is doing ok, a new week , let's hope it's a fairly good one, I am going to see surgeon on Thursday to discuss the surgery and have an ultrasound on my lump, am getting quite anxious about it all again now,
rosie14
Member

Re: Anyone due to start chemo April 14??

Joan I have to go back to the surgeon tomorrow and take it from there I am well padded! I have enjoyed an evening on my sun lounger and am still on it did have a glass of Rose earlier!
Wildpurl,glad you saw the cycle race hope you didn't get too,wet!
Where the windfalls apples in the crumble? Yum yum!
Lovewine pear and blackberry crumble sounds wonderful! I am sure you will,be fit for,a walking holiday in October in East Cornwall. Have a good evening everyone! Xxx
Lovewine
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Re: Anyone due to start chemo April 14??

Hi everyone, I have just put a pear and blackberry crumble in the oven! Chicken and chorizo paella for supper, very nice too!
Great Wildpurl to see bike race, mount snowdon sounds good for September- a good target to aim for in fitness! I am hoping to go on our annual walking holiday in East Cornwall coast( fowey) in late October, depending on radiotherapy etc, really need to increase my fitness too, but as Joan says when you have 2 very active collies not walking them twice a day isn't an option!! Even when I feel crap I have to go out, but usually feel better for it.
Joan, all the best for Tuesday, I also haven't been told about further surgery for dent after lumpectomy, I am having same as you-WLE excision guided by wire! I am quite small chested and quite skinny, so not sure what I will look like!! More concerned the buggar packs it's bags and leaves me , sure that will change in time and will be concerned what I look like!
Rosie, hope you gave had a nice day with your family? Have you been lolling on your new chair again? - hope so!
Hello to all you other ladies too, whatever you are doing, hope your holidays are going well and you havnt been blown off the beach by today's remnants of hurricane Bertha!?
Wildpurl
Member

Re: Anyone due to start chemo April 14??

Hi Joan, glad you got your iPad replaced, nice to hear from you again. Yes I saw Bradley Wiggins and the whole Sky team as they cycled past at the head of the peloton! It's always fun to watch the road races go by, a huge mass of cyclists going very fast and then they are gone! There are also police motorbikes, team cars, the motorbikes with the cameramen at the back and a helicopter. It's quite a procession.

I made my scotch eggs, which smell yummy, and OH has made a windfall crumble for pudding this evening.

I do agree about the difficulty of walking uphill and up stairs. I am OK at home but at work there are four floors and I am on the second, so I force myself to walk up and down to meetings etc and not take the lift. I have to wait after two flights to get my breath back and be able to move my legs again, before going to my desk or into a meeting.
In September I want to be able to walk up Mt Snowdon so I need to work on this!
joan47
Member

Re: Anyone due to start chemo April 14??

TiJ, glad your echo was fine and that your skin is improving. Hope you have a lovely holiday.

Jos, hope you are not too anxious about lymph oedema. Interesting that you have a date for your additional surgery, my surgeon hasn't even mentioned filling in the dent which will be left after the WLE, but I guess that probably reflects the current uncertainty as to whether it will be sufficient. I have been told I am having wire-guided WLE. Are you?
joan47
Member

Re: Anyone due to start chemo April 14??

Wildpurl, as ever you sound very energetic, all that cooking and activity. Did you get to see Bradley Wiggins? Glad the swollen ankles are improving and you enjoyed your pampering. Fancy, having to get your legs waxed. No sign of that yet for me although I am more envious of you needing to get your eyebrows tidied. And as for oversleeping, wow!
joan47
Member

Re: Anyone due to start chemo April 14??

Rosie, so sorry you had problems when you got back to Cyprus and didn't get your stitches out as expected. Feeling fluid drain out if the holes sounds horrid, I hope you really are well padded. What's the next step? Your recliner sounds lovely, you deserve it. Have a great time with your visitors and don't overdo the hostess bit.