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Anyone due to start chemo April 14??

Lovewine
Member

Re: Anyone due to start chemo April 14??

Morning everyone, good to enjoy a glass or two of wine finally Rosie! Will be thinking of you today and your inflations!
I see surgeon on Monday, but results may not be back then, I really am hoping they won't need to operate further! And yes hoping for a lull in proceedings until girlfriend returns next week!!
Working this morning and then a little shopping this afternoon, bird seed and cleaning products!!
rosie14
Member

Re: Anyone due to start chemo April 14??

That's 3 on the grumpy step then, anyone else want to join us? !!'
rosie14
Member

Re: Anyone due to start chemo April 14??

Lovewine glad all is quiet on the western front regarding son and his girlfriend for now! I did have some wine tonight with the meal. The evening wasn't too bad even though it was work related' Glad you enjoyed your coffee with your friend.
When in look back on the last 6 months I can't believe what I have been through but Imknow it's not over yet!
When will you gets your pathology results back? I do hope that's you won't need any further surgery!
Lovewine
Member

Re: Anyone due to start chemo April 14??

Joan and Rosie, grumpy step too for me - my big toe nail is very painful and about to fall off too, finger nails are dreadful, look brown still and have what looks like water blisters at the top of nail- yuck
Lovewine
Member

Re: Anyone due to start chemo April 14??

Evening everyone, tij, sounds hard having your son at boarding school but sounds like he is settling well, you seem to be recovering your energy levels too , glad you enjoying your electric bike, I had problems too posting on the forum last night and gave up in the end.
Joan, chocolate and orange pot- how nice!! Am a firm believer in having a little of what you fancy- but indulging ourselves now I think a lot of what we fancy is needed more! I have taken off my dressings etc and looked at my wound and my boob has been moved and nipple repositioned and stitched back on! It looks better than I thought, but not breathing a sigh of relief just yet as may need further surgery when pathology results back, do you think surgeon will offer next year to give a better cosmetic appearance, that's what my surgeon suggested.
Rosie, good luck tomorrow for further inflations, feel so sorry for you having such discomfort and problems, doesn't seem to be getting much easier, surely doctors can do something about the inflations and associated problems? How frustrating. Hope your meal out was enjoyable and not too tedious if work related!
I am relieved to say my son appears to be a little less distraught today, no further contact with girlfriend which he is taking as good as at least she hasn't ended their relationship, I really hope when she returns to the u.k next week she can see doctor and resume medication, but I can't see it happening , so this rollercoaster will continue with their relationship! Wildpurl, think you have a point in saying family etc think we are stronger now to cope with their problems, must say I feel very drained after yesterday! It is much harder to comfort them as adults as you say Joan, I am surprised my bottom lip isn't red raw from biting it shut yesterday !
Apart from that, have had a fairly quiet day, met friend for coffee which was nice as hadn't seen her for ages and she loved my wig!!
Incidentally, have any of you had almost " post traumatic shock syndrome" now chemo is over? I have found that now the merry go round of 3 weekly bloods, onc appts and chemo I seem to look back on it all and feel very panicky at all that's happened, almost as if when going through it my brain seemed to block it all out( along with most things!) and now seem to be having a delayed reaction .
,
rosie14
Member

Re: Anyone due to start chemo April 14??

Tlj which Island do you live on I have been to Guernsey and Jersey.
Hope you hear from your son and he enjoyed his sporting experience!
Joan my friend came round this afternoon to do my nails and she said I have one lifting which I hadn't noticed. It doesn't seem right 2 months after final chemo!
I will join you on the grumpy step!
If you went for a 20 min walk you definitely needed the orange and chocolate pot!
It maybe worth having a word with the surgeon to see if he can level you up I am sure you shouldn't be left like that!
joan47
Member

Re: Anyone due to start chemo April 14??

TiJ, it is so frustrating when a post disappears into the ether and somehow it always seems to be the longer ones. You must must be so relieved that he has settled into his new school. How are you coping without him?
Glad that you are recovering your fitness levels. I have just been out for a brisk 20 minute walk and come back feeling very wobbly though virtuous. I don't suppose it has made much inroads into the rather nice lunch I had with friends though. Did I really have to have the chocolate and orange pot? I need to get back some will power.

Rosie, hope you have enjoyed your lazy day. Good luck with the inflation tomorrow, it seems so unfair that it is making you so uncomfortable after everything else you have gone through.

Lovewine, when your children are young it seems such hard work and you worry about them constantly but when they are distressed you can usually comfort them. What I hadn't anticipated was that the worry would go on as they got older but the comforting becomes harder. All you can do is offer a sympathetic ear but be sparing about the advice unless asked for. It's a positive sign though that your son felt able to go into work. Hopefully once she is back in England things will be easier.
Jos, glad the op went well.m Hope you can keep the pain under control with painkillers. It sounds as if you will have a very good cosmetic result. As the swelling has gone down on my boob I am becoming very aware that it is now considerably smaller than the other one and the nipple is about an inch higher and retracted. The oncologist has also warned me that it may get smaller with the radiotherapy. I know it could have been a lot worse and I am lucky still to have both boobs but still. I wasn't offered reconstruction at the time or soon after the op. I think the surgeon had to take more tissue than originally thought which is probably why.

Another grouse, about to lose the index fingernail on my right hand now to add to the two nails gone on the left and big toenail also loose. And I thought once chemo was over things would get better. Somehow it seems wrong to be grumpy at this stage but I am. Sorry.


Tlj63
Member

Re: Anyone due to start chemo April 14??

We live in the Channel Islands, so only a 30 min plane ride to the mainland. His school is close to the airport, so he can come home for exeats, half terms and holidays. His first assignment was to write an essay entitled 'my life in books'. That would have filled me with dread, but he seemed to enjoy it. I'm hoping he rings tonight as he was representing the school in a sports team this afternoon which, for my son is a real bonus as he is not a natural sportsman. Hope it went well.
rosie14
Member

Re: Anyone due to start chemo April 14??

Hi Tlj glad you are doing ok and that your son seems to have settled well. The first few days are the hardest and he seems to have got through these so hopefully he will be ok! Where do you live by the way? I am sure that your bike will help your fitness levels in time!
Tlj63
Member

Re: Anyone due to start chemo April 14??

Hello everyone. I wrote a long thread last night and just as I posted it the website crashed, so lost it. Anyway, I hope everyone is fine and enjoying the sunshine still.
We have returned from the UK, having left our son at his new boarding school. He has phoned every night and seems to be settling in ok. I'm so relieved, I couldn't bear it if he was unhappy. I'm sure he will have a wobble at some time in the next few weeks, but so far so good.
I had my 5th herceptin yesterday and am on to my 3rd week of tamoxifen. The hot flushes have definitely started, particularly at night. It will be interesting how it feels when the weather gets colder. You never know, I might be able to turn the central heating down which will please my husband. My hair is growing, but not very fast, so I think it will be at least another month before I can go out without something on my head. Otherwise, I seem to be recovering my fitness levels although still a long way to go on that front. Really enjoying my electric bike.
rosie14
Member

Re: Anyone due to start chemo April 14??

Lovewine good to hear that your son has gone into work and that you are having coffee with a friend.
I am having a lazy day today my friend is coming round this afternoon to do my nails! Have to go out to dinner tonight with a visitor from a university in the UK. Tomorrow we will be encounter to the North via the dreaded surgeon who is doing another inflation! I fear now that Im going to put up,with this ghastly pressure until I can have the operation to exchange tissue expanders for implants. Sadly I can't see this happening this year so I will just have to continue knocking my head against a brick wall. I feel like a balloon that will explode and I have barely started yet!
Wildpurl,how exciting your new bed is arriving hope it arrives on time!
I am just in awe of the owners of the villa opposite the other side of the ravine. They arrived from Ireland last night and at 10.55 am their shutters are still firmly closed and there is no sound! They both have loud voices and they carry! They are at least as old as us possible he is older. Even if I arrived in on an early flight I would still be around by 7am latest!
Wildpurl
Member

Re: Anyone due to start chemo April 14??

Good morning all,
I am glad to hear your surgery went well jos.
Lovewine, sorry to hear about your son's problems, I too have been through similar things with both my son and my daughter, it is so hard to see them unhappy but agree they have to work through it themselves.
I think that many people will have been worried about us during treatment and not said anything, now we seem to be recovering it will feel as if we can cope with hearing about their concerns, which we probably can, but it is all very draining!
Rosie totally agree that it is Mums who listen and support with these emotional things, Dads just get grumpy and think they should pull themselves together.

Tulamo good luck today with no. 5

I am at home this morning, about to start work, as the new bed and mattress are to be delivered. Very exciting and the delivery driver has just phoned to say they will be here in half an hour!
Lovewine
Member

Re: Anyone due to start chemo April 14??

Morning everyone, thanks Rosie and jos for the support, son is going in to work today after not being able to yesterday- all he did was pace around the house, blaming himself! I have found it quite a shock seeing him so upset as he is generally a happy, no nonsense person- good advice not to interfere Rosie , as hard as it is not too! Jos, you are right it does drag you down dealing with it!
Anyway, jos, hope you heal well and not in too much discomfort today, I too have childhood memories of my dad driving our Morris marina onto blackrock sands and me and my sister being delighted at thought we would be carried away out to sea! It hasn't changed that much at all. Also remember on the same holiday going up snowdon on the train and it breaking down halfway up and being stranded in the mist for hours( well seemed hours when you were 7 years old!)
Am visiting a friend for coffee this morning and having s hopefully easier day- but aren't they famous last words!!
Rosie, enjoy your day , you seem to be getting stronger in last week?
Hello to everyone else too!
rosie14
Member

Re: Anyone due to start chemo April 14??

Good morning Everyone!
Jos glad all went well with your surgery at least you are home. Keep taking the painkillers hope you had a restful night!
Lovewine all you can do is support your son through this it's no good trying to advise them it's deemed as interference they have to make their own mistakes at this age and we have to be there to pick up,the pieces. I was very distressed when my son was going through this as he was in France and I was in England. All phone calls were about how awful then situation with her was and Jos is right is does drag you down! At least she is not away for too much longer. I think you will find eventually if this continues he may move on to new pastures! But of course you can't suggest this you can only secretly hope! I think my eldest son was 23 when he was tied up in this relationship, I seem to remember it was around the time of our daughters wedding 10 years ago when they were both staying in our house when I realised how bad it was. They would argue and shout there would be door banging and they argued in French outside on the patio so the neighbours could hear!!' It was shortly after they had returned to France that she was sectioned and our son could no longer stand the strain!
Hope you manage to have a better day! Its very hard being a mum the dad's tend to sweep it under the carpet say how ridiculous and get on with their day!!!!
jos
Member

Re: Anyone due to start chemo April 14??

Hello All

 

Thank you for all the good wishes for my op yesterday.  It all seemed to go as well as could be expected.  I didn't even have to wait very long as I was moved up the list.  The surgeon said it went well and she seemed pleased with her handiwork which is encouraging!  I stayed in hospital last night but was home by lunchtime today.  It's pretty sore - a lot more so than the last op but under control so far.  The scar is on my side and back and quite long but the breast is untouched. 

 

Joan - sorry to hear about your picc line troubles but pleased that your oncologist meeting went well and you have stopped worrying so much.

 

Lovewine - sorry to hear about your son.  I have some (very recent) experience of someone very close to me suffering from clinical depression and cutting their meds.  It is extremely hard to deal with and very confusing and worrying.  It's difficult to know how to help and be understanding whilst trying not to get dragged down yourself.

 

Blackrock sands - that reminds me of my childhood.  I have memories of being in the family Ford Zephyr and driving the car on to the beach.  I'd love to go back and see how it compares to my memories!

 

x

Lovewine
Member

Re: Anyone due to start chemo April 14??

Rosie, yes it's very difficult isn't it, she returns next week, she is still a student and has a lot of issues , I do feel sympathy but my poor son is like you said yours was, doesn't know what to do - she's up and down , goes for days in silence and then answers in one word replies for every question which can last for weeks!! He is very ground down with it all, but refuses to see any fault in her, so have to be very careful what I say!! It's difficult! Thankyou for your kind words, even when they are grown up we worry about them!!!!
rosie14
Member

Re: Anyone due to start chemo April 14??

Lovewine I am very sorry that your son is having to go through this difficult time. I know how very upsetting it is for you to see them hurting! My eldest son had several broken relationships before settling down with his now fiancée 3 years ago when he was 30! He had a girlfriend who had depression and he found it very waring she ended in and out of hospital! Eventually he ended the relationship because he never knew where he stood.
How long has she gone to Morocco for they need to sort it out but better face to face. This is the one of the worst things about being a mum Lovewine you feel every emotion with them! I do hope this will get resolved soon. Thinking of you! X
Lovewine
Member

Re: Anyone due to start chemo April 14??

Joan, hair on legs is signs of life in hair department! Mine still not appearing yet!
Rosie, hope you had a relaxing morning and fairly productive afternoon! Mine went pear shaped when faced with a very distraught 23 year old son who's girlfriend is doing charity work in Morocco , she decided to stop taking medication for her depression and has behaved badly towards my son by totally ignoring all calls, messages etc and worrying him literally sick , so have spent most of the day trying to comfort him as he is convinced she is going to end the relationship and is madly in love with her- obviously I really feel for him and want to give her a damn good slap( selfish little madam!) realise this is extremely uncharitable on my part, but I hate to see my children distraught as we all do. I know she is ill, but not sure why she has stopped medication, anyway feel totally drained now after listening and sympathising and using all my self control to not open my mouth and criticise her actions!! Makes it worse too that she is in another country.it also emerged just how stressed and worried he has been about me and all the ups and downs of treatment etc, he never really has shown his worries since my diagnosis.
Anyway tomorrow another day so hoping it will be resolved!! Don't think I can cope with the stress either!
Hope everyone is doing well.
joan47
Member

Re: Anyone due to start chemo April 14??

Today I realised I needed to shave my legs. Progress at last! Now if only it would start coming back where I want it. But good to know that once it starts it grows quickly. It would be so good to have some hair for Barcelona.

Rosie, I know you suffered from numbness after your chemo. Has it now gone? I still have mine- fingers, feet, and often legs and back, especially in the morning. Good that your wound has now healed on the inside, hope it won't be too long healing completely.

Sorry can't reply to posts, my system is taking ages to get back to the board.

rosie14
Member

Re: Anyone due to start chemo April 14??

Morning Lovewine yes I am supposed to book a heart echo for the oncologist so he can compare it to the last one to see if I can start herceptin. I must get round to do it but to be honest I really don't think I could cope with it at the moment so,I am secretly hoping that my heart has not yet repaired form the chemo! I know the nurse wasn't that impressed when she did a heart trace pre surgery!
Enjoy your afternoon I am doing it the other way round I am going in to the primary staff meeting this afternoon!
Lovewine
Member

Re: Anyone due to start chemo April 14??

Morning everyone, yes Rosie, this summer was definitely a memorable one for all the wrong reasons! Must be easier for you in cooler temperatures now! Sorry if you have already said this : but are you about to start your herceptin? I know there was a delay for heart scan and you saw further doctor who wanted you on it ! I am worried because I havnt started it either and was supposed to with the chemo. Anyway, trying to be a patient patient but not succeeding! Have a good day, sounds like D/H is hopefully healing well too , and yes the wedding seems ages away now , what a superhuman effort from you both to have got there!
Am doing a couple of hours of work today, then relax this afternoon with a bit of gardening!
rosie14
Member

Re: Anyone due to start chemo April 14??

Good morning all!
It's getting a bit cooler here now so,it's more comfortable 28- 32degrees. It has been a long hard difficult summer with no pool or beach allowed! Not a summer I ever wish to repeat! Our son's wedding all seems unreal now.
Lovewine you certainly seem to know the Snowdonia area of Wales well including the supermarket!
Today is the first day I haven't dressed DH remaining weak spot on his back. He also very carefully had to lift the new water refill onto the cooler. So far so good! We are just waiting for my wound to heal on the outside. It seems to have healed inside so just got to be a little more patient with the driving!
Jos hope all went well for you yesterday?
Wildpurl,its amazing how quickly the new hair seems to grow once it starts and once you start plucking and waxing again its a never ending task to get rid of unwanted hair again!
Hope everyone else is ok?
Lovewine
Member

Re: Anyone due to start chemo April 14??

That's great news Joan, how lovely to hear those words! Holiday here you come!!
Wildpurl, not long until you go to wales then! Was thinking of places I enjoyed in snowdon you might like- Harlech castle, criccieth castle, Carmarthen castle and town is also pretty, borthy- gest has a nice beach and pretty village! Porthmadog is very pretty too and has a steam train you can take for various trips! Abersoch is very nice...Blackrock sands has a fabulous , long sandy beach, sorry if you know all these places already!!
P.s there is a very good tesco at Porthmadog and think also at phwelli.
Rosie, sounds like you are out and about more now, I think you will be driving very soon by the sound of it!
Jos, hope everything went well today.
Wildpurl
Member

Re: Anyone due to start chemo April 14??

That is indeed a great thing to hear Joan.
rosie14
Member

Re: Anyone due to start chemo April 14??

Joan that's fantastic news now you can really enjoy your holiday!
joan47
Member

Re: Anyone due to start chemo April 14??

Glad my birthday camel has given you all a laugh. Sadly it wasn't an exotic present, just predictive text though why it should have turned cake into camel is beyond me, as are most of the helpful suggestions it comes up with.

Forgot to say yesterday, something the oncologist said was music to my ears. We were discussing how long I needed to stay on the blood thinning injections I have been on since April. He reckoned I could stop them just before we go on holiday because I would no longer have the risk factors: I was no longer having chemo, the PICC line would be out AND 'YOU DONT HAVE CANCER' . How good is that to hear.
Wildpurl
Member

Re: Anyone due to start chemo April 14??

I'd forgotten about your weekend away Rosie, that will be lovely and probably just what you both need. I'm going to Wales the week after next, really looking forward to it.

I would have thought you would be fine to drive in three weeks if you have started healing on the side that was slower to heal. You will know when you feel ready though.
I had my legs waxed 5 weeks ago and have another appointment this Friday. Thought that I might not need it but I do!
rosie14
Member

Re: Anyone due to start chemo April 14??

I am very annoyed just lost a long post so,this one will be short!
Wildpurl glad that your hair has grown enough to have a cut. Still the same pressure and discomfort I am afraid! So another 3 weeks and then I can drive? It's been 2 months since I drove so another 3 weeks is doable! When is it you go Wales?
We are going for a long weekend to Kyrenia on Friday as it is my birthday via the surgeon for another inflation! I will have another word with him about the extreme pressure and discomfort. I need Joan's sister to make me a camel cake with 2 humps!!!!
Tulamo the side effects seem to disappear more quickly after the final chemo and the get forgotten very quickly. I have had to start to shave my legs something I haven't had to do all summer I have just looked down at them and they need doing again!
Hope you all have a good day whether at work or home!
tulamo
Member

Re: Anyone due to start chemo April 14??

Evening everyone,

 

Jos good luck for tomorrow, the plastic surgeons can do amazing things hope you're pleased with the outcome and discomfort is minimal.

As for the other stuff, what rotten timing, at least it wasnt acrimonious and if it feels right maybe you can get things back on track some time in the future .

 

Joan your picc removal sounds pretty horrid reminds me of my drain removal post mastectomy, district nurse didnt devac bottle properly so developed into a tug of war session very unpleasant. At least its done now

 

Hope your husband liked his surprise camel wish I'd got one but they're probably only available for big birthdays I suspect it was a delicious cake though !

 

Rosie I would be going totally stir crazy not driving for 2  months  though you've probably been so sore you've not been tempted hopefully things will improve for you soon and you can do more without any discomfort Ive had all kinds of issues with my left arm and chest muscle since my ANC surgery my recon often feels tight like its been strapped onto my chest so I have some understanding of what you're feeling just now 

 

Wildpurl  your holiday sounds good but a little too energetic for me at the moment and you are so organised planning menus etc they do say the key to everything is preparation so I am sure you'll all have a great time.

I am keen to get next treatment done now although I am only just starting to feel SE free from last one, just want to reach point where I dont have to go back again for more poisoning and the SEs will go for good, soooo fed up of the yukky mouth and sleeplessness.

 

Lovewine sounds like you're getting your strength back now and starting to do some nice things again will you be getting back to work soon I think you have your own business?

 

Apologies to those Ive missed need to post this before it disappears into cyberspace.

 

 

 

 

Wildpurl
Member

Re: Anyone due to start chemo April 14??

Ouch Joan, that sounds painful.
I am also curious about the surprise birthday camel, maybe the word was cake? Just guessing though. Sounds as if you have had a nice time celebrating with family.
Wildpurl
Member

Re: Anyone due to start chemo April 14??

Evening everyone,
Cassie you sound as though you are doing very well, and good for you getting your hair dyed and trimmed, bet it looks great. I'm really peed off with my hair at the moment, it has been growing really well and all the thin bits have thickened up, but it is now shapeless and uneven lengths so looks a mess. Due to be cut next week thank goodness, and I'm hoping a lot of the fluffiness will be cut off and it will look more like normal hair, albeit short. I still wear my wig to work but not anywhere else. I won't go to work with my real hair until I feel happy with it.

Rosie, you are doing really well too, I do hope you start to feel more comfortable though. I think you will be able to drive soon. I was told 3-4 weeks, so if your wound has just started healing then the same would apply from when it was allowed to heal.

Lovewine, thank you for the ideas for Wales. The Rivals sound good, we are all keen hill walkers, and the pub sounds great. We are planning days walking, a day at the coast somewhere and visiting castles and an aqueduct. I'm just looking forward to being away from it all, in beautiful countryside, with good company and good food.

Tulamo, I'm glad you had a lovely birthday and meal with your son. Good luck for this Thursday. It may be hard to believe now but you are so close to the end of the chemo journey and the remaining time will go quickly.

Jos, thinking of you tomorrow. After this procedure you can begin to heal.
Lovewine
Member

Re: Anyone due to start chemo April 14??

Oh Joan, that sounds not very nice at all- poor you. Good news from oncologist , at least you have explanation of histology report, think it's great you can look forward to your holiday before radiotherapy begins- when do you go on holiday?
Also curious about the camel!
rosie14
Member

Re: Anyone due to start chemo April 14??

Hi Joan what a rotten horrible thing to happen to your PICC line as you say I guess it was all over with quickly without having to have a local!!! Good news from the oncologist glad you have decided to stop worrying! Glad they are not starting radiotherapy until after your holiday!
Did your younger daughter really make a surprise camel for your husband's birthday or is it predictive text!?
joan47
Member

Re: Anyone due to start chemo April 14??

Good luck with surgery tomorrow, jos. I hope that once it's over and the seroma is drained you will feel rather better in relation to the treatment issues at least.

Tulamo, glad your birthday meal went well. Your little boy obviously realised it was a special occasion and behaved accordingly.

Cassie, it's great you are nearly at the finishing post. And enough hair to be trimmed and dyed. Wow! I seem to be still losing my eyebrows and no sign of eyelashes.

Husband is having quite an extended birthday really. Saturday we went up to London to see eldest daughter and partner and had celebratory lunch. Sunday my younger daughter had made a surprise birthday camel next week family get together. Not sure he really wants to be repeatedly reminded he's 70 though!

Had PICC line out today. Hooray. The process was much more difficult than I had been told though. It took well over half an hour to extract the tube- apparently my vein went into spasm sonevery time they pulled a bit out it retracted. It began to feel a bit like a tug of war. Then the nurses couldn't get all the clip out. Eventually, after seeking advice they came back and said they would have to cut it out under a local. I was therefore rather taken aback when another more senior nurse came along and without any warning just yanked it out. Bloody painful. I guess it got it all over with quickly but so much for informed consent and trusting what they say. Apart from that, however, my appt with the oncologist went well, he was able to explain the histology report and reassure me, as far as anyone can, that it doesn't mean there are likely to be other cancerous areas which haven't been zapped. The two bits that are still cancerous after chemo appear to be bits on the edge of the main tumours. So I have resolved to stop worrying about them. Signed consent form for radiotherapy which won't start until we get back from holiday.





Lovewine
Member

Re: Anyone due to start chemo April 14??

All the best jos for surgery!! X
rosie14
Member

Re: Anyone due to start chemo April 14??

Thinking of you Jos! X
jos
Member

Re: Anyone due to start chemo April 14??

Good morning all.

 

Hello Tulamo and a belated Happy Birthday.  I'm glad you had a nice meal out.  How old is your son?  Pleased to hear that the vegetable based dye worked.  I'm still at the fuzzy stage at the moment so still wearing my wig when out but looking forward to the day when I feel comfortable without.

 

Wildpurl - Snowdonia sounds great.  Glad you're enjoying other days out too. 

 

Lovewine - the day with your son sounds lovely.  I always like the idea of picking up bric a brac/charity shop bargains but I never quite get around to looking!

 

Rosie - sorry to hear your dad isn't well and i hope there is a diagnosis soon so that you know what you are dealing with.   It sounds like you had such a long and difficult day last week - it just goes on and on doesn't it.  I hope the discomfort eases up soon.

 

Cassie - sounds like you are doing well being back at work full time.  I am inspecting my eyes every day for signs of little lashes but nothing much happening.  I managed to hold on to my eyebrows.  They have thinned but they were quite thick to begin with so look ok.

 

I still have my very large seroma but that will get drained off during tomorrow's surgery.  The shooting nerve pain in my arm has subsided a bit.  The GP gave me a low dose of amitriptyline - not sure if that helped the pain but I have certainly been sleeping better!

 

So, second surgery tomorrow.  Feeling nervous and rather low.  Not helped by ongoing relationship/friendship issues.  Ridiculously bad timing.  I'm expecting to be in hospital overnight so will catch up with you all later this week.

 

x

rosie14
Member

Re: Anyone due to start chemo April 14??

Good morning everyone!
Yes Lovewine there are always issues when you have your own business! I went in at 7.30 with DH and he has just dropped me back home. It's such a nuisance not being able to drive. DH said I would be mad to do it with a wound that has only just healed over. I managed to,get into 3 classes and iron out some teething problems! Still same discomfort Imagreaid and it is giving me a neck ache now.
Wildpurl I can't think you are even contemplating walking up Snowden I would take the train and walk down!!!! What a good idea to be so organised with your holiday. Last year we hired a big gite in France and three children their partners and 4 grandchildren came. We had worked out the initial shopping list but not who was preparing which meal. I think this would have saved a few too many cooks in the kitchen!
Cassie glad to hear from you and that you are doing well . My eyebrows and lashes startles coming back about 7 weeks after final chemo. Glad your brother had a good birthday the Belgium chocolate cake sounds yum!!!
So glad your birthday meal went well tulamo and that your little bot enjoyed his meal,and was so good I know it can be extremely stressful taking young children out for meals!
Hope we all manage to have a good day!
Lovewine
Member

Re: Anyone due to start chemo April 14??

Morning everyone, cassie sounds like you are doing really well, that's great you are feeling quite normal, my lashes and brows are not growing yet either! Good too you are full time at work, although very tiring!!
Wildpurl, yes we stayed in a cottage near snowdon a couple of years ago, it's lovely, there are also 3 mountains near Nefyn called the Rivals and we climbed up one of those! Have you been before? There is a fabulous pub literally on the beach at Porthdinllain called ty coch inn, it has a great webcam which I look at most days looking at sea and over towards the Rivals.
Tulamo, glad you had a lovely birthday, what a good boy your son was to sit all that time in a restaurant and eat too !! Remember it well when my 2 boys were little!!
Rosie, hope things are sorted at school today! Joan, hope things are ok with you, jos , good luck for your op tomorrow.
Lisa, are you back at work this week?, Jackie, how are you recovering?
Hi to everyone else and have a good Monday!
Sons
tulamo
Member

Re: Anyone due to start chemo April 14??

Hello everyone,

 

Thankyou all for the birthday wishes, had a nice quiet day, up early as my little boy was very keen to help me open my presents he was hoping I would get some nice new toys (tractor or digger variety) kept telling him they would be boring mummy type things , got plenty of chocolates so he was happy !

 

Actually really enjoyed meal out  went early so was pretty quiet and to my amazement my little one ate a meal from the childrens menu a bowl of pasta followed by ice cream. First time ever !have to say it was best present of the day he sat for over an hour and a half and was so good I was very proud of him though did wonder if I brought wrong child home from nursery on Friday !!

 

Sounds like everyone have had good weekend I am trying to get bit more rest in preparation for tound 5 on Thursday so will say goodnight and best wishes to all x

 

 

Cassie86
Member

Re: Anyone due to start chemo April 14??

Hello everyone,

 

I have had a nice weekend a little bit of food shopping and had a delivery from Waitrose so we are well stocked for the moment, my brother had his 51st birthday today so I took him out for a nice pub lunch and then we had a little Belgian chocolate birthday cake at home. I am just reflecting a little on where we all are in our treatment and how far we have all come. I have just 7 more sessions of radiotherapy then hopefully thats is it for me, the next check up will be in four months time, I am not on any medication now except lansoprazole which I may also try to do without and see what happens with my digestion.

I have been back to work full time for a few weeks now except for time off for my appointments, I still have a aspiration biopsy next month for my thyroid problem but appart from that I am feeling fairly normal tired but OK, I took the plunge and had my hair trimmed and coloured yesterday at the hairdressers they used a diliuted version of permanent colour its short but no bald patches now, no sign of my eyelashes or eyebrows returning though, its almost six weeks since the last chemo sesssion, I guess I need to be patient. I may need to have my eyebrows tatooed on they were never very thick.

 

I hope eveyone has had a relaxing weekend x C

Wildpurl
Member

Re: Anyone due to start chemo April 14??

Well done on your walk Lovewine, that's a big achievement!
Rosie you seem to be getting back into the running of the school and I'm sure people are glad to see you beginning to get more involved.
I enjoyed my visit to Clandon Park today and definitely feel I have more stamina and strength now. It's the cardiovascular fitness that needs further improvement. I'd really like to walk up Snowdon when I'm on holiday, but I'm not at all sure I will be able to make it to the top.
We are going to a cottage in Snowdonia, and have now sorted out rough menus for the week and who is cooking each day, plus some discussion of what we all want to do. I am very much looking forward to it.

In the meantime, another week at work is looming, I think an early night is called for. Hope everyone sleeps well.
Lovewine
Member

Re: Anyone due to start chemo April 14??

Good luck tomorrow Rosie. Always issues and problems when you have your own business isn't there. Hope you are not in too much discomfort.
rosie14
Member

Re: Anyone due to start chemo April 14??

I don't blame you having a glass of red wine and a pizza after walking so far Lovewine. We went out for lunch at Polis and went to visit some friends. Then a member of staff came round as she had some issues so I have to go into school tomorrow to sort out.
Lovewine
Member

Re: Anyone due to start chemo April 14??

Feel quite knackered now Rosie! Large glass of red wine and pizza for dinner as too tired to do much more! , but feel good. Also you flew for sons wedding so soon after surgery and chemo- doubt if many of us could have done that! Hope you had a nice relaxing day today.
Good your dad is more stable, and yes agree he has done very well to live independently at his age, it is a worry though when not able to return to Independant living , at least your sister can keep you up to date on him.
It's been a lovely sunny day here, lovely to have late summer sun, hope you have had it too Wildpurl on your visit today, hope you enjoyed it and managed a cake in the cafe!!
rosie14
Member

Re: Anyone due to start chemo April 14??

Lovewine I am very impressed 4 miles well done! I made it to the end of our road last night with a bag of rubbish! Haven't got to go until Friday to see surgeon this week for another inflation! I will probably go into school for a couple of hours. DH won't let me drive yet as my wound on the left is only just healing! Tomorrow I can have a full shower again first time since we were away for the wedding.
Lovewine
Member

Re: Anyone due to start chemo April 14??

Hello everyone, had really nice walk today about 4 miles, legs ached but very pleased I managed it after so long!
Joan, hope your husband had a nice birthday! Rosie , it's nice to have a restful day, are you going into school tomorrow? Not sure if you said about hospital appointments!
Wildpurl, good cardigan is finished!! I love wales- used to go every year to Pembrokeshire in a lovely coastal village near st David's, also some years we stayed near Porthmadog and also near morfa nefyn which has a lovely pub on the beach!!
rosie14
Member

Re: Anyone due to start chemo April 14??

Wildpurl slept a bit better but I am still most uncomfortable! You are going to be busy this morning hope you manage to get it all done! How exiting planning a holiday! Whereabouts in Wales are you going? Glad you finished your cardigan are you going to,wear it today?
Thanks Joan I hope the discomfort will be easier soon! Hope your husband has a great birthday enjoy your day!
joan47
Member

Re: Anyone due to start chemo April 14??

Rosie, both the possible diagnoses of your dad's condition must be worrying for you and I can understand your fears that he will not be able to return home. As Wildpurl says, he has done extremely well to be able to live independently for so long but the point at which that is no longer possible is hard for everyone. I hope they manage to treat his symptoms to give him some relief. I'm not surprised you hit the bottle after the day you had on Friday. Lack of coordination between different specialists is really frustrating. But at least you were able to see your surgeon quickly. I'm sorry you are still so uncomfortable after the first inflation and hope the discomfort starts to decrease soon.

Wildpurl, your energy continues to amaze me. You say you had jelly legs after the gym. I went on my borrowed exercise bike for the first time and could scarcely stand up after 5 minutes.

Tulamo, happy birthday for yesterday. Hope you enjoyed your meal, although, having recently had a birthday lunch with two young children I can sympathise with you, we had to take turns taking them outside. They seem to manage this much better in continental Europe. Glad you were pleased with your hair. But how annoying about the stroppy stenographer. As you say most of the professionals involved with us are so kind and nice that it comes a shock to encounter people who aren't. I'd have opened the letter too.

Jos, sorry to hear about your pain. Hope it reduces soon.

Sorry, have to rush off now, husbands 70 th birthday and gg to daughters.

Have good days everyone.



Wildpurl
Member

Re: Anyone due to start chemo April 14??

Morning Rosie, glad you have got some news about your Dad. He has been doing very well to look after himself at his age so far, here's hoping he will be able to go back home in due course. It sounds like you could have a restful day, and you have been quite busy recently so you deserve a rest! I hope you are feeling a bit more comfortable, at least you slept reasonably.

We are going out this afternoon and then my son and his girlfriend are coming to dinner this evening to do some planning for our holiday in Wales, which is in two weeks! So we have to prepare dinner before we go out, and I also have some chores to do and want to make muffins, so it looks like a busy morning ahead. I've had a nice long lie in though.

I finished my cardigan yesterday and am really pleased with it 🙂 next I have a crochet blanket to finish for the spare room, so I have re-started that.

Hope everyone else is well and that you enjoy your Sundays.