Anyone due to start chemo April 14??

[Wildpurl]

Hi Rosie, WhatsApp seems like a good idea, I will message you my phone number here and on FB. I hope you are starting to feel better!

[rosie14]

Sorry this is the April 2014 thread! You will need to add yourself to April 2023! We are the survivors from 9 years ago, we are just changing to watts app to continue keeping in touch.

Wishing you all the best on your journey and hope that you meet many on this forum that can empathise and share your experiences together, 

[BeGoneSylas]

Just been confirmed for 4th April

[rosie14]

Joan you and Lovewine are added just waiting on Cassie and Wildpurl!

[joan47]

Hi Rosie, Whats App seems a good idea, I have sent you my phone no via Facebook.    Sorry to hear you have a chest infection,hope the antibiotics clear it soon and you start to feels better.

[Lovewine]

Hi All , I have been thinking of you all this week particularly because it was the start of our treatment etc and as you say Rosie the support from you all was something I will never forget . Am sorry to hear you are suffering a chest infection , we have all had an awful cough and cold which refused to go for at least 10 days .

im happy to join in with whatever you all would like to keep in touch , WhatsApp etc is great for me .

I hope you are all doing ok and keeping well , our little GS is growing quickly now and is such a joy to us all . 
love to you all .

[rosie14]

Good Afternoon Ladies,

Hope you are all fit and well?
It’s been 9 years now since we all started our cancer journey. We are all now getting on with living.

5 of us have continued keeping in touch and meeting up annually, which I hope will continue. I will never forget the huge support that this group gave me whilst living in Cyprus.💝

I wonder if we should either use Messenger or watts app to form a group away from the forum now to arrange our annual meet up or occasional message?

Let me know what you all think then I am happy to set it up with which ever method you are happy with. I already have a Facebook contact for Lovewine and Joan. If we set up a wattsapp group I will need a phone number form you all. Obviously send this by a PM using this site. 
I am currently fighting a chest infection, I have had a course of antibiotics but still feel pretty low 2 weeks on! Looking forward to some sunnier warmer weather! 😏
X

[joan47]

Hello ladies, well done Rosie for starting off this round, you have certainly been getting around. I hope your family in France manage to get across for Xmas  this year and are not affected by the borders force strike. 
Your grandson is gorgeous Lovewine. How lovely to have them with you for his first Xmas. Very sad to hear of your friend’s death. Given the earlier prognosis it is great that all the treatment gave him four more years, even though there was nothing further to be done. 
Cassie, I cant quite believe your youngest grandson is a year old. I imagine you see a lot of him. I hope things are not too difficult for you at work, GP practices are under such a lot of pressure.

Wildpurl, I hope you are enjoying your retirement and the opportunity to do even more crafting.

We have still managed to avoid Covid although we both went down with quite a nasty respiratory infection recently. OH is still coughing, 5 weeks later. ED and partner arrive this afternoon for a few days because she has to work over the Xmas period. YD is doing the honours on Xmas Day, which is lovely. She is now on the second year of her OT degree and after Xmas will start a placement working with people who have long Covid, which should be very interesting. She is still fighting a battle with the local authority over an appropriate school to meet his educational needs, with his current school saying they cant do it beyond this year and the LA saying they can (or should) and GS is caught in the middle. Very frustrating, and I know they are by no means the only family in this position? 

I hope you all have a happy Xmas and that 2023 will be a good one for you and your families.

[Cassie86]

Happy Christmas to all ladies, YS 1st Birthday today, bless I don't know where the time has gone!

[rosie14]

Lovewine what a little stunner! 😍

Sorry to hear about your friend it’s never easy but Christmas makes it worse. Tomorrow, Dec 17 will be 8 years since we lost dad! 
At least he had 4 extra years Lovewine! 😢

[Lovewine]

My beautiful GS 🥰

[Lovewine]

 

[Lovewine]

Good morning ladies .. it’s been a while ! Rosie it sounds like you have been doing well with your travels , good Ella travels well , our youngest dog had awful travel sickness until he was a year old but loves it now .

my GS is a delight and I love being a grandma , he is just sitting up now and interacting , they are coming to us for Christmas Day as usual and YS and GF are spending a few days over Christmas with us too which will be lovely .

Rosie I hope your ES and family make it here this year after all the previous disappointments .

Sadly our dear friend passed away a couple of weeks ago - he had been on endless clinical trials and different chemos but then deteriorated very rapidly , he outlived his prognosis by over 4 years , he was just 50 and leaves behind his wife and 2 teenagers , his funeral is next week at the local church in the village .

I hope you are all keeping well ladies and ready for Christmas ! Have a lovely time and a happy and healthy new year to you all 💐

[rosie14]

 

[rosie14]

Ladies we have slipped off the leader board! Do hope this finds you all well?🤔

Lovewine your lovely grandson must be 6 months now, do hope your DIL and ES are now settled into parenthood. Hope your mum is keeping well and of course the rest of the family including the dogs! 😄
Cassie your youngest grandson must be growing up I do hope that your ED is coping well and that your eldest GS is well and happy. Will you have all the family for Christmas? 

Joan hope all is well with your family and that you can enjoy a family Christmas.

Wildpurl hope all is well with you.

We are coasting along! Long story, but the caravan was returned and we have another motorhome which we travelled to Slovenia in with the club rally in September, Elsa the Cockapoo, came with us, fortunately she travels very well, she loved swimming in Lake Bled- I even had a very quick dip! 
We were in Plymouth last weekend visiting our YS and family and are off up north to Newcastle next weekend to visit DD and family. We are hoping that our ES and family make it this year from France to spend Christmas with us - third time lucky! 
MIL, now 96, is still motoring along albeit more slowly. We have had a few emergencies with her but she bounces back.

Wishing you and your families a very happy Christmas and healthy new year! X 🎄

[joan47]

Lovely photos Lovewine. Its very special, holding your first grandchild. You already look besotted.

[rosie14]

Lovely photograph of very proud grandma! 😍
Glad all is going well it takes time! 

[Lovewine]

 

[Lovewine]

 

[Lovewine]

it was lovely as always to meet up again , I did laugh at the two of you walking in the bus lane .
All is well with the new family although I think they are a bit shell shocked at how hard it is to look after a newborn !

[Cassie86]

Lol, what are we like. I did explore for a while I looked for the indoor Market, which seems to be being redeveloped. So changed direction and headed for John Lewis not realising how big the shopping center is it is massive, very impressed. A modern dance show was being performed, so much energy on a hot day. I found what I was looking for bibs with sleeves as GS is getting to the stage where everything goes everywhere

[joan47]

Thanks for sending the photo Rosie. It was lovely to see you all yesterday and catch up on the news and the photos of your first grandchild Lovewine, who was so beautiful. My GD looked like Mao tse Tung!  I attempted some shopping afterwards but OXford was horribly busy and hot so I gave up and got an earlier train. Cassie and I walked into the centre along what we assumed to be a pedestrian road only to discover there was a bus following us, very slowly, to the amusement of onlookers. The driver was very nice, didnt even honk!

[rosie14]

 

[rosie14]

It was great to meet up again ladies I really enjoyed the lunch! 🤪

Hope you all got home safely. Lovewine I trust that you eventually got a connection and have been able to visit your grandson! Hopefully they will keep DIL another day to give her some rest and also your son!

Wildpurl trust you enjoyed your festival.

[rosie14]

Lovewine that’s wonderful news! You must be so relieved! 
I am on the train arrive at 10.28! 
See you all soon! 🤗

[Cassie86]

Congratulations Lovewine, see you all tomorrow x

[Lovewine]

I’m also looking forward to seeing you all tomorrow ! 
I have become a grandma this afternoon , my grandson safely here and everyone doing ok - haven’t met him yet and I’m so excited 🤗

[joan47]

Looking forward to seeing you all tomorrow. I’m due in at 10.24. I’ve been sent a voucher for a bottle of Prosecco, not sure why but I’m not going to ask! Hoping its not going to be too hot. 

[rosie14]

Hi ladies,

looking forward to seeing you all on Saturday let’s hope that our trains are all running! 🙏🏼
Wildpurl hope you have a great time at you festival at least you are assured of good weather! 😄

[Lovewine]

Hi ladies , I booked earlier ticket to arrive at 10.15 - so I will meet you at the station !

[rosie14]

If we meet up at the station we can decide.

[joan47]

I was in Oxford today with friends, went to have coffee at the Castle cafe and found it was closed. I couldnt establish whether this was permanent or not but all the chairs and tables were stacked up. We had coffee at Prezzo but we might not want to do that. There is the Slug and Lettuce pub, which will presumably do coffee or we could try somewhere else.

[rosie14]

Great Cassie you shouldn’t be far behind us! 😀

[Cassie86]

Hello ladies, the online booking for tickets has been playing up. Just booked should arrive 10.43 in Oxford I look forward to seeing you. 

[rosie14]

Excellent Joan! I have booked my ticket and I will arrive at 10.28 so I will wait for you at the station! 😀

If we walk slowly you may catch us up Lovewine! We will make for the coffee shop at the castle near our lunch venue!

Have a good Birthday when it comes Lovewine! 🎉🎂🍷

[joan47]

Thanks for making the booking Rosie. Just booked my ticket, train should get in at 10.34 so will be there for coffee. Have a great trip. Happy birthday for next week Lovewine. 

[Lovewine]

good morning Rosie , thankyou for making our booking .. that’s great with me , I should arrive just after 11 o’clock so be able to catch up over coffee ☺️.

enoy your Scottish road trip , sounds very nice but definitely warmer weather would be nice .

I am busy with work again more now and of course waiting  for my GS to arrive early July 🤗 -and I celebrate my 60th birthday next week !! 
Looking forward to seeing you all on the 7th July , next year hopefully you can make it too  Wildpurl - be lovely to see you .

Hope everyone is ok .

[rosie14]

Ladies I have made a 13.00 booking at our usual for July 9th hope this is ok? Hopefully we will all arrive in time for coffee!

We are off to Scotland for 3 weeks in just over a week so hope the weather will improve. We are doing the North Coast 500 in the Motorhome!

Hope everyone is well! X

[Wildpurl]

Yes Rosie, it is difficult to find a date to suit everyone, I agree. I hope you all enjoy the meetup and perhaps you will be able to post a few photos? I will post one of me at the rock festival ;).

I hope you and your families are all well.

[rosie14]

Sorry to hear that you will be unable to join us Wildpurl. It’s difficult to find a date that suits all as we are all busy. Better luck next year! 😏
Oxford seems to be our preferred venue. Are we happy to book the same lunch venue for 1pm. Those of us that are there earlier can meet for coffee. I haven’t looked at trains yet. 
Elsa was spayed yesterday and has jumped on and off a chair and just jumped on the garden furniture whilst my back was turned!😬

Lovewine hope DIL is keeping well?🤔

Cassie your newest addition must be growing!

Joan hope you OH have still managed to avoid Covid! 🤔

Enjoy the warmer weather- good for gardening Wildpurl with everything bursting into life! 

[Wildpurl]

I'm very sorry, everyone, but I now have a problem with 9th July. I have mentioned before that our village has its own 1 day rock festival, which of course has not happened for the last two years. They had not said until last week if or when they would be running it this year but now they have and it is on 9th July. That on its own would not be a problem as I had already said I would come to our meet up, but OH had already invited his brother and SIL to stay for the weekend and attend the festival and invited his DSs and the eldest's fiancée to come for the festival and stay for dinner in the evening. So I think I will have to miss the meet up again this year, I really am sorry to mess you about.

[Lovewine]

Hi ladies ,Oxford will be ok with me , last year with covid there were changes to the route making it about 3 hours each way 😳and very expensive but should be back to normal now ! So yes all good with me too , looking forward to catching up with you all .

[rosie14]

Oh that’s great Wildpurl a full house!!!😀

Possibly Oxford just waiting to check ok with Lovewine!

[Wildpurl]

Hi Rosie, I have just seen the most recent posts. 9th July is OK with me so far, I will enter the meet up in the calendar. Has there been a decision on location?

[rosie14]

Ladies I suggest we pencil July 9th for our meet up, hopefully Wildpurl we check in soon and be able to join us! 
Is Oxford accessible for everyone? Lovewine I think you had a problem with the journey time due to the change of trains?

Great pic of you both on a horse! 

Joan I am sorry to hear about your frustrations with grandson. Schools and authorities always struggle to provide additional resources for individual pupils unless their cases are extremely challenging to the school. I know things have got far more difficult since I have retired. DD is an assistant head in a school in Newcastle with a very high pupil premium rate. She is responsible for managing resourcing for the many children needing support both medically and educationally. It usually has to be managed by support staff who are shared around the school. The class teachers have to manage the children’s needs- which can be anything from learning difficulties to bowel issues!🥴

Children have to have very challenging needs to get even a few house of individual funding!

However the class teacher should work with your YD to provide ideas to help GS with his difficulties. 
Hope your holiday went well Joan!
We have just enjoyed a busy week with ES and family, GS and Elsa were best buddies by the end of the week!😄

Have a good Easter break ladies the weather looks promising! 🤗🐣🍫💐

[joan47]

July 9th is fine for me too. I guess you will be glued to your phone Lovewine. 
Glad you are both now testing negative Rosie. I think ongoing weakness/fatigue seems to be quite a common experience with this variant, hope you start to feel stronger soon and can enjoy taking your lovely dog for walkies. pity about the lack of a turkey for your postponed Xmas celebration but I’m sure it will be an enjoyable occasion regardless.
Cassie, stunning photo of YGS, what a charmer. I bet he has you wound round his little finger. 
We are off on holiday this Friday with the family. Its the one we booked for April 2020, then again April 2021. So hoping we stay clear of Covid. Its a National Trust place just outside Penzance, we first went there in 2014 just after my diagnosis so it will have some poignant memories, I remember getting quite emotional wondering if this would be the last family holiday. We have booked to go to the thermally heated open air lido on one day so hoping the weather is favourable. 

The main thing which has been happening in our lives over the last few months has been YD’s battle with the County Council trying to get appropriate help for GS, who is almost 10 and struggling in school. He was diagnosed with dyslexia when he was 6 and has been receiving extra help in school but is falling further behind and other problems have been identified. First of all the local authority said he didnt have special educational needs, then they decided he did but didnt warrant an assessment to see if he needed an education and health plan, which, as I expect you will know Rosie, entitles the school to extra resources, then, after my daughter said she would appeal they agreed to assess. Now they have decided his needs can be met in school, he doesnt need a plan, the school are saying they can’t and GS is caught in the middle. I can understand that both the school and the local authority are strapped for cash but it is so frustrating. This may be very familiar to you Cassie. So it looks like YD will have to appeal this decision. She could do without that stress. 
Sorry for the rant. As you can imagine its quite a worry for us. 

[Lovewine]

 

[Lovewine]

lovely photos Rosie and Cassie , little GS has such a cheeky little smile 😂

elsa is very sweet . X

We have been out to a horse and alpaca farm this morning for a birthday present that was from DIL to ES and I went with ES -,really enjoyed it , an hours ride around Charnwood forest area !

[Cassie86]

Thanks Rosie he's just like his dad. Your little pup is gorgeous too 💕

[rosie14]

Oh he is gorgeous Cassie!🤩