I am waiting for DH to get out of the shower so I can go and help with the shopping. I was hoping to be on the road by 8.30am so we can get it done and back before it really gets hot but it is really getting hot! I have been outside picking up dog mess, sweeping leaves from yesterdays hot early morning wind, emptied kitchen bins ready to take to big bins at end of road on way out in car and it won't be much longer before my legs begin to go weak because I have overdone it again on virtually no sleep! Men?
Hi Rosie, at the moment they are a bit sparse the bottom eylashes especially, but not too bad in general, I did buy a kit for the eyebrows at the begining but must admit I tried it out and did not find it easy to use the right eyebrow was ok but when I came to the left one, holding it in place and applying at the same time its not easy.
I also enquired about having eyebrow tatoo's but was a bit nervous, £150 seemed a bit much anyway plus the therapist said I would need a letter from my consultantant before she could go ahead and I felt a bit vain to ask. Fortunately the brows are sparse but still there, so there may be no need, who knows, I still have a fair hair loss every day a dozen on so on the pillow and the same when I brush my hair and god knows how many end up on the bathroom floor when its washed, but its still there, with a comb over on top to help disguise where the cap does not fit well, I am between sizes it seems medium is too big and small a little too small to tug on tightly enough, it is a bit of a palaver and maked the sessions longer but I have persevered so far and only 2 to go.
I am not sure if its worth it but the 3rd of hair I have left has become a bit shapeless, maybe I could risk a haircut, my hair has always grown very quickly and I suppose it has been a while since I decided to get a crop before the treatment started. I think I will go early before the salon gets busy, I don't want anyone gorping at my bald patch.
Well ladies this is getting a bit silly. DH decided he was going to bed early last night 10.30pm as he was very, very tired due to a series of late night work. Well although my eyes were tired my body wasn't but I went up too. The A/C was struggling to cool the bedroom as the roonm temp was 30 ! It eventually got to 26 which was manageable. Any way after 2 trips to toilet at 2.37 am gave up and came downstairs. Made a cup of tea and here I am! Two more days of steroids- I hate them. Does anyone else take sleeping pills whilst on them. I haven't done at I thought it wasn't a good idea?
I bet some of you have only just gone to bed in UK?
Anyway I hope everyone wakes ready to face the day and any S/E it may bring. Thinking of you Jackie especially and hope you are recovering well and if not home yet will be very soon. Hang on in there they will get you sorted! xx
Cassie this is a worry to me as I have a daughter who is 30 and she suffers with a disease called ankylosing spondylitis which effects her joints very badly when she has a flair up. I would hate for her to be a BC candiidate! My mother had breast cancer but breast cancer was was not discussed in those days and who knows what sort it was? I only know she had a mastectomy. She died when she was 63 of a secondary but she had survived for over 20 years after the BC. She was 5 years older than I am now when she died. This is why we haven't told my 93 year old dad about my diagnosis. He struggles with his breathing and gets very breathless without having the awful thought that I have the big C!!!
There is no history of cancer in my family but as my Consultant surgeon brother (specialising in colons sadly- we call him the bum doctor!) pointed out I am likely to be a new mutant! Brotherly love for you!!
Jackie I am so sorry to hear you have had to go into hospital, we really don’t need setbacks like that on top of everything else but I guess its par for the course. I hope you are feeling better very soon.
Seems a whole bunch of you have been in for chemo this week - Rosie, Joan, Louise, Whirlpool, Rolicarpit, Rachel and Lovewine - Fingers crossed for a smooth ride for all. Been back through a few pages of posts so I hope I have not missed anyone - it’s getting harder to keep track as my brain has pretty much ground to a halt. As you mention Rosie the fatigue is building and despite being on day 14 after first Tax I can’t seem to get going at all. I’m not sure if it’s the chemo or just the building dread of what’s to come next week or a bit of both. Also feeling down as my lovely friend who finished treatment last year and has been such a positive figure in my life has been recalled for further tests in her other breast. Not news any of us want to hear.
Seems several of you have had red faces (!) I didn’t notice if mine went red but have had 2 days of it feeling tight and itchy despite loads of cream. Good to know I’m not alone and have not developed something bad! Most of my remaining eye lashes and brows went this morning as well, leaving heroic little spikey bits that are hanging in there - mostly covered by the frame of my glasses so not a worry.
Cassie I think you and I are the nearest in timing as far as I can see and having number 2 tax soon. I have clinic for bloods Tuesday, and results permitting (and if I haven’t run away!) treatment Friday.
I never properly introduced myself - I have just turned 47 and I have grade three triple negative IDC diagnosed after 2 inconclusive biopsies and a lumpectomy. I then want back for a wide incision and SNB which fortunately was clear. Is there anyone else who is triple neg? I think it is recommended you are tested for the Brca genes if you’re under 50 with triple neg but my NHS won’t do it. I am planning to get it done anyway as I have two lovely teenage daughters and want to be sure of their future as far as I can be. Also the result may change my own future re preventative mastectomy and risk of ovarian cancer.
Sheba rest assured the veins will get better quickly mine felt horrid after the fec but are pretty much back to normal now.
Tj I hope you manage your son’s school play it’s one of those little mile stones that we can look back on that are so important.
Must try to do smaller posts - seem to ramble on when I finally get organised enough to write.
Sweet dreams to all - even if only brief,
Cassie I am grade 3 invasive ductal with 3 lymph nodes and need full mastectomy. I am contemplating elected double as it will be easier for reconstruction and I couldn't stand going all through all this again!
Cassie yesterday was Tax 3 I have one more session to go on July 10th. I have had 8x 2weekly sessions the last four being Tax I guess the first four were FEC but it is not a term used in Cyprus - it was a red liquid. I have just booked an appointment to see the surgeon on Monday as I can't stand waiting anymore to find out exactly what he is going to do and a date!!!
Sorry to hear you have been admitted Jackie, I hope the hospital get you back on your feet soon.
I did managed 3-4 hours a work yesterday and intend going in again today, day 11 TAX, long may it last, still permanently knackered the usual but all other symptoms are now far less tum and chest pain horrible mouth, bits bellow etc. I will need as much energy as I can get just to read the emails, I managed to clear 54 yesterday more than that left in my inbox. Staff at work all think I am totally mad for even comming in, after being in hospital at the weekend but its amazing how things can turn around, thats just me. 🙂
Love to all ladies out there X
Another very early good morning from Cyprus dear ladies all on this monthly thread!
Now after my long day yesterday I expected to get more sleep than this...
Tired on return home at 5.40am. Have a shower due to being hot and sticky and very sweaty poor head under scarf. DH cooks very nice omelette with salad, Been snacking all day on marmite sandwiches and cheese and biscuits. On exit of hospital visit snack bar to get iced lemon tea and slice of cake to eat in car! Cake turned out to be virtually full sugar looked like a very nice slice of moist swiss roll. Cakes here always look better than they taste! Anyway ate it made me feel slightly sick in hot car on way home as it was so sweet!
Daughter Skyped at 8.45pm, on for an hour by which time I am wide awake after hearingf about more of her school sagas- bless her. Saw the 2 grandchildren briefly who were more interested in seeing our dog! They haven't been out for 18 months, but are coming in October as I won't be up to travelling after surgery. They love our dog she is very good with them!
Well following that helped DH solve a class issue for next year. Went to bed at 11.50. Slept till 1.10am. DH still up go down to find out how he is getting on, make a cup of tea! Sit down have to sign some certificates for final assembly today. Then poor DH still trying to place staff and classes together. so stay to help. Notice it is 2.30am and DH is looking very tired. Say we must get to bed now. I go he doesn't come. Keep shouting him he eventually got into bed at 3.07 and was asleep at 3.11. How I wish I could do that! I was then awake for a further hour. Must have dropped off between 4 and 4.47am. Then wide awake again so called it a night and here I am. We have a very hot hairdryer wind blowing in this morning not a refreshing one. It is going to be 37 later, it was still 30 last night when I went to bed! We are having a mini heat wave at the moment! It doesn't usually get this hot till later in July through to mid September. May have to resort to a blast of A/C b downstairs this afternoon!
Any way enough of me except to ask does anyone else get a very red face on steroids? I do it really looks like sunburn!
Tlj good luck for Tuesday and make sure you rest up until your son's school play and if you are determined you will get there!!!
My goodness Lovewine I would have yelled for some else to do the cannula after the second failure you are brave!
Wildpurl its a lovely feeling seeing that last appointment good luck for today!
Jackie, 1 to go sounds wonderful I am ready to face these side effects to get to the end!!!! I would take those pain killers Jackie, I sat here all day till 4.30pm one day feeling very sorry for myself with aches and pains and didn't take anything until that time and within half an hour I felt the relief. Will take them as soon as I feel I need them this time! I would ask for sleeping tablets.I don't take mine all the time eg before or after chemo whist on steroids. They don't zonk you but I find they relax the mind and even though I still wake at least twice in the night I can actually get back to sleep- unlike last night!
Hope all you other ladies are ok Nellie , Louise, roicarpit, Rachel, Jos, Sheba hope my chemo brain hasn't missed anyone?! xxxx