I'm a newbie to the forums. I start my chemo tomorrow morning, can't wait to get the first session over with tbh.
I was just wondering if any of you who have already started or have been through chemo previously have any tips for what to take with me, apart from reading materials, etc.?
I'll be trying the cold cap just to see if it works for me and I've already been told that they will supply the conditioner and towels, but I wondered if a little fleecy jacket or cardigan might be needed if i start to feel cold with the icy cap on my head.
Any little tips or experiences you can relate would be very much appreciated!
Thank you! : )
So pleased to hear you are home and feeling OK kirstie!!! And that you are feeling confident they have adjusted things for your next dose. I haven't lost any hair yet (Day 12) - well no more than normal anyway - I'm not expecting to this cycle but even with the cold cap I am expecting to lose some in the second cycle.
Joan glad you are doing OK, bummer about the clot but the main thing is they are on the case and you are being looked after.
Loulou, glad your wound has healed and you have a definite start date now, I would call the hotline about the steroids if I were you, I think it's pretty crucial.
Today I went to my Look Good Feel Better course, which was most enjoyable and interesting. I came away with a lot of very nice products and lots of info about how to make up - of course I know how to make up, but they gave tips about how to cope with some of the effects of chemo such as being flushed, losing eyebrows and eyelashes etc, which I didn't know before. They also gave guidance on extra hygiene measures while having treatment and using makeup which I thought was a good idea. I am happy with the look I achieved and it has boosted my morale a bit in that I have not been wearing makeup while at home, and now I think I might while I'm feeling good.
Just as an example, I usually have my eyelashes tinted and don't bother with mascara, but of course they have gone all pale now and I can't have them done. I felt so much better with mascara on that I thought - I should wear mascara until I can dye my eyelashes again. Obvious really but I just hadn't realised that it was making me feel drab.
Good news, start thursday, wound healed.... 6 rounds of Tac not Tax which I think is a bit unusual?? Been round the chemo suite and looks ok. I have been sent home with steroids for tomorrow but cant remember the times she said to take them :/
Well, it was all going well. Had a lovely day on Sunday over on the Gower peninsula. Walked on a beautiful beach then had a delightful lunch (and managed to eat all of it) overlooking the bay. Knackered after it but worth it. Was looking forward to a week with only one, minor, medical appt and being able to get back to doing some work (I work from home). But Monday morning my left arm was swollen and red. Had to rush into the BRI where they diagnosed a blood clot triggered by the PICC line So now have to have daily injections of a blood thinning drug! Hey-ho. I had wimped out from giving myself other injections but having to go to the health centre every day at the same time for the next 16 weeks would just be too constraining. So plucked up my courage and said I would do them myself. And in fact it's OK although my husband is fussing about making sure I Inject in a different place each time and has drawn a diagram of my tum to record each one. If allowed I think he would like to use a biro and draw little 'xes' on me to mark each site, along with the date! ! Never realised before that at some point I would be grateful I have ample flab in that area!
Hoping my hair doesn't fall out before my grandson's birthday party on Sunday. Are there any other grannies out there?
Good morning to you all! Hope you are all feeling well and positive.
I am now on day 3 round 2 so still feeling delicate and fowl taste in mouth. My husband is not too happy about our forthcoming trip to UK tomorrow night so I am going to have to present as normal as I can tomorrow! I will rest up again today didn't do too much yesterday. After tomorrow you may not hear from me until Friday 25th as when we get back from UK I am straight back in for round 3! This is not ideal but I had booked the trip back before I was diagnosed with cancer and I didn't know I was going to be having chemo every 2 weeks for the first month. Apparently the tumor was 6cm, but the good news, I should have mentioned before, is after round 1 of chemo the oncologist said it has started to shrink! So I must hang on to this.
We are flying to Manchester tomorrow don't leave here until 10.35pm get into Manchester at 1.30am which will be 3.30am to us as we are 2 hours ahead. Hopefully I will sleep on the plane. Not keen on flying and usually have 2 big glasses of wine pre flight- obviously will not be doing that!!!! I have a face mask to wear and have been instructed to start injections the day after! Staying on the airport when we arrive at Premier Inn. After breakfast a leisurely trip up th Newcastle to see our daughter and 2 young granchildren for 3 days. Our daughter and husband are giving up their en suite bedroom in their new house for us! Then travelling down to midlands, should be back to normal by then, to see my sister and 93 year old father. We aren't telling my dad as my mother dies 27 years ago from cancer! Following this we are going down to Plymouth for 3 nights to see youngest son and his family. Then returning back up to Manchester. We are not venturing over to France to see eldest son! So this is a tall order but one that has kept me going.
I maybe able to use my daughter's i pad to get online and touch base. I am going to take my wig with me I just have a feeling that hair may start to come out as my head feels prickly when I touch my hair!
Have a good day everyone and do enjoy the good days! xx
I chopped up strawberries, kiwi and grapes to take with me to hospital this time and it seems to have sorted out the constipation problem!
Hope you all had a good night's sleep, it was goood to be in my own bed last night even though I got out to the loo 4 times. This happened the first time round too, all the liquids they put in me working thier way out!
Woken up with the metal taste and can feel the nausea creeping in so will be taking a pill before breakfast. I don't seem to be so tired yet!
Hope you went ok Jackie09. I had second round yesterday. I am on 2 weekly for the first 2 months! I had the nausea feeling and fowl metal taste in mouth much quicker. But I have come out armed with plenty of anti sickness tablets and steroids. I shall take them I won't wait for it to get worse this time. Still hoping to be ok to fly to UK on Monday evening, have got to take 7 injections and I have a doctors note to get them through the security at airport!!!
Glad to hear most people are feeling much better. Yes EAM its the first 5/6 days that are the worst and then the unexpected pains from the injections! I shall have my painkillers at hand this time didn't know what it was first time round! Hope you are home now Kirsty? x
Kirstie - all the best to you - at least you are being well looked after
Ashely - DONT worry re moaning !!!!!!!!!! We are voicing our concerns
W - How about scrapbooking
Terrible day yesterday.... waiting for my onc appointment and got speaking to the lady next to me, her appointment was before mine and they were running late. After two hours she came out and came straight to me and told me she had been diagnosed with secondaries... I really did not know what to say and was numb..when I was called in I was in a state of shock and scared.
Anyway they proceeded to tell me that the results back where inconclusive on the second node and a decision had still not been made as to whether it was micro or macro... they have decided to take tge side of caution and class me as two nodes positive and treat me with a strong chemo called TAC, not to be confused with TAX I was advised. They advised this chemo does not have much success with the coldcap dont knowwhether to bother now and also the other SE are stronger than most...
Another thing mentioned was the tumor was showing vascular invasion which has scared me witless, this was just mentioned in conversation and when I initially asked after my pathology report came back I was advised there was none.
Sorry to put such a negative thread on but need to release it all I think.
Ps writing this whilst in the waiting room for my smear test !!
Onwards on upwards is what they say..... xx
Glad Wilpurl and booksandwine are feeling more human! I take my hat off to you ladies attempting to go to work. I have done small amounts from home. My husband and I own a small private school here in Cyprus and I was teaching a class of Year 1 pupils full time. I have been teaching for many years but have never experienced so many lively spirited, noisy, strong willed children in one class before! I think they finished my stress levels off! So I am not going back full time, but I still have a long way to go. Masectomy to follow, then rads! Well its 6.30am here 4.30am in UK due to be on chemo ward at 11am. Thanks for your good wishes! They keep me in overnight or else the private medical insurance won't pay- mad system! I will touch base with you all tomorrow when I get home. Hope you all enjoy a good day and that Kirsty77 gets home soon! x