I hope you don't mind me popping in from March group.......... have you been prescribed Emend for antisickness?........ It is prescribed in my area automatically....but other areas insist you have to be sick before you can be prescribed it due to the cost..........it works on the brain telling it to ignore sickness signals..............Also ..... I was told I don't have to take the steroids if I don't want to.......unless I feel really grotty and lack appetitie............Donna x
Kirsty77 glad you are recovering and there is a solution so that you wont have to endure hopitalization each time! x
Glad you are on the mend, hopefully tge next round will be much better xx
Hope everyone else has a good day and thanks project kylie I will pm you xx
I started chemo last week so now on day 6 and generally feeling better. Apart from the nausea and tiredness I've had two problems that don't seem to have been mentioned by others. First, a horrible stomach ache which I think may have been linked to the anti-nausea drug (Domperidone). When I stopped taking it (on day 3) the ache went away (leaving me still feeling a bit nauseous but that was preferable. Second, insomnia. I'm not the best sleeper in the world and was having very interrupted sleep in the period between diagnosis and starting chemo. But the last few days have been much much worse. No sleep at at the night after the chemo, which was probably due to the steroids; since then I get a couple of hours and that's it. Not helping with the tiredness. GP prescribed me something which is meant to knock you out, which it did, but only for 4 hours. I'd be very interested to hear from anyone who has had either of these problems.
Morning everyone hope you are all feeling ,ore bright eyed and bushy tailed! Yes I am due round 2 tomorrow- the thought of the chemo ward makes me feel sick! Aches ansd pains from yesterday all gone thank goodness. One never knows what to expect next. Going to hairdresser this am to get wig trimmed! A friend is doing my nails this afternoon and then a work colleague is coming to visit. A busy day how did I have time to work? x
Hi Loulou, I think someone would need to set up a private group on FB and then provide us a link to it here so each of us could request membership to the group on FB. The "founder" of the group approves the requests and the posts to that group can only be seen by approved group members, they don't appear on timeline. I'm in a couple of other private groups so I know that works.
Advantages I suppose are that we would see a bit more about each other, disadvantages possibly that anyone joining the thread later will need to be added to the FB group as well and there are two places to post. I'm easy either way
Just a thought, a lot of the other threads seem to have a fb page as well. Does anyone have any idea how it would be done to keep everything private. I only joined fb last night as my friend from the February thread says they go on both. Anyones thoughts ?? Xx
Morning all hope this finds you ready to cope with the day? I am feeling a little delicate today, day 12 following 3 injections. A few aches and pains. I woke at 3.19am and thought I was having a heart attack as I had a strange feeling in lower chest. Took 2 paracetomol and eventually managed to get a little more sleep. Have sent a message to oncologist to tell him. It's difficult to know what the norm is and what you need to report!
On a brighter note still got all my hair!
I will be having rads as well and my bcn said I will have 3 weeks, mon to fri. I was told I am having three as l am a small build, size 10/12 with a C cup bra. My bcn said I would need 5 weeks if I was a larger lady, whether she meant build or boobs I have no idea ?? Xxx
hi wildpurl, the genetics guy is expecting me to be carrying the brca2 gene I have 4 more weeks before I get the results, I have already asked to have mastectomy on the other side but doctors said I have to have the chemo and radiotherapy first. is there anything you can recommend I do in preperation for my first chemo ?? I have an appointment with the hair specialist next week so hopefully she will give me some advice. x