Terrible day yesterday.... waiting for my onc appointment and got speaking to the lady next to me, her appointment was before mine and they were running late. After two hours she came out and came straight to me and told me she had been diagnosed with secondaries... 😞 I really did not know what to say and was numb..when I was called in I was in a state of shock and scared.
Anyway they proceeded to tell me that the results back where inconclusive on the second node and a decision had still not been made as to whether it was micro or macro... they have decided to take tge side of caution and class me as two nodes positive and treat me with a strong chemo called TAC, not to be confused with TAX I was advised. They advised this chemo does not have much success with the coldcap:( dont knowwhether to bother now and also the other SE are stronger than most...
Another thing mentioned was the tumor was showing vascular invasion which has scared me witless, this was just mentioned in conversation and when I initially asked after my pathology report came back I was advised there was none.
Sorry to put such a negative thread on but need to release it all I think.
Ps writing this whilst in the waiting room for my smear test !!
Onwards on upwards is what they say..... xx
Glad Wilpurl and booksandwine are feeling more human! I take my hat off to you ladies attempting to go to work. I have done small amounts from home. My husband and I own a small private school here in Cyprus and I was teaching a class of Year 1 pupils full time. I have been teaching for many years but have never experienced so many lively spirited, noisy, strong willed children in one class before! I think they finished my stress levels off! So I am not going back full time, but I still have a long way to go. Masectomy to follow, then rads! Well its 6.30am here 4.30am in UK due to be on chemo ward at 11am. Thanks for your good wishes! They keep me in overnight or else the private medical insurance won't pay- mad system! I will touch base with you all tomorrow when I get home. Hope you all enjoy a good day and that Kirsty77 gets home soon! x
I hope you don't mind me popping in from March group.......... have you been prescribed Emend for antisickness?........ It is prescribed in my area automatically....but other areas insist you have to be sick before you can be prescribed it due to the cost..........it works on the brain telling it to ignore sickness signals..............Also ..... I was told I don't have to take the steroids if I don't want to.......unless I feel really grotty and lack appetitie............Donna x
Kirsty77 glad you are recovering and there is a solution so that you wont have to endure hopitalization each time! x
Glad you are on the mend, hopefully tge next round will be much better xx
Hope everyone else has a good day and thanks project kylie I will pm you xx
I started chemo last week so now on day 6 and generally feeling better. Apart from the nausea and tiredness I've had two problems that don't seem to have been mentioned by others. First, a horrible stomach ache which I think may have been linked to the anti-nausea drug (Domperidone). When I stopped taking it (on day 3) the ache went away (leaving me still feeling a bit nauseous but that was preferable. Second, insomnia. I'm not the best sleeper in the world and was having very interrupted sleep in the period between diagnosis and starting chemo. But the last few days have been much much worse. No sleep at at the night after the chemo, which was probably due to the steroids; since then I get a couple of hours and that's it. Not helping with the tiredness. GP prescribed me something which is meant to knock you out, which it did, but only for 4 hours. I'd be very interested to hear from anyone who has had either of these problems.
Morning everyone hope you are all feeling ,ore bright eyed and bushy tailed! Yes I am due round 2 tomorrow- the thought of the chemo ward makes me feel sick! Aches ansd pains from yesterday all gone thank goodness. One never knows what to expect next. Going to hairdresser this am to get wig trimmed! A friend is doing my nails this afternoon and then a work colleague is coming to visit. A busy day how did I have time to work? x
Hi Loulou, I think someone would need to set up a private group on FB and then provide us a link to it here so each of us could request membership to the group on FB. The "founder" of the group approves the requests and the posts to that group can only be seen by approved group members, they don't appear on timeline. I'm in a couple of other private groups so I know that works.
Advantages I suppose are that we would see a bit more about each other, disadvantages possibly that anyone joining the thread later will need to be added to the FB group as well and there are two places to post. I'm easy either way
Just a thought, a lot of the other threads seem to have a fb page as well. Does anyone have any idea how it would be done to keep everything private. I only joined fb last night as my friend from the February thread says they go on both. Anyones thoughts ?? Xx
Morning all hope this finds you ready to cope with the day? I am feeling a little delicate today, day 12 following 3 injections. A few aches and pains. I woke at 3.19am and thought I was having a heart attack as I had a strange feeling in lower chest. Took 2 paracetomol and eventually managed to get a little more sleep. Have sent a message to oncologist to tell him. It's difficult to know what the norm is and what you need to report!
On a brighter note still got all my hair!
I will be having rads as well and my bcn said I will have 3 weeks, mon to fri. I was told I am having three as l am a small build, size 10/12 with a C cup bra. My bcn said I would need 5 weeks if I was a larger lady, whether she meant build or boobs I have no idea ?? Xxx
hi wildpurl, the genetics guy is expecting me to be carrying the brca2 gene I have 4 more weeks before I get the results, I have already asked to have mastectomy on the other side but doctors said I have to have the chemo and radiotherapy first. is there anything you can recommend I do in preperation for my first chemo ?? I have an appointment with the hair specialist next week so hopefully she will give me some advice. x