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Anyone due to start chemo April 14??

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Re: Anyone due to start chemo April 14??

Hey Lou, they have offered me cold cap but to be honest I don't think I'll go for it. From what I've read it just seems to delay the inevitable in list cases and I've also seen that you are nut supposed to wash and style your gmfaur yo minimise drop. I have to wash mine every day do would just look hideous anyway. I booked a private wig appt when they told me they were going to do more tests on my lump and bought a wig the day my chemo was confirmed. Def going for the increased water have read do many people say that helps. For me this feels a bit like when i was pregant the first time, terrified as i dudnt kniw what would hapoen and then terrified for the 2nd and third because i did! It's just the unknown and everyone reacts differently some if us will have a better time than others and we won't know who until we are on the other side. I am planning to try and work full time through chemo, us anyone else ? I am 45, live in Surrey and am being treated at the Royal Marsden in Sutton, they have been amazing, ironically I worked there a couple if years ago on a temp contract (non medical staff) but never planned on going back as a patient ! There are so many good and bad stories, and for me a serious information overload, I am going to try to focus on the positive. Good luck with your appointment Sxxxxxxx
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Re: Anyone due to start chemo April 14??

Hi

 

I know we wont remember everything about each other but thought I would give a few more details about myself and diagnosis. I am 37 years, married with two boys aged 9 & 11. I was diagnosed 6th January with grade 2 (from biopsy) and unlikely to have lymph node involvement as per scan....This all changed after first surgery on the 26th January as the results showed grade to be 3 and one lymph with macro and one with micromet. I then had clearance on 6th March, results were no further nodes infected.

 

I did suffer from a haematoma after the initial WLE and this opened my wound which has needed to be packed every second day to ensure I heal from the inside to out. The cavity was initially 7cm when they started packing 4 weeks ago and is now down to 1.5cm, fingers crossed this will be closed in the next two weeks for chemo to start, its all im waiting for and really want to get started!!

 

I am attending a ' Look good , feel better' workshop on tuesday at Leeds.I dont know if anyone has been on one yet but my BCN advised me to go as they are meant to be good, I will let you know.

 

Ps My treatment is at Doncaster

 

Take care everyone xxxxxxxxx

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Re: Anyone due to start chemo April 14??

Hi everyone.

 

I am also due to start chemo some time in April. I am not sure of the exact date at the moment as I had a bilateral mastectomy with immediate reconstruction just over two weeks ago and unfortunately have had ongoing problems with right implant (skin necrosis, infection,etc). I am now wearing a negative pressure dressing which will hopefully help to remedy the situation, but these problems have delayed me starting chemo. Consultant has said that it will definitely be within the next 4-6 weeks though and I have been issued all the info on FEC-T and wig prescription is ready to go.

 

Reading the posts from the amazing ladies on this discussion board has been invaluable to me and I am reassured that I have no need to feel alone whilst undertaking the chemo journey. 

 

Thanks for the post Louise and I'll look forward to chatting with you all.

 

Lots of love

Rach. xxxxx

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Re: Anyone due to start chemo April 14??

Hi Louise, I have been posting in the March thread as I thought I would be starting at the end of March, but my first FEC has been confirmed now for 4th April.
Carol
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Re: Anyone due to start chemo April 14??

Thankyou Rollercoaster, its really good to gear from people who haven't finished the chemo. Hope time goes quick, found my lump on new years eve!! New year will never be the same again xxx

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Re: Anyone due to start chemo April 14??

Hi loulou, I'm one of the amazing august ladies so finished chemo in December. I was reading your comments re diet while on chemo and the best thing I can say is listen to your body, it will tell you what and when you can eat. If you feel like eating something go for it. There will be days when you may not feel like a lot of food and then there will be other days when you will eat everything in sight, just be sensible about it and you will get through chemo and you'll be amazed how quickly it will pass. Hope all goes well for you and all the other girls going through or about to start the chemo trail, hugs to all xxx
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Re: Anyone due to start chemo April 14??

Hi Sue

 

Very apprehensive but really want to get started now. I've read a lot of these pages whilst in the waiting room and now I know exactly what im dealing with I just want to crack on. Have you decided if you are using the cold cap?? I think I am going to give it a go but make sure I have my wig in place if needed. Dont know how interested you are in diet etc but quite a few ladies have limited there carb intake 2 days before and 2 days after chemo, I will also be trying that, along with water,  water and more water, if my stomach can take it!! 

 

Going to continue checking out the tips from the ladies who been there and done it 🙂

 

 

Take care xxxx

 

 

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Re: Anyone due to start chemo April 14??

Hey Louise I was diagnosed with grade 2 idc mid Jan and had WLE and SNB on 12 Feb, they wanted to do some extra tests on my tumour and have now had first chemo session (FEC) confirmed for 2 April Sue
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Anyone due to start chemo April 14??

Hi

 

After being diagnosed in January with grade 3 idc and two surgeries I am now due to start chemo at the beginning of April.  Just wondered if anyone else is?

 

I am seeing oncologist next weds to discuss which type but as I had one node positive and one with a micromet I am thinking it may be tac?? 

 

Louise xxx