Horseslave, glad you had a good weekend. good luck with Tax 3. Half-way! whoo-hoo, we're all getting there.
Ruby are you only having 4 cycles? (I say only, but 4 is plenty! lol)
Won't be long until the 1st Sept and you're finished. *Does happy dance.*
Shoes, here's hoping you can keep the penicilline down and the hospital lets you home.
Sending you big hugs for a speedy recovery.
Clare - good luck for your 3rd chemo today! Thinking about you and hoping it all goes well.
Still here hoping to go home this afternoon. But not banking on it they are trying me with a penicilline that is in liquid form if i can keep it down i can go home on it. Sorry i have not been on for a few days but not forgot any of you. Karen it would have been lovely to have seen you maybe our paths will cross.
Morag, hope you enjoy your look good feeling better afternoon. Who doesn't love freebies. lol
Shoes - are you still in hospital? how's things going?
JuSt, glad you managed to get out walking with your dog - and missed all the showers, lucky you. lol
Labs are beautiful dogs. I had one as a child and still miss him. Mine's a bit of a mongrel and he's off to the vet this morning too. He has some kind of rash on his skin that needs checked out. Hubby and youngest will take him as I don't think a vets is the right place for me at the moment. I do love dolling out tasks. lol
Hope 'mum' got through her op okay.
How are you feeling with your 3rd cycle?
Wendy, good new that you're finally starting to feel normal again. Will your chemo be over by the time you're due to start work in Sept? It's going to be tough going back, especially if you're not feeling 100%
Take care of yourself, ok?
hbunny - a little exercise can make you feel tons better, especially either followed by, or just after a duvet day. lol
And you fit in work too! You're a super woman and I have no doubt cake is around the corner for you.
How you feeling today?
Karen2609 - glad to hear you're going to get all your notes and I can't believe you don't have a red chemo book - mines actually orange.
Sorry to hear you were sick last night. But whoo-hoo on being half-way through. I don't think you feeling down about it is strange at all. I felt exactly the same way yesterday for mine. Kept having this strange feeling something was wrong and thought it was all the delays, but last night I just thought ANOTHER 3! And for a split second it felt too much. Happily, like you, that feeling passed.
We can do this! We especially can do this together!
Onwards and upwards ladies.
Here's hoping you have minimal SE's this time too.
Enjoy your duvet day.
Wendylois - your LGFB day sounds wonderful, and what a lot of freebies. So jealous. lol
ruby - glad to hear you're doing better, but the bone pain sounds horrible. Can the docs give you anything stronger for it?
I get my injection today so I know exactly where you're coming from.
Mogs and JuSt - enjoy your meet up. So lovely to hear some of us will actually meet in person.
Unfortunately I don't live in England so the odds of me meeting up with anyone is virtually nil. 😞
Looooong day at the hospital yesterday. My app was at 9.30 and I arrived at 9 (It’s about an hours journey) Nurse called me at 9:45 to tell me my bloods had to be repeated – liver function wasn’t right – and that should take an hour. Got to see dr at 10:30, no results back yet, but if they were ok things would go ahead and she would give me an injection to combat the nausea I felt last time. 12:45 before bloods came back, luckily okay. Infusion planned for 2:45. Was taken to chemo suite at 3pm and finally got my infusion at 4PM, finished at 4:50 and managed to hit every roadblock, tractor and traffic jam on the way home!
I felt I deserved Chinese after all that and it was delicious, probably more so when I know I won’t be able to taste much for the next few days. Have district nurse coming in this afternoon to give me my WB boosting injection and have an extra anti-nausea tablet to take each evening. Here’s hoping for a stress-free chemo 3. Yes, I typed that without laughing.
Sorry if I’ve missed anyone. Good to luck to all having treatment today and praying everyone’s side effects are minimal.
Mogs - wow, small world or what?! I'm in Cheadle and we regularly walk our dogs around Oakamoor, Dimmingsdale, Hawksmoor etc. Meeting up would be lovely so if you let me know what days are good for you we can either meet somewhere for a drink (maybe The Ramblers?) or just go for a walk - as you say, it would be nice to have a chat about our experiences as we go through this journey.
WP23 & Hbunny - reassuring to know I'm not the only one with the windy issue? Thankfully, seems to have eased off at the moment (think my family are very relieved lol).
Karen2609 - well done on getting your 3rd FEC over! Sorry to hear your were sick twice and hope that is all over now - I actually didn't mind the being sick bit as I knew I'd feel better after so hope that is the same for you. I felt similar emotions last week about the 'only halfway' feeling, but it has got better again and I'm looking forward to feeling well on the downward slope after the next treatment.
Wendylois - glad to hear you had a good time on your LGFB session. Sounds great - will have to check them out as they sound a real treat.
Hugs & best wishes to everyone,
I had my 'Look Good Feel Better' workshop this afternoon at Southampton and can thoroughly recommend them. A super experience, and able to chat with some other ladies with all different cancers; one young lady with an inoperable one involving her pelvis - awful. Anyway, I came away with a beautifully made-up face and a bag containing around £300 of make up and skincare products. Lovely! Hope everyone is getting on well. Wendy
Hi just. Yes wind is a problem and not sure I could eat it regularly, maybe leave it for a few days for tum to settle, don't want to overdo it or will be dancing around the room like sugar! Hbunny
Hope you pamper yourself silly morag. I'm also looking forward to my session, but on cancellation list for September, let us know how it goes, think I might need eyebrows by then. Hbunny
Hey Cath, do hope number 3 is now out of the way and you are home looking after yourself. My duvet day was ok, but actually I feel better just doing and improved after a walk last night, been to work until 3pm today, so things must be improving slightly, just watching the temperature - cake is around the corner, I can feel it!
How are you doing shoes? Really hope your not having too hard a time, look after you. Xx
Clare, really pleased about your blood results, there doesn't seem to be any reason for the peaks and troughs, just luck maybe. Roll on Wednesday.
Hope everyone else is holding up well this week. Love to all. Hbunny xx
Shoes - sorry to hear you are in hospital again but glad your side effects don't seem so bad this time. Sending best wishes that your infection clears and you are back home soon. Hugs x
Hbunny - your green soup sounds very healthy and pretty tasty - not sure if my system could cope with the extra 'wind' though! Don't know if it's just me but I'm defo more windy this 3rd cycle - find myself saying 'excuse me - chemo!' quite a lot. TMI?! x
Sugar8 - glad your bloods were fine and good luck for the 3rd cycle on Wed x
CathC - yes I finally managed a walk out with my dog yesterday - even managed to get out at the best time of day between rain showers and it felt great! We have two dogs (labs) but 'mum' was at the vets being spayed so I took 'son' out, which he enjoyed (but could've done with a lot more as he has lots of energy)! Hope to keep that up again as much as poss. Best of luck for today to you x
Mogs33 - I'm also at UHNS. Have heard a few people comment on 'Stoke-on-Trent not good for much but it's the place to be if you have cancer' lines, so have found that quite reassuring. Hope you enjoy your session at Derby today - let us know how it goes x
Wishing minimal SE'sl and sending hugs to all,
Karen, like slyolddog, I asked for my path report and was given copies of everything the hospital sent to my GP.
Slyolddog, I only have myself to look after too. My oldest is 26, my youngest 17 - only one lives at home and he's fit and able to look after himself. I'm in awe of the ladies here who hare juggling jobs and young children while going through this.
Morag - Glad to hear you're bad week is over and you're feeling better.
Thanks for the good wishes for my bloods, and chemo this morning.
hbunny, how did your duvet day go? Maybe we can find you a sugar-free cake to eat (just doesn't have the same ring to it, does it? 😞
Don't apologise for feeling sorry for yourself. That's what this site is all about. Plus, lack of sleep and energy gets us all down.
Here's hoping today is a better day for you.
Hi JuSt - Did you manage to get out for a walk with the dog yesterday?
I can relate to trying to find a balance between exercising and feeling tired. I wake each morning with the best of intentions, but they don't last very long. lol
Shoes, so sorry to hear you ended up back in hospital. How long do you think you'll be in?
And is the hub hubby got you working? (wow, that sentence does not read right! ll)
Take care of yourself
Clare, glad to hear your blood results were fine. I've no idea what mine are like until I get to the hospital today - they're taken at my local clinic.
I'm off soon for the hospital for, hopefully, my 3rd FEC.
Sending hugs to all the July ladies.
Hi shoes, so sorry to hear you have had another hospital stay, makes me feel very lucky not to be there myself. In relation to soup, one of the chemo nurses recommended lots of leafy greens to boost the low white blood count, so I made a soup of onion, cabbage, broccoli, salad onions and anything else I could find green, popped in some chicken broth and a potatoe to add a little carbs and also a couple of teaspoons of wheat grass powder, surprisingly tasty if you like the green stuff. Wheat grass powder might be worth researching as it is a good way to boost immunity, but won't know the results until the next set of bloods, fingers crossed.
Best of luck everyone with hotting up side effects, hopefully will get better from day 5 on. Take care everyone. Hbunny xx
oops i didnt manage to miss a stay in hospital again after my 2 nd fec. Chest infection they think, my infection indicaters went nuts yesterday morning so had to come and stay for a few days. But funnily enough my ses are nothing like they were last time. But thanks for all the hugs guys i need some of them.
Hope you are still feeling good you always manage to cheer me up.
Sugar 8 hope all goes well for you
Hbunny Sorry you feel wiped out but onwards and upwards tell me more about your soup?
Horseslave keep us updated on your new adventure
Slyolddog thanks for the reminder not done exercises for a least a month lol
Karen nice to hear all is still going well with you being half way through.
Anybody else i have missed take care and if you are due treatment this week hope the SE are not to bad.
Hi all - another Monday, another week - yay! we are getting there!! Just wanted to pop in and say hi as not been on for a few days.
Karen2609 - good luck with FEC 3 today x
CathC - good luck with your bloods today & FEC 3 tomorrow x
Slyolddog - snap! I've also got the dexamethasone 4 twice daily due to start the day before next treatment (thanks Hbunny for the info on that) x
Hbunny - sorry to hear you are still feeling extremely tired and in need of a duvet day. I feel like I've had too many 'lazy' days lately but also that we must listen to our bodies and rest when needed. Alas, sleep - that is a different matter altogether and I'm still really struggling in that department - I'm finding it pretty hard to get a balance between getting out for some exercise to help with sleeping and feeling too tired to go out to walk! Am determined to get out later today (when it stops raining) to walk the dog no matter how tired I am (she says hopefully). Anyway, hope you manage a good rest day and that you're feeling brighter again very soon x
Mogs33 - glad to hear that you are now feeling great after a bad week. What a good feeling, eh? Hopefully time will soon come around when we all have lots of the great feelings after all the grotty times x
To anyone I may have missed - Wishing everyone a positive week with minimal side effects and good luck to all those having treatment this week.
Ooh - just remembered I forgot to take my anti-biotic this morning! Chemo brain defo gets worse with each treatment (well, that's my excuse and I'm sticking to it),
Hugs to all
Hi Slyoldog (funny kindle always comes out with Slumdog!) and Karen. Hope all is well today. If you are struggling to get info about your blood counts, ask for a copy before you leave, it's your info and you are entitled to it.
In relation to the dextramathazone Slyoldog, I'm assuming you are on to tax next like me. I was told to take 4 tabs twice a day starting the day before tax, for 3 days, apparently it's more about possible allergic reaction to the tax than anti sick meds for that one. Hope that helps to make sense.
I'm having a duvet day today and just giving in, still feeling extremely tired, but solely a bit better last night. Would love to join you ladies in the cake eating competition, but being diabetic as well can't go anywhere near carbs as everything else gets messed up, things out of control this week and that's not good for a need to be in control type person.
Oh well as we all say it will get better, onwards and upwards and sorry for the obviously feeling sorry for myself day. Hopefully it will stop raining soon and I can get out for a walk later. Take care everyone. Hbunny xx
Clare, how did the blood tests go?
Wendy, thanks for the good wishes for my bloods today. I'm off to the clinic in a mo, so fingers crossed.
hbunny, sorry to hear your 3rd FEC has wiped you out.
Can't believe you've worked the whole way through your treatments without a day off. My hat (or rather, scarf, lol) is off to you. But you need your rest and if you're not sleeping it's gonna be tough.
slyolddog, how are the veins today? Great news that you've had your last FEC, hopefully, Tax won't be as harsh on your veins.
I, unfortunately, have 6 FEC to get through, 2 down 4 to go. Hoping my veins hold up.
Karen2609 - good luck for FEC 3 today. I know what you mean about being more apprehensive about the treatment this time. Each treatment takes a little more out of you, doesn't it?
Here's to minimal SE's this time.
Day 21 of 2nd FEC and whoo-hoo a hospital free cycle. I'm off for blood tests in a bit and feeling great so hoping the bloods are okay.
If all goes to plan 3rd FEC tomorrow. Half-way there!
Good luck to any ladies going through treatment this week, and to anyone suffering the dreaded SE's
Big hugs to all
Sorry for my blip on Thursday. In the immortal words of chumbawamba, I get knocked down but I get up again!
Last FEC went OK, bloods all holding up, some even higher than when I started, how does that work? Mt vein however is rank, they used a diffent one near my thumb but they all connect on the other side of the arm and it hurts now. I had an extra flush of saline too but only 55mls, I think the cost comes out of the sisters pocket! I may ask about physio for this arm, I'm still doing my post op physio for the other.
hbunny - I'm sorry to hear that your third FEC has wiped you out. You've been amazing going to work through this, my boss won't let me do anything until I'm finished treatment, so I'm making the most of my two good weeks although bored sometimes. Even after taking the steroid tablets I still fall asleep so how you keep going I don't know. I really hope you pick up soon.
Cath - cake cures everything, especially two types at once. Hopefuly I'll be up to a bit of cake tomorrow, depends when I get the awful mouth taste visit me. I think you have your final FEC tomorrow, I hope it goes well for you, glad your veins are holding up.
shoes - sorry you're not well, I hope you pick up real soon.
horseslave - you've got more get up and go than I had when well! Good on you. What trouble did you have after your tax? During my chemo on Fridat the lady next to me was on tax and was also having a reduced amount due to SE's. Poor love had her PICC removed as the tax had caused blood clots on her lungs. The nurses spent ages trying to cannulate her, very difficult veins.
karen- hope your last FEC goes OK for you, jealous of your veins!
To anyone I've left out I apologise but I hope you're all holding up. This won't last forever, it just feels that way at the moment. Good luck to anyone having treatment this week and to all who are suffering SE's I hope they ease soon. Anyone who's had experience of Tax already I'd love to know how you got on with it. I know we're all different with the SE's but sometimes forwarned is forarmed.
And here's to more cake for all of us! Take care ladies.
Thanks for the good wishes Clare. This third fec has well and truly wiped me out, down to the low white blood count probably (i knew it was going too well), so had a super charged vit k soup with all the greens and wheat grass powder to boot for lunch and now forcing a walk. However 3 hrs sleep for two nights on the run certainly don't help! Think I might take my first day off work tomorrow. Only on day 3 though so typical me expecting too much too soon.
Vein certainly better this time round though,so that's a positive. Funny you should mention hiccups, they are back with a vengeance.
Horseslave, good luck with your new venture, something to focus your mind on can only be good, go for it girl!
Hope everyone else is having a good weekend and for anyone having treatment this week I hope the gods are kind to you. Hugs to all, that elephant is getting heavier, but its still being pushed up that damd hill. Xx hbunny
Karen- Mine is the 10th and Wendy'sthe 1st Sept.Great that your veins are standing up to the chemo Good luck with your last Fec. onward and upwards.
shoes-sorry you're not feeling so well. Hope you feel better today. ((Sending you hugs)).
Ruby- good luck with the Neulasta injection and wishing you minimal SEs.
Wendy- Hope our aches and pains disappear quickly after our chemo. I find exercising helps me esp. my long walks It also helps me to sleep better
Cath- Thanks for the luck. Like you I find I'm energetic in the morning but tired in the afternnons so weather permitting I get up and go for as long a walk I can manage. I read somewhere that exercise helps to kickstart the bone marrow cells. I am all for that esp. as I am not using the injections. We shall see tomorrow if that theory works.
hbunny- Good luck with your next treatment. Hope your blood picture continues to be as normal as possible to let you continue your chemo without any hiccups.
horseslave- Congratulations and goodluck in your new business. I like your attitude. x x
Good luck to all
Shoes, sorry to hear you're not feeling great. Have the injections kicked in yet?
And how's the cough? Keeping my fingers crossed that it has and you don't end up back in hospital.
Karen2609 - did you enjoy your glass of wine last night?
I ended up having two - well mixed with lemonade - and was in bed by 9pm. Last of the party animals, huh? lol
I also ended up eating fresh cream cake, and a wickedly sinful malteser cheesecake. Yes, together, and yes, it was scrumptious, and yes, I have put on two pound overnight. *Gulp*
Good news that your veins are holding up. Here's hoping they stay that way till you have your last FEC.
Day 20 of 2nd Chemo and still feeling good. (I always hold my breath when I type that, it’s like tempting fate.) Blood tests tomorrow so gulping down beetroot juice and Manuka honey. Hopefully, that will be enough to keep the count up.
Hope everyone is having a good weekend.
hello all not feeling to well today so just a quick note. stil got a little cough a bit sob and tired. so hoping my white cell injections that i start today work and i can stay at home. love to you all hope to feel like taking notes tomorrow so i can reply to all.
Hi Ruby - wishing you luck for your Neulasta injection. Here's hoping the painkillers kick in this time.
Hi Clare - Congrats on being 3/4 of the way through your TC and Herceptin. Won't be long now before you're done with your chemo. Whoo-hoo!
I was hoping to get away this year too, but, like you, that's not to be. Looking forward to 2015 and some kind of normality.
Good luck for Wednesday.
Wendy - so glad your doc gave your new anitsickness tabs. Hopefully, they'll work for your next bout.
The 1st of September will be here before you know it.
Shoes - glad your 2nd FEC went well. How's the cough now? Must be hard dealing with emphysema and chemo at the same time.
Good for hubby getting you a hub for the hospital. When I was in all I had was my phone and the screen was too tiny to do much writing - or reading for that matter. lol
hbunny - Yay! for making it through FEC 3.
I'm still using Manuka honey and beetroot juice - disgusting stuff! - but have no idea if they're working or not. Have blood tests on Monday, so fingers crossed.
Good luck with the steroids. Stay well.
Karen2609 - good luck for Monday. Hope your bloods go well today.
Do mention your nausea again to the nurses. Did they give any reason why they're reluctant to change your meds?
Horseslave - glad to hear you're enjoying your SE free days. Good luck for next Thursday.
And starting a new business! Wow! You put the rest of us to shame. Really hope it goes well for you. Keep eating all those fresh vegetables and stay active.
Also brilliant news re the nasty nurse. Glad to hear her contract won't be renewed. What a horrible person.
Day 19 of 2nd Chemo and still feeling fine. Have lots of energy early morning, but by lunchtime it’s lights out. Maybe I’m part bear and hibernating through my chemo. Lol.
I plan to enjoy the next couple of days before chemo 3. I may even indulge in a glass of wine this evening.
Hope all the July ladies have a SE-free weekend.