Cath - big congrats on your new grandchild. Like Wendy my grandchildren are pretty much what's kept me going over the last year, especially with the youngest being born 2 days before my ANC. They're also what keeps me focused on wanting to live a long life. That may sound like I've discounted my own children and I certainly haven't but I just want a chance not to do the things I did wrong with my own children with my granchildren, if that makes sense. Anyway, you will love your new grandchild with all your heart and soul and also find out that grandchildren are very tiring!!! So pleased when mine go home, despite the love.
I had my first annual check up today with a member of the surgical team. She was a bit surpised that I hadn't had my first post treatment mammogram yet so she worted it while I was there, it will be next Friday, and they say the results will come through in 4 weeks. My boob has started hurting already! Todays appointment went fine and I go back in 6 months to see them again, which I thought was a bit quick but didn't think to ask why.
Flossie - well done for doing the midnight walk. I would like to give this a go next year, I may rope in my daughter and some friends for support. Can't give any advice re the menopause though, like Cath I wnet through that in my early forties so I'm all done. I think the medication I'm on now has reawakened the hot flushes a little but not as bad as they were. To be honest I'd love to be back having periods, no matter how much of an inconvenience they were it was preferable to be post menopausal and all the negatives that brings.
hbunny - with you on the alcohol causing hot flushes. (Said the lady with a glass of chilled Sauvignon Blanc by her side!) While it sometimes makes things worse it's a bit hit and miss so sometimes I take the risk. Red is worse than white, which is a shame seeing as red is better for you.I really hope you get your dry eyes sorted soon, have you been using any eye drops as an interim measure?
Well, I have my husbands paperwork to do, tomorrow is my day off and I need to do the VAT before Sunday. And clean. And shop. And iron. But it's a day off! Have a great weekend ladies. XX
JuSt - my scar tissue def has become more swollen and tender too. I think that's what the onc was afraid of and why he did the biopsy. While I hated having to go through all that again, I was reassured to be told it was only scar tissue. Still waiting my mammogram apt - at this point I just want it over and done with.
Have you tried your hairdresser for style and colour advice? I'm glad I choose to colour again, at least for now, it makes me feel more like me to see it coloured and straight - even if there isn't much of a fringe. lol
I intend to stick with the natural dye and natural shampoos & deodorants. Makes me feel as if I'm doing something to stay healthy.
hbunny - as you say, no news is good news, but you'd think 2 weeks was plenty of time for results. Here's hoping they arrive soon.
Good luck with the acupuncture (and your undernourished yin. - does that mean that your yang is well-nourished? lol)
Thanks for all the congrats on the impending grandchild. We're still super excited. A new baby for Christmas. Whoo-hoo!
Hope all the July ladies are doing well.
good luck for your mammogram results too. Do let us know how the acupuncture goes. How does the treatment feel? Do you know if it's supposed to be any good for insomnia? Hope your symptoms continue to improve x
Hi flossy, I've got my fingers crossed for good results for you, I'm also awaiting mammogram results, 2 weeks today, no news good news im assuming. Anyway forced menopause absolutely, dry eyes, certainly, hot flushes, yes but better over the last couple of weeks, since I gave up alcohol completely, just a sniff and im awake all night. Still have painful joints, x-Ray came back normal and visited an acupuncturist last night, who suggested all the above symptoms can be due to a rapid drop in eastrogen levels. So we are up for rebalancing my "undernourished yin" lol. Hoping for good results so will keep you all informed.
Love to all hbunny
Cath - what wonderful news! Can we call you Granny Cath yet? lol. Seriously, it really is amazing where that last year went isn't it? This year has to be better for all of us, but especially those who get to hear great news like yours x
Flossie - good luck with your mammogram results and well done on doing the Midnight Walk. Hope they manages to sort out your dry eyes soon. I've not had a period for a year (yaay - there are some 'advantages' to having had cancer!) but not really had problems, apart from relatively minor temp changes - hope you're not having too many problems. x
Wendy - good to hear your hubby's op went well. Hope the renovation is going ok. We were supposed to be getting an extension done last year but it got put off for obvious reasons and we've still not managed to get anything sorted for it happening this year - still waiting for a visit from the builder! It really needs doing but I have to say I don't feel as stressed out by it as I did last year (well, most of the time!). Am sure we'll get there with the work one day - probs need another extension by then as I also have an addiction to house mags. x
Gill - glad your mammogram was normal - I remember expecting to feel relieved or delighted when chemo was over but didn't so guess that's a common feeling when we reach these 'positive' milestones. x
Karen - one day of C25K is one day more than I've managed so well done! I keep intending to 'get fitter' but have just scoffed three lovely butter & raisin cookies! Have definitely been eating more rubbish lately so need to try to eat healthier as my clothes are feeling a bit tighter. Still....got to have some treats eh? Glad your arm not too bad. I've also got to have a CT scan (probs August) and know I won't be looking forward to having that canula in again. Still, trying not to think about it yet x
Slydog - glad to hear your dad had a lovely send off. My scar tissue is also more swollen and tender than it was (seems to have got worse last couple of months) - onc had a look and thinks it's just thickening from the radiotherapy but I'll be glad to get (hopefully) reassurance from first mammo (although not looking forward to the squeezing!). x
My hair definitely needs a cut again as it's doing the grow out at the sides and go mad at the back chemo curl bit, although still not much sign of a fringe! Can't decide whether to colour it or not as I'm a bit fed up with the grey now but also can't face going back to the constant upkeep and would really like to have some sort of style to go with a colour rather than just colour 'this'.
Anyway ladies, hope you're all keeping well. Hugs to all,
Wendy - glad to hear your check-up went well, and that hubby has his first op over him. Wishing him tons of luck for the 9th.
Flossie - Whoo-hoo! Go you (and your daughter) doing the Midnight Walk.
I'm sorry you're still suffering from dry eyes. Here's hoping they find out the cause and get it sorted for you.
I went through early menopause when I was 40 so was well passed it when I started chemo. Maybe one of the other ladies can chime in with some help and advice. I'm assuming a 'forced' menopause might be slightly different to a natural one.
Here's hoping the symptoms aren't too bad.
keeping my fingers crossed that your mammogram comes back all clear.
I've had one bit of good news, and it's got nothing to do with cancer... I'm going to be a grandmother in Nov. *Does happy dance.*
This will be our first grandchild and it's really given me a lift, something to look forward to.
What a difference a year makes. This time last year I couldn't see any future for myself, now I have a beautiful grandchild to look forward to.
Hugs to all the July ladies
Hi Wendy and Everyone else,
Have been really looking forward to Thursday for my mammogram and I was having so many mixed feelings, hubby accompanied me but he was not allowed in. But, they say 2 weeks for results, as they have 2 specialists analysing the pictures in minute detail separate from each other to make sure no changes. So if I don't hear anything this week it must be good news, as the radiographer said that if there is anything worrying they will contact me straight away, otherwise roughly 2weeks for report. Fingers crossed now.
The radiographer herself said that her husband was going through cancer, so I felt her genuine empathy.
Great to hear Gill that your results came back good, I truly wish that all of us will never have to go through this experience again, I feel ripped off of a number of things, but not dwelling on it as it will not help me get over it.
Last night I did it !!! My daughter and I walked the 7.5 miles Midnight Walk for St Helena Hospice in Colchester, in memory of my neighbour Allison (she was diagnosed a few months before me with terminal pancreatic cancer and died a cople of months after finishing her chemo). I saw a lady that was possibly a chemo patient herself doing the walk and I was so moved and impressed... I could not have walked up the stairs during chemo, let alone a long exausting route.
Anyway, exams are in full swing, only 3 left after half term then hopefully teenage depression and stress will go away
You are right about not wanting to talk about cancer anymore, but it feels soothing that we can still get the support on the forum. I too think that I had a bad dream and often it does not feel real that I went through it for nearly a year.
Started to take Nourkrin for my hair and also had blood tests as I may have an underactive hypothiroid. The GP wants to rule this out before more in depth examination for my very dry eyes.The dry eyes started in 2011 out of the blue, but this year they have got worse.
Not sure I asked this before, but anyone going through menopause due to chemo? Any advice?
Love Flossie xx
Karen, it must be a teenager thing. My youngest is more than laid back about his exams. It's infuriating.
Sorry to hear about the mum in your son's class. Seems like cancer is everywhere these days, or are we just more aware of it?
It does seem surreal to know we've been through all we have in the last year. Sometimes it feels like it's happened to someone else, not me.
It's a kinda limbo situation now, no sign of disease, but still waiting for tests etc to confirm. I guess it's always going to be at the back of our mind.
Good job we have this site, where we can moan/cry/laugh to our heart's content.
Gill, so glad you enjoyed your holiday - it sounds fantastic. And I'm delighted to hear your mammogram came back clear.
I took another step yesterday and went out for the first time without any head covering. My lovely sis-in-law straightened my hair and spiked it up for me. She even managed to give me a miniscule fringe. LOl
Everyone loved it, but I spend the evening feeling like a gremlin, waiting for the rain to strike and turn me back into a curly bap. LOL
Have to say, though, seeing my hair straight and freshly coloured, I actually looked like me for the first time in a very long time.
Enjoy the long weekend, ladies.
Hi everyone .
I agree with you all that this forum has been such a wonderful support.It is hard for people to understand the experience we have been through unless have been there themselves.At times I felt so alone even surrounded by friends and family.In some ways looking back over the year I can't believe it happened but one quick look in mirror chemo hair style!
Barbados ,we had a lovely relaxing week of eating,drinking and lying in the sun( and wind).just what we needed.since being home have been attacking the garden as became a jungle whilst away.
Had mammogram result on Wednesday,all normal.Thought I would feel relieved or delighted but didn't?
Slyolddog your dads funeral sounded very special.HOPE now you will be able grieve for your lose but remember the happy times.It is strange when both parents have died.such a big gap in your family.hug x
HOPE everyone is able to enjoy this bank holiday weekend.Look after yourselves.love Gill xx
Hi Karen - I'm glad to hear your cough seems to be getting better. I totally understand what you mean about being ok until you get the results. Definitely do get out and enjoy yourself as much as possible.
Here's hoping the results come through soon, waiting is torture.
Slyolddog - I'm so glad your dad had a good send off. It sounds very emotional. And The Last Post could bring tears to a stone.
Glad to know I'm not the only one with a still tender boob. I think the scar tissue is here to stay and I have to learn how to check this 'new boob'
How is work going for you? Are you still finding yourself getting tired easily?
This site has been a Godsend. I don't talk about my cancer with anyone at home. I don't want to dwell on it, and I don't want them treating me any differently. Here I can moan/ask questions/be uplifted/disheartened etc to my heart's content and I know you will all understand.
Hugs to all
Dad had a wonderful send off on Friday, as he had been in the army the hearse arrived with the Union Jack draped over the coffin and the last post was played after the service. If any of you have been to funerals where they play this you'll know how it makes you feel. Notwithstanding the emotional upset involved I have to say all in all it was a very good send off and dad would have been pleased with it. It's a shame that as we get older these tend to be the main events where you get to see all your relatives, and I'm quite lucky that the majority of mine are lovely.
Cath - like you I'm still waiting for a date for my first post surgery mammogram. I'm hoping it comes through before my annual check with thew surgical team but as that's on the 28th it's looking highly unlikely. I'm not looking forward to it at all, it feels like I've got a lot of scar tissue there and it's still quite tender. I just want to know when it's going to be so I can get it done.
Karen - how's the arm now? I think my chemo arm is starting to look a little better now, although it still looks 'quilted' when I turn my hand over it's not as bad as before. They'd definitely struggle to find a good vein in my hand though. How's the exam stress coming along?? Have you started on your C25K yet?
Flossie - you're really going for it fitness wise aren't you? I was doing well on the treadmill but have to admit I'd dropped off a bit the last couple of weeks. I'm going to get back to it though and up the speed. My ahir is thicker than before but with a slight curl and quite fluffy too. I hate it being short, long hair shouldn't be what makes you feel womanly but in my case it certainly helps. Don't seem to have problems growing hair anywhere else though!
hbunny - have you got your x-ray results yet? Glad to see you've referred someone to this site, it has been an absolute must for me. No matter how well meaning friends and family are they don't know what you're going through physically or emotionally like the ladies on here do. Knowing that someone is 4 years post stage 4 is also reassuring.
Wendy - how's the renovating coming along? And more importantly how's your husband. I'm an almost obsessive buyer of house magazines, I love the ideas they give you. I really should try to wean myself off but then I think why should I, it's not a hobby but it is my weakness.
I hope everyone is feeling well and enjoying the afternoon sunshine, even when it comes with high winds. Back to work tomorrow. XX
Karen - nope, no date for my mammogram yet. They did say at my last visit to the hospital that they wouldn't send an appointment before my year was up, so would only be expecting the letter sometime this month.
How are you doing, waiting for your results, is the time dragging? Or are you able to put it out of your mind?
hbunny - yeah, my boob feels different too - harder, and yes, just like it's had an uplift. It's all the internal scaring at wound site that's still tender. Makes it very hard to check my boobs because it doesn't feel like my boob anymore. 😞
Good luck with the eye appointment. I'm thinking I'll have to make some kind of appointment about my dry mouth and lack of taste. It's getting beyond a joke now. I have an appointment with my dental hygienist in June so I shall ask her about it.
Hi Flossie, so glad things are going well for you at the moment.
Congrats on becoming an aunt again. I became a grand-aunt for the second time last Monday. (Yes, my sister had her children very young. lol)
Our youngest is also in 6th form and starting his A levels next week. I'm not sure how stressed he is about them, he's very laid back - irritatingly so.
Here's hoping they both get the results they need.
Sorry, no tips for eyebrow regrowth - mine grew back thick and bushy and very long! But I'm with you on the hair growing upwards instead of downwards. lol. But hey, we've got hair. I'm not gonna complain about that.
Good luck on getting fit, and I think doing the midnight walk and/or race for life would be fantastic.
Cancer really has changed most of us, and for the better in some ways.
Hugs to all the July ladies
Hello July ladies,
Wow, so many threads since last time I've been on the site. I am glad to hear that most of you seem to be doing well and going through follow-ups, I have just had my mammogram letter, it's booked for the 21st May. Nearly a year since my surgery, it feels so distant, but definitely changed me , I cherrish each day and don't worry so much about little things, I've learned to enjoy my family time more and more.
I became an aunt for the third time last week, my only sister had a little girl and she is lovely, we may go and visit them for christening mid June, they live in Transylvania.
Our son is going through exams, he is in 6th form, so very stressful time for him, but we are encouraging him to relax, he is putting so much pressure on himself to try and get into Oxford.
Glad to hear about your hair growth, I am absolutely obsessed with it, I am not sure it is as thick as it used to be, so have decided to take Nourkrin, anyone else doing the same? Mine isn't curly, but more like fuzzy and no real shape, and yes, it does grow out rather than down at the sides... can't wait for more growth, don't like it short at all.
My eyebrows and eyelashes grew back quickly but eyebrows not very thick, so still have to use my eyebrow pencil. Any tips for eyebrows growth?
Not watched the Lisa Lynch programme, what channel was it on?
Anyway, focused on getting really fit at the moment, gym and swimming as much as I can fit around work and home/family, but I am keen on doing the midnight walk and maybe race for life, just feel like it's so important, I didn't use to feel like this before.
Take care of yourselves and your loved ones and enjoy each day
Love, Flossie xxx
Hi Karen. Not sure about efficient hospital, the x-Ray was a drop in, so they didn't have to coordinate. Next up is eye appt for the dry eyes and will have to do something about the trigger thumb and painful other wrist, just keep putting it off hoping it will go away!
I haven't been discharged yet either have an appt to discuss results in July, soon sure your appt will be along soon, maybe they could do with a prod!
Love to all. Xxx. Hbunny
Cath, sorry to say boob wasn't sore beforehand but being squeezed so tightly was painful. It feels quite different since rads almost like it's had an uplift. It was fine after though, no lasting effects.
Hope everyone is enjoying this lovely summer afternoon. Hugs back bunny xx
hbunny - bet you're glad to have your first mammogram over. Was your boob sore before the scan or did the scan hurt it? I ask because my boob is still tender and the thought of the mammogram...*Shudder*
Really hoping the two weeks fly by until you get your results.
Oh Karen just the thought of blood tests makes my knees go weak. Don't forget the lots of water before hand ladies to make the blood flow easier! Glad the scan went well and hope the wait isn't too painful.
I had x-ray of thumb and first mammogram yesterday, both fine but surprised how painful the boob was, now got 2 weeks wait for results. Here we go again comes to mind, although determined not to worry about it.
Whist waiting between appts I got chatting to a lady who was 4 years out of treatment following stage 4. She had done really well but hit a brick wall emotionally and was waiting for a therapy appt. I pointed her in the direction of this site as she had not heard of it and im sure she will benefit as we all have from being in it together.
Hope everyone is having a good day. Xx hbunny
Karen, glad the scan went well, but ugh to the sore veins. I so don't miss that part of treatment.
Here's hoping the time passes quickly while you wait for your results.
Karen, good luck with the scan today.
Slyolddog - losing your mum just before your wedding must have been so hard. I'm not sure what I would have done without my parents help in those first early years with my children.
Glad you enjoyed the grandchildren, but take time now to recover. lol
Wendy - good luck with the house renovating.
hbunny - looks like we were both diagnosed on the same day. Good luck for your mammogram - I haven't received an appointment yet, but I know I'm not looking forward to it as boob is still tender.
When is your x-ray for your thumb/wrist? I hope they find out what's wrong.
Like you, my hair seems to be getting more curly the longer it grows. I've a good head of hair now, but still no fringe.
So nice to hear from so many of the July ladies.
Hi ladies, Karen I'll be thinking of you tomorrow, do hope everything goes well but understand how nervous this scan must be making you. Hope everyone else is doing well. I've just got through first anniversary of diagnosis like many of us on 9th May and got first mammogram on Wednesday, not looking forward to that, also going for x-Ray on thumb/wrist re the bone pain, which ain't getting any better, but convinced it will wear itself out eventually.
Hair is getting more curly the longer it gets, even the fringe is nearly there but its curlying up to nothing.
Wendy you sound busy, an exciting time with a new house, I hope it gives you new energy.
Onwards and upwards. Xxx hbunny
Slyolddog, have you recovered from having your granddaughters staying over?
My mum was brilliant when my boys were young. She would take them for the odd night so hubs and I could catch up on our sleep - our youngest suffered terribly from colic.
I hope I'm able to do the same for my own grandkids when they come along.
Karen, I'm not surprised you're anxious about the scan results. Getting that first diagnoses of bc knocks the confidence right out of you.
Good luck with your scan tomorrow. Keeping you in my thoughts and prayers while you wait for the results.
Hugs to all the July ladies
Oooh, Gill, Barbados! I'm sooo envious. I hope you enjoy every minute of it - you deserve it.
Well, it's one year today since I was diagnosed. In some ways it's been the best thing that ever happened to me. I don't take life for granted any more, and I no longer care what people think of me - so liberating.
Saying that, I'm still glad to be on this side of the year.
Onwards and upward, huh ladies?
Hugs to all
Hi July ladies.
I am off to Barbados in the morning.All packed with 30 and 50 protection sunscreen (don't usually. Use any!) Antibiotic cover from GP just in case.Can't wait to feel Sun on my skin and swim in warm sea.bliss.
HOPE everyone keeping well as lot of first anniversaries occurring.
Will raise a glass of champagne to you all as leave UK
Love and hugs Gill X
Karen - are the blood tests because you're on hormone treatment?
It's also a year this week from my diagnoses (9th) Scary how quickly that year has gone, and yet how vividly I remember the doc telling me the news!
Wendy, So glad you had a good trip, and the weather stayed nice for you.
I haven't thought about risk reducing surgery, although I admit the fear of reoccurrence is always at the back of my mind. Let us know what your breast nurse says when you ask about it?
Couldn't watch the Lisa Lynch programme. I'm an ostrich - I like to bury my head in the sand.
I guess we're all worried about reoccurrence. I wonder if that will ever leave us, or will we have to learn to cope with it?
The rain has finally eased here, and the sun has poked its head out. Looks like it's going to be a nice May bank holiday.
Glad to hear the blood test went okay, Karen.
May it be a looooong time till the next one. lol
Karen, I'm with JuSt, good luck with the blood test - we forget so quickly how much angst they used to cause.
Just like good weeks and bad weeks.
How far we've moved on. Our lack of fringe pale in comparison.
I'm with you all on the fringe business! I've already had three trims to the rest of my hair but still not much sign of a fringe...sigh.
Good luck with the blood test Karen - amazing how we almost forget about things like vein problems until they are needed again. Hope it's all over quickly and painlessly.
Love to all