@Jayne1966 If you are on a desktop, you might try the pull-down menu "Thread Options," located next to the "Reply to this Thread" button at the top of each page. The default option is usually "Sort Newest to Oldest"; if you choose "Sort by Threads," some of the messages will make a bit more sense, as a person's reply to a particular message will appear beneath it -- but keep in mind that "Sort by Threads" goes Oldest to Newest, so the new messages will be on the last page (page 12 as of today). I still find it confusing, since my browser doesn't stack / indent replies, which means trying to figure out from context what constitutes a "new" strand within the thread. That's why I tend to pseudo-tag people's names at the start of my posts -- though that's not always clear either.
I'm really struggling to fllow te conversations in here as it all seems to be mixed up and coming in order of posting, so i see a reply to something posted earlier mixed in with new posts and other replies and its hard to follow a single conversation. Is there some way of making the site easier to follow ? Any advice welcome - so longas I can find it !!
Hi gocat. My Practice Nurse flushes my PICC line. Round here if you’re able to get about the DN’s won’t come out. I go to the Chemo Unit for pre chemo assessment and they take bloods then
Hi gocat, so sorry to hear that you're feeling so nauseous and hope you feel better very soon. The sea sickness bands or travel bands can be bought from the chemists. They are usually used to help with travel sickness, but they were recommended to me for chemo xx
Hi I am so sorry that you have been so unwell at the onset rest assured that the chemo team will do all they can to avoid these symptoms happening again!
Please join the Dec 18 chemo thread where you can make this journey with others on a daily basis that will be undergoing the same treatment and feelings as you! You will be stronger with others who understand exactly what you are going through!
Good luck, you will come out the other side! 🌸
Spoke too soon. Nausea again. I took a
Motilium 10mg tablet. I got some prescribed for PRN (when necessary) but not sure how long to take them for i.e. how many days. I know not more than 3 in 24 hour period. Seems to have taken the edge of it anyhow. I was taking up to 3 a day in the few days after chemo. Can I continue doing that if necessary.
Hi all, I've been advised to get a Picc line and waiting for a date to go to my local hospital for. But I was told district nurses will come round once a week to flush it and to take me bloods from it pre chemo. Anyone else get this?
Day 5 from chemo and nausea not too bad today.
What sea sickness bands do you get Jencat
Jayne, I'm so glad my little bit of info helped you. I was really nervous about having the line fitted, but it was fine and it didn't take long to get used to it. I found the bandage they put on a bit of a nuisance at times-one size was a bit loose and the other a bit tight at times, but there have been some suggestions on here about how to get round that and you can buy covers if you don't want the bandage. I didn't bother to as I was going through chemo during the Autumn and Winter.
Also, not sure if I've mentioned this anywhere, but I wore the sea sickness bands during chemo and for a few days afterwards and wasn't sick at all and only felt a nauseous once or twice. It might have just been a coincidence, but I felt the bands helped xx
Hi Rhubarb. I have other health issues but am trying to do some walking. Though over Christmas I have had to rest up. I’m learning not to plan too far ahead and take each day as it comes.
You have certainly been through the mill. I am glad you have come through it. I do feel that my life has changed forever. Trying to get my head around it all still
Go for it if the veins become harder to find.
I had mine for cycles 5 & 6 as by then they were struggling to find the veins. It was much quicker for administrating the chemo and less painful as they weren't puncturing in search for veins anymore.
However, the thin line can be a little irritating but this can be mitigated.
Love the football sock idea. Think I put a square padded bandage across mine and held it in place with surgical tape. But mine was on the chest.
I had a cold cap too and believe it has to be for all cycles. Retrospectively I'm not sure I would opt for it again. I still lost most of my hair but it did mean I had a little bit of a head start when it began regrowing.
Do what you can but be prepared that there will be periods where you have to stop, leave it alone, rest and put yourself first regardless.
I did find I could exercise. I cycled which gave me the freedom to go at my pace and not come into contact with too many others. Swimming was forbidden by the oncologist. I also walked a lot.
I had 3 breast cancer ops including a mastectomy. FEC-T chemo with a pict line for the last 2 cycles, radiotherapy, 3 reconstruction ops. and Anastrozole / Arimidex with calcium drugs for 5yrs. Have just finished the drugs. So in theory on my way back to normal.
It is a long journey with ups and downs along the way. Life is never quite the same again. As somebody said to me when I began my journey 'you now belong to an exclusive members club'. Dig deep, have the courage and challenge yourself, you can and will do this and come out a stronger person for it.
Hi maryKamille, just wanted to give you some reassurance re having a PICC line. I'm from the Oct '17 group. I had a PICC line throughout my chemo and I didn't have any problems with it at all. I was nervous about having it put in, but I didn't feel anything and having it removed was even easier (only took about a minute!) It was a bit of a pain at times having to keep going to the hospital to have it flushed, but on the plus side I found it quite reassuring to see someone in the chemo unit regularly.
I bought a plastic sleeve from Boots (It was about £5) so that my arm didn't get wet in the shower x
Hi Nanna J - I, like you had my first chemo on 20 Dec and am due session 2 on 10 Jan. I'm also wobbly about the whole hair thing. I've got a couple of beanie hat things - but they look a bit bonkers on me to be honest. I've got a wig - which would be fine if it was just for messing around but I'm not sure how great I'm going to be with it as a medium term replacement for my hair! I've also got a couple of scarves but, again, I'm going to have to gain some self-confidence to be OK with those too. I KNOW it's only hair but it's really difficult on top of everything else - I had a mastectomy with a temporary implant in late October and had to go back to surgery to remove a haematoma in mid November and I then had a port inserted 2 days before I started chemo so my body still feels pretty hammered by all that.
That all sounds really negative - to be honest I've been kind of more accepting about the whole thing since Christmas - but even on "positive" days this is all still really awful!!!
Fluffysunshinepants. That’s such good news for and has taken a weight off your mind. I’m so pleased for you xx
Hi all, hope you are all wel. Next year we will finish what we started.
Thanks for the info about working or not, I am currently having holidays and some days I think "yes I could work" and other days I am too tired. I enjoy my work but hate the open plan office. To be honest, I would like to do a 'Kylee' and disappear for half a year or so. However, I am the breadwinner and cannot taken endless days off. I was selected for jury duty in January but I applied for (and was granted) exemption because I don't know if I will be well enough and then there is the infection risk. I would have been interested to do it and hopefully there will be a next time.
About my hair, when I pull at it it comes out so I buzzed it off. To 3 mm to begin with and it actually suits me, I think. It feels kind of refreshing. I have to remind myself that It will look different when I go truly bold.
On the hair front: I found this scarf-tying video quite clear. It is on a site that sells various headwear, but no need to buy their scarves in order to use the advice! I'm lazy, so during the first two cycles of chemo this summer, I tended to just tie a kerchief over (first) my thinning bob and (then) my DIY pixie.
I got a lovely wig from Trendco, which my hairdresser trimmed a bit for me, but I mostly use it on very cold days -- extra warmth -- or during video calls and meetings for work, primarily because I was never one to style my hair, and every wig is far more polished-looking than either my OH or I are used to. (My hairdresser advised artificial hair as natural hair can be more itchy; I also read that long hair wigs of artificial hair are more likely to fray from contact with necklaces, etc., so went with a bob.)
Once all my hair was out, I ended up being more of a beanie girl -- my mother is a quick crocheter (I'm a very slow and new knitter), and whipped several up for me in a couple days from cotton yarn, as I have a slight wool allergy. She found quite a few patterns via the Knots of Love site, for anyone interested in this option. Depending on the color of yarn you choose, these patterns can look quite "modern"/hip. I like these better than jersey beanies, as the patterns provide some texture.
I think it really helped me that I found a look that felt like me, even though it was nothing like my pre-chemo hair style. Keep experimenting til something feels right.
And my hair started growing back after I switched from FEC to T, so now I have a growing buzz across my whole scalp after being completely bald. But I love my beanies.
@maryKamille Laxidol powders sound great -- a really good pointer for your fellow December starters. (I'm a June 2018 starter, now finished with chemo and healing from surgery; still getting Herceptin, though, and now waiting for my pathology results so that we can confirm a plan for radiotherapy, with hormone therapy after that.)
I didn't get a PICC line, but quite a few June 2018 starters sing their praises and have shared advice on both the June and October 2018 threads. Do feel free to pop into either of those threads to ask about their experience.
MaryKamille. Sorry your hair is coming out 😟😟. The videos are on YouTube. I did a Google search for scarf tying for chemo or something like that. Some are American but there are some ladies in the UK who have done some.
wishing you all a happy new year.
Thought this might help someone - I was finding keeping my PICC line in place really irritating until my son donated some old football socks - cut off the ribs at both ends and the middle bit grips enough to stay in place without being too tight!
Im on fec-t, second fee on the 3rd Jan. Dreading it now although only minor side effects last time(apart from being sooo tired!) Cold capped for 1st one but not sure what to do now. Is it necessary for all six sessions or just the fec ones?
Watch your teeth. Take extra care. I had a lot of treatment during and after. Sorry but chemo will impact them.
Forgot to say...
You will almost certainly get chemo brain for quite a while after - not painful just a bit foggy, vague and forgetful.
You will also feel very tired for some time after too. So pace yourself and sleep when you can.