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Anyone starting Chemo in December 2018?

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Re: w, Re: Anyone starting Chemo in December 2018?

On the good news bandwagon, genetic test results negative and I have also been called by my oncologist’s secretary letting me know that my full body PET scan that I had yesterday is all normal 🙌  I was sent for this as my blood results before each chemo were a little odd (tumour markers, liver, calcium) but obviously that was simply how my body was reacting as all ok! 

So my next steps are....

1. Agree what my reconstruction options are on my flat side

2. To understand whether I can have my healthy boob gone and if so how we reconstruct this 

3. Start Tamoxifen 

4. Open some champagne for achieving so much over the last 8 months 🥂

 

I am very much aware there are many more physical and emotional things to encounter here, but relieved that we are ALL making massive steps in the right direction.  Hopefully the crapiness is becoming a little more contained rather than making up the entire picture which is where we all started from. Big hugs ladies, thank you G x 

 

 

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Re: w, Re: Anyone starting Chemo in December 2018?

Great news Ditkat!   It really is a weird time when you finish one area of treatment and move on or get "let go" for a while... hard to process and something I have struggled with sometimes.. but time, as always, helps with the moving on.  For those of you still on the rollercoaster.. don't worry.. be strong and you'll get there too.

Sending big hugs

Kip

x

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Re: w, Re: Anyone starting Chemo in December 2018?

Way to go DiKat, excellent news especially as you had to wait so long for the results.

 

Stuck at 12, sorry you are feeling low and still have surgery to come when most of us are coming to an end of treatment. Try to stay positive, the oncologists have to be pragmatic and make us aware of all possible risks. 

 

I see a few ladies are struggling coming to the end of treatment. It is a bit weird coming to the end or being shunted on to the next department, you just have to look at the threads coming after us to realise how many women are on this conveyor belt. There are a couple of books out there about life after cancer if you think that might help.

 

Re meeting up, did we come up with a date this side of Christmas? 

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Re: w, Re: Anyone starting Chemo in December 2018?

Absolutely Annie.

 

i don’t seem to have been too bad with the Zometa. My Oncologist told me to take Vitamin D every day for 3 years and then every October to April. I have also increased my calcium intake. She didn’t talk about percentages. Fortunately my teeth are not too bad. I just feel st the moment I want everything thrown at the cancer.

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Re: w, Re: Anyone starting Chemo in December 2018?

Dikat 😁😁👍👍👍😁😁😘😘😘😘💃🏻💃🏻🕺🕺💃🏻💃🏻💃🏻Wonderful news 💪💪💪💪💪amazing beautiful ❤️❤️ So happy 💕💕Shi xx

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Re: w, Re: Anyone starting Chemo in December 2018?

stuck at 14

I believe that the surgeons being positive is a good sign.  I think oncologists are more concerned with the drugs and chemo.  They gave me a dip too at one point but then the surgeon took all that away and really lifted my spirits.  The surgeon actually sees more I think.  So place your trust in the surgery that you will have.  July is only a few weeks away and with chemo and radiotherapy behind you I believe that the surgery will really give you a boost. 

Everyone has these thoughts but people are here for you.  so put it down to the miserable weather we are having and look forward to the surgery if you can.

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Re: w, Re: Anyone starting Chemo in December 2018?

Drummerswidow 

You are far stronger than me.  I know what you mean.  I thought too that I was being passed around but realised it is just the way they operate.  They are key targets that the hospital has to meet.  I know my surgery was brought forward as it had to be done within a certain time after finishing chemo.  I too was miffed as when I was waiting for my taxi home my surgeon was leaving the hospital.  He came to me and said I will see you in a few weeks. (2 after my op).  When I went to this post op there had been some sort of emergency and he was late. I was seen by his assistant who did the sentinel node biopsy but I didnt mind as this man was just as kind as the lead consultant. I think all hospitals take each patient up to a stage and then pass us on. 

Similarly at my last oncology appointment before surgery I saw my consultant oncologist's assistant and was surprised last week to see the consultant oncologist.  I noticed that there was only a few in the waiting room who appeared to be new patients waiting.  Although the other doctor was there I didn't see her this time around and I am convinced it depends on how many patients have to be seen.  

How are you finding the Zometa - I am concerned because my teeth are not good.  One to be extracted and all wisdom teeth loose which I refuse to have taken out.  Then I have osteopenia and had an awful experience with Aledronic Acid in the past.  Oncologist told me there is a risk of fracture to my thigh/hip which I would not want.  i may still go for the Zometa as like you I would be having it every 6 months for 3 years. I was told that it reduced the risk by 2% and I thought that this was low compared to 7% for letrozole and 8% after chemo.  I am not really sure what the percentages are about but I thought 2 % was quite low. 

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Re: w, Re: Anyone starting Chemo in December 2018?

Hello ladies. Just popping in to say hi. 

Dikat so pleased re your post today and the good news - sorry to hear you’ve been feeling low and had so much to deal with over the weekend. 

 

Caught up on recent posts and glad to hear drummerswidow you’ve finished your rads, and hope that Prosecco went down well and tasted like a victory as you get over another hurdle of treatment. 

 

Best wishes all, thinking of you 

KC72 x

 

 

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Re: w, Re: Anyone starting Chemo in December 2018?

Hi absolutelyannie, 

Just wanted to say I understand what you mean about leaving the surgeon and breast care nurses, even though I havent seen mine since December, I cant wait to see them at the start of July to discuss the next part of my treatment- preventative surgery. 

I have found the chemo and rads to be much much harder, than the surgery and also found the oncologists to be less optimistic about my situation that the surgeons were. 

 

I will finish rads on  Tuesday but have never felt so low about the future and I definitely feel like the cancer coming back is a when not if, even though this isnt what the  doctors have told me, the oncologist seemed very concerned about my 9 affected nodes, add thisbtobmy ongoing cough and ct scan to investigate I just feel like it's not going to be over for me at all. 

 

Sorry to be doom and gloom when we should all be celebrating but I think most of you understand. 

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Re: w, Re: Anyone starting Chemo in December 2018?

Dikat

 

what wonderful news! It’s nice to know that b awful chemo has done the trick. Though it’s a shame you were so unwell with it.

 

onwards and upwards for the Radiotherapy xxx

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Re: w, Re: Anyone starting Chemo in December 2018?

Absolutely Annie.

 

 I am having Zometa and had it with my chemo. I’ve now got to have it six monthly for 3 years. I know there are side effects but if it prevents/reduces my cancer going into my bones, I decided to go with it.

 

It’s an emotional rollercoaster. I was a bit miffed when I saw the surgeons on Monday and it wasn’t the Consultant who had done my surgery. I feel a bit numb at the moment. I think it’s because we have had so many hospital visits and contacts.  You’re doing really well and are strong xxxx

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Re: w, Re: Anyone starting Chemo in December 2018?

Jayne1966

Yes I got the good news 29th May but have been bawling my eyes out since!!! Maybe I have been in denial I dont know but I do know I felt  a great loss leaving the surgeon's room as he was so kind to me.  I felt like I have lost some really good friends.  it would be great to keep in contact with some of them but that is not allowed.  Doctor/patient boundaries and all that. 

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Re: w, Re: Anyone starting Chemo in December 2018?

Dikat 

Yes I have a Macmillan counselor for support.  Yes I did have my sister for the important consultations so I wasn't totally alone but I feel it now.  As somebody here said once you have had surgery everyone thinks you are better.  I feel that I was so busy going to hospital appointments that I did not think about what I had or perhaps I was in denial.  

I have to have a tooth pulled before I can start the Zometa and would you believe after all this crap, I am more scared of that!!

Good luck with the radiotherapy - I have my planning meeting next wednesday so am surprised you have to wait 4 weeks.  

 

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Re: w, Re: Anyone starting Chemo in December 2018?

Dikat, that's awesome news. 

Absolutely Annie, Iust have missed your news post but brilliant to hear you had the same. I envy your emotion at the news. I sill have none at all, however I feel very excited as the news comes in for everyone else. 

How far did we get on the meet up plans. I saw something about a WhatsApp group possibly? More excited than ever to meet up with all you amazing and strong ladies and I am humbled to be part of this incredible group xx

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Re: w, Re: Anyone starting Chemo in December 2018?

Hi absolutelyannie 

It’s lovely to hear that you had such a kind, caring and compassionate breast care team. I’ve been lucky too when I read experiences that others have had. I’m sure it does feel like there is a void in your life right now, especially if you don’t have the support of a partner/family & friends. Have you looked any further into Macmillan support? 

I suppose you have to weigh up the pros and cons with the Zometa and choose what’s right for you. It does feel weird for me going to the chemo suite every 3 weeks but you get used to it. Take care xx

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Re: w, Re: Anyone starting Chemo in December 2018?

Dikat 

Well done - on the same path as I am.  I got very emotional after my surgeon discharged me.  I made it home but the floodgates opened.  I still am reduced to tears when I remember the kindness shown to me by the surgeon and some of his team.  I look on them as friends for life.  

Every time I think of them though the tears come streaming.  I think because I was on my own they went out of their way with kindness towards me.  

One of the nurses said to me I bet you will be glad to get finished here but I felt they were better than some of my friends and family. 

I am being offered Zometa every 6 months for 3 years but the side effects scare me.  I have problems with my teeth but there are others.  My oncologist gave me a magic 2% number which I assume is the reduction of recurrence rate. I am seriously thinking of saying no to this as I dont ever want to see the chemo room again. 

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Re: w, Re: Anyone starting Chemo in December 2018?

That is just fabulous DiKat, will raise a glass to you 🥂!! G x 

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Re: w, Re: Anyone starting Chemo in December 2018?

Hi everyone 

Just back from appointment with my breast surgeon re surgery results. So grateful and thankful that everything is positive.

The lump that was taken showed clear margins and that the chemo had resulted in an excellent response. She said that the tissue had a couple of tiny spots in it and some DCIS (apparently chemo isn’t effective on this) but overall almost a complete regression. She had taken 5 lymph nodes, 4 were clear and 1 was scarred meaning there had been cancer but again the chemo had done it’s job. I know you all know I had such a crap time with chemo (particularly FEC) but right now I’m so thankful for the horrible stuff!!!

I don’t need to have RT on my armpit but will still be having it on my breast in approximately 4 weeks, not sure of date as yet. BCS says it’s just belt and braces stuff that goes with a lumpectomy. She was so reassuring and said although she didn’t need to see me for a year now, to get in touch with the unit if I had any concerns. It felt weird because didn’t realise she would be discharging me from her care at this point. On reflection I hope she didn’t think I was being ungrateful as I wasn’t bouncing up and down like I thought I would have been, just felt and still do feel a bit dazed really.

In addition to radiotherapy I will still be having 3 wkly intravenous Herceptin/Pertuzumab for approx next 9 months so haven’t been cut loose from Oncology just yet, thankfully 😅 

Thank you all for your continuing support amazing ladies 💕💕💕🤗🤗🤗

 

 

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Re: w, Re: Anyone starting Chemo in December 2018?

Drummerswidow

 

Well done - lucky girl

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Re: w, Re: Anyone starting Chemo in December 2018?

Hi G

You we’re awake early. Hope you’re ok and not suffering with se’s.

Thanks for your kind, wise words. I really appreciate having the support of you lovely ladies ❤️

The weather is awful here, really heavy rain. On a positive note, should have lush green grass 😊

Have a good day all 💕🤗

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Re: w, Re: Anyone starting Chemo in December 2018?

Fantastic news Drummerswidow, you did what you had to do and you did it in style 👏🏻  🥰 

 

Hey DiKat I have no real words to make anything better here as so much is out of your control and just horrible and so upsetting, big hug.  How you feel about you is a bit more in your remit but not as much as it should as cancer is very much still in pole position here (if how I feel is anything to go by) with the physical changes we have endured, the emotion and hormonal impact we are bound up in going forward.  Some of this will get a bit worse before the curve goes up, some will be starting to improve albeit slowly and bumpily. All I know for sure is the women in this ickle group will get there however you need as much love and support going forward (if not more in some ways) as you did upon initial diagnosis and you need to be kind to you, you and your body have achieved so much so far ❤️

G

 

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Re: w, Re: Anyone starting Chemo in December 2018?

Congratulations Drummerswidow, hope you enjoyed the prosecco, sorry you have had to struggle through all this on your own. Sunnydaze sorry to hear you are struggling on rads, hope it settles down. If it gets bad ask to see the nurse early, I think you usually see her towards the end of treatment. DiKat hope you have a good week, sound like you had a tough weekend, as you say onwards and upwards.

 

Marlyn, I am also on Anastrozole, just coming up to 4 weeks and so far so good.

 

Have a good evening, x

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Re: w, Re: Anyone starting Chemo in December 2018?

Hi maryKamille

Good that you only have 3 rads to go and they are hurrying you through.

I’m sure you will love LGFB and great that you have a holiday booked for July. 

I think another reason I was grumpy this weekend was because I should have been in Bordeaux on a girly weekend for the start of my 50th Birthday celebrations!

I love your philosophy about switching to a positive thought before getting out of bed, gonna give that a try 😊

Yes it is great news about Jayne 😁

Xx

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Re: w, Re: Anyone starting Chemo in December 2018?

Hi DiKat

 

Shame about that huge post. I have managed to lose a few - don't know how - but not marked as spam, as far as I know. Maybe you just pressed the wrong key?

Had my 12th Rad today and only 3 more to go. They seem to be hurrying me through now, which certainly helps with the shoulder. I will get physio though to avoid any future problems. I can take paracetamol AND Ibuprofen before the Rad sessions, so the doctor told me, as they approach pain relief in different ways. So I double up.

Everytime there's a problem we all seem to get to a solution somehow, sooner or later. We're all still here on the forum. I have found it so comforting to know that I am not alone in all the peculiar individual responses we sometimes have, that our SEs are not unique, and tips and ideas shared by us all make such a difference. The forum has given me a real sense of solace.  

It is all ups and downs, but I guess that's the nature of the disease. I am going to a Look Good Feel Better workshop just after Rads finish, and we've booked a holiday in July. I think its good to set up 'treats' to mark each time we get through a course of treatment, if you can. It's something to focus on.

When I wake up in the morning I try to switch from my immediate worry - what I have to do today at the hospital (daily Rads) - and ask myself what I'm looking forward to, and I won't get out of bed until I have thought about something good.

 

Drummerswidow - I don't think I would have made it on my own. I am so lucky to have my husband and I think you are so strong. I really admire you, as many others on here do.

 

Hope we are all beginning to see through to the end of treatments and get that 'all clear' which Jayne  did and must believe in! Hope you see my separate post, Jayne. xx

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Re: w, Re: Anyone starting Chemo in December 2018?

Hi Sunnydaze 

Yes I am feeling a bit brighter today thank you. 

In a nutshell was a combination of me being anxious about still not having results. Not liking myself which is down to hormonal changes I think, being angry, tearful etc. Having mother in law crying and begging to come home (she went into a home at Christmas due to deterioration in her vascular dementia). My husband doesn’t have any siblings so all falls on us. Then finding out a family friend was told she has terminal liver cancer on Friday, despite previously being told it was a blocked bile duct. I’m trying to offer support, via text only, but really struggling to deal with it. 

Anyhow, like I say, onwards and upwards.

Im sorry you’re finding the rads difficult and already having problems with your skin. Just shows it can happen in the earlier part of the treatment so hope you get some good advice with managing it. Just one last push Sunnydaze you can get through this. Great news about your delayed return to work. It will give you chance to recover and have some time finding your new normal. Sending love and hugs 💕💕💕🤗🤗🤗

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Re: w, Re: Anyone starting Chemo in December 2018?

Hello marykamille,

hope you don't mind me popping in from the Feb thread....I was just relieved to read your doing ok ( so far) on anastrozole.....I'm halfway through rads and will be starting these when I'm done....all I seem to read are the side effects....and I'm getting quite depressed about the idea of starting them but your post has cheered me up! Fingers crossed I'll be the same...xxx

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Re: w, Re: Anyone starting Chemo in December 2018?

Hi Jayne

 

It's all shock which is holding you back, I'm sure. The emotional bit will come and it will be a huge sense of relief that endures.

Agree that the shrinkage by 50% of tumour is no indicator of how Chemo has zapped any other cells that needed mopping up. It's very common for tumours to shrink or even not seem to reduce at all. The Chemo is to block possibility of secondary, and your oestrogen blocker helps seal it all for the future. I am on Anastrozole which I started with the beginning of Rads and I am nearing the end of that treatment now without any SEs (fingers crossed still) from the oestrogen blocking pills. So should be no worries there either!

You've been through so much and come out the other side. Now's the time to relax, look around at your family and husband and the world outside and simply enjoy the moment! Lots of good wishes to you xx

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Re: w, Re: Anyone starting Chemo in December 2018?

Wow, great news that you’ve finished Rads, Drummerswidow. You’ve  smashed it. I am so pleased for you, it must feel a bit of a relief.

You enjoy your Prosecco girl, well deserved. Those little bottles are perfect for a wee celebration 🍾 . I’m sorry your special person isn’t here to celebrate with you, but I bet they’ve been watching over you. 

I agree with Dikat, you have been amazing Drummerswidow, supporting us all, whilst dealing with your own battles. 

I hope the meeting with the surgeon goes well 😘

Dikat, I’m sorry to hear that your weekend hasn’t been so good. I hope you’re feeling a bit brighter today. It is all so difficult at times isn’t it. That heavy feeling of sadness is hard to shift at times.

Im actually finding rads rather  difficult. More emotionally than physically,  although my skin has become quite sensitive and im only 3 down. I think I was in denial about it all...

I think I enjoyed my recovery time  after chemo and here I am plunged right back into the thick of it again, it just pulls you down again and feels never ending. My poor body has been through so much, it’s hard trying to rebuild my life. It feels like one step forwards and one step back at the moment, but I guess time is the best healer. At least I’ve been able to delay my return to work until mid October now.😊 That’s one less source of stress.

Sunntdazexx

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Re: w, Re: Anyone starting Chemo in December 2018?

Hi Drummerswidow 

Yes, it took me ages to type. Wonder what I said that wasn’t allowed! Never mind, new week, onwards and upwards. 

It made me tearful reading your post. So pleased for you that you have finished your radiotherapy but can’t imagine how it must feel for you to not have that one special person to celebrate with. That’s why I think you are so strong and amazing. You’ve soldiered on, on your own and have been selfless in supporting us too. You enjoy that Prosecco 🥂cheers. Hope all goes well with the breast surgeon too xx

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Re: w, Re: Anyone starting Chemo in December 2018?

Drummers widow, awesome that you have finished rads. Enjoy your prosecco hun. Hope you get good news from the surgeon too. Xx

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Re: w, Re: Anyone starting Chemo in December 2018?

Hi Dikat.

 

after all that typing and your post disappears! What a bummer! 

 

Sounds like you’ve had a bad weekend which I’m sorry to hear. I hope you feel better this week. Mind you weather wise it feels like winter here. 

I finished my Radiotherapy this morning and rang the bell 🔔. Woke everyone up in the waiting room! The staff asked me how I was going to celebrate. Made me feel sad cos the one person I want to celebrate with isn’t here. 😟😟 Never mind I have a small bottle of Prosecco in the fridge. First alcoholic drink since Xmas day! 

 

Off to the other hospital now to see the Breast surgeon! 

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Re: w, Re: Anyone starting Chemo in December 2018?

Just done a huge post that has been removed and marked as spam. Maybe it’s a good thing you don’t have to listen to all of my woes from the weekend so will just say

LB2 congrats on finishing rads and what a 🌟 your hubby is.

Marykamille, sorry to hear about your shoulder and hope your physio sorts you out.

To all of you who are having rads, thanks for all of your posts. It’s really useful to read your experiences and will help when I start mine in the future.

Love to all 💕💕💕

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Re: w, Re: Anyone starting Chemo in December 2018?

Morning everyone 

Sorry I’ve been quiet over the weekend, been a bit of a strange one! 

Firstly, just wanted to say well done LB2, so pleased your rads are over and what a 🌟 your hubby is 💕

It’s fantastic news about Jayne too isn’t it, I have congratulated her on fb messenger.

Hopefully I won’t bring you all down but I really don’t like the me that has surfaced this weekend. I know I am anxious about my delayed surgery results as feel totally in limbo not knowing if I need further surgery  or when radiotherapy is going to start but to top it I think my changing hormones are really affecting me. I’ve struggled all my life with them really and having endometriosis made things worse. I had a hysterectomy 10 years ago but kept my ovaries. I’m just on such a short fuse and feel angry which isn’t me! My hubby has taken the brunt of it with my phone and specs being thrown at him this weekend. He says he can’t do anything right. Definitely got leaky eyes syndrome too, just emotional at everything happy or sad. I’m not sleeping well at the minute either freezing or in a pool of sweat and having quite a lot of hot 🥵 flushes in the day which results in me looking like a beetroot! I’ve been told to try the lady magnet (I’d never heard of it) that you attach to your knickers, anyone else tried it?

This weekend would also have been the start of my 50th celebrations, which is next month, so I should have been returning from a girly weekend in Bordeaux today. I know I can do it at a later date but I’m still p****d off at cancer! I did manage to have a nice couple of hours at my Sons football presentation, which was Saturday teatime, but snapped my hubby’s head off when he said did we want to carry on out afterwards. No I bl**dy didn’t, just wanted to get home and get my dressing gown on. I feel such a bore beyond my years! Bless him, he can’t say anything. 

To top things off, my daughter came in from work Sunday and told me her best friends Gran, who is a family friend, has inoperable liver cancer despite being told a couple of weeks ago that it was a blocked bile duct! She is one of the most clean living people I know. I doubt that an item of processed food has ever past her lips never mind smoking or drinking. I have messaged her daughter this morning and they are currently trying to get an appointment with a top consultant at the Royal Marsden to see if anything is possible 😢

Its so difficult and sounds selfish, I want to support but really feel like I can’t cope with being involved right now. She has messaged and said to concentrate on myself but that makes me feel a rubbish person.

I visited my mother in law yesterday, first time since my wig removal. She went into full time care in December, vascular dementia. Wasn’t sure how she was going to react but she said I like your hair when she saw me. She spent the rest of the visit crying and begging us to take her home, it was awful. Trouble is she’s too bad to be at home but not bad enough to forget everything. I told her I was picking her up on Thursday for a hospital appointment and she said ok and then you will be taking me back to my house, right? Wrong, so that’s going to be fun. Luckily my sister is coming with me for moral support as hubby can’t get time of work.

Sorry for being such a barrel of laughs but it has helped just typing all of this. I know you lovely supportive ladies understand. We all have our rubbish to deal with because it doesn’t stop just because bc has jumped the queue.

So, it’s a new week, results on Wednesday and I’m going to do my best to keep calm, positive and stay busy (distraction is key)

Love to you all 💕💕💕

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Re: w, Re: Anyone starting Chemo in December 2018?

Good Morning Ladies,

I hope you all had a good weekend.

Great news to hear that you’ve finished your rads LB2. It’s been a long journey..... i hope  you enjoyed your pub lunch. I hope you can move forward slowly, but surely rebuilding your life. 👍😊😍

Jayne, I’m sorry that you have been through hell and back with your post surgery issues, but hopefully you are through with the worst of it and it sounds like you’ve had some really good news - NO RADS and CANCER FREE. Wow, that’s great to hear and I’m sure that chemo would have mopped up any stray cells, I’m sure they are easier to kill than a tumour. I’m so happy for you and I hope you too can start rebuilding your life. It’s been soooo tough, now you can start enjoying the summer a bit more.

Well Done ladies, really positive news. 😘😘😘😘

Sunnydazexxx

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Re: w, Re: Anyone starting Chemo in December 2018?

LB 2.  Congratulations on finishing. What a lovely husband you have. Enjoy your pub lunch xx

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Re: w, Re: Anyone starting Chemo in December 2018?

LB that is wonderful news 🥰

Jayne big smiles for you too!! 😊

G x 

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Re: w, Re: Anyone starting Chemo in December 2018?

Jayne 1966

well done and I am delighted to hear you have ALL CLEAR.  I must admit that I know what you mean about feeling flat.  I have been very emotional and weepy since my post op review.  I felt so sad at leaving all those kind people especially one of the operating team (who I would love to keep in contact with but I don't think the NHS allows that)

I have got my appointment for radiotherapy planning on 19th June at a different hospital.  Not really looking forward to it and the Letrozole will be prescribed this week. 

Hope all you ladies are doing well.  No sunshine to enjoy but hopefully the sun is waiting for us all to finish.

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Re: w, Re: Anyone starting Chemo in December 2018?

LB 2.  Congratulations on finishing. What a lovely husband you have. Enjoy your pub lunch xx

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Re: w, Re: Anyone starting Chemo in December 2018?

Jayne 1966.

 

just read the rest of your post. So glad that you are clear and no need for rads. What good news! I don’t blame you for feeling a bit flat. It’s such a rollercoaster this journey and there’s a naughty Pixie called doubt and another called fear in our minds. I think we will learn to control them and put them in a cage but at the moment it’s all so new and raw.

 

Enjoy the news! Yes we can never be certain but you have good news so go celebrate! I have decided we all have to be more DOG! Not that I’m being very successful lol xx

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Re: w, Re: Anyone starting Chemo in December 2018?

Jayne 1966.  You poor soul! I had loads drained after having drains in for 14 days. That feeling of the fluid build up is awful. You feel as if you’re going to go pop! Makes it all worse when you are stressed and Uber tired.  Hope this next week is better. Sending a hug xxxx

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Re: w, Re: Anyone starting Chemo in December 2018?

Jayne what great news ALL CLEAR brilliant 🤗🤗

LB X

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Re: w, Re: Anyone starting Chemo in December 2018?

LB2 great news that you’ve finished - and how thoughtful of your hubby to do that 🤗 enjoy your pub lunch and many big hugs 🤗 

LB x

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Re: w, Re: Anyone starting Chemo in December 2018?

And I am done...Just home from last rads. Hubby had bunch of flowers, wine, card and bell to ring when I got home. What a star. Now pub lunch to celebrate. Have to say bladder was in eyes when I got out, a bit emotional.

 

Jayne, that is great news re your all clear. Don't fret about secondaries, I am sure the chemo will have blasted any rogue cells floating elsewhere as they would be much easier to get at. Celebrate and enjoy your news!

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Re: w, Re: Anyone starting Chemo in December 2018?

Aargh... Pressed post by accident. 

Hypersensitive skin at top of arm which makes me feel like it's rubbing on my boob and is really sore when it's not at all. Really weird. I thinks last week is the worst I've felt through the whole journey, but hopefully coming out the other side now. 

So my results.... I'm ALL CLEAR. OMG. Lymph nodes clear both sides and all cancer removed successfully from both breasts. No rads needed for which I am truly grateful. I don't think I could do any more treatment now. He said that although nothing can be 100% I am now cancer free. Cancer free... Those words. 

The flesh taken from my boobs still had cancer tumpurs in there,  shrunk about 50% by the chemo. My partner cried with relief and we went out to celebrate, but my mind keeps going to the fact that if the chemo only shrank the tumours 50% then that's the effect it will have had on any other possible cancer cells that are travelling round my body. So in my head secondary  is now very real. I know I shouldn't think like this but it's in the back of my head all the time. Still I'm on herceptin for another year and will have the oestrogen blocker when that is prescribed this week when I see the onc. I wish I knew how to feel and the news is so good but I feel no relief at all. No tears (bladder In my feet at the moment) no emotion. I just feel flat. I think I need a good slap tbh. xxx

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Re: w, Re: Anyone starting Chemo in December 2018?

All amazing ladies, 

I'm so sorry I've been absent for the past week but I've been to hell and  back, or so it feels. In brief, drains out last Monday which felt great but by no day night I was in tears of pain due to fluid build up on RHS. Tuesday in chemo unit for herceptin injection. I just cried. I was so tired and in so much pain. BC nurse came to see me and organised me an ultrasound. They put me in a side room with a bed to sleep whilst I waited 2 hours for that appt. What absolute sweeties! Had 100ml drained from right boob during ultrasound and felt somewhat better in the afternoon. Back in on weds and had 185ml drained. It felt never ending. Thursday back in but nothing to drain and really I should have posted on here then as I felt OK. Then Friday I had my results (wait for it) and had 215ml drained. Now I'm waiting for the next appt on Tuesday to see how much may be drained then, but I don't feel too uncomfortable at the moment. No tubes coming from my body is fab. Finally showering is easy! I have very hypersensitive skin in places since my op which makes me feel like l

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Re: w, Re: Anyone starting Chemo in December 2018?

Hi Sunnydaze - I hope you’ve enjoyed your day 🤗 I am pleased to say I only have 2 more to go - this coming Tuesday and then the following Tuesday 😊 it seems to have been going on forever 🥴 then the Herceptin and pertuzamab for another 9 months or so. Simple pleasures indeed - the thing I am most looking forward to when my energy returns is a good long walk in the countryside - without having to worry where the nearest loo might be 😂 

hugs 🤗 LB X

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Re: w, Re: Anyone starting Chemo in December 2018?

That’s good to hear you’re feeling a wee bit better LB. How many more have you got to do now? Glad you’ve been able to do a walk with hubby and doggy. Simple pleasures. I have really appreciated simple pleasures throughout this treatment. 

Its still raining here, I’m having a lazy day.

Sunnydaze xx

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Re: w, Re: Anyone starting Chemo in December 2018?

Hi Sunnydaze Thankyou I feel much better today - I actually did sleep well and it’s stopped raining at last so I have been able to have a little walk with hubby and dog 🐕🤗🤗

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Re: w, Re: Anyone starting Chemo in December 2018?

Sorry to hear that you’ve had such a bad day LB. I  hope your bowels improve soon. Sometimes it all just gets to be a bit too much and feels never ending. I hope you feel better after a good night’s sleep tonight. Sending you hugs and hope your leaking bladder eyes 👀  get sorted out.

Drummerswidow, only one more rad to go . Brilliant. I hope your skin behaves itself and doesn’t break down. 

My hospital dished  out hydrocortisone cream to me ( betnovate 1%) and zerobase cream. I have been grateful for it because my breast has felt sore and hot after only 2 days. The young radiologist said it couldn’t be the treatment because se’s don’t kick in until about 10 days. Well they’ve kicked in with me. I’m a bit worried, hope my skin and arm holds out. It all feels tender. 

Im glad they caught your lymphodema in time Drummerswidow.

Take care one and all xx 

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Re: w, Re: Anyone starting Chemo in December 2018?

Hi All.

 

My grandmother will be looking down very pleased you all like her saying about crying. She had loads of sayings! 

 

Marykamille i hope your shoulder eases soon.

Sunnydaze glad you felt a bit more upbeat today. I have just one more rad to go. Skin  is looking red and is itchy. Think I’ll get some aloe vera. Had my review today. She was really cross that I hadn’t been given contact numbers and info when I had my planning. She also advised some 1% hydrocortisone cream.

 

LB sorry you’ve had a 💩 problem. Rain is enough to make us miserable. Mind you my water butt is full again 😂😂

 

Let’s hope we all have a good weekend xx