Hello. Diagnosed 16th Aug. SMX with auxilliary clearance with immediate reconstruction 23rd Oct. Saw oncologist last week. I have triple negative cancer stage 1 grade 3, and will be starting chemo soon. Just waiting for the date. Hope its asap as my daughter came over from Australia to care for me after my op and will have to go back end of this month, so would like to get started with one or 2 cycles while she is here incase I get nasty side effects. Husband cant do much to help me as he has very severe COPD and is on oxygen 24/7. So dreading this Chemo particularly the side effects.
I had a similar experience in that I moved from mastectomy only and nothing further, to chemo and rads and and ....
You will feel much safer when all this is over and you pushed for that little extra to make sure of no recurrence.
You could try looking at an earlier thread for people who started chemo in a previous month for more info.
I had a few SE’s acid reflux for 24 hrs I rang my unit and they gave me details of what meds to ask doc for, this was then under control👏👏 Unfortunately had nausea for the first 6 says ( didn’t vomit and unfortunately didn’t out me of food, I’m piling the weight on 😂). The other SE I had was day 4 and day 7 bone pain in lower back and hips due to fagrim jab😢. But of sore mouth but gargled regularly with salt water. Good news saw oncologist last wed and he has changed my anti nausea meds for next round as says 6 days long time for nausea, also gave me some mouth wash, told me to take ibrubrofen for bone pain, so I’m all ready for next round a wk today 10th Dec. Got stinking cold at mo which is reAlly annoying hoping to get my Xmas tree tomorrow and meet up with my YD. Need to lose this cold as my birthday sat and want to enjoy it. The udder cream I wouldn’t buy it the hospital gave me mine ( it is expensive cause initially I did buy tub), I must admit I have nothing but praise for the NHS in my area the results seem quick return ( within a wk) and staff are so supportive. ,I have the most amazing BC nurse and I can raise any concerns with her, even though I’m now with Oncology she is at end of phone😀😀. Sounds like a lot SE Angelblue, all I would say is don’t try to be brave and suffer ring your chemo nurse for advice. If it wasn’t for this cold I’d be out and about partying.... ‘‘tis the season guys🥳. Another plus I’m on day 15 post chemo head tender but no shredding yet. No I didn’t cold cap. Sorry I’ve rambled a bit guys hugs 🤗 to you all, we can do this, good luck everyone 💪💪💪
After just posting in this group and asking if anyone else was having FEC (I shall be starting that soon)I realised you have already started it. How is it going for you?
I hope you are doing well xx
After being told post surgery that I wouldn't need chemo I am now starting chemo this month! Just found out on Friday and its come as a shock!
Prior to my surgery on 27th September I was told I would most likely just need Tamoxifen. After surgery I was told rads and tamoxifen. On Predict, chemo only gave me an added benefit of 1% and as my cancer was early the MDT decided no chemo. But as I'd been doing a lot of research I argued for and eventually got an Oncotype Dx test done (I fit the criteria...early stage, no nodes etc) I really wanted this as peace of mind. Rads were put on hold and there was a 3 week wait for results. Then on Friday the oncologist called me in. My Oncotype score had come back high at 31. Thats just in the high risk of distant recurrence group. It was a complete shock after such a positive prognosis by MDT. I was expecting a score of under 17!
So now its all going to be a big rush to get chemo started as you have to start within 12 weeks of surgery and this Wednesday will be week 10. After being told I definitely wouldn't need chemo and being made to feel like I was over reacting by insisting on the Oncotype test to confirm this, its not been a great weekend!! Still trying to absorb this complete change in fortune!
Do any of you ladies know which chemo drugs you're having? I've been told FEC as I have numbness in my feet from a previous illness. I'm hoping to find some ladies who have previously had FEC for their experiences, although everyone is different I know. It's just that from my reading over this weekend I've read that some drugs are considered more doable than others.
This is all so so scary!!
Love to you all xx
.... and Val, definitely still take that holiday if your oncologist agrees it fits in with your schedule. It will do you good. xxx
Hi all, I just wanted to wish you all the best. It's much scarier just before chemo than when you get into it. It does feel very daunting at first. I finished 8 rounds of FEC-T just over a year ago and getting back to normal now. Here's my blog which has lots of suggestions for coping with side effects. http://lifeafterlola.com/ Hopefully you wont have as many side effects as me but I think it's nice to feel prepared for whatever chemo throws your way and know you can get through it. Take care of each other on this thread and you'll probably be friends for life. I'm still in contact with my chemo buddies. Best wishes. xxx
So good to see all these posts. Cheered me up immediately. Will answer some individually and no doubt we will all pick up the rest as and when.
I'm hoping to be starting before Xmas sounds strange I know but I just want to feel like something is being done. I have to see my oncologist again on 12 December so hopefully after this or even during the next week I'll get a defenate date.
Going to an information session next Thursday at the hospital so hopefully I'll be able to find out a bit more information then. I've got TNBC and so my Onc has suggested x4 EC Chemo in 2-3 week cycles followed by x12 Taxol/Carbo weekly.
I had my diognoses 25 October so im super ready to start treatment now and get on with things.
I should be on Nov as had 1st round 19th my second round is the 10th so will be thinking of you starting. The support is amazing even if you don’t post. Everyone is different the common denominator is fighting of the evil BC. Do you know what chemo you are having yet? I am having FEC T so 3 rounds of FEC followed by 3 T, I am 10 Weeks post op left mx with anc and recon. All I can say is Take each step at a time. I have an amazing BC nurse to be honest all the staff are amazing, don’t bottle things up and don’t be hard on yourself big 🤗
Hi Mary. I'm in the November group and had my first chemo on 16th Nov so will check in on both Nov and Dec groups. I know, like you, I found it really daunting before I had my first one but found reading the posts on the November group from those who had already started really reassuring. It's good to know we're 'all in the same boat' so to speak and the support from this online group is lovely and friendly. With starting on the 10th you should find you feel well for Christmas and like you say the side effects are different for everyone. I was fairly wiped out the first week but did have some days where I had more energy then really picked up from day 8.
The pre-chemo group session should be really helpful. I didn't go to one of these but thought it would have been nice to meet some other women starting at the same time. Good luck on the 10th and I'm sure there will be more ladies joining the December group soon.
I have just had my dates through. Was hoping to start after Xmas but no such luck! I start on 10th December and have a pre-Chemo group session on 7th December. Absolutely dreading it although I know they will talk it up on 7th. So many concerns, but everyone keeps saying we all react differently to the treatment (and the treatments are varied anyway - mine is for BC), so you don't really know until you start!