Thanks is good to hear that all is going well. I am getting nervey, my first chemo is 11 tomorrow, .
Tell you more after. x?x
Welcome to the thread.
I was told that chemo needed to start within 12 weeks of surgery, so you are within the recommended time.
I can't help re. cold cap, as it's not something I did, but I'm sure someone will be along soon. If not, ask your chemo team before starting. You will still have some hair loss with the cold cap, so you need to weigh up what's best.
Starting chemo tomorrow April 9th, 3 cycles of FEC and 3 cycles of Docetaxel (Taxotere). It's been 10 weeks since my surgery which seems a long time so I've been a bit worried about not having any treatment for this length of time.
I'm going to try the cold cap tomorrow but wondering if it could trigger neuralgia as I had Shingles in my eye, face and scalp after the surgery ( it is common to suffer from neuralgia after shingles). Anybody have any experience of shingles/cold cap combo?
Hello lovely ladies, just wanted to send you all my best wishes as you start your chemo. I finished all active treatment in January (8 rounds of chemo, mx surgery, radiotherapy). Its all doable and I hope I can show you a light at the end of the tunnel. Here's my blog which offers lots of tips which I learned along the way: http://lifeafterlola.blogspot.co.uk/ xxx
Hi Kentish Hop, I'm from the Oct group and had FEC-T. You will be given anti-sickness tablets to bring home with you after chemo and if they don't work, the hospital can give you something else to help. I felt a little bit queasy a few times, but I wasn't sick at all, so hopefully you won't be either x
Hello all you lovely ladies that are joining the rollercoaster chemotherapy ride. I have just popped over from the January chemo starters thread to say hi and to suggest you pop in and have a read as you will find loads of tips, reassurance, and also exciting stories of swimming, life rafts, toilet humour, romance in fact all life can be seen here, sharing the good times and the bad. If you can be bothered to go right back to the start, you will see that we were very much having the same conversations as you are having now.
I am due my second T tomorrow (already had three Fec and one T) so the end of the chemo ride is in sight. I had a dx mastectomy in Nov last year and my recon (if I decide to go ahead) will probably be late this year, early next year.
I started my pre chemo big dose steroids today, which does make me slightly 🤪🤪🤪🤪 but have also been out for lunch with my two best girl friends, so I am feeling good. I braved the shave very early on in my treatment and today, for the second time, I went out without hat,scarves or wig and it felt GREAT.
If I can offer one piece of advice, it is that while waiting for chemo to start is scarey, personally I haven’t found it quite as bad as I thought it would be. It is doable and even if it gets tough (and it can) remember that you are strong, and it absolutely does get better, especially with the support on here.
Finally (I do tend to go on) Kentishhop, I am having Zometa in addition to the chemo. I have only had one infusion so far (first was cancelled as I had had to have three teeth out) but I didn’t really notice anything over and above the usual side effects from Fec. I understand that I have to have it for three years so my portacath will be with me for sometime to come.
Dont forget to pop by ladies but if I don’t see you.......... the very best of luck and stay 💪 💪 💪
Hello Kentish hip
And welcome to the thread.
If you read through this thread, I've put some tips on here which helped me to survive chemo! I hope they help you too.
Please come and chat whenever you need.
Sorry Kentishhop again just blurted out my anxieties and didn’t even introduce myself! I am a bit of a techno dinosaur and have never been on a forum before!!
i was diagnosed in November and had a lumpectomy in December, unfortunately I did not get a clear margin so had another op in February. I feel I have been waiting ages for chemo but now the date has arrived I am very anxious. First fec-t is on April 11th. Would love to hear tips on surviving chemo. I have decided to shave off my hair after the first treatment ( many of my friends are horrified) as I feel this will allow me a bit of control as I don’t think I could handle it falling out in handfuls, also husband jokingly said he didn’t want to wake up with a beard!
I will also be having a Zometa infusion with first treatment.I would love to hear from others having same treatment.
wishing all you lovely ladies starting your treatment this month all the very best,
I start my FEC chemo on April 11th and I am really anxious about feeling sick and being sick ! Sounds really silly but I just can’t handle vomit.
As I lay here in my (probably) dexamethasone induced insomnia I thought I’d give the story so far 36 hours into my first FEC cycle. I’m on pre-adjuvant 3 FEC, 3T started Tuesday 3rd afternoon. The scariness was immeasurable for me on Tuesday morning and I hardly ate anything but once I get started and the pre-chemo steroid kicks in, I got hungry so advise to take some snacks. My anti-emetic is Akynzeo - so far bit of headache. I have metoclopramide as backup if needed. Having read threads here I also had 2L of fuid day before, again on Tuesday and yesterday. Plumps the veins and since it’s daily general health recommendation, I will continue anyway.
Had a meal when I got home and OK night except for insomnia (I’m not a great sleeper anyway so used to it) and hunger in the night. What I found that worked for me on Wednesday was frequent small meals / snacks. I ate every 2-3 hours. Again, probably dexamethasone but as soon as my stomach rumbled I ate, if I don’t eat I get queasy. I even have a bag of crisps on my bedside table in case I need them - other half might not like the crunching but hey .......
Couple of other minor things (so far), eyes a bit sticky when I do sleep so using gel tears night and morning, and using a chapstick lots of times a day to help with dry mouth. I went for a 20 minute walk yesterday but also rested when i needed to - get those standby boxed sets downloaded!
Didn’t do cold cap. My attitude is if it’s a side effect necessary to beat cancer, so be it. That said, when I shave it off in a few weeks I might feel a different emotion. We’ll see.
Later today I start the GCSF injections. Co-codamol was recommended to me if needed for pain relief. We’ll see how it all unfolds over the coming days.
Sorry for the long post but hopefully somebody will find something useful.
Hi NoahandWillsMummy, I'm from the Oct thread. I've finished chemo and now waiting to start radiotherapy. I teach in a school, 4-7 year olds and my oncologist wouldn't let me work during treatment (I'm still signed off) because of the risk of infection, so yours will probably say the same and I think you're right about not being at school during SATs anyway!
Hope your appointment goes well next Tuesday x
I was diagnosed one month ago and I'm starting EC Chemo on April 19th. It's so good to see this forum and the support provided. Feeling much better after reading some posts. :-)
I'm going for the cold cap and wonder if there are any tips to take care of the hair between the cycles. I have read about washing hair only with room temperature water and also washing it only 2x week. Anything else?
Also read about the possible loss of sensitivity on the tips of fingers and toes so ice on those areas during chimo also advised. Does that make sense?
Thanks in advance!
Hi Sally and Gygi
Welcome to the thread.
I seem to be having problems posting today, so hopefully this goes on and I'll try a longer message later!
I start chemo on 10th April, so now I'm at the what next stage?
How long does the chemo take to adminster?
If I have the cold cap, do you get cold? ia it worth having scarf and gloves with me?
How long after the chemo do you start to feel Ill, ?
What are the esensials to bring to chemo sessions.
Thank you Sally