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April 2018 Chemo Starters

Gygi
Member

Re: April 2018 Chemo Starters

Hello everyone, stayed home. Sore throat at 6am but feeling bit better now. Hoping to go in tomorrow. My hair has eased up with the shedding I washed my hair yesterday but read not to put conditioner on the top, let it dry by itself and combed it just enough to detangle it. Thank goodness for your recommendation for the Silke that helps so much at night. Michelle big hugs I hope there is a ray of sunshine in your Wednesday. Xxx
MrsPardaeva
Member

Re: April 2018 Chemo Starters

Sorry to hear you're having a tough time at the moment Michelle. The hair aspect seems particularly cruel - especially after the extreme discomfort we out ourselves through with the cap.

Mine has really stated to come out a lot over the last few days and virtually all my public hair seemed to fall out this morning in a single shower which was a bit of a shock!

I'm due round 2 tomorrow and, as I was before the first session, finding myself quite tearful today. I don't think the horrid weather is helping.

I've been seeing a specialist oncologist psychologist since I was diagnosed and I've certainly found it extremely helpful to try get some sort of a grip on this. She's based privately in London but her name is Amanda Ramirez if interested.

Thanks for the suburban turban tip noahandwillsmummy... . I quite fancy the 1950s looking one and it's quite reasonably priced as well as the big grey/lavender one.

I hope you find some comfort today michelle and send positive thoughts to you and all the April ladies xx

Fiona

Michelle21
Member

Re: April 2018 Chemo Starters

Been feeling very low yesterday, felt better today but then washed my hair and it all matter up on top of my head. Thankfully my daughter is home at the moment and she spent an hour combing it out. It is constantly falling out I can see why people shave it off. It is quite soul destroying. I’m going to ring up my centre today to see if me and my husband can get some emotional help. I am finding this so tough. X
Gygi
Member

Re: April 2018 Chemo Starters

Yes they are lovely. I'm flaunting my charity shop scarves today, getting my daughter's approval! Hard day today but getting through it and had a lovely surprise. A friend sent me a card and flowers through the post. Cheered me right up. Hoping to go to work tomorrow so need to stay awake till late. Found lists of chemo headwear on breast cancer now and macmillan pretty comprehensive. Hope you have all had a good day take care Gigi
Michelle21
Member

Re: April 2018 Chemo Starters

I’ve had a look on Suburban Turban and yes there are some lovely ones but you’re right they aren’t cheap!
NoahandWillsMummy
Member

Re: April 2018 Chemo Starters

Hello everyone. Oh my goodness I've missed loads of posts!
I have found a lovely website called Suburban Turban which does some beautiful (though not cheap) headwear. Something for all occasions!
Michelle21
Member

Re: April 2018 Chemo Starters

Gigi good intentions go to pot don’t they?! 😂Probably best to listen to our bodies and go with the flow!
Thanks Christine, I suppose I just need to start looking and stop hiding! It is happening! I quite fancy the idea of a headband, still hoping that I will have some hair to put it in! X
Christine Rim
Member

Re: April 2018 Chemo Starters

My first port of call has been Amazon and they have scarves, hats and wigs. Good as a starting point but some of the items have a long delivery time.

Gygi
Member

Re: April 2018 Chemo Starters

Guess what! Just woke up! Well didn't manage to stay awake during the day today. Lol
Michelle21
Member

Re: April 2018 Chemo Starters

Hi Gigi, so much info! You are probably right that sleeping in the day isn’t helping with sleep at night. I will try not to tomorrow. No rain here today but so cold, what is going on it’s May tomorrow! I’ve just googled the cookery class you went on it does sound great but I can’t find where the venues are for this year, I hope to Cardiff! I think the T part of chemo really does for the tastebuds so yes it is going to be another challenge. I notice you are eating lots of pomegranate was that recommended? Also why no defrosted meat?
I haven’t looked in the hospital at head covering and never heard of bamboo hat but it sounds good. I know I am in denial but really shouldn’t leave it until it goes so yes any websites for pretty hats, headbands or scarves would be great thanks. X
Gygi
Member

Re: April 2018 Chemo Starters

Hi Michelle yes we seem to have a lot in common here. I'm glad you had a good walk I'm being very lazy today as it's so cold, windy & rainy. I'm trying really hard not to sleep during the day as then I wouldn't sleep at night. My hair is shedding I'm really trying not to touch it. Very tempting though. A bamboo hat is very soft yes. I bought it at the hospital when I went to get my wig. I've got some scarves to play with from charity shops that I washed & have ready. Need to buy a turban & then seen a few really pretty big hair bands to put over it. I'm checking out websites so can let you know some later. Had dark blue nails since I started but going to get plum. I use nail envy base coat to strengthen then the colour then top it with the base coat again. Acetone free nail remover as I take it off so i can cut my nails i like them short & my partner puts it back on again for me. What a sweetheart!
As for dinner it was chicken: cooked in pomegranate molasses grilled off, peri peri salt homemade chips, I couldn't eat the chicken as I defrosted it in the microwave & they say not to eat defrosted meat. So I cooked potato with onion, turmeric, garlic, aubergine & garden peas. Then we had chicory, romaine lettuce & beetroot and ginger ale. I went to a cookery class with @lifekitchen My daughter & I were on the news talking about it. It helps people with cancer think about taste buds. The classes are free, the next one is Newcastle. Going to research the hair later again. Will get back to you. Hope everyone is ok. Take care Gigi x
Michelle21
Member

Re: April 2018 Chemo Starters

Hi all how’s thing’s?
All ok with me, although not sleeping as well as last cycle which is a tad annoying as sleeping in the day and don’t want to get out of sync. Having said that went on my dog walk this morning with my pals which was great but think I knackered myself out as I came home and slept from 10.45 until 2.30! Did enjoy the walk though!
Christine glad you went out and enjoyed seeing your family. I find it is the first time you see someone that is the worst because you have to get it out there so it isn’t the elephant in the room and generally people are concerned and want to know what the situation is and how they can help. Having said that I’m generally avoiding places where there are groups of people but allowing myself choir on my good weeks and a friends b’day party on 12th!
Dorabel that talk sounds good,I will be looking out for something similar round here, there is so much information to absorb and feelings to process when we are diagnosed I understand why you might have found it too soon. Good you went though.
Gigi you didn’t tell us what your best dinner EVER was! I’m so disappointed I was all read to send husband out for ingredients so I could do a poor replication! I feel a bit spaced out too, although I think that is my sleeping. Serves me right for showing off last time about how much sleep I was getting! No one has told me about painting my nails but I am starting T next cycle so will get painting! What is a bamboo hat? Is it soft? It sounds like your hair loss is similar to mine, I’m trying hard not to touch it.
Where is everyone buying caps, hats and scarves? As i’ve no idea what to go for! X
Gygi
Member

Re: April 2018 Chemo Starters

Hi Christine so glad you went and it went well. And yes Dorabel my oncologist said to paint my nails dark too and I have already although it's more relevant for the docetaxel than the fec. Loads of my hair coming out today; wearing the silke at night and a bamboo hat during the day so as not to fill the house lol. My daughter did all the housework this morning which was lovely so I cooked (apparently my best dinner ever) and we gave her a lift to the tube: she's off to a nightclub for a party. Been a bit spaced out today forgetting things and stuff. Not going to go work tomorrow or probably Tues as it is a 6 period day. I've left all the work so will get up at 6 and phone in. Hope you have all had a good Sunday. Take care Gigix
Christine Rim
Member

Re: April 2018 Chemo Starters

Thanks everyone.  i did check no one had anything i could catch before we went and it was nice to be out in company. i did get tired quickly but treated myself to a glass of prosecco as a one off too. it was a good idea to go and thank you for the encouragement. Conversation was varied and yes there was concern for me but it was a help rather than making me self conscious. when i got emotional there were hugs a plenty.

 

i did do my weekly hair wash this morning and noticed a bit more hair coming out than normal but i still have a good covering and hoping for the best.

 

Hope everyone had a good weekend and all the best for the coming week. 

Dorabel
Member

Re: April 2018 Chemo Starters

Hi Michelle.  I took myself to the cancer talk.  It was advertised locally, to be given by a local GP.  It seemed too helpful to miss and I wasn’t sure if and when there would be another one.  Even if the information was a bit premature for me, I realised, from the numbers there, that I’m far from alone even in a small town.

 

I hope you manage to get out to social events, Christine.  Company of friends has helped  to make the process bearable for me.  Not a single person has been anything but kind, even those who do not know me well.  People want to know how I am but the conversation moves on to other things.

 

I’ve already decided to wear a rather pretty cap when my hair goes.  It makes the point that I’m having chemo to anyone who notices, without me having to say anything.  My (fright) wig is so I can pass for normal among strangers.  Well, that’s the plan, subject to change like all plans at the moment.

 

Whytefawn, you’ve given me unexpected expected hope!  I’ll be having Docetaxel after the EC and the thought that I might get a bit of babyfuzz as a result really cheered me up.  I’ve been told to get my nails painted with dark varnish for the Docetaxel - did anyone else get that advice from the oncologist?

 

Thanks for the tip about salt mouthwash; it’s working well.

 

Hope it’s been a good day for all of us.

x

MrsPardaeva
Member

Re: April 2018 Chemo Starters

Morning Christine, I've only been to one lunch with a group of friends and I was a bit anxious before we went. And, though we definitely did talk about me and the cancer for a little while, it really was only a tiny amount and then moved onto other topics that others wanted to talk about. I found it really good actually, hearing about everyone else and what they're up to and laughing too. It really took my mind of just thinking about my treatment etc and also just reminded me that this is temporary.
Whatever you decide to do, I hope you have a good day. X
WhyteFawn
Member

Re: April 2018 Chemo Starters

Hi ladies.
Just been catching up on how you're all doing.
Christine the social aspect is going to be totally individual. If I felt ok then I would go. Mainly because it got my out of the house for a bit. Just be careful that no one else going has a cold or anything that you could catch. I have never been bothered talking about having cancer. If by seeing me 1 woman checked herself, had a lump checked out and saved her life, then it was well worth it.
I didn't cold cap so can't advise on that. Though if you're having docetaxol I found my hair started to grow back on that. My hair was noticibly growing on Christmas eve and I still had 2 treatments of 6 left to go. Last infusion was 19th Jan. Now have a very short pixie type hair.
Have a lovely Sunday ladies. Stay strong x
LindaBag
Member

Re: April 2018 Chemo Starters

Hi Michelle,

I did use the cold cap for the first round, trying everything to keep most of my hair for 12th May. I am not sure if I will continue with it for the second treatment, will see how the hair loss is going and go from there. I will monitor how my spots are in the next couple of days and contact my oncology key worker for advice if they do not seem to be improving. 

How are you feeling after your second round of FEC compared to the first. My second is on 14th May, just after my daughter's wedding. The wedding has given me another focus during the last few days but will have to think about doing some things over the coming weeks  that never usually have the time for as I am not working at the Primary School where I am employed as there is always illness of various types and I did not want to take that risk. At the moment normality and taste are what I look forward to, just have a long way to go to achieve this but will try to take one day at a time!

 

Best wishes. Linda

Christine Rim
Member

Re: April 2018 Chemo Starters

Good morning all.

i wonder how everyone is dealing with social occasions. i feel like i am avoiding groups of people where i feel i will me and my cancer will be the central topic. one on one chats are fine but i am finding excuses not to go to other events. today i am due to go to a family dinner with the in laws but i am already trying to convince myself i am not well enough to go when i feel ok really as long as i am not too far from a toilet. May be need to bite the bullet and go. it is not as if that part of the family hasn't had it's share of cancer.

 

May be it is just me be over sensitive. 

 

 

Michelle21
Member

Re: April 2018 Chemo Starters

Hi Linda,
I had my 2nd FEC on Friday and from my experience sure you should feel good by 12th for your dauters wedding. Are you cold capping? I am and my hair started to shed a couple of days before cycle 2. Having said that it isn’t noticeable to other people, ie no bald patches just stray hairs sticking out. I haven’t had white spots but have noticed a couple of extra blackheads (nice!) appearing. I guess our skin isn’t going to be the best over the next 18 weeks but it’s anazing what a bit of B.B. cream will cover!
I think we are living in another world at the moment, a parallel universe! Hopefully we will rejoin society soon! Living in the present is key, I try not to look too far forward just take each day as it comes and I try to get a few pleasures and laughs into each day. X
MrsPardaeva
Member

Re: April 2018 Chemo Starters

Hi Linda, I've been having those spots on my cheeks and side of face the last few days as well. I used one of my antibacterial wipes on my face last night and it seems to have settled today which may or may not be related!
Im also struggling with not planning, it's definitely taking some practice to be more in the moment but I'm getting better though still get cross knowing that there are certain events I'll miss this year.

Gygi pleased to see there seems to be the same reverence in your house as in mine!
As for men shedding hair, I've had more than one of my male friends and my brother in law ask if they think the cold cap might help with their hair loss🤣

Good night ladies. Fiona

LindaBag
Member

Re: April 2018 Chemo Starters

Hi Everyone

 

Good to read about everyone's experiences and tips. I had first round of FEC on 20th April and so  far it has not been too bad apart from minor issues but I take nothing for granted. I have some trepidation regarding hair loss as my daughter gets married on 12th May. I have a wig on standby and have had a trial with it but only time  will tell. Has anyone else developed white spots on their face and scalp/acne type. There are only a few of them but I wondered if anyone else has experienced this and if they resolve themselves without treatment.

 

Still feel that I am living in a another world at times but the support of family and friends helps. Also reading this forum and sharing the lives of others going through treatment provides strength as this represents one of the biggest challenges of most people's lives. I am very much a person who likes to plan ahead and learning to accept that this is not possible in the near future can make the months ahead seem like a very long time. Just need to learn to live a bit more in the present!

 

Hope everyone progresses well through treatment.

 

Linda

Michelle21
Member

Re: April 2018 Chemo Starters

No songs from my Husband he’s been shedding hair for the last couple of years!
I’ve felt pretty good today too, better than last time I think.
Night night all hope you all sleep well! X
Gygi
Member

Re: April 2018 Chemo Starters

Hi guys still feeling quite good but hair is shedding so stuck my silke on to stop me touching it and making a mess. Going to buy a smaller vacuum cleaner to have upstairs as I can't carry my Henry up. My partner made up a little song about the 3 of us shedding hair: that's me Neo the cat and Spyro the dog ( he's the worst) chemo boot camp sounds cool.
Michelle21
Member

Re: April 2018 Chemo Starters

Hi Dorabel, I know a living with cancer talk would be way to soon for me too, did you look that up independently or did your nurse suggest it? I suppose if you have come away with info like you say you can read that in your own time. I love that “chemo boot camp” perfect description!
And Wildshell I think that is a pretty good description of how we feel although for me it’s more pregnancy than flu! Glad you liked the tea! X
Dorabel
Member

Re: April 2018 Chemo Starters

It’s so lovely to have the help & support I find here.  Thanks for all the tips on mouthwash.  I’m going to try salt water for now but I’ve kept the details of all the recommendations.

 

Went  to a Macmillan event on living with cancer today (first outing since Monday chemo).  The event was excellent but way too soon for me.  Wiped out by the end.  The information will be useful later, when I can give it some attention, so I’m glad I went.

 

Thanks, Fiona & Michelle, for reassurance that I’m not alone in the swallowing problem.  I’m also reassured by the reactions to chemo round 2.  It all feels like chemo boot camp.

 

 

wildshell
Member

Re: April 2018 Chemo Starters

Hiya everyone I’ve been out for a hr with my daughter to boots my thermometer broke and she panics bless her.I tried lemon and ginger tea cold yesterday I normally have it hot.Taste good cold .Friends ask me how I feel how do you explain it’s like being pregnant with taste buds changing and having flu on the heaviness of your body haha

Gygi
Member

Re: April 2018 Chemo Starters

Fitful head I got Sarakan mouthwash from health food shop and find its v good for me. Hope it starts clearing soon x
MrsPardaeva
Member

Re: April 2018 Chemo Starters

Thanks Michelle..good to know on both counts! I think I get a voucher for a wig but haven't received it yet..and reassuring to know its not just me and Dorabel having those swallowing issues! Enjoy you day x
Michelle21
Member

Re: April 2018 Chemo Starters

Hi Fiona, I was given £100 voucher for my wig, I’ve had a fitting but didn’t ask how much so I don’t know if that covers it.
I have also had the odd problem swallowing pills and the crusts! X
Michelle21
Member

Re: April 2018 Chemo Starters

😂 you’re right about the peer pressure here! I’ve had to buy pomegranates, cinnamon rolls and now ice lollies!
Unfortunately your hair colour didn’t come out it was just a big triangle! Even got my daughter to try and find it but no success ☹️
MrsPardaeva
Member

Re: April 2018 Chemo Starters

Ladies, are your wigs automatically offered as part of your treatment or did you go to someone independently? I saw someone about a hair system before i started chemo but it will take 5 weeks if I decide to go ahead. I think I'll know more next week before my next chemo on Thursday as it will be 3 weeks since my first cold cap. Some days I think I'll just let it go and will be fine but other days I can't imagine how I'd feel if it does.

Also, instead of mouthwashes I've just been using salt water after every meal/snack and it's been working well. I suffer from ulcers but so far this has kept them at bay and found it more gentle than bought mouthwashes.
Dorabel, I'm also struggling with swallowing pills which I've never had an issue with either. A strange side effect!

Its so reassuring to hear from all of you who have have had round 2 this week, you all sound in good form! Hoping it continues for all over the coming days. X Fiona
fitful head
Member

Re: April 2018 Chemo Starters

Now I'm texting my other half to get *me* some ice lollies too - the peer pressure on here is terrible 🙂 

 

Michelle21, here's my latest hair: 30652719_780296055489494_8646856631092510720_n.jpgI have my wig fitting on Monday - I think I'll start with my natural coulour (mousy chestnut) and perhaps go a bit mad on the shape/length! Not sure how much I'll use a wig, but thought it was a good idea to get one and have the option.

Michelle21
Member

Re: April 2018 Chemo Starters

Thanks for the advice Pam, I will persevere with the cold cap and see what happens. I’m fortunate to have thick hair so could probably get away with losing 50% depending on if it comes out in clumps and if it does I will just resort to wigs and scarves like everyone else. It is lovely to be able to come here and spout off all of our worries and receive such great support.
Fitful - I had to google what colour Cyclamen hair colour is and I love it! But I am not the adventurous type when it comes to hair colour and style I leave that to my daughter! What colour wig did you go for?
Glad you slept well Christine and are pottering about. I plan on pottering a bit later.
Gigi just sent my husband out for ice lollies! A few very interesting books on the south bank site, thanks x
fitful head
Member

Re: April 2018 Chemo Starters

Morning all 🙂 Glad we all seem to be feeling better today! I'm still a bit groggy and flat but pottering and resting is working well - actually dozed off on the floor doing my post-op arm stretches. Worst thing is a very sweet taste in my mouth, and incredibly sore hips (often uncomfortable during my period, so just think chemo has amped it up).

 

Re sore mouth, I was advised to use chlorhexidine mouthwash, which I do anyway as I'm prone to upset gums and ulcers. I use Corsodyl - tastes like hell, but works - both mouthwash and toothpaste. Both my oncology nurse and dental hygienist recommended continuing using the toothpaste with a soft manual brush (normally I use electric) and gentle flossing, and only to use the mouthwash if my mouth's getting uncomfortable (Corsodyl has dilution instructions on the side). The wash can stain your teeth after a while, but it's easily sorted by the hygeinist.

 

I'm not cold-capping... I change my hair quite frequently anyway (I caused panic booking my wig fitting when I told them my hair colour's cyclamen and peacock blue - had last haircut and colour straight after my oncologist's appointment confirming I would lose it!) and I really can't bear being cold. Sounds silly put like that, but when it's painful and time-consuming and I'm happy enough to play around with scarves and hats, and interested to see how my hair will grow back, it made sense not to.

Gygi
Member

Re: April 2018 Chemo Starters

Thank you Pam2 good luck on Tues X
Michelle thanks for asking about my arm no pain at all today, they put the cannula under the arm. Currently eating a raspberry icelolly Delicious!
Pam2
Member

Re: April 2018 Chemo Starters

Morning ladies I am from march thread hope you are all doing good
Remember we are all strong and can do it I am doing 6 rounds of fec 3rd on Tuesday please stay positive as it gets you through
Nobody wants to be in this situation but what can we do just be advised by doctors
Re guarding hair mine has all gone making the decision to shave it all of was the hardest thing I have done but since I have shaved it I feel much better I was worried about what people would say/think but
nobody has said anything I have 2 daughters who have glorious long curly locks and would die if a single hair out of place! But they have been great and supported and encouraged me to embrace my baldness no wig for me just lovely bright scarves
Sorry for the essay but this is not forever and we will all get through this. times are scary but stay strong and listen to your body be kind to yourself xxxxx
Christine Rim
Member

Re: April 2018 Chemo Starters

Good morning everyone.

Actually feel like i had a good nights sleep so looking forward to the day. loving all the tips on here and will try some of those ice tea recipes. i often find i don't want coffee but i am not sure what i do want so that sounds good. i do seem to have problems with stomach acid and was told mint isn't good for it but i do have a green with ginger tea bag that i like.

 

i have found pharmasists very helpful so you may be best asking one on the best mouthwash while undergoing chemo, i have one the hospital gave me but i have been instructed to dilute it by quite a bit.

Michelle21
Member

Re: April 2018 Chemo Starters

Dorabel I’d recommend pineapple, tinned is as good as fresh as they both contain an enzyme that helps with the gums. I’m also eating a lot of prunes instead of sennakot, seems to be working!
Gigi I’m lying in bed with my silke on too, enjoy your walk to the library, I’ll go for a walk down the lane when I get out of bed! How is your arm now? X
Gygi
Member

Re: April 2018 Chemo Starters

Hi Dorabel remember to get mouthwash without alcohol I think it's better. I'm changing my baby toothbrush for a new baby one today going to get a new one each cycle. Hope we all keep our hair. Lots of fluids x
Dorabel
Member

Re: April 2018 Chemo Starters

Morning all.  Do hope it goes well with the cold cap.  I dread losing my hair - probably in the coming week.  The closer I get to this, the more I cherish my short, grey, ordinary hair.

 

Today I choked on a tablet I was trying to swallow.  In what used to be normal life I could swallow a handful of supplements in one go.  Now I gag on anything bigger than a tiny anti-sickness pill.

 

Off to the chemist for sennakot, baby toothbrush, mouthwash.  No one ever tried to kid me this was going to be fun.

 

Big hugs 

 

Gygi
Member

Re: April 2018 Chemo Starters

Wow my spelling is atrocious today apologies
Gygi
Member

Re: April 2018 Chemo Starters

Morning all thanks Michelle I didn't get home till after 6.30 Cold capped hour and a half after. We stayed up watching stuff as I slept during chemo and slept well. Just taken Meds and waiting to go have breakfast. Took sennakot for the first time ever in my life when I got back and I think that has made a difference already. I hope you are feeling better as the day goes on. I'm hear wearing my silke still. Don't get despondent with the cold cap if you can it is a real pain I couldn't wear my glasses with it yesterday hence sleeping. I think we will still lose hair with it but maybe not as much. I know you are really upset about it. I really don't want to lose mine too. But am just a little curious as they are sticking on the extra large cold cap to know the shape of my head! Wildshell have you managed to sleep? I hope you are less tired. Fitful head I will be trying out teas today. I have turmeric root to add to the ginger. Will also put in honey and elderflower I think but will experiment. Al the moment my go to tea is 3mint. I had 4 when I got home yesterday will a bit of honey. Going to try get out for a walk to. Maybe to the library to get some new books. Take care everyone. Hope you all manage to enjoy it. Thinking of you all x
Michelle21
Member

Re: April 2018 Chemo Starters

Thanks fitful, that’s way more detail than my daughter gave me!
Hope you get problems sorted Wildshell.
How are you feeling Gigi? I was very queasy last night, early to bed and feel better so far this morn. I only kept cold cap on for 45 mins after, maybe that’s why my hair is falling out! I did speak to the nurse and she said it might fall out for a few days now and then stop stop keeping my fingers crossed.
Hope everyone else is well x
fitful head
Member

Re: April 2018 Chemo Starters

Good that you're seeing the consultant - hopefully they can make some changes to help you!

Meant to say earlier re iced tea that you can usually make it by brewing up a strong batch (3-4 teabags in a litre of boiling water, but leave the bags in until the water starts to cool) and add some sweetening - honey works really well with most herb or fruit tisanes. Stick it in the fridge and enjoy 🙂 You need to make it considerably stronger and sweeter than you would drink it fresh, as the cold dulls the flavours and aromas that are normally enlivened by the heat. You might need to experiment a bit to get the perfect mix, but it's always fun trying!
Gygi
Member

Re: April 2018 Chemo Starters

How many have you done Sally?
Sorry Wildshell is that to change the drugs you think?
wildshell
Member

Re: April 2018 Chemo Starters

Hiya everyone I had chemo on Wednesday and had an allergic reaction to one of them.Yesterday and today I’ve felt tired.I got a call today to go and see my consultant on Tuesday 

sally65
Member

Re: April 2018 Chemo Starters

I am in the same situation, at the mo wearing a hat as it helps with the scalp pain I have at the moment. I was cold capping, now not sure wether to continue with it?
Gygi
Member

Re: April 2018 Chemo Starters

Hi everyone still here at chemo, got to wait hour and half with the cooling cap then catching the train home. All has gone well so far and have left all the cover at work in case I need Monday and Tuesday. Hope you feel better fitful I'm hoping to make it home before I start feeling rough. Fell asleep here. So feeling ok. Have a nice evening
Christine Rim
Member

Re: April 2018 Chemo Starters

Hi Firful when i had FEC  20 years ago I had to get used to the fact that i was not normal the following day but each day of that first week i felt better. It did really knock me about physically and mentally. I always took that day of work and then the following day i took a half day going in at lunch. The good news is that it did improve quickly and hope the samehappens for you.

 

Glad to say chemo today was long but all seems ok today. I know the thenext few days will take a toll but i will take today as a good day and give in to the biscuit barrel without feeling too guilty. I had a dream last night that they took the cooling hat off and all my hair came out with it. Luckily that didn't happen but it was in my head...