My first port of call has been Amazon and they have scarves, hats and wigs. Good as a starting point but some of the items have a long delivery time.
Thanks everyone. i did check no one had anything i could catch before we went and it was nice to be out in company. i did get tired quickly but treated myself to a glass of prosecco as a one off too. it was a good idea to go and thank you for the encouragement. Conversation was varied and yes there was concern for me but it was a help rather than making me self conscious. when i got emotional there were hugs a plenty.
i did do my weekly hair wash this morning and noticed a bit more hair coming out than normal but i still have a good covering and hoping for the best.
Hope everyone had a good weekend and all the best for the coming week.
Hi Michelle. I took myself to the cancer talk. It was advertised locally, to be given by a local GP. It seemed too helpful to miss and I wasn’t sure if and when there would be another one. Even if the information was a bit premature for me, I realised, from the numbers there, that I’m far from alone even in a small town.
I hope you manage to get out to social events, Christine. Company of friends has helped to make the process bearable for me. Not a single person has been anything but kind, even those who do not know me well. People want to know how I am but the conversation moves on to other things.
I’ve already decided to wear a rather pretty cap when my hair goes. It makes the point that I’m having chemo to anyone who notices, without me having to say anything. My (fright) wig is so I can pass for normal among strangers. Well, that’s the plan, subject to change like all plans at the moment.
Whytefawn, you’ve given me unexpected expected hope! I’ll be having Docetaxel after the EC and the thought that I might get a bit of babyfuzz as a result really cheered me up. I’ve been told to get my nails painted with dark varnish for the Docetaxel - did anyone else get that advice from the oncologist?
Thanks for the tip about salt mouthwash; it’s working well.
Hope it’s been a good day for all of us.
I did use the cold cap for the first round, trying everything to keep most of my hair for 12th May. I am not sure if I will continue with it for the second treatment, will see how the hair loss is going and go from there. I will monitor how my spots are in the next couple of days and contact my oncology key worker for advice if they do not seem to be improving.
How are you feeling after your second round of FEC compared to the first. My second is on 14th May, just after my daughter's wedding. The wedding has given me another focus during the last few days but will have to think about doing some things over the coming weeks that never usually have the time for as I am not working at the Primary School where I am employed as there is always illness of various types and I did not want to take that risk. At the moment normality and taste are what I look forward to, just have a long way to go to achieve this but will try to take one day at a time!
Best wishes. Linda
Good morning all.
i wonder how everyone is dealing with social occasions. i feel like i am avoiding groups of people where i feel i will me and my cancer will be the central topic. one on one chats are fine but i am finding excuses not to go to other events. today i am due to go to a family dinner with the in laws but i am already trying to convince myself i am not well enough to go when i feel ok really as long as i am not too far from a toilet. May be need to bite the bullet and go. it is not as if that part of the family hasn't had it's share of cancer.
May be it is just me be over sensitive.
Good to read about everyone's experiences and tips. I had first round of FEC on 20th April and so far it has not been too bad apart from minor issues but I take nothing for granted. I have some trepidation regarding hair loss as my daughter gets married on 12th May. I have a wig on standby and have had a trial with it but only time will tell. Has anyone else developed white spots on their face and scalp/acne type. There are only a few of them but I wondered if anyone else has experienced this and if they resolve themselves without treatment.
Still feel that I am living in a another world at times but the support of family and friends helps. Also reading this forum and sharing the lives of others going through treatment provides strength as this represents one of the biggest challenges of most people's lives. I am very much a person who likes to plan ahead and learning to accept that this is not possible in the near future can make the months ahead seem like a very long time. Just need to learn to live a bit more in the present!
Hope everyone progresses well through treatment.
It’s so lovely to have the help & support I find here. Thanks for all the tips on mouthwash. I’m going to try salt water for now but I’ve kept the details of all the recommendations.
Went to a Macmillan event on living with cancer today (first outing since Monday chemo). The event was excellent but way too soon for me. Wiped out by the end. The information will be useful later, when I can give it some attention, so I’m glad I went.
Thanks, Fiona & Michelle, for reassurance that I’m not alone in the swallowing problem. I’m also reassured by the reactions to chemo round 2. It all feels like chemo boot camp.
Hiya everyone I’ve been out for a hr with my daughter to boots my thermometer broke and she panics bless her.I tried lemon and ginger tea cold yesterday I normally have it hot.Taste good cold .Friends ask me how I feel how do you explain it’s like being pregnant with taste buds changing and having flu on the heaviness of your body haha
Now I'm texting my other half to get *me* some ice lollies too - the peer pressure on here is terrible 🙂
Michelle21, here's my latest hair: I have my wig fitting on Monday - I think I'll start with my natural coulour (mousy chestnut) and perhaps go a bit mad on the shape/length! Not sure how much I'll use a wig, but thought it was a good idea to get one and have the option.
Morning all 🙂 Glad we all seem to be feeling better today! I'm still a bit groggy and flat but pottering and resting is working well - actually dozed off on the floor doing my post-op arm stretches. Worst thing is a very sweet taste in my mouth, and incredibly sore hips (often uncomfortable during my period, so just think chemo has amped it up).
Re sore mouth, I was advised to use chlorhexidine mouthwash, which I do anyway as I'm prone to upset gums and ulcers. I use Corsodyl - tastes like hell, but works - both mouthwash and toothpaste. Both my oncology nurse and dental hygienist recommended continuing using the toothpaste with a soft manual brush (normally I use electric) and gentle flossing, and only to use the mouthwash if my mouth's getting uncomfortable (Corsodyl has dilution instructions on the side). The wash can stain your teeth after a while, but it's easily sorted by the hygeinist.
I'm not cold-capping... I change my hair quite frequently anyway (I caused panic booking my wig fitting when I told them my hair colour's cyclamen and peacock blue - had last haircut and colour straight after my oncologist's appointment confirming I would lose it!) and I really can't bear being cold. Sounds silly put like that, but when it's painful and time-consuming and I'm happy enough to play around with scarves and hats, and interested to see how my hair will grow back, it made sense not to.
Good morning everyone.
Actually feel like i had a good nights sleep so looking forward to the day. loving all the tips on here and will try some of those ice tea recipes. i often find i don't want coffee but i am not sure what i do want so that sounds good. i do seem to have problems with stomach acid and was told mint isn't good for it but i do have a green with ginger tea bag that i like.
i have found pharmasists very helpful so you may be best asking one on the best mouthwash while undergoing chemo, i have one the hospital gave me but i have been instructed to dilute it by quite a bit.
Morning all. Do hope it goes well with the cold cap. I dread losing my hair - probably in the coming week. The closer I get to this, the more I cherish my short, grey, ordinary hair.
Today I choked on a tablet I was trying to swallow. In what used to be normal life I could swallow a handful of supplements in one go. Now I gag on anything bigger than a tiny anti-sickness pill.
Off to the chemist for sennakot, baby toothbrush, mouthwash. No one ever tried to kid me this was going to be fun.
Hiya everyone I had chemo on Wednesday and had an allergic reaction to one of them.Yesterday and today I’ve felt tired.I got a call today to go and see my consultant on Tuesday
Hi Firful when i had FEC 20 years ago I had to get used to the fact that i was not normal the following day but each day of that first week i felt better. It did really knock me about physically and mentally. I always took that day of work and then the following day i took a half day going in at lunch. The good news is that it did improve quickly and hope the samehappens for you.
Glad to say chemo today was long but all seems ok today. I know the thenext few days will take a toll but i will take today as a good day and give in to the biscuit barrel without feeling too guilty. I had a dream last night that they took the cooling hat off and all my hair came out with it. Luckily that didn't happen but it was in my head...