well the meeting with the reconstruction surgeon went well and he answered all my questions. I have appointments shceduled for next week for the abdominal CT scan and to discuss with a nusrse the full impact of the surgery and to look at pictures of the likely outcome. I had a mastectomy on the left side 15 years ago with no reconstruction but have only had a lumpectomy on the right so far. There is an option to keep most of the skin on the right and just have the nipple removed and the breast tissue but then the two breasts will have different scars. I need to see what the nurse says but i think i will go for the symetry which may have a bit more scarring but they will both look and feel the same.
I had a blood test today and brought up the fact i had a few sores in my mouth even though i am using the mouth wash. They got me to see the on call doctor and now i have a second mouth wash to use in addition to the first. I did mention the cough again but it seems to be taken as one of those things i need to deal with. Chemo will go ahead tomorrow as planned which is what i wanted anyway. Just want it all finished.
I do feel worse on the week i have the herceptin and perjeta but i have another week before the 4th and final infusion of those. Not sure what the side effects are of the following herceptin injections are but hopefully not so bad. I also have to have the ovary suppression injection of Zoledex which i had 15 years ago but due to the DIEP schedule it can't go into the tummy. The reconstruction surgeon says it is only licensed to go in the tummy but it can go in the leg or above the belly button but approval is needed. Has anyone else had this?
Wonderwoman crashed and burned again! UTI this time, back on antibiotics. It’s a trivial infection but I’m hoping that getting an infection in week 3 is not a pattern. Chemo 3 on Monday not delayed, thank goodness. Michelle, hope the time until your next chemo is full of enjoyable things.
Linda, I was shaky for the first ten days after last chemo. Didn’t feel cold so much as dithery.
Gygi, hope you have a really good break over half term. The tennis was great.
very jealous of the Puffin trip. My husband does a lot of trips to photograph wild life and mentioned last night he wanted to do the Puffin trip as he had a contact that takes small groups of people off on a boat to photograph them. They did look lovely on Spring watch last night.
After a completely rubbish weekend where i have felt the worst i have felt so far, i am feeling better today. Trip to see the consultant today who will do the DIEP and to book the CT scan for the blood vessels. Not an easy direct trip on public transport so I will leave loads of time.
I am not a gardener but i agree i do need something to distract me from the side effects. I do have the Royal Marsden cook book i think Michelle mentioned so i am goind to have a go at some of those to pack in some better energy foods. Going to try the cauliflower soup with garlic and turmeric first i think.
Great to hear the chemo etc went ok Gygi.
Morning everyone I had chemo on Thursday so not been my best. im now having abraxane and cyclophosphamide.Its my 1st cycle of this this one. I don’t sleep too well when had chemo I’m 44 but feel 88 haha Has anyone else had the same combination as me .Hope everyone has a great day
Would anyone not having chemo believe we would be glad to have it? But each chemo treatment means one more done. I hope the next few days are not too bad Gygi I’m joining you for chemo 3 next Monday, the last EC one. Week 3 is my Wonderwoman week and I’m making the most of it even if that means no more than doing ordinary things. Ordinary is wonderful.
They put a sea conditioner in my hair and said to leave it for 2 days after if possible. Big mistake as 4 days later it is still in a smaller mass of tangled hair. We will get it out though but I don't know how much hair I have lost yet as I have so much olive oil in all my hair. When its entangled I will was it with a paragon free shampoo such as Palmers or Simple. I think my hair was in bad condition anyway as its highlighted and I always find it hard to get anything through it. I am also using Aussie entangling spray as its so dry to keep it wet and oily whilst entangling it.
I have been scalp cooling each week and haven't had a problem with the tangeled hair but i was wondering how they treated your hair when they used the cap. when mine is done it is soaked in water and then they spray it with a detangle spray. i think it is a childrens variety. i then comb it through when the cap is removed using a wide tooth comb. if they dont use a spray perhaps you could take some with you next time. There are so many dos and don'ts it is diffucult to know what works for each person. i hope next time is better.
Thanks for the tips. Its coming out slowly after spending the am at the hairdressers who were great and having charged. Hoping to sort the rest soon, have used olive oil. May cut hair short for next time.Am using an aero comb silk pillow and just got a Silke. Hope it will look ok when out but time will tell.
Afternoon everyone I had my 2nd chemo on Thursday thankfully I didn’t have a allergic reaction. There has been some news about taking mukuna honey helps with chemo .MY daughter bought me some to try it helps with white blood cells x
Gentle hug Gygi. Your ordeal today sounds awful - really felt for you crying with pain on the bus. Doesn’t seem right that you should have to go through all this. I just hope it makes chemo on Monday less painful.
Thanks, Christine & Michelle, for the info on taxol/docetaxel. I’m starting docetaxel after the next (& last) EC course. Can’t say I’m looking forward to any of it.
Hope the sun shines for us all this weekend.
oh dear gygi. I am sure you could have done without all that. It was a very odd arrangement to have you rushing around like that but you would have assumed they would know best and would have advised better. i had been warned that i would need pain killers after the local anesthetic wore off and that was the case. i was pain free for a couple of hours. What do you mean about the tube in your neck? I have a tube that goes up towards the neck and then goes down into the vein and down to the heart. A small cut in the neck were it was directed into the vein. I did feel my neck felt stiff for a few days but i was told this was going to happen and to try to move my neck normally.
Anyway it is in now and hoepfully by monday it will be ok to use. They can use a numbing gel on the port if it is sensitive and i know a lady who had chemo the same time as me uses it. To me it just feels like a needle going in and is less painful than a vein. Once in you don't feel it at all.
My thoughts are with you and i will send a gentle hug.
Help! I used the cold cap and was told to wait 2 days before doing anything to my hair. I now have a big hard mass of tangled hair at the top of my head. I have tried detangling Aussie spray and Palmers shampoo and intensive conditioner. Am now trying palmers intensive conditioner but leaving it for an hour or so and ha e hair in cling film. My hairdresser suggested oil intensive conditioner so may try that next. Anyone got any ideas? Thanks.
Forgot to ask something else. Lots of people refer to the drug T. I am not sure if this Taxol (pacltaxel) or Taxotere (docetaxel). I think i have seen reference to it on here in both respects which is a bit confusing.
Back home after number 7 of the 12 weeks on Taxol and yes the effects add up over the weeks. i was exhausted before i started so actually took the bus to the hospital when i usually like to clear my head with a walk. One magpie at breakfast time seemed like a bad sign too. My port decided to play up so it took longer before the start of treatment and i just felt really out of it. Blood results were fine from yesterday and apart from the blip on the first week before they reduced the dose they have been surprisingly good.
I did have an appointment with the oncologist on wednesday and went through the many side effects. the worst are the cough i have had and the problems withh sore feet. The feet she thinks is due to the drugs actions on the nerves 9 (may need to reduce dose but not sure i want that) and the cough she didn't seem too bothered about but did listen to my chest. I think it may be the targetted drugs rather the chemo that are causing this when i checked through the side effects at home.
That cooking course sounds good. i did have a quick look online and notice it relates to changes in taste when you are on chemo. That is also one that arrived after about week 5 i think and i do have trouble eating healthy low fat/low sugar foods with lots of veg. still love the fruit and pack that in but veg is just so bland. Any ideas would be apprecitated as i don't want to put on too much weight.
Hope everyone is well and the days goe to plan.
Love your words, Gygi. So glad you shared them with us. Hope all goes well with the port tomorrow. I’m sure it will make chemo treatment easier.
Hope it goes well for everyone facing their next chemo. It has taken me a while to twig that I’m not starting each chemo course from the same level of fitness as the one before. Guess that was wishful thinking! It explains why it’s taken longer for the tiredness to lift this time.