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April 2018 Chemo Starters

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Re: April 2018 Chemo Starters

And congratulations on the new hair... Its such a treat isn't it.. I couldn't believe how thickly my eyelashes came back!
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Re: April 2018 Chemo Starters

Hi Dorabel, I finished 2nd August and I still have pains and tingling. I've been told neuropathy can last for anything from months to years as it takes little time for nerves to be damaged but a very long time for them to mend so I'm not expecting to be rid of the symptoms for at least 6months but more likely 12. For speaking with a few people who have experienced it I've concluded 12months I think is the best bet. X
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Re: April 2018 Chemo Starters

PS to website people - could there be an avatar with a short fuzz of hair?  Glory be, my hair has grown enough for me to go public with it.  I look weird but less so than before.  Have taken to wearing mascara for the first time in years, just because I now have eyelashes again.

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Re: April 2018 Chemo Starters

So sorry that you are having problems with taste, Michelle & Linda.  Docetaxel is evil stuff.  I had three courses of it and for quite a while, everything tasted awful.  Trying my favourite foods made no difference; it all tasted dreadful, even water.  The taste distortion did wear off, though, and I’m hoping this will be the case for you.  I’m not on herceptin, so I don’t know about its side effects.

 

My query is this.  How long is it before I have to accept that the neuropathy in my hands and feet is permanent?  Last docetaxel was at the beginning of August and while the pain is gone, the tingling remains.

 

Hope everyone is managing to avoid the colds that have sprung from nowhere in the last few weeks.

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Re: April 2018 Chemo Starters

No I don’t feel sick Linda. It does come and go a bit because some days I forget about it and think it’s back to normal then it reappears. I’ve got a cough/cold at the moment and I don’t think that is helping but my chemo finished almost 4 months ago so maybe I’ll mention it at my next appt. Let me know if yours goes x
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Re: April 2018 Chemo Starters

Michelle do you feel sick sometimes too? It's worst in the mornibgs. It should get better after 2 months so am monitoring it and will contact chemo hotline if not improving.
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Re: April 2018 Chemo Starters

Wow Reddi thanks for all the info! Those meals do indeed sound yummy especially as I am starving right now! I will look out for any workshops in Cardiff! Food is generally tasting ok it’s when I don’t have anything in my mouth that I get the horrible taste. I tend to suck on a sweet or mint if it gets to bad. I guess I just have to wait for it to subside. X
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Re: April 2018 Chemo Starters

@Michelle21 The founder, Ryan Riley, tends to announce events on a rolling basis, so although the next two are in London (6 Nov) and Walton upon Trent, Derbyshire (15 Nov), there will probably be more scheduled soonish. I believe he's working on a book but it wouldn't be published til 2019 or 2020 at the earliest, given typical publishing schedules. You might try contacting him via Twitter (https://twitter.com/ryanrileyy) to ask if they might consider setting up a workshop nearer to you.

 

The session I went to didn't have the apple crumble, which sounds blissful, especially as I have found baked apples with a strong focus on cinnamon have been a really nice, pleasing, and easy dessert option. (There are some recipes online for garam masala apple crumble that I might try out.) 

 

We did 3 mains instead: 1) pineapple prawn tacos (using a thin slice of pineapple as the taco "shell") and garnishing the cooked prawn with fresh sliced chilli (can be deseeded), coriander leaves, slivered spring onion, and lime juice; 2) salmon fillet coated with harissa paste and baked, with a side of fennel cut into matchsticks and made into a slaw using a bit of plain yoghurt and the juice and zest of a lime, all of it sprinkled with nigella seeds for a pop of visual satisfaction once it's on the plate; and 3) an umami-rich dish of puy lentils coaked with bay leaf and garlic, to which are added sauteed onions, spinach, butter, and toasted buckwheat, served with a drizzle of yoghurt mixed with miso paste. I make the salmon pretty regularly (I use store bought harissa and it's super fast), and I have done several twists on the lentils -- not yet with the buckwheat/miso, mostly because our pantry is packed at the moment. I can type up and share the recipes if any of them are of interest.

 

The general principles involve using umami, particularly by combining two umami-loaded ingredients (e.g., mushrooms and ripe tomatoes; miso and spinach) to help combat sensitivity to salts and metals, or by incorporating pineapple, which triggers the trigeminal nerve rather than relying on taste buds and olfactory bulbs, so can get around the issue that way. Ginger is similar, and I've found myself adding the fresh root to my cooking on a more regular basis as I've been noticing more salt/metal dominance on my palate. (I've not had any nausea during chemo.) 

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Re: April 2018 Chemo Starters

Thanks Gygi, I remember you mentioning this early on in chemo but there aren’t any classes near me and I don’t think he has a book out does he? Hopefully it will clear up in time x
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Re: April 2018 Chemo Starters

Hi Linda & Michelle I would recommend a cookery day with life kitchen. Ryan is the founder and he has looked at foods that help taste buds during chemo. We went and made peas and lentil risotto. Peas help a lot apparantly also vanilla and we made garam masala apple crumble. I think Docetaxel is a bit culprit. If you look up life kitchen you can find some ideas. Hope that helps Gigi x
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Re: April 2018 Chemo Starters

Mine started at the end of my last Docetaxol which was 20th July. Sometimes it is worse than others and it doesn’t effect how good tastes but if I’m not eating or drinking it’s just there in my mouth. I tend to suck on an extra strong mint or at the moment cough sweets. Hopefully it is from chemo it will ease off at some point. Let me know if yours changes at all x
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Re: April 2018 Chemo Starters

Michelle no not on herceptin. It wasn't salty just had no taste but now it is so salty I feel sick sometimes.
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Re: April 2018 Chemo Starters

Hi Linda yes I have a horrible taste in my mouth a lot of the time. I put it down to herceptin are you in that?i also had 4xT.
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Re: April 2018 Chemo Starters

Hi,
Does anyone have a very salty mouth after finishing chemo? Its 8 weeks now and makes me feel sick sometimes I think. I had 7 cycles of FecT (4 docetaxol). Its the worst se at the moment and I have just had my op last week. Thanks.
Linda x
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Re: April 2018 Chemo Starters

Hi Christine
It’s good that your oncologist had time to answer all of your queries and I’m sure that having a plan has helped you. I think having at the back of your mind that you will stop if the side effects get too bad gives you back a bit of control. I have told myself the same with Tamoxifen.
I would also describe myself as strong but there are no medals for bravery here. I think the important thing is to look after yourself. That is your mental and physical health. Counselling sounds like a good idea. I have thought about it myself but am going to do the moving forward course first then see how I feel. I don’t feel low at the moment but people say you may feel worried when treatment stops so I’m just trying to get a contingency plan for if that happens. I get what you are saying about hosp appts one of the worst parts of rads is that it is a daily reminder.
Loving all the zoo talk! I haven’t been to a zoo for ages. I’m very pleased with myself today, I walked up the highest mountain in South Wales! I did then have to have a sleep when I got home but I did it!
Have a good birthday on Monday Gigi!

Dorabel if you send me a message with your mobile number I’ll add you to the what’s app group and we can sort out a meet up
Xx
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Re: April 2018 Chemo Starters

Hi Gigi and thank you for your words. I am usually a strong person which is why this period of time has hit me so hard when i have been so upset. Doesn't make me feel like the normal me but i am taking steps in the right direction. My oncologist has also suggested i contact Haven and i have found there is one near Fulham Broadway tube station which should be easy to get to. They have welcome days and i am going to book into one and see what they offer. Looks like therapy aswell as yoga and complimentary therapy.

 

Time gets to be important and i am glad you got to London Zoo. I haven't been for a few years but my husband goes as he like to take to photos. He prefers animals in the wild but he has taken some lovely ones  there in the past. I am more of a fan of the Elephants but Penguins are cute too. My daughter has plans to go to Chester Zoo on her birthday on Saturday when her plans fell flat. I am sure that will be good too.

 

Have a happy birthday and hope you enjoy the rest of your half term. 

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Re: April 2018 Chemo Starters

Hi Christine I just read your post and you sound so strong. Having treatment can be so relentless and disheartening I agree and I'm glad you've found the strength to ask for some support. It's all about timing too isn't it and not being rushed and having a chance to ask all your questions and voice concerns at the doctors appointment helps but also that means more information to absorb, more decisions to make. Glad to hear your surgery is healing well x
I'm home with a really bad cold but yesterday accompanied my partner for a really early appointment and after we ended up going to London Zoo. I went 40 years ago and would prefer a national reserve next time (imagine!) It was amazing seeing the animals. We drove and parked outside the gates of the zoo and he bought me an emperor penguin cuddly toy (as I walk like a penguin at the moment!) My birthday treat (birthday is next Monday)
Half term has not lived up to my expectations of myself as feeling very poorly but that time in the sun yesterday looking at giraffes and lions and penguins (we were very lucky with the weather) has made my week.
Today intrepid explorer Gigi is off to the library.
Take care Gigi x
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Re: April 2018 Chemo Starters

Its been a busy week and my I wrote down all my concerns and questions for the oncologist on tuesday evening. Luckily she didn't seem too busy and I was the last appointment  so i wasn't rushed. We started with the fact the previous plan had to be changed due to my ovaries not giving up as they should. I decided the removal of my ovaries was not going to be a good idea for me. My surgery is healing well and more surgery down there would not be a good idea mentally as well physically. This means i will need zoladex 4 weekly for 2 years but she will be doing ECGs before the first and another 3 weeks later due to the risks as i am on other medication that can effect the heart in the same way. Then i have to start Letrozole a month later which again has risks but i can't take tamoxifen due to interaction with my other medication (and it didn't work for me last time as i had a reoccurence less than 2 year after the first diagnoses all those years ago). I am concerned about the risks and side effects but I have in my head that i will stop if it becomes too much and takes the risks of the cancer return instead.

 

I am having problems dealing with the constant reminders of cancer with the tablets/injections and frequent hospital appointments so i have asked for a referral to a counsellor. Part of it may be the hormones kicking in due to the period i had but she said down times can get worse on Letrozole so she agreed it was a good idea. I was brought up to keep emotions inside and asking for help was weak but i can't do that anymore. My daughter is of the other opinion and has asked for help in the past so her encouragement helps.

 

Sorry this is going on a bit...

 

On the subject of hair, I am still suffering with thinning of hair and it is very dry. I have tried all sorts of conditioners and treatements but it still looks a mess. Also i braved going for a bikini wax for the first time since the DIEP surgery and she said the hair came out really easily. 3 weeks later there is very little regrowth which at least saves money on waxes but does seem a bit odd.  

 

Hope every one is doing well and hope to meet you all.

xxx

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Re: April 2018 Chemo Starters

Great will do x
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Re: April 2018 Chemo Starters

Hi Gygi, good to hear you’re doing well, apart from the cold! I know about excess hair I had a few unwanted hairs sprouting out of my chin the other week. On the whole though I’m happy to have all my hair back. I even had a haircut the other day, but really so the short bits can catch up with the stuff that survived!
Gygi if you message me your number I’ll set up a what’s app group and we can discuss a destinationa nd date for meet up.
Fiona, Dorabel if you do the same too and anyone else who might be interested?
Thanks for yours Christine
Have a good day xx
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Re: April 2018 Chemo Starters

Oh and i forgot still waiting on the date to even me up. Not heard yet but have done pre op assessment x
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Re: April 2018 Chemo Starters

Hi everyone it's Gigi with a cold! Fancy that! First hol without recovering from anything and I'm sick. All that time in school and caught nada! Ah well. I went up to Guys for herceptin today and they had to keep me in isolation so I didn't give my bugs to anyone in chemo. The nurses are so lovely there. I complained about all this hair coming back & made them laugh. It's growing everywhere!!! Even super long nostril hair that needs a trim but I don't have sideburns. Eye lashes and brows in full swing too. So glad I cold capped as my hair is growing back well. Herceptin seems to just cause me leg ache and stiffness or maybe it's chemo. Tues morning saw oncologist for the last time. He was so sweet. I'm too well to need him. Will see a nurse in Jan. Going to start swimming as soon as I'm over my cold to help my legs. My partner has been away the last 2 weeks so glad he is back I missed him. Looking forward to meeting up with you all. I'm not far from London but can travel if you want. I hope rads are going ok Michelle and that things are getting sorted Christine. How's your hips now Fiona? And Dorabel how's you? Sorry I know I'm missing people out. Just a bit tired from going up town today. Glad we are still together. Hope you are having a good day Gigi x
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Re: April 2018 Chemo Starters

Hi Dorabel, great you want to meet up to. Where in the country are you? If you don’t want to say here send me a message. X
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Re: April 2018 Chemo Starters

Hi everyone 

 

Hope it’s all going well for us.  I love the idea of meeting up.  Whether I can be there depends on the location decided - travel might be tricky.x

 

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Re: April 2018 Chemo Starters

Hello everyone! Made it to half term!!!! Very tired today so will be back tomorrow for a catch up. Just wanted to say would love to meet up. Hope you all had a good day Xxx
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Re: April 2018 Chemo Starters

Sorry to hear you are in limbo Christine regarding your next stage, I hope it gets sorted soon so you know where you are. As far as I know I am starting Tamoxifen after rads but haven’t had a period since January.
Glad you are on board with a meet up, it’s exciting isn’t it after ‘knowing’ each other all this time!
Dorabel and Gygi what do you think? Once we know who’s interested I can set up a what’s app group so we can make plans x
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Re: April 2018 Chemo Starters

At the moment i am a bit in limbo and waiting to find out what happens next. I am due to start Letrozole but my blood test was borderline as to the Zoladex. As i have just got my first period since chemo i assume something will need to be done about the ovary estrogen production but this could be ovary removal. I have appointments at the start of November with the oncologist and the palstic surgeon to see what happens next plus a referral to a gynacologist to see if there are any options to remove the ovaries without messing up the DIEP tummy surgery. I assume it will be zoladex but there are complications with other medicines i am on so I am in a bit of a mess in that respect.

 

Anyway I am free as far as i am aware for a December meet up and would love to see you all. What about you gygi? Do you have any re balance surgery planned yet as i know you were talking about that.

 

xxx   

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Re: April 2018 Chemo Starters

Yes there is a lot of wait and watch isn’t there! I even picked up a ruler to measure how long my hair had grown on top, willing itnto grow quicker!
It’s a lot quieter at home now with both girls away at uni but they seem to have settled well which is what we hope for. My OH and I are enjoying the time together and I think the girls need a break from me and cancer treatment!
Rads start on Thursday. I’m not really nervous just fed up with it all, and being back at the centre is a reminder of everything. I don’t mind meeting up in December but I guess it is a busy month for everyone, I guess it partly depends on where her we meet on a week day or weekend. Let’s see what the others come back with, I’m pretty sure Christine is keen to meet up too.
Are you done with treatment now? Enjoy your celebrations with your parents xx
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Re: April 2018 Chemo Starters

Hi Michelle, yes it's an old injury but not sure why it's flared up again now. My physio is working on it but seemingly I have hyper mobility that's causing more problems. Still, it's not so bad compared to the last few months and it'll pass I'm sure.

I've read of others having the hair too but mixed information on what happens... Like every other stage of this journey, I guess I just have to wait and see what happens!

When do you start your rads? Do you know how many weeks? How are you feeling? We can wait until Jan if suits, just wait and see how you feel.
Hope you and your family are all well

Fiona x
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Re: April 2018 Chemo Starters

Hi Fiona,
I haven’t experienced the downy hairnon the face but have heard of others who have. Apparently it disappears on its own but I’m not sure how long that takes.
Sorry to hear you have a hip problem, is it an old injury? I had a problem with my hip before I was diagnosed, it disappeared during chemo but the first run I did it came back. I tried a new physio a week ago and she has diagnosed as my hip flexor and given me exercises which have really helped. I’m keeping my fingers crossed that it will mend when I have rads.
I know what you mean about fatigue hitting you, some days are better than others.
I’m happy to meet up pre Christmas, I finish rads mid November so would like to wait until December to give me a couple of weeks recovery. What does everyone else think? X
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Re: April 2018 Chemo Starters

Ladies, bit of a strange question but since my hair started to come back, and it's come back really well.. Yay!.. however I seem to be developing quite a set of blonde lamb chop style side sideburns. They're very downy for want of a better word and I wondered, has this happened to any of you?
wondering if I should maybe get them threaded off or perhaps theyll disappear themselves, fingers crossed 🤞.. What i don't want to do is make it worse.

Otherwise, things are going quite well though I'm often surprised when fatigue hits me out of nowhere, like today. I had physio and that's about all I've managed! My hip seems to be playing up really badly now as though it had just taken a back seat while I had all the other treatment and now feels like it it's turn again... Very annoying. Some days I can walk a really brisk 5k and feel good though I've yet to manage running longer than about 2mins..though I've been told a 1m walk 1min run for 15mins and build up from there is the way it get back into it.

My parents arrive on Thursday to celebrate my Mums 80th birthday which were all looking forward to... Any excuse for a party I think so I must be improving.

Hope you're all well and thinking if we might try agree a date to meet up before Christmas as Michelle suggested?

Fiona xx
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Re: April 2018 Chemo Starters

Sal glad to hear it went well. I am having the same op on the 22nd but just on one side initially. Had pre op Yesterday and an echo so looks like its going ahead this time as not heard anything today - it was postponed from the 3rd. 

ktk
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Re: April 2018 Chemo Starters

Great to hear from you Sal. Glad everything went well. I had similar to you, therapeutic mammoplasty and reduction on he ‘good’ side. Very happy with the outcome. Do you have drains? I had one each side but they came out after three days. Kxx
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Re: April 2018 Chemo Starters

Many  thaks for you kind replie.

Blue boob after that dye stuff they inject  in. Ive gone one better I now have two new boobs, one lump removed and the other boob resized. 

The whole surgery thing was so much easier than I expected. I have bin so lucky, with all my trearment so far . I don't have chemo fuzz. just swiss cheese brains, I keep losing thinggs,  words , the  inability to spell corectly

So many apoligies for the weired  spelling etc.  I was just about to type that I was looking forward to the radio, but maybe that isn' t the right thing to say.

Thanks again and good luck to  all  Sal

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Re: April 2018 Chemo Starters

Hope it all goes well tomorrow, Sal.

 

Post-surgery, post-chemo, post radiotherapy my biggest problem now is my dreadful nails - only attached from halfway down and I think at least one is going to split across and fall off.  Still got neuropathy in fingers & toes.  These are tiny problems given what went before.  On the plus side, I’m growing eyebrows & eyelashes.  Someone told me about it’s the small things like this giving pleasure.  Small?  It’s huge for me.  Means my body is recovering from the vile things done to it.  I’m grateful for treatment but it hasn’t been very pleasant.

ktk
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Re: April 2018 Chemo Starters

If it is anything like mine, you go into hospital first thing and get settled. There were 4 of us on the ward, all intended day cases (less chance of infection at home and more relaxing in your own environment). The surgeon came and drew all over my boobs. I’ve got some great pics. Very funny!! I then went for blue boob injection and into surgery. Woke up in recovery. Went back to ward for a couple of hours then went home. All nice and easy and a nice relaxed atmosphere. You will be well looked after. Kx
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Re: April 2018 Chemo Starters

Hi just after a little advice, I had my radioactive injection today ready for the surgery tomorrow. They have said I will get the blue dye tomorrow , but what happens next.

I was unconcerned till now. but the wobbles have hit.

 

Sal x

ktk
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Re: April 2018 Chemo Starters

Afternoon ladies. Re toilet issues. The antiemetics and steroids can cause constipation. I take Macrogol/Laxido for the first few days to keep me regular. Lactulose has a similar effect. It is very gentle and just prevents a backlog 🤣. I found that Docitaxol caused diarrhoea after the first few days. The first cycle was the worst. Since then it has been limited to one or two urgent sessions a day!! TBH I find the diarrhoea easier to deal with than the constipation!! Kx
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Re: April 2018 Chemo Starters

Thanks Christine, I have the opposite toilet trouble to you, I can and do sometimes take Imodium which stops it but I don’t want to keep taking that until May. Some days I am ok but some days I am a regular visitor to the toilet! I’m sure I just have to put up with the bad taste, it’s not stopping me eating but very little does! Zoladex and herceptin does equal a lot of injections. How long will you have the zoladex for?
Congratulations to your daughter on passing her test. My youngest took hers last month but failed. I have to say a small part of me was pleased as it means she won’t be on the road!
Hello to everyone else, hope you are all doing well. X
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Re: April 2018 Chemo Starters

Also when i had my lumpectomy back in march I was told i may wake up with blue boob but i had had a nuclear injection and scan the day before which should show the nodes effected but there was no guarantee i wouldn't need the blue dye too. I also had a tomsil biopsy in the same operation and was told the inside of my mouth would be yellow so was expectiong to be multi coloured but it was just the yellow mouth Smiley Happy

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Re: April 2018 Chemo Starters

Hi Michelle. I have only had the muscle aches in the days after the herceptin injection followed by the joint aches throughout which means I can't find a comfortable position to sleep in. I did notice on one of the forums that someone talked about taste changes. After surgery for the DIEP i was prescribed a low dose gentel laxative to stop the strain on my tummy. I am still taking them as i am slightly constipated. Not sure which way your toilet troubles are. I agree i am not happy with this going on until April but i have an appointment with the oncologist this afternoon and i will ask what i can do. I am not sure there is a lot they can recommend.

 

I also need the results of the hormone blood test to decide if the ovaries are still working and if i will need zoladex with the letrozole i am due to start shortly. As the Zoladex is a 4 weekly injection and the herceptin 3 weekly it looks is if i may bee spending a lot of friday mornings at the hospital being stuck with a needle. I just want to feel normal and it just seems to be going on for ever. Having a bit of a down week but that may be due to expecting to have to have zoladex. will find out later.

 

On the positive side my daughter just messaged to say she had passed her driving test. The sneaky thing hadn't even told us she had had a test booked. Previously she had one booked and cancelled it as she wasn't ready. I very pleasant surprise but now i will worrying about her driving home down the M1 to see us...

 

Hope everyone else is coping.

xxx    

ktk
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Re: April 2018 Chemo Starters

Hi Fiona, they introduce a blue dye that guides the surgeon towards the lymph nodes leading from the sentinel node. It does wear off eventually I am told, but takes several months. Kx
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Re: April 2018 Chemo Starters

Hi Gigi and Christine hope you are both well. I was wondering if either of you are having any SE’s from herceptin? I have a funny taste in my mouth and still have toilet troubles! I’m assuming they are caused by herceptin, but fed up that I’ll have to put up with it until May! X
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Re: April 2018 Chemo Starters

Hi Sally, congratulations on finishing chemo.
I also just stuck with this board with radio and now A good number of us have so had radio so can offer support and I agree with Dorabel, even the fatigue is nothing like chemo. It still hits but its a light slap rather than being beaten up with chemo.. For me anyway!
Best of luck with the new boob... One thing though, Why will it be blue?? Fiona x
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Re: April 2018 Chemo Starters

Thanks for your kind words. I'm looking forward to the blue boob

. Love from mama smurf

 

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Re: April 2018 Chemo Starters

Hope all goes well with the surgery, Sal.  I turned to the radiotherapy board when I started that treatment but returned to this board before long.  It’s only my experience but radiotherapy, while it’s no joke, is not as bad as chemo was.  Good luck with your treatment (the blue dye fades eventually).

 

Love Dx

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Re: April 2018 Chemo Starters

Hi I guess this should be my last posting here.

I finished chemo on the 10 sept and have my surgery on 10 October.  At the moment I am looking forward to the blue boob, ( named  Mama smurf by my daughter). 

After the surgery come the radiotheropy, so I am not sure which threads to read and post on. Thank you for all the advice I have read, and good wishes to all on this treadmil.

Love Sal

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Re: April 2018 Chemo Starters

It’s good to read that post-surgery is generally going ok.  I love the “anything boob shaped” idea; am so grateful my left boob still looks like a boob.  It’s getting sore, though, from the radiotherapy.

 

No more injections + port gone - must be such a relief Gigii.  Not surprised you are tired.  Every aspect of treatment swallows great wads of energy.  I was told I would be very tired after radiotherapy and, for me, this doesn’t mean I want to sleep.  It means I can’t cope with small setbacks because I just don’t have the energy.  I muddle through somehow. 

 

It’s back to the chemo ward on Wednesday for a zoledronic infusion (hoped I’d seen the back of that place for good).  I imagined it would all be over once radiotherapy ended.  Wishful thinking, that.

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Re: April 2018 Chemo Starters

It does seem to take it out of us doesn't it. I went back to the gym a few times between chemo and DIEP but didn't do a lot and now i feel like my leg muscles have gone to sleep. Hoping to get back this week even if it is 20 minutes on an exercise bike.

 

I have a wound check on monday and hopefully get rid of the additional dressings on the unhealed bits of the wound and then the oncologist on tuesday to talk about letrozol and anything else. Hoping the blood test shows my ovaries have given up and no zoladex is needed but will wait and see.

 

Must be such a relief gygi to get the port out and stop injecting. I have found the herceptin aches have reduced as i have had more injections so hopefully yours will too. What have they said they are going to do in order to balance you up? Is it liposuction?   I have an appointment in 6 weeks to discuss what is next. Scars don't look too scary and i bought some ordinary non wired bras today to keep me going until i know what my final size will be. I seem to have gone from a D cup to a C cup which is fine as i was told i would be slightly smaller and expected to be nearer a B cup. Anything boob shaped is fine by me.

 

Still not sleeping well but i am getting there. Trying to find a comfy position.

 

all the best to everyone and hope the energy levels improve. Great on you both for running.

 

xxx 

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Re: April 2018 Chemo Starters

Hi Gigi
Good to hear from you. I bet your swing is lovely in this weather! Such beautiful days we are having!
It must be a huge relief for you to stop injecting, hopefully physio will help sort out your achey legs. Parkrun is an excellent event I have done a few different ones. It is so inclusive, the marshalls will cheer you round whether you walk or run. I love it as the only person you are competing or challenging is yourself and you get a record of each one you do so you can see your progress. My energy levels are up and down. I think i am my normal self and then tiredness hits! Today I have been for a run and then lunch with friends and now I am shattered. I am so pleased to be back running though, I love it. I tried running after chemo but it was so hard, it has become easier but I have lost my fitness. Also annoyingly an old injury on my hip is playing up, after everything else that’s what hurts!! I’m getting physiology too, I hope they can sort it .
I am very envious of you reading lots. I don’t think I have picked up a book since chemo, I don’t seem to have the concentration at the moment.
I hope you get a holiday sorted, hot or not, you deserve it! X