Hope you’ve felt less nauseous today, Gygi. Don’t suppose the hot weather helps. There must be treatments for this sickness. I was told it is unacceptable for sickness & nausea to be allowed to continue but, like everything else about cancer treatment, it’s not that simple.
Wishing you well with surgery, Michelle. Hope the appointment went ok today, with questions answered.
I really sympathise with your foot problems, Fiona. I have nothing so extreme - just sore feet & fingernails. When I took off the dark nail varnish to do it again, I noticed a crescent mark about a third of the way up each nail. I guess that marks when I started docetaxel. Weirdly fascinating. Feels like I’m holding nettles. Like you, I love walking and would find it unbearable if walking were permanently painful. I’m very much hoping that your foot problems, Christine, are on the way out now that the chemicals have stopped.
I’ve got an appointment to discuss treatment with radiology on Monday, before last chemo. Well, at least radiotherapy will be different from chemo!
Hi Gygi. After my first injection i did have a couple of days of feeling very queasy to the point i took an anti sickness tablet. I never was actually sick and it didn't happen after the second one. It may be a case of wait and see and I do hope you feel better today.
Also my taxol was reduced and the final one cancelled due to my feet problems too. It cot to the point where i would normally walk the 25 minutes to the hospital and back but i could only do one way and took the bus the other. On the up side they are feeling fine now except for a slight numbness down the side of my big toes. I was very depressing as like you I did lots of walking. The reduction of the dose and cancellation of the last one had me feeling the same as you. Glad it had finished but was it ok to have less than i should. I was reassured that it was fine by my oncologist so i think we have to accept they wouldn't do it unless they were sure it was the right decision.
I was due to have zoladex (ovarian suppresant) but argues against it and they agreed that as long as my ovaries didn't start working again then it wasn't needed. they will check hormone levels after my op. and only add it if needed. I am due to have letrozole and not tamoxifen as they are not comaptible with other medication i am. When i had zoladex before i had a 3 monthly one rather than the each month and that was less intrusive but haveing herceptin every 3 weeks and zoladex every 4 would mean so many appointments it would really interfere with any sort of normal life.
All the best for your appointment Michelle. It would be good to plan this final stage and see where the end will be.
And with regard to hair loss, I lost all my pubic hair but that has started to grow back and feeling a bit itchy. My eye brows are not great and i still seem to be losing them. My upper lashes seem ok but i have very few below my eyes so I hope these come back in time.
Hi Michelle. i am still stressed and yes the paranoia is all there for me too. I can't wait for the breast to be gone as i too keep thinking the cancer is lurking. I spoke to a replacement breast cancer nurse this morning about my rash and she asked me if there was any new tenderness and that has me worrying as everything feels tender at the moment. she has got me to book an appojntment with the breast surgeon to check it and put my mind at rest. I feel like i am worrying constantly about something or other.
I have had two herceptins now as injections and it didn't take long. The liquid is admistered slowly but not much more than 5 minutes max. the first part does sting and i was told this was due to it ahving to be stored in the fridge more than anything else. I did have a red circle that formed on my leg for about 48 hours but wasn't reaally sensitive. The first 48 hours was also when when my joint and muscle aches were at there worst. I didn't really have any other reaction but there are a few on here that say they have other simptons.
Glad you seem to be able to move a bit more Dorabel. Paclitaxel left me tired and did increase as the cycles went along but i didn't have the length of fatigue the docitaxel seems to do. My second to last one seemed the worst and i was afraid the last one would be the same but lucklily it wasn't so bad..
Hope you all have a good week.
Thanks Michelle. That switch got flicked today & it’s the first day I haven’t woken up in the morning feeling exhausted. I’m very glad you didn’t have the same side effects as I have had with this. It’s not just extreme fatigue; there’s also the foul taste in my mouth that kills all appetite. This morning I enjoyed breakfast for the first time since side effects started. Just knowing that there is an end to the misery, even if it’s delayed, makes me less afraid of the last dose next Monday.
Many thanks for your support on this forum. It makes all the difference.
Thanks Gygi. This is very helpful as it seems what’s happening to me is to be expected. I don’t like spending so much time in bed but I guess it’s the norm for now. Pre-chemo tests on Friday should show if anything is wrong. Such a relief to get your reassurance. What a shame that filgrastim had a bad effect on your blood pressure. These are powerful chemicals they are pouring into us!
I was wondering if anyone could give me a reality check about docetaxel side effects. The crushing fatigue is actually getting worse. It will be 2 weeks since chemo on Monday & I can barely crawl out of bed. I did the ironing this morning and slept for hours afterwards.
Is this what others have experienced?
Thank you for your kind words and support. I had the scan which showed no sign of a clot thank goodness but and the doctor on the chemo ward said she didn't know why it was hurting but there was no clot and as it wasn't red it was not infected. That was a relief at least but it is still a bit uncomfortable. I think i must have just moved my neck wrongly as it did seem to come on suddenly. She also had a note on the system about my foot problems but couldn't explain that either as she said it wouldn't relate to the herceptin and only ocurrs with the chemo, which i finished a few weeks ago and i had sensitive feet then and not numb ones. I just need to keep an eye on it all. I did show her the scabs/spots and she wasn't concerned and thought it was heat related. Most of it she just told me to phone the helpline it anything got worse but it was re assuring.
Yes we have had some rain but still feels hot. i tried looking for the orange moon but the clouds are in the worng direction so i can't see any signs.
I agree that exercise gives me some time that is mine. I have always used my gym time as a zone out time even when my daughter was little. It gives me time to recharge. I am still not back to normal but i am doing a little at a time.
Thanks again and hope you enjoy your weekend.
So sorry you are having these problems, Christine. They must wear you down. I hope it all went well this afternoon & the port is ok now. The skin problems - rashes & numbness - are painful, so I hope this gets addressed. Must be devastating when all you get on the phone is a recorded message.
I’m with you, Michelle, on exercise, especially walking. I went to the gym today but I only managed a spell on the treadmill. The walk there and back probably did more good. Had to go to bed all afternoon. Getting out and seeing my friends is the best bit.
Glad your chemo went ahead, Linda. Another one behind you.
Things sound as if they are really going well for you, Gygi. I’m really impressed by what you do even when your energy levels are low.
Hope everyone has a good weekend. There have been thunderstorms here & the air is lovely and cool.
Yes it went ahead Michelle. They said it was due to the cumulative effect of chemo and that it often bounces back quickly! Seems odd to have gone up more than ever before to me but hey ho!
Michelle21 My neuts went up to 3.92 from 0.88. I do walk daily & went to vote last night too as remembered at quarter to nine we have an election! Maybe I will try jogging again soon if cooler now for abit. Ta.
Feeling very emotional today. the week started well but i have developed a number of problems this week. First i have numbness in my toes which the helpline says i have to keep an eye on. Emailed the oncologist but just got an automated not working at the moment message by return. Secondly i have some weird patches of scabbed spots on my breast that seem to be spreading. Concerned about that as the mastectomy/reconstruction is getting closer. Emailed the breast cancer nurse but haven't had a reply. Now i have pain in my port. i went into the chemo unit after phoning them about it and they think there may be a clot in in it so i have to go back this afternoon for an ultrasound. Hoping that a doctor may be able to look at the skin problems too as i had booked a gp appointment but then had to cancel as the appointment clashed with the ultrasound.
Just when i let myself think i could relax for a week it all gets messed up.
Feeling very emotional today. the week started well but i have developed a number of problems this week. First i have numbness in my toes which the helpline says i have to keep an eye on. Emailed the oncologist but just got an automated not working at the moment message by return. Secondly i have some weird patches of scabbed spots on my breast that seem to be spreading. Concerned about that as the mastectomy/reconstuction is getting closer. Emailed the breast cancer nurse but haven't had a reply. Now i have pain in my port. i went into the chemo unit after phoning them about it and they think there may be a clot in in it so i have to go back this afternoon for an ultrasound. Hoping that a doctor may be able to look at the skin problems too as i had booked a gp appointment but then had to cancel as the appointment clashed with the ultrasound.
Just when i let myself think i could relax for a week it all gets messed up.
Good morning. Feels like a nice cool start to the day with all the windows open so will go for a bit of a walk before it gets unbearable.
I think we all react differently Michelle so no need to worry yet as some people don't seem to have any side effects after chemo. When having chemo it is difficult to tell what effects relate to each drug anyway and i am hoping that my body will react less as time goes on.
I felt i needed to get rid of the coil at a point i was feeling ok and had not considered doing it while still undergoing chemo. Mine had been in place for about 8 years and was inserted for mid cycle bleeding but it would have had very little hormone in it by now. i was also positive for estrogen and progesterone so for peace of mind i had it removed before the DIEP but i don't think there was any urgency.
All the best
Hope everyone is having an ok week. Glad your on the mend Michelle. That must have been horrid on top of everything else. it is like what next? I am waiting for a week where i don't have a hospital appointment or doctors appointment. One day it will happen i am sure.
Fiona, if you find anything that works for the joint pain then please let me know. Mine seems worse on the injected herceptin than it was on the infusion so my oncologist suggested leaving the port in and going back to that but i really want it out so that is not an option. I am just using paracetamol and ibuprofen but at night i can't get comfortable at all.
I have had doctors and consultants disagreeing on whether i need my Mirena coil removed so decided i might as well have it removed. I went to my gp who had previously advised it was a good idea to be told the usaul practice was to leave it in until 55 so i had 6 months to go. I explained things so she agreed to remove it. The oncologist had said it should be removed but the breast surgeon said it didn't need to be then one gp said yes and another no. Anyway it is gone now but i wish they all agreed.
Hope you are improving Gigi and getting some normality back.
Do hope you are ok, Michelle, after that mishap with the drain. End of chemo has to be good & I’m sending good wishes re. surgery.
Thanks for the kind thoughts, everyone. Chemo last Monday & only today beginning to feel any better. Docetaxel is an evil poison. For two days after the infusion I feel ok & think I’ve got away with it this time. Then on the Thursday I can barely crawl out of bed. That stage lasted longer this time round. Thank goodness it’s only one more to endure.
I sympathise with you over the aches, Christine. “Aches” sounds quite mild but joint pain is anything but. Hope you are managing to sleep despite the pain.
Hope your nausea is under control, Gygi. It’s the most deadly feeling. As you have finished chemo now, I’m hoping you are beginning to leave the horrible side effects behind.
Someone told me today that this time next year, all this (cancer, chemo) would be a distant memory. I’ll believe that when it happens.
Well done on finishing chemo Michelle Hope your cuts and bruises are healing ok and you're not too sore.. So sorry that you fell down the drain, but I must admit it did make me smile. Perhaps you can make a claim! xx
Take your time Gigi and let your body recover. I am sure in a few days you will better and so glad you don't need anymore of the chemo. I think your body is telling you it has had enough of it and needs time to recover.
Michelle. hope today goes well and the next week or so as your body deals with your last chemo. The brain will soon be looking to the future as the side effects fade and you feel more normal again. I was always told if the breast hurts it is not usually cancer but something a lot less serious. I went with a painful lump that was a cyst and there was no pain in the area that was cancer. i am sure it is nothing to worry about. Do you know what surgery you are going to have yet? It looks like my DIEP is going to be 14th August but not confirmed yet.
Herceptin injection today which went ok. The main problem i am having is the aches. I may have moaned about that already... Quiet weekend this weekend as last weekend was a bit much. It was lovely and i enjoyed it but the follwoing day or too i was exhausted. It is easy to do too much when I'm feeling good and forget my body is not 100% fit.
Hope all is good with you Dorabel and Fiona.