The downer seems to be a recurring constant in chemo treatment. Week 1 is always an alien planet. I’m glad you are feeling better now, Michelle. Your friend, for whatever reason, has really let you down when you needed her friendship to be real. Two of my friends have done something similar. (I had to comfort one of them who burst into tears when I told her of my diagnosis.) As a trio we used to meet for lunch but I’ve heard nothing from them and meeting for lunch no longer happens. I feel as though what seemed a real friendship was actually something quite shallow. Those who are my friends during cancer treatment have been my lifeline.
Thanks for the reassurance re. docetaxel. The nausea was horrible this time but today, as though someone had flicked a switch, it was gone. No meds today. No one doing macramé with my insides. Yayyy!!!
I’ve tried the CCS cream and it’s lovely, so I hope it works for you, Christine.
Hope the holiday feeling is still with you, Fiona. Just getting away from cancerland for a while must have been fabulous. Puffins a bonus!
Did you get to the cinema, Gygi?
Take care all x
Totally agree that when a day or two or normal arrive we need to make the most of it. I seem to react differently to each cycle. Some are ok and others have me down and very tired. Not what i had expected at all. I expected each one to leave me feeling worse and worse but then i get a good week and after a bad and i make the most of it.
I have found some friends are keeping in touch and others are very quiet but it is a bit of a downer when a close friend seems to be uncaring. There may be things going on in there life or reasons you don't know. If you are down everything seems a big deal and gets exagerated. I am sure we have all been there in the last few weeks.
Some weeks do seem to be spent with a number of days in a hospital waiting for one thing or another. I have found that as everyone else is in the same boat, you do get to chat to people and some of the advise and concern from those who have gone through similar experiences can help a lot.
All the best with the CT result.
Thank you for the advice and i have just been out and bought the CCS cream. Smells really nice too so hopefully that will be one problem easily fixed.
I think it was the two reactions together that made her cancel the last treatment. I will be having 11 of the 12 doses and she said that would be sufficient. The problems could become permanent if left so i guess the benefit of the chemo didn't out weigh the suffering.
Feeling better today and mentally i am feeling much more positve and able to deal with things.
It’s a nice thought that we’re moving closer towards the finish than the start. Good news that this cycle has been better for you, Michelle. I’ve found the cumulative effects of chemo have made the nausea & fatigue worse this time. At least I won’t be whacked with EC again though I’m not sure docetaxel will be an improvement.
I hope the treatment for side effects on your skin work quickly, Christine, & that everything goes well with the DIEP. It’s a lot to endure. If the cut from 3 paclataxels to 2 is not going to cause a problem then it’s good that you do not have to have that 3rd treatment. I hope the crack in your heel gets better soon. I’ve seen the skin creams containing urea in the chemist’s and they do help.
Not feeling sick tonight is wonderful. I’ve never enjoyed normal so much as during chemo.
well i had an appointment booked with my oncologist anyway so this evening she looked at the rash on my arms and the problems with foot pain and cracked skin. the result is a prescritpion to pick up on friday after chemo for steroid cream and antihistamine for my arms and i need to buy foot cream with Urea in it to help keep the crack in my heel from getting worse. I was due to have three more paclataxels but she has decided to move this to two. This is mainly due to the foot problems that can become permanent if left too long. Walking has become a problem and i have misssed being able to walk to the hospital. I am pleased that i onky have this friday and the following friday to go but I was hoping to be able to do the full course. she assures me the omission of the last one will not be a problem.
schedule of future treatment agreed with herceptin injections starting friday 29th (I have had 4 infusions) and the Zolades starting three weeks later. There was a discussion on where to put the Zoladex pre DIEP and the nurse said they have been puting it in the side which is still covered by the licensing agreement that it must go in the tummy (Surgeon said not to use the tummy). Anyone else had it put in a non tummy area?
DIEP now due for begining of AUgust which seems a bit soon to me but i am keen to get it all over with.
Feeling more positive with an end date in site to the chemo at least. Looking forward to a couple of summer concerts too in July but i assume i will still need to keep my skin covered and avoid the sun.
Hope everyone else is doing well
looks like everyone is doing well and great news on everyones results etc.
For me it has been a busy week with lots of information to take in and process. Just want it all to end and get back to something a bit more normal. My skin is in awful condition and the chemo rash on my hand has extedned so both arms look horrible now. Just hoping it doens't move to any other skin areas and delays the DIEP. Not sure how long it takes to clear after the end of the chemo.
Anyway i am fed up with moaning about problems so promise my next post will be more possitive.
All the best for the coming week to you all.
Hope it’s good news tomorrow Linda. Sounds like the tumour is responding to chemo as hoped.
Home straight - I like the sound of that, Michelle. For me, this 3rd chemo has been the worst yet but it’s receding now. Think I’ll do some online retail therapy for dark nail varnish in preparation for the docetaxel I’ll be getting for chemo 4. I’m going to ask for a list of the stuff that’s supposed to be in my carry-out bag so I can check before I leave the hospital.
I’m sure the doc will give you the dimensions of you tumour again. Great news that it’s shrunk.
I had an ultrasound on Monday and was told the cancer is fragmenting but the same size so good news after 2 chemo cycles. It's being discussed tomorrow though so will try to find out more on Friday.
Just popped in from April and May surgery threads ... yes I’m in 2 ... yikes.
Michelle ... fab news about your tumour shrinkage and 1 node .... everything crossed for your CT scan , cycle 4 and after xx
Thanks Gygi. Felt better after morning anti-sickness meds & reassured to have supply now from the chemist. That was quick! I even managed my usual chemo walk & that helped. What upset me was feeling so feeble when I don’t think of myself as a feeble person normally. Must be the trapped-in-a-cement-mixer world of cancer treatment.
Im hoping that the antiobiotics are doing the job. Resting must surely help, giving your body a chance to direct all its resources where they are needed.
PS Michelle forgot to say I’m fine with whatever you call me. I picked the handle as a version of Dorabella from Così Fan Tutte.
Thanks for your kind wishes, Michelle & Gygi. Chemo went as usual but I had problems with the take-home medication. The domperimone I’d agreed with the oncologist was missing. I rang the 24 hour hotline and got put on hold, bit of havering about whether I could get the pills from the hospital, put on hold then told to go to my GP. Rang GP & was told they didn’t do prescriptions over the phone. Eventually phoned by GP duty doctor who said domperimone prescription ok. Still waiting for this to arrive at the chemist’s so it’s lucky I have a few left over from last time. What would be a simple problem to solve had me weepy and shaking. Discovered a second anti-sickness medication was also missing. Don’t know if this was intentional or an oversight. Feeling sick.
I hope all goes well with the CT scan on Friday, Michelle. It’s horrible waiting for results, hoping for the best. My fingers are crossed that the tumours will have shrunk + no spread. Re hair loss, I’ve still got a patchy stubble on my head (after shaving). But I have got eyebrows & eyelashes though probably not for long.
I was told at chemist’s that OTC mouthwash can cause staining & wonder if it’s the same with the stuff they give us at the hospital. I use salt water instead unless my mouth is very sore. Glad I know now about avoiding tea & coffee too soon.
Hope it’s all going ok for everyone - not much fun but getting through.
Gygi it must be hard to deal with an active job aswell as deal with the tiredness and fog of chemo. last time round i did work but i had an office job and an employer that allowed me to work the hours i could. I liked the normality of it and it kept me going. Only you can tell what is best for you but i hope you can find a balance that works.
Sounds like a busy time for you Michelle. It never leaves our minds for long does it and the worried intrude on everyday life. Every result seems a big thing and can effect positivity and moods. All the best.
My mouth wash does say not to drink tea or coffee for an hour as it can stain your teeth and i did hear that it the mouthwash can weaken the enamel.
Hope you all have a good week and the wild life opportunities continue.
Hi Michelle, I can't remember which thread I read it on now (sorry) but I remember seeing that someone had put that the mouthwash we're given had stained her teeth (can't remember which mouthwash it was now either!) Wondered if that could be what's affected your teeth? x
Now my hair is very short at the top and short everywhere else I just wondered if I need to do anything different when using the cold cap?
Still sore today day 11 when going to the toilet but stopped Senna as was loose yesterday. Maybe I should have had taken 1 or 2 Senna last night. The nurse who does my puff line said you can take Senna every day as its so mild.
I have the oposite effect on taxol and have already had to dash to the loo this afternoon. I was given immodium to take home after my first chemo but i haven't taken it unless i have really needed to go out and it was really bad.
The chemo nurses also told me right at the start that if i had to go to A & E then as long as there was a nurse on the chemo ward then they would go down to A & E to use my port for a blood test. Hope that isn't needed but it is good to know. They can also use the port for the contrast for the CT scan i will have next week but one of the nurses said today it will depend on the radiographer as some still like to use the arm.
Not feeling too bad at the moment as all the pre meds are still working. usually all kicks of sunday afternoon then Monday is a write off.
Gygi I think you should find the bruising will disappear farely quickly and so the raised skin doesn't look so obvious. There are a few items of clothing i wouldn't wear out but i am not too restricted
Thanks, Michelle. The first antibiotic pill stopped the UTI & I’m ok now. Sorry to hear about the tooth discolouration - I think it may be yet another unwelcome side effect. Perhaps, after chemo has finished, the dentist may be able to help.
I went for pre-chemo checks today and discovered (again) that it helps to know what to ask for. I’ve had a picc line from the start because a friend put me wise to it so I asked for a line and got one. Today, when the nurse was going to take blood from a vein, I asked if it could be taken from my picc line. The answer was yes if I went to the chemo ward for it. Who knew? I avoided having a painful digging around in a vein and the blood was taken painlessly from the line. Anything that causes less pain is welcome, especially when you are going through chemo.
I hope it went well today, Christine. Chemo day is never much fun, with the first days afterwards to get through, and your sore mouth must be very hard to bear. At least the reconstruction discussion was positive.