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April 2019 Chemo Starters πŸ’–

Member

Re: April 2019 Chemo Starters πŸ’–

Hi Everyone

 

Had my second chemo on Tuesday,don't feel too bad this time just quite tired and a bit slow motion. 

I have been cold capping but some of my hair did come out this morning, my wig app. is on 16th.  

I am taking steroid tablets just for three days after each chemo session ( i am having EC). 

I have was moved on to injections while i have chemo for my blood thinners which i take for a DVT i got 5 year ago.  I was petrified because i didn't think i could do it but the district nurses where very supporting and now i am injecting daily.  I find it easier to be sat down, they told me to stay around an inch and half away from belly button and to push it into the pinched fat (which i don't really need to pinch as there is enough there!).  It did take a few tries over a couple of days but then I managed to do it and now find it ok.  The nurses have said they will come for the few days after my chemo sessions just to make sure i am up to it with the fatigue and nausea so thats good.  Steffih i hope you manage it, let us know how you get on.

All the best everyone.

Debi πŸ’–

 

Member

Re: April 2019 Chemo Starters πŸ’–

Hi everyone

 

my hair has started to fall out, hubby already had to unblock plug hole in bath, clean hoover as hair wrapped around brush so stopped working and rub passenger seat in car with clothes brush. I have really thick hair so this could take sometime before I cut it all off. Ready to rock my hats and scarves. Asked hubby as he is bald what he washes his hair with and how often, yes I got the look β€˜are you kidding me’. 

 

Family cant wait to see what colour my real hair is when it grows back, taking bets on grey and white. 

 

Hope we you are all doing well.

Member

Re: April 2019 Chemo Starters πŸ’–

Hi Bluebell, I went to my pharmacist today to ask, but they said they are only insured for flu jabs... I am hoping I can pluck up the courage on Saturday myself !! xxx

Member

Re: April 2019 Chemo Starters πŸ’–

Thanks Sue

 

Grab some tummy fat  ..... well that will be the easy part, got plenty of that.  Thanks for the tip about not doing it after bath or shower.

 

Louise

Member

Re: April 2019 Chemo Starters πŸ’–

Thanks Oots

 

Hubby has just gleefully offered to inject me - nooo way  - he's much too happy at the prospect of sticking a needle in me πŸ˜†

 

Louise

Member

Re: April 2019 Chemo Starters πŸ’–

Hi louise

Apologies if ive jumped in on this comment but wanted to put your mind at rest about the injections.  They are steroids to boost your white blood count.  Mine are called filstagrim, i injected myself 2 days after my first chemo (my second chemo is next week) and i only had to do it for 7 days.  Im the most squeamish person u will ever meet (or speak to in this case) and at first i was saying no way can i do that but its really easy to do, takes about 20 seconds.  Just grab some tummy fat in a fold and put the needle in slowly, push the syringe down and theres a spring action so it will stop when finished.  Just one tip dont use straight after a bath or shower as the skin is quite sensitive.  Hope this helps.

Sue xxx

Member

Re: April 2019 Chemo Starters πŸ’–

Hi Louise

 

I believe these injections protect against infections because the chemo attacks your immune system very badly. I believe they are designed to kickstart your immunity so your chances of catching anything nasty are much reduced. 

 

Oots

Member

Re: April 2019 Chemo Starters πŸ’–

Thanks Kelly

 

eeek the thought of having to inject myself 😱

Do you know what the injections are for / what they do?  Thanks

Member

Re: April 2019 Chemo Starters πŸ’–

Hiya Loiusefpage

 

I didn’t know anything about the injections until I was actually sat having my 1st chemo session. I wouldn’t worry about it though, as the needle is tiny n you hardly feel it go in.

ask your Consultant if you’re having them, but I’m guessing it is standard for everyone, as it’s to boost your white blood cells

good luck with your treatment x

Member

Re: April 2019 Chemo Starters πŸ’–

So far so good! Second round yesterday. I took notes of how I felt the first time and it is very similar this time again. Perhaps not identical timings but what happens is almost the same. If that stays, I can handle it because I did before. My tummy felt a bit iffy today so I took some ondansetron and Omeprazole prescribed for this and was better after that. I didn’t do that last time but I thought,  I have them for a reason. Why not let them work their magic. I have a very flushed face and neck but temperature is normal. And I managed a sleep despite all those steroids. So all things considered, this is going OK so far.

I am hoping the same is true for everyone else. I always knew this was going to be a bumpy ride. It’s going to get better eventually! Important not to forget but it’s hard when I think about how long it all takes. 

 

Oots 

Member

Re: April 2019 Chemo Starters πŸ’–

Hello interesting times

Yes my BCN rang me last week to  ask ne how i was getting on and she said i will probably follow the same pattern as round 1.  My round 2 is tuesday so im a day behind you so im hoping we can update each other on here with our progess.  I currently have a very sore scalp (my hair started to come out today) so im taking paracetomal for it but ive heard that i could lose hair when im asleep, so im booked into the hairdressers tomoro to get it cut into a short bob.  My hair is very long so im getting it cut in stages as im not ready to lose it all just yet 

Take care

Sue xxx

Member

Re: April 2019 Chemo Starters πŸ’–

At the risk of sounding like a stuck record six weeks on I have third FEC chemo Friday and most of my hair thanks to cold cap ( it is growing back in the thin bits ) really give it a go if you think you can face 10 very uncomfortable minutes of brain freeze 

Shi Community Champion
Community Champion

Re: April 2019 Chemo Starters πŸ’–

Please take your temps before popping paracetamol, it can mask and temp spikes that could be infections. The prickly sensation as your hair sheds was a lot less noticeable if you clip it short a lot of us went to a grade 1 or 2, if any of you have enough long hair, please think about getting it cut so you can send to little princes trust, they make wigs for kids and donate them for free. A silk pillowcase is also gentler on scalp too as your hair goes. Tips for when your treatments finished to assist with hair regrowth is Jamaican black castor oil rubbed on head for about 30 mins then shampoo head (even while still no hair) with lush new (red dot) shampoo bar, but after all treatments finished. πŸ’•πŸ’•βœ¨βœ¨Shi xx

Member

Re: April 2019 Chemo Starters πŸ’–

Sue I also feel I got off lightly. I was super nauseous in the first week (day 3 and 4 were horrid!), bad headaches and digestive issues, but that's it. thus far. ... my next chemo is next Monday so fingers crossed that will be the pattern. My Onco says what you experience in cycle 1 is probably the picture. Ladies further along than me can confirm that!

Hang in there! We will be hairless together! Lol.

Member

Re: April 2019 Chemo Starters πŸ’–

Zarzio injections   think i could do it myself if push came to shove but actually glad OH is around.  Advice given to us was pinch an inch and pop it in, squeeze slowly   and important to take out of fridge for 30 mins beforehand or it stings.  I'm lucky with my excellent care assistant/nurse  aka my husband!!   He's being great hope the rest of you are blessed with good care.  

Cycle 2 starts for me tomorrow.  

Keep strong, think long term, this is a step on the journey.  We can do it.      Alice

Member

Re: April 2019 Chemo Starters πŸ’–

No No Pollensa!!  If it's for the jabs to help white blood cells (I expect that's what we're all on) the needle is very short. Only needs a little bit of flesh and goes just under the skin. Don't alarm everyone!!  It will be fine, Love Mo xx 

Member

Re: April 2019 Chemo Starters πŸ’–

I've been wearing my wig or "new hair" for a week now after deciding to get rid of my hair  a few days after first chemo. I knew it was going to go and couldn't bear having it come out in tufts.

 

Quite honestly, I'm pleased I did it so soon. It is one thing less to worry about. My wig has attracted loads of compliments ( didn't think my real hair was that bad but there you go....!). Nobody has known its a wig unless I've told them. It is a relief to take it off in the evening but I am slowly getting used to the feel of it. Nobody has seen my bald head but I have answered the door in my wee soft jersey hat!

 

I've not been introduced to self injecting either but it's early days so I dare say that's another treat in store. Mind you I have a very generous tummy so the needle will have to be VERY long.

 

We've all started our journey and each day brings the end of treatment closer, albeit with a few bumps along the way....

 

Pollensa x

 

 

Member

Re: April 2019 Chemo Starters πŸ’–

Hi Steffi

 

I believe the access to a district nurse is usually organised via your GP. Just call them and ask.

I called my GP to find out about support after my mastectomy and he said if I needed help it could be done. Turned out that I was OK. But it was so good to know there was a plan B. 

 

Oots

Member

Re: April 2019 Chemo Starters πŸ’–

Thanks sharon.  I have been expecting it but it was still a shock when it started coming out.  Ironically my number for the Race for Life arrived today.  Hows that for timing!! How are u finding chemo so far? I was sick the morning after my first session and since then ive had nausea and mouth ulcers.  Feels like ive got off lightly so far but not sure what tomoro will bring xxx

Member

Re: April 2019 Chemo Starters πŸ’–

Hi Runningsue,

 

I also decided not to cold cap. My first chemo was 3 weeks ago. My hair started falling out about a week ago and yes my scalp was/is sensitive. Apparently it will stay that way until all the hair falls out completely. I had mine cut super short last Friday as I was sick of handfuls lying around... That seems to help a little if you can face it. And then yes I guess paracetamol. Good luck! 

Sharon

 

Member

Re: April 2019 Chemo Starters πŸ’–

Hi ladies

I am 2 weeks in from my first chemo.  I decided not to cool cap.  Just had a shower and loads of my hair came out.  Ive got long thick dark hair so its not noticeable yet but my scalp is sore.  Can anyone recommend anything for this or shall i just take paracetomal? Xxx

Member

Re: April 2019 Chemo Starters πŸ’–

Hi, I have been managing too, despite hating the idea. It has occurred to me that pharmacists might be able to help too, they do flu jabs and are open at weekends? Quicker than a and e I think. Good luck xx, 

Member

Re: April 2019 Chemo Starters πŸ’–

Good luck with puppy! I recommend gloves and long trousers, pups have sharp teeth!! And yes, make sure it's daughter out in the garden at 4am. Have fun xx

Member

Re: April 2019 Chemo Starters πŸ’–

Hello ladies!

Hope everyone is well. Welcome newbies. I hope those who have had 2nd cycle are feeling as ok as can be.

Well for me, this week has been bad so far! Ended up in hospital Monday around 9pm with a high temperature, and they’ve only just let me out today. Was treated for infection although none to be seen from the bloods.

Ahh well, I’m out now, and in time for the bank holiday with my lovely OH- who bless him, has found it all really difficult. Anyone else’s partner’s feeling a little lost in terms of diagnosis? He helps all the time, but we are only 25, and it’s just such a big blip in our lives.

Member

Re: April 2019 Chemo Starters πŸ’–

Thank you Susan, for some reason they didn't offer that to me (I am at the Royal Free in London). My GP is pretty much next door, if I am struggling I may pop round there and may have to go to A and E if I can't manage it by myself on Saturday (but I am hoping I will!!! ) Hope your treatment goes well xx

Member

Re: April 2019 Chemo Starters πŸ’–

I think it depends on the chemo drugs you are getting, I don't think everyone does it (and I only found out yesterday at the end of my chemo Smiley Sad  ) xxx

Member

Re: April 2019 Chemo Starters πŸ’–

I am moving on to Paclitaxel which is apparently less toxic and does not require injections ! Hurrah 

Member

Re: April 2019 Chemo Starters πŸ’–

Hi ladies,

 

Welcome to the newbies! I am super jealous of you on your last FEC. Will you move to the T now? I'm having 6 doses of FEC. Does anyone understand the difference (besides the obvious!)?

 

ON another note, we are getting a puppy this weekend. I think I am bonkers but it's my daughter's birthday present... she's 15 so should be able to do most of the care herself! Wish me luck! lol...

Sharon 

Member

Re: April 2019 Chemo Starters πŸ’–

Hi

 

I'm due to start chemo next month.  Just been reading the last few posts.  Needles??  Inject yourselves!???!

Is this standard for everyone?  Do we all have to do this, or does it depend on individual situations?

Member

Re: April 2019 Chemo Starters πŸ’–

I’m just heading to my second cycle now, waiting for the tube and not looking forward to cramming in during rush hour!

Got my bag of goodies and distractions with me and just want to get this over with. I’m having weekly chemo but this is my double whammy of drugs and feeling anxious knowing how sick it made me feel before. Fingers crossed the new anti sickness drugs work. 

Good luck with your last FEC today, what do you have after that? 

X

Member

Re: April 2019 Chemo Starters πŸ’–


@steffih wrote:

Hi, my name is Steffi and I have had my first chemotherapy session yesterday (so officially still an April starter Smiley Happy ) It went really well, I had a port put in before and was amazed at how little I could feel and yesterday I felt a bit spaced out and this morning a tiny bit wobbly perhaps but not too bad, up and about. The only thing that really worries me is that they sent me home with some injections to give myself. She said to put them in the fatty bit in my tummy. First of all I am quite thin, so there isn't that ,much fat there and also she said get someone else to give them to you, but my partner is away this weekend when I am meant to start (and to be honest he didn't look best pleased at the thought). I was wondering if anyone has any tips on how to do this painlessly. I have that cream for the port, maybe I could apply that before or an ice pack? How are any of you finding the injections?? xxx


Hi if you do not want to do it ask for the district nurses to come round . That should be an option I am about to have my third chemo and last FEC thank heavens but have had nurses every time 

Member

Re: April 2019 Chemo Starters πŸ’–

Thank you, Kelly, that's good to hear you have trouble with needles too but managed to do it, and I like your tips. It's probably best not to overthink it and just do it!! I will keep you posted how I get on on Saturday, I hope you are doing ok xxx

Member

Re: April 2019 Chemo Starters πŸ’–

Thank you so much, Oots, that is really helpful...I may go see my GP before the weekend and see what they say. I didn't sleep that much last night either, but I guess that's the steroids and at the moment I feel well enough to get some work in, so will make the most of it... I like the sound of Billy. We have 2 cats and they were quite happy to get fed earlier this morning xxxSteffi

Member

Re: April 2019 Chemo Starters πŸ’–

Hiya Steffi

welcome to the group.

I am a real wimp when it comes to needles, but have to say it’s been ok doing my own injections. The first time was the hardest, as it’s just not a natural thing to do. Just grab some flesh and quickly push the needle in. I counted down from 5...it helped haha. The needle is really fine so it doesn’t hurt. Just remember to pinch the skin where you grab it, this takes your mind off the needle going in. Once the needle is in and your pushing the injection in, gradually stop squeezing or a bit will drip out of your tummy at the end 

If you really can’t do it, then I was told a district nurse could come and do it

good luck x

 

Member

Re: April 2019 Chemo Starters πŸ’–

Hi Steffi

 

Great to see another starter. I had been cruising this forum for a while but finally plucked up the courage to join a couple of days ago just before my second chemo. I was up and about at 5 this morning. Billy, the rabbit was not as happy to see me as I expected. He was still too tired for his breakfast. A rabbit’s life must be hard. I wonder what he has been up to last night. I had about 4 hours of sound sleep. Not a lot but I know that will get better once I’m off the steroids. Also feeling a bit fragile but otherwise full of beans as usual. I know in the course of today this will probably change so I am making the most of it. 

I had my injection into the tummy. A nurse showed us how to do it and it is easy. Pinched the tummy to pick a bit of fat (to be fair, there’s no shortage of that on me) and inject. The needle was very thin and it didn’t hurt except a little prick. Bit less than when having blood taken, I thought. I wonder whether you can call your GP and ask for support from a district nurse until you feel able to do it yourself? Or maybe your GP surgery is open on Saturday and you can go there if you are up for the journey there? Don’t underestimate the fatigue that mind come through. That’s pretty special when it happens and can make trivial things tricky. 

I hope you continue to feel OK otherwise.

 

Oots

 

Member

April 2019 Chemo Starters πŸ’–

Hi, my name is Steffi and I have had my first chemotherapy session yesterday (so officially still an April starter Smiley Happy ) It went really well, I had a port put in before and was amazed at how little I could feel and yesterday I felt a bit spaced out and this morning a tiny bit wobbly perhaps but not too bad, up and about. The only thing that really worries me is that they sent me home with some injections to give myself. She said to put them in the fatty bit in my tummy. First of all I am quite thin, so there isn't that ,much fat there and also she said get someone else to give them to you, but my partner is away this weekend when I am meant to start (and to be honest he didn't look best pleased at the thought). I was wondering if anyone has any tips on how to do this painlessly. I have that cream for the port, maybe I could apply that before or an ice pack? How are any of you finding the injections?? xxx

Member

Re: April 2019 Chemo Starters πŸ’–

Hi Debi

 

I am home too. Hair defrosted, rinsed and slept on.

I am quite tired probably due to the dose of piriton in the pre chemo infusion. Tingling on the tongue suggests that the taste is changing. Otherwise I am fine.

My blood test showed that one of my liver enzymes is a bit higher after the first chemo. Nothing to stop the chemo today but I’ll have an ultrasound on Friday. Hopefully nothing to worry about. 

 

Hoping your day tomorrow is not so grim! And you are very right. Another one crossed off the list....let the chemicals do their worst against these cancer cells!

 

Oots

 

Member

Re: April 2019 Chemo Starters πŸ’–

Hi All

 

Just got home from chemo number 2.  Feel ok at moment, it will probably be tomorrow when the sickness and fatigue starts.  Hopefully this time i will be less panicky then i was after my 1st.  Best wishes to everyone who is having chemo this month - just remember it one step forward to finishing treatment and smashing this thing.  Take care.

DebiπŸ’–

 

What a lovely thing that your friend makes the knitted boobies, i am sure someone will love them. xx

Member

Re: April 2019 Chemo Starters πŸ’–

Hiya All

a friend of mine kindly knitted me some β€˜knitted knockers’. She did a couple of sizes as I wasn’t 100% which size would be best. Anyway, due to this, I have 2 in cup size b if anyone would like them for free. They have not been used. I will happily post them to anyone in UK

thanks

Member

Re: April 2019 Chemo Starters πŸ’–

Welcome Oots   hello everyone   Oots strange that you loved the taste of ketchup - my taste went completely for a few days but i loved anything with fresh tomato.  For me today was blood test, tomorrow clinic and Thurs is chemo day.  very worried about what will be suggested for cycle 2 as i had reactions to two drugs on round 1, so approaching cycle 2 with trepidation to be honest.  Never had any nausea, no sickness so that was a blessing but did suffer with an incredibly sore nostril - just the  one-- and a drippy nose for a few days.  Tight bad headache on waking for three or four days, so next round i shall be drinking more water to see if that eases.  Back of my hand is like one big dark itchy bruise so i shall be asking about that tomorrow,    Wishing you all a good round 2 whenever it starts.     Alice

Member

Re: April 2019 Chemo Starters πŸ’–

Hi Oots

My 2nd round is tomorrow too.  Unlike you i am a born worrier and get anxious over the slightest thing.  I think i am more nervous for my second round than i was for my first - i think i am thinking it was worse than it was.  Hope everything goes well for you tomorrow, i will check in with you in the evening. I have yet to have surgery - this is to be scheduled for after my 6 rounds of chemo.

Debi πŸ’–

Member

Re: April 2019 Chemo Starters πŸ’–

Hi all

 

I am having my second (out of 4) round of TC tomorrow. I had a mastectomy of the left breast on the 1st February and the chemo started on the 9th April. Last time I was a lot more anxious because I didn’t know what to expect. I am very lucky because I had a port fitted. It’s under the skin and required no maintenance and is essentially pain free when blood is taken or infusions are hooked up. No veins were harmed in the process. Straight after the chemo I felt great (well, I was on steroids so perhaps not too surprising). Then I got the growth factor injection the next day and I don’t know whether it was coincidence, but the pains started setting in that afternoon. And it for worse every day for 3 days and then got batter again. In combination with the fatigue I felt as if I had done a few rounds in the ring with Mike Tyson. But on the positive side, I only had a little bit of indigestion and was never sick so that worked well and I had no mouth ulcers (did a LOT of rinsing the mouth). I got a bit of oral thrush in week 2 but within a couple of days of treatment with an anti fungal that went.

Week 2 got better every day and in week 3 I was very well. Able to do normal things and going for walks. Today I am savouring because I won’t be that well for a few days but, hey, it will pass.

 

I read a lot about anxiety around infections. I’m lucky, I don’t worry too much but I do check my temperature when I have a headache or sneeze a lot. If it’s normal, I don’t worry.

 

One thing I had was a very dry mouth in the first week. I now use Biotene toothpaste and mouthwash. I find them really helpful. 

 

My taste buds went crazy on the first day (didn’t realise apples could be so revolting while cauliflower was suddenly delicious). I developed a real passion for tomato ketchup; what’s all that about? This improved slowly and in week three my taste is almost back to normal. So there is hope.....

 

The hair is still on, probably because of the cold cap. Even Billy the rabbit is shedding more than I do; in fairness he is moulting! My head is quite big and fitted very snugly in the large size cap. I had my hair cut short and enjoy the concept of not doing much to it. Minimal handling when washing and minimal drying if any. However, the grey (I’m 55) is now showing since I am no longer getting it coloured. A great opportunity to explore how I will look in grey. However, the pubes are on their way out and so is the nose hair (TMI). Everything else is staying put for now. I decided against a wig. I’ll have scarfs and bandanas if it becomes necessary down the line.

 

Another recommendation I have are β€˜knitted knockers’. It is a charity where volunteers knit inserts for bras in required sizes and colours. I think the are great because they are much more fun than the flesh colour inserts. They can be easily found online.

 

I am new to this forum and reading all the posts is so very helpful. It’s great to share good and bad. It seems there are so many variations of treatments these days and I am massively encouraged by the progress that was made to successfully treat breast cancer in particular. In a way, it’s good to know treatment is under way no matter how unpleasant and worrying it is at times. I feel very lucky my cancer was discovered because I could still be sitting here not knowing and not having treatment.

 

Over and out; getting ready for the next round tomorrow.

Shi Community Champion
Community Champion

Re: April 2019 Chemo Starters ?

Wash all salads, fruit, veg too 😘😘

Member

Re: April 2019 Chemo Starters ?

Hi everyone

 

Had a great day at the wedding, was really tired when it got to the evening so went to our room around 9ish - couldn't manage to boogie any more and i did get a bit paranoid about germs and infection after being around so many people all day and evening.  2nd cycle of chemo starting Tuesday, which i can say i am not looking forward to but it has to be done.

 

Zoetwinmum - sorry to hear you have been in hospital.  With the antibiotics you will soon start to feel better.  I was given a sheet in what foods to avoid, on there is cream cheeses, eggs, pasteurised milk, to boil tap water and to avoid bottled water and mayonnaise.  I can't think of the others offhand but will have a look tomorrow.  

 

Interestingtimes - good on you for going in to work.  Don't think i will be ready to return to work for a while, doctor advised against it.  In contact with too many children and adults every day.

 

Pollensa - My temp is usually around 37 - 37.4.  I am taking my thermometer to the hospital to see if it reads the same as one of theirs.

 

Hannahlizzy21 - Hope you are feeling better soon.

 

Runningsue - I was given a mouthwash to start day 1 after 1st cycle of chemo.  It says to use it 4 times a day but i just use it on an evening before bed.  It's kept mouth ulcers at bay so far, I also use Armstrongs toothpaste which contains bicarbonate of soda which i have heard is supposed to help too.

 

Well after my lovely but tiring weekend i will say goodnight.  Take care everyone. πŸ’–

Debi x

 

 

 

Member

Re: April 2019 Chemo Starters ?

That's brilliant Zoe. Your girls will be so happy!

 

As for food to avoid, im just staying away from soft cheese and prawns! What else were you told ?

 

Hope we all get a good night's sleep.

 

Px

Member

Re: April 2019 Chemo Starters ?

Thank you for all the kind messages. Manages to get the doctor agree to let me come home so I can be here tonight to settle girls before school tomorrow. Wow what a strange thing being told your febrile neutropenia is so low. Count is now 0.38 and on 5 more days of antibiotics. Has anyone been told about what foods to avoid in the second week. Its amazing, you shouldn't even have a sandwich lol

 

Keep strong ❀ xx

Member

Re: April 2019 Chemo Starters ?

Oh bless you Zoe! I hope they let you out soon. 

They are so quick in sorting people out though aren’t they? Before you’ve even said β€˜I’m not feeling too good’ you’re off and in hospital being treated!

It’s day 6 of 2nd cycle for me. And Friday/ Saturday I felt soooo unwell. I’m not one to stay in bed, but yesterday I physically couldn’t move. Felt so sorry for OH, as it’s his weekend too. He just waited on me hand and foot. But today I’m feeling lots better and counting my blessings that I’m being made better, even when the side effects can be so rotten!

Shi Community Champion
Community Champion

Re: April 2019 Chemo Starters ?

Running sue, please watch that low temp, if your temp is under 35 you need to ring your unit too. It will help if you keep diaries on your temps during the 3 week cycles, you can refer back to them as the cycles pass and cross check. Your days 7-14 are when you are nadir and at your lowest neutrophils wise. Zoe casa nhs or casa private is the best place for you, sorry you are having a stay, I had 6 days in after my first one, but onc gave me 80% dose for remainder of chemos and I got through ok after that, drink lots of water while you are in and if you get thrush mouth anyone, get them to give you fluconzole not fob you off with drops πŸ’•πŸ’•βœ¨βœ¨Shi xx

Member

Re: April 2019 Chemo Starters ?

That's rotten, Zoe. But they wont let you out until they are sure youre ok. I know it's a cliche but you're in the best place at the moment.

 

I didn't realise how dodgy I'd been feeling all week until I woke up this morning and felt so much better.  I guess it's true, the first week is the worst.

 

Because I'd been taking my temp so often the readings were quite often very high. Cue panic and phone call to helpline..... Where a very nice, kind man suggested very tactfully and diplomatically  that maybe I wasn't using the thermometer in quite the right way. Who doesnt know how to use a thermometer?? Well, me obviously!!!! Since then, no high readings and no panic. Still mortified though....

 

Off to enjoy my one glass of wine I allow myself and watch BGT!

Member

Re: April 2019 Chemo Starters ?

Oh no Zoe!

 

Sending big hugs to you and wishing you a speedy recovery!

 

To everyone else, hope you are having an excellent weekend, that the nausea is wearing off and weddings etc were awesome! If it's any consolation, my first week of chemo I thought "I can't do this!" but the yucky feeling doesn't last for the whole cycle. In fact when I went back to work this last week, everyone commented on how well I looked! Having said that, I think I got of slightly with side effects (touch wood!) - just nausea, headaches and gastro issues!

Wishing all of you starting your next cycle of chemo again this week good luck and healing vibes!

Sharon