64899members
341919posts
cancel
Showing results forย 
Search instead forย 
Did you mean:ย 

April 2019 Chemo Starters ๐Ÿ’–

Highlighted
Member

Re: April 2019 Chemo Starters ๐Ÿ’–

Morning, 

 

I'll be starting my chemo on April 5th,, PICC line going in on the 4th. 

I've just ordered a couple of headscarves from ebay, and will be coldcapping. 

 

I've got a plan of 3xFEC, then 3 Docetaxol. 

 

No genomic tests, unless I signed up for the optima trial, so just having to put my faith in NHS predict data!

 

Still might need more major surgery, but keeping fingers crossed that next results are positive, as I want my life back! 

 

 

 

Highlighted
Member

Re: April 2019 Chemo Starters ๐Ÿ’–

Hi NikNak5

How did the CT scan go? I have been given details of a wig place and was thinking of going to have a browse before i lose my hair.  My consultant gave me some tablets to take before i have my MRI because i panic when in those things, hopefully they will work.  Let me know how you get on.  Doctor said that he thinks my pain is due to the fact that i am very tight around the shoulders, he listened to my chest and back, tapped it and said he wasn't concerned.  Relief at the time but now i think he is hiding something from me because of my history of anxiety and depression!!

Highlighted
Member

Re: April 2019 Chemo Starters ๐Ÿ’–

Well my treatment will start on 9th April, i will be having chemo then surgery. Can't remember how many they said but breastcare nurse said i will find out on my pretreatmnet visit which is on the 5/4.  I have MRI scan on 4/4, i think this is for measuring lump before treatment starts.  Lots of info given so my head is mixed up.  Sometimes i seem to feel too calm but other times i cry at almost anything.  Anyone else starting chemo soon?

Highlighted
Member

Re: April 2019 Chemo Starters ๐Ÿ’–

Does this forum cover the whole of the UK?  I am in the West Yorkshire area, is there anyone else on the forum from this area? Hopefully we could support each other along with the help of the members on here. x

 

Highlighted
Member

Re: April 2019 Chemo Starters ๐Ÿ’–

Hi Debi2. I have pangs of panic like omg what if itโ€™s spread all over my body, but from speaking to others this is s normal feeling. Iโ€™ve had my bone scan & thatโ€™s clear, going for my CT scan at 12.40 today. Iโ€™m suffering with bad anxiety at the moment but I think thats down to how much information Iโ€™ve been bombarded with, all the blood tests, diagnosis results, hair loss & the unknown side effects of chemo. Iโ€™m scared to say the least. Iโ€™ve just had a call from the wig people & have an appointment for Friday this week. Iโ€™m scared about losing my hair. Iโ€™m sure your pain in the middle of your back is probably down to tension, the mind tricks you into thinking the worst (I know that feeling well). Iโ€™ve just had a cry & im scared about my scan although itโ€™s painless. We are all going through such a tough but many people have told me once your treatment starts youโ€™ll have a idea of whatโ€™s to come & our journey begins. We will get through this but itโ€™s the road in the middle we have to travel down first, stay strong & like you I will try & be brave & positive. We got this! 

Highlighted
Member

Re: April 2019 Chemo Starters ๐Ÿ’–

Thanks NikNak5.  I am a bit of a mess at moment, i have convinced myself i have lung cancer too due to pain in middle of back.  My mind is all over.  Seeing oncologist tomorrow so Breastcare nurse is going to have a word with him about it.  All the ladies on here seem to be coping so well and the support is great but i just feel like a wreck. 

Highlighted
Member

Re: April 2019 Chemo Starters ๐Ÿ’–

Hi Hannah. I start my chemo on 1 April too. Iโ€™m scared but at the same time ready to shrink this mutant inside me. Iโ€™m having Paclitaxel & carboplatin then 2 weeks of Paclitaxel , then the 2 lots etc for 12 weeks in total then 12 weeks of FEC but this will be given 3 weekly. Iโ€™m scared of needles & donโ€™t like veins so bad a PICC line fitted on Monday. Iโ€™d like to be part of the April forum. To learn from others, offer support & know we can beat this x

Highlighted
Member

Re: April 2019 Chemo Starters ๐Ÿ’–

Hi Debi. I found out yesterday I start my chemo on 1 April. Iโ€™ll be having 12 weekly chemo sessions then FEC for 12 weeks given every 3 weeks. Iโ€™m really scared of the chemo but itโ€™s because we donโ€™t know what to expect & how it is going to effect us. We are starting our journey together so I hope we can support each other through this & also everyone else going through it. We will get over this, I feel one step at a time x

Highlighted
Member

Re: April 2019 Chemo Starters ๐Ÿ’–

Hi

I will be starting my chemo sometime in April.  I have been diagnosed with Invasive ductal grade 3 with cells found in 1 lymph node, i am still waiting to hear HER2 tests - it came back borderline positive - so its been sent off for more testing, they said it will probably be positive but they want to make sure. Seeing oncologist Thursday morning. 

I don't know how many session of chemo i will be having, clip is being fitted first on 10th April.  Hope to connect with people to give and recieve support through this journey. 

Highlighted
Member

Re: April 2019 Chemo Starters ๐Ÿ’–

Thank you for the replies! 

 

I hope that we see some more fighters come along to Aprilโ€™s thread.

We are going to beat this!

Highlighted
Member

Re: April 2019 Chemo Starters ๐Ÿ’–

Good morning all, first I want to say Iโ€™m sorry you have found yourself here but also pleased you have found the forum!

I was diagnosed at the end of March last year, age 47. Two tumours 2.7 & 1.7, grade 3 HER2+. I started chemo on 4/04/18, and donโ€™t mind admitting to you I was terrified. I cried so much before and during but I have to say it wasnโ€™t as bad as I built it up to be in my head. 

I know I was very careful and also very lucky but I had few SEโ€™s, most of my SEโ€™s were from the steroids given during Docetaxol. Having said that it wasnโ€™t easy, it can be very isolating. My advice is try and walk everyday, even if thatโ€™s all you do on some days. Also plan afternoon/days out/seeing friends for your good week. Also the cinema in the afternoons is usually pretty empty (no germs!) so a good way to kill a few hours! 

I haf 2xFEC and 4x Docetaxol with herceptin and perjeta. As I had chemo before surgery they were able to tell exactly the affect of the chemo and I am pleased to say I had a complete response. No cancer left in my breast or lymph nodes. 

I wish you all the best and hope it all runs as smoothly as possible for each and everyone of you. Iโ€™m sure you will be a great support for each other and Iโ€™m happy to answer any questions I can xx

Highlighted
Member

Re: April 2019 Chemo Starters ๐Ÿ’–

Isn't it funny how you basically learn a whole new vocabulary! I found that side of it really daunting but after a few appointments and reading on this I think I get it all! I was amazed at how quick things have been happening too. Well except the waiting between results but then bang its one thing after another I can understand why people get overwhelmed by it all!

 

I went to  my local maggies centre last week and found it so helpful a really positive place to tap into and amazing sessions for relaxation, wellbeing and somewhere just to go for a coffee! There are so many amazing charities that I hadn't even heard of before all of this.

 

Got my date confirmed yesterday I start chemo 2nd April my chemo plan has changed slightly with the addition of Pertuzumab and herceptin along with Fec-D. Means some more side affects but also means more power to get rid of the fecker Smiley Happy

 

Hope everyone is doing well today xxx

Highlighted
Member

Re: April 2019 Chemo Starters ๐Ÿ’–

Hi all,

 

I'm Amy - I live in New Malden, Surrey, I'm 46, and I have two boys (13 and 10). I'm in the process of separating (well, trying to) from my husband. So a difficult year! I found out over the weekend that I'll be needing chemo after getting a score of 30 (high) in my Oncotype DX test. Found out while I was on the train up to London for the march on Saturday, and then burst into tears on the tube, where a very kind man comforted me! Anyway, I'm seeing my oncologist today so I'll find out more then. At the moment these drug names mean nothing to me. I have to say I'm terrified. But of course, we have to do whatever we can to get rid of this b*****d. My surgery earlier this month went well, with lymph nodes and margin clear. But because I'm under 50, and the tumour wasn't small (27mm), and was Grade 3, chemo was always going to be likely. 

 

Wishing everyone on this thread all the best for their treatment.

 

Amy

Highlighted
Member

Re: April 2019 Chemo Starters ๐Ÿ’–

I will be having Carboplatin and Docetaxel combination, both given at the same time over 6 cycles.

I have heard fantastic things about these drugs, and also working with herceptin and perjeta they โ€˜work like magicโ€™ so Iโ€™ve heard?!

 

Iโ€™m only 25, so Iโ€™m hoping for the best drugs possible x

Highlighted
Member

Re: April 2019 Chemo Starters ๐Ÿ’–

Hi Everyone

 

I'll also be starting chemo sometime in April. I have my first appointment with the oncologist on Wednesday to start discussing chemo options. I was so hopeful that I'd be able to go straight to radiotherapy but here we are.

Good luck to everyone and hope the side effects are manageable for you all.

D

Highlighted
Member

Re: April 2019 Chemo Starters ๐Ÿ’–

Hiya All

I start my chemo on 3/4. Having 3 sessions of EC then 3 sessions of Docataxel, followed by 3 weeks of Radiotherapy.

goid luck to everyone having treatment x

 

Highlighted
Member

Re: April 2019 Chemo Starters ๐Ÿ’–

Hi ladies

I'm from Glasgow 32 years old with a 9yo daughter. Diagnosed on 28th February.

 

Meeting my oncologist on Monday and have my sentinel lymphnode biopsy surgery on Wednesday I believe chemo to start first week in April and going to be getting Fec-D x 6 sessions.

 

I'm feeling alright about it all at the minute although pretty sure it will hit me once treatment starts.

 

I have found all of these forums so helpful and everyone being so supportive it's been a great way to connect with people when your needing a little virtual hug or some banter Smiley Happy

 

Hope everyone is keeping alright so far xx

Highlighted
Member

Re: April 2019 Chemo Starters ๐Ÿ’–

I'm pretty sure I'll be starting chemo in April. Still to see oncologist but once I've seen her its all systems go apparently.  Had a horrible time with surgery, developed haemotoma which meant emergency op and various complications after that. As if the diagnosis of breast cancer wasn't enough!

 

Know chemo is going to be fairly nasty but speaking to people on this platform who are experiencing the same should be so helpful. Looking forward to meeting new friends, just not in the best of circumstances!

 

Anyway, off to hunt for a more comfortable cushion......!

Highlighted
Community Champion

Re: April 2019 Chemo Starters ๐Ÿ’–

Good Luck with your journey!

I am from April 14 thread and there are still 5 of us that have kept in contact and meet up annually!

The ladies you meet on this forum will be of the greatest support to you because they understand!

Your nearest and dearest will try their very best but cannot fully understand your emotions or how you feel!

Sadly over the coming days more ladies will be joining you and on behalf of the April 14 thread we send our very best wishes for your treatment and recovery! 

 

Highlighted
Member

April 2019 Chemo Starters ๐Ÿ’–

Hello ladies!

I have opened up an April Chemo starters for 2019.

My first chemo is on April 1st and April 2nd (over 2 days for first session).

Iโ€™m having chemo, herceptin and perjeta every 3 weeks.

Please feel free to share your experiences!

x