I just wanted to correct myself when I said about black nail varnish........ I am going to check with the chemo nurses tomorrow that nail varnish can be used alongside Polybalm treatment.
G G xx
I have just looked up Polybalm. It is quite expensive at £39.50 for a pack of 2 tubes, but that is deliberate, as they recommend one for your hands and the other for your feet to avoid cross infection.
I am am going to buy some, as I don't think I would be able to cope with nails going funny as well as so much of the rest of me! The black nail varnish is also recommended by my oncologist too.
Thanks ladies for advice....
Judy, sorry you're still having the nausea. It's so horrid isn't it 😩.
Thanks for the info on the heart scan. I think I'm having one too now.
I saw my NEW oncologist today, and have to say it was like seeing an actual oncologist for the very first time!!
She listened, asked me about S E's, showed me what nails can get like on T by googling it with me!! And changed some of my drugs for last FEC tomorrow, plus so much more!
Asked me about when the bone protection IV had started, and was shocked that I hadn't had any yet!
Asked about 'when' I was having my ECG for starting T, and again was really surprised I hadn't had one, and filled in a request form for one straight away.
I hadn't signed consent for T or herceptin either, or had info sheets, so again she was very surprised, and we did it all today.
So very very pleased with this oncologist. She also said that there had been a trial on a nail cream called polybalm, and recommended it for T. Said it is available online.
I feel I may have turned a corner now, and that I have expert help from an oncologist who wants to be one!!
So tomorrow's chemo looms, but I feel more secure now.
Lots of hugs everyone
8 day's since cycle 2 feeling pretty much yuk. Bad night with heartburn and now my mouth is sore but no ulcers also a slight sore throat.
love to you all keep your chin's up, tomorrow WILL be a better day
I have just had my third and final FEC and as you have said Georgie that red stuff makes me feel sick, even just thinking about it.
I am also feeling really down the last few days. I completely lost it in the chemo unit yesterday, heaving, feeling sick, and in floods of tears. Just felt like I couldn’t continue with it. I don’t know why but even though I am half way, mid Nov seems along way away and I suppose radiotherapy for 4 weeks after that.....I totally agree with your comment about staying positive! It is really hard work staying positive all the time. I try to for my kids(16 and 13) but sometimes I think it is good to have a damm good cry!,
Multitasker- I didn’t cold cap but still have hair, very patchy but like you I shaved it to a 4. It’s too patchy and fine to go without my trusted wig but I am putting it down to the fact I had quite a thick head of hair in the first place. I think whilst a lot do completely loss hair some do keep small amounts. However, I am sure more will fall out before I am finished.
Take care everyone.
Hope chemo goes OK today Caroline. My third EC is due on Friday, I coldcapped for the last 2 but I would say 75% of my hair has fallen out. May still go ahead witht the cold cap. Its definitely helped bc where it didnt fit right the first time (newby mistakes) it has fallen out completely.
Quick ‘heads up’, AVEENO is a third off at waitrose at the moment. Bought several tubes to stock up.
Georgie, I hope everything goes well with the new oncolgist. Your Picc line seems really troublesome but hopefully it will start getting better with different dressings? It sounds such a lot to deal with as well as just surviving the chemo treatment. Lots of hugs.
I’m feeling really f**king miserable with myself today. Woke up early and cant stop thinking about chemo on friday (3rd out of 4 EC, with 4 more taxotere to follow) The treatment just looks never ending. Just the thought of going to the hospital to have that toxic **bleep** pumped in my veins and feel so crap for (albeit only) 4 days and then slowly build up strength to do ot all over again just seems like the most miserable version of groundhog day.
Generally I have been coping so well, seeing friends and family, getting on with life, expert at sick humour jokes, supporting others at a couple of groups. Not sure what has set me off today.
Sorry for the moan, I will have strong words with myself......but if anyone I bump into today says ‘keep positive’ I might just explode! Or maybe it would be kinder to just point them towards Rachel Blands blog, as she says some pertinent words about that throw away comment!😀
Thought I would give an update on my various issues..... 🙄 Trust me to get them!
I went for my pre chemo check up and bloods today, and all is apparently good for Thursday. Whenever I think of the drugs (particularly the red stuff going in (part of FEC) I feel sick. But this will hopefully be my last ever FEC, so onwards I must go, as we all must!
Picc line dressing was also changed today, and the nurse saw how sore I was where the plastic dug into the inside of my elbow, and it was also decided that (as I had thought....) I am allergic to the dressings, and that liquidy square bit around the line actually going in to the vein. So no wonder I've been in a mess with that arm.... sigh.....
as ever, I still blame the first oncologist for not listening to me about a port being by far the better option for me, as I had told her abut all of this in my first appointment. I have the new dressing on today, but where the liquid bit was, I am now very itchy 😩........ so desperately hoping I'm not in trouble with this one too!
I get to meet my replacement oncologist on Wednesday, as I successfully got a transfer. I see from another thread that others too have had to swap to a Dr who actually listens and doesn't mind answering questions!!!
I am told by the head breast care nurse that the 2 lady oncologists are friends outside work, so I hope this isn't going to be awkward. The one I had before was new, and very defensive when I took a breast care nurse in with me last time. I think she must have had the same kind of issue before. Wouldn't surprise me. There are so many things I want to ask my new one, who is apparently lovely.
Has anyone else still got a bit of hair in patches after 2 FEC rounds? I didn't shave mine, but my daughter took it down to a number 4 very short cut with clippers. Because of skin allergies I was scared to shave it, so now I have a very much thinned out covering of white hair left, with some bald areas and then little patches of hair. Like others I have worried that perhaps the treatment isn't working any more..... I expect it is, but sometimes I wonder.
Another question; does anyone know whether we get any scans part way through chemo, to see whether there are any changes? If I were an NHS boss, I think I would say we should. Just for reassurance, but also to catch anything early which might be lurking (my tumour was grade 3 invasive and already in lymph nodes).
All the best to others in the chemo boat with me this week. Judy I so hope your nausea subsides. It's so horrid feeling like that for days isn't it... 🤢
Lots of love to you all. It's so great to have one another isn't it.
Georgie Gee xxxxxxxxx
Hi Lovely Ladies,
I haven’t been on line for a while…..day 11 of my 2nd FEC cycle and just starting to feel close to normal (whatever that is nowadays!) SEs were similar to last cycle, the horrible nausea subsided very slightly earlier but the tiredness definitely worse.
It’s been great catching up on all your posts.
Georgie and Judy – I will also have Herceptin when I start T so interested in discussions on this point. I’m slightly behind the 2 of you, if all goes to plan I will have my 3rd cycle of FEC on 21st Sept and 1st cycle (of 9) of T on 12th Oct.
Georgie – I hope you got your PCC line sorted.
Caroline – welcome to the group!
Wishing everyone a great week, whether you’re having chemo, managing SEs or enjoying some good days!
God luck with number 3. Hope bloods are good to go!
Do you go onto T after this ?
I will be. Not sure how I feel about it as it seems to be the worst one. Only things I have read on dreading google mind you! One of my friends had T and didn’t really notice much difference, so I suppose it willl hit us all differently.
Good luck with the chemo on Tuesday. I’ve got my third round on Monday.
Hope you manage to have a good weekend.
Just thought I’d check in to see how everyone is doing.
I am pleased to say that I have actually had a good week physically although a little emotional yesterday when everywhere I turned where pictures and stories about the Radio 5 presenter Rachel Bland. I know everyone’s cancer is different and our treatment is tailored to us as individuals but hearing about it really hit me hard yesterday, especially at 2am when I couldn’t sleep!
sometimes the emotional side of things is so much harder than the physical journey.
i saw my oncologist yesterday and bloods are all ok, so round 3 of FEC on Monday. Strange, I really don’t want to go through it again but in someways pleased that all is ok to go again! Does that make sense?
I think mentallly it is because I will be half way through the chemo treatment which is massive milestone. I cannot believe I am half way through but in other ways mid Nov when I am due to finish seems a long, long way away.
Hope you are all doing ok
Hi Georgie Gee i had my PICC line in on Monday and the anethestist doc cut that plastic piece off because of that reason.
Sorry that you are having problem's, i have a lot of bruising but it does'nt sound as bad as your's i think because of the inflamation you should get in touch with the hospital sooner rather than later good luck let me know how youget on.. love and hugs xx
Just wondering whether anyone else has noticed any bruise - type pain in the PICC line arm?
I have one of the small plastic parts attached to the line which is digging into the inside of my elbow. It is getting red and inflamed. Then further down towards my wrist, following a defined area of bruised sensation. No redness around this part, just the pain.
I may call the hospital tomorrow. Oh dear. Never wanted this picc in the first place 😩.
Good morning ladies as you can see not a lot of sleep, went to bed did try but gave up after an hour or so. Got up cleaned hob hubby tries his best just having a cuppa and catching up on holby. xx
Good evening ladies, had my 2nd cycle this afternoon, not feeling too bad although wide awake. I braved the shave when i got back a bit of an emotional rollercoaster but i am glad now that it is gone, i knew it was going and to be honest my head was so uncomfortable i just knew the time was right. Inner strength there when we need it we just have to use it. Eh enough of this serious stuff, let's all go to bed with a smile.
nite nite love and hugs
I have my last FEC on 13th September and 1st T on 4th October. So about 3 days between us...
I have a question which I think only people with herceptin to come might be able to answer.....
I'm currently on FEC.
I've been told that the herceptin will start with 1st T cycle.
Ive been looking at herceptin closely (on good sites not Hello magazine articles..... 😬)
There seems to be a theme that from oncologists point of view, nobody gets side effects from Herceptin.
But from patients, there are plenty of side effects, and their oncologist says 'it is from the chemotherapy you're getting S E's'. Or that it's the tamoxifen, etc. But I'm not going to be having any hormone therapy.
I want to ask my oncologist whether I can start my herceptin with the 2nd T cycle rather than the first one (have to have a whole year of herceptin 😩).
On this and other monthly threads, the T part of FEC T can be full of side effects which may be different to FEC, and I want to be able to know what is causing anything that happens. I also don't want T and Herceptin side effects at the same time, both being the first doses..... does that make sense?
Thanks for any thoughts or knowledge of this.
Thanks for the welcome everyone...and I'm definitely making the most of having no side effects so far (insomnia at times now seems to be a side effect - hence sitting at the computer at 4.28am - but that's not a big worry in the grand scheme of things) x
Can I ask if any one of you has a central line fitted & if so what their experiences of this are.
I had mine fitted 2 weeks ago and am already having couple issues with it.
It’s feeling very achy tonight & I have an ache in my shoulder above where the end comes out. It has bled ever so slightly. I’ve checked my temp & it’s ok. Just wondering if this is normal.
thanks in advance for any advise. Jacqui x
Hi Lovely Ladies,
Sue – thank you for your best wishes for my second chemo session (yesterday). Already feeling nauseas despite change to anti sickness regime, last time the nausea started to kick in in a big way on Sunday (tomorrow) so hoping that doesn’t happen again, time will tell…whatever happens I know it’s only temporary!
PrettiestEyes – welcome to the gang! And no cock ups :-). We are all so different when it comes to SEs so make the most of feeling well! I am certainly appreciating the good days more! Agree with your comment about looking at the world through a different lense and appreciating the little things.
Multitasker – I was also advised to avoid probiotics. Aveeno sounds great, I’m also using bio-oil on my scars.
LalLaLand - I was prescribed Omeprazol for indigestion related SEs. The first sign of hair loss for me was a tingling sensation, next day head started to feel sore and strands of hair falling out every time I put my fingers through my hair (I had shoulder length hair) so took decision at that point to shave it of and that take away the soreness for me, so now I have a No.2 with a few bald patches - my other half has a No.1 cut too so I joke that I never thought I would see the day that he had more hair than me!!:-). Got lots of scarves but also getting on well with my wig when I go out.
For everyone feeling below par (physically and/or emotionally), which is probably all of us to some degree (!) stay strong, we can do this! Sending you all virtual hugs.
Look after yourselves…
Due to have my 2nd chemo on tuesday. my hair hurt's does this make sense any tip's welcolm. also acid reflux at night sounding like a right whinger. Have a good weekend ladies enjoy the nice weather. love and hugs xx
Thanks for the heads up about pro-biotics, Lalaland. I will stop the kefir and ask my doctor when I see him in a couple of weeks. Definitely dont want to do the wrong thing. Some of the SEs have been so horrible I grasp any little twig I think might make me feel better and I should remember I do have not medical background.
Hi there Prettiesteyes. Some people dont get many SEs, my brother and SIL were fine through chemo, only getting tired towards the very end. It seems random how it affects different people. They were polar opposites in terms of fitness, health, diet etc. Another one of lifes mysteries! Fingers crossed your hair holds on fo the wedding
Wishing you all a great weekend.
Hello all, I'm new to this forum (and in fact haven't used a forum in years so I'll probably cock things up - sorry),
I was diagnosed with invasive ductal cancer in June, had a lumpectomy just over six weeks ago (two small grade 2, stage 2), plus removal of lymph nodes (cancer in three out of 15) and I had the first of 6 chemo sessions ten days ago.
I'm sorry to read that so many are suffering side effects and my question is, is it normal not to have any negative side effects after the first chemo? I was fully expecting to feel sick, tired and a whole load of other things but I haven't (and of course I feel so grateful to have got one under my belt and to feel so well. I know things will get worse). I know my hair will go (currently I'm hoping it might last one more week, as I have a wedding to go to, and then I plan to chop it off and I have lots of hats and scarves at the ready).
I was able to go out for my first post-op run on Wednesday and I've been working as normal (I have a sedentary job) . If anything, I am feeling a bit hyper happy - looking around the world with fresh eyes and thinking how beautiful the sunshine is, how lucky I am to have such supportive friends and family etc. Again, is this normal???
Looking forward to getting to know some of you along the journey.
Hi just reading about kefir my oncologist told me to stop taking pro biotics as chemo kill's off good bacteria and taking pro bioctics make's the chemo work twice as hard. don't know if this is so just do as i am told. 2nd chemo next tuesday only 4 left. Anyway have a good weekend ladies love and hugs xx
One week on from 2nd EC. I think I feel better and more positive than same time last round. Like Sunflower really looking forward to a more normal week ahead and maybe knowing this is on the horizon helps keep me more positive.
I also find Aveeno really good for dry skin. I also use Palmer cocoa body oil a couple of times a week. It smells a bit of chocolate, so cant face using it the days immediatley after chemo but love it other weeks. Its oil, obviously, so takes a while to sink in but as it has Vitamin E in it, I like to think it helps my boob scars too.
My tummy has been very unpredictable. Crampy sometimes, tho could be period pain, loose sometimes, constipated others. I’ve started drinking Kefir whichseems to help me. There was a telly program a few weeks back talking about gut health. It seemed to make sense to me. I think the chemo kills alot of the healthy gut bacteria and I like to think this helps restore some balance ‘down there’. I was surprised how much I liked the taste and the feeling of it in my stomach.
Lots of hugs to everyone and wishing all a positive day
Hi Lovely Ladies,
Thanks for the top tips for dry skin……….and welcome to LaLa and Val!
I’m having my 2nd of 3 cycles of FEC today so if last time is anything to go by I will brace myself for a crappy week……but safe in the knowledge that it is only temporary and I have better days to look forward to!
Look after yourselves…