Hi Jude, that's quite understandable re hair! I used the cold cap for FEC, but it had thinned too much when I started on T. I didn't think I lost all my hair, but my daughter's said that I did! Maybe I was a bit delluded! I think YD felt sorry for me, she said I might have had about 3 strands left!
My hair has grown back really well! I didn't put anything on it to help it's growth and it's so thick I've had to have it thinned at the top twice! I can't say I like it much cause it's got a curl and shorter than I'm used to, but looking at it I don't think anyone would guess that this time last year I didn't have any! (apart from 3 strands! ) Hope your's has started to grow back well.
My eyebrows however seem to have given up half way across!
I'm ok thanks, but have found the emotional side quite hard at times. Probably not helped by the fact that although I finished rads in June, I wasn't told I was NED until just before Christmas. I'd had (still can't get used to saying that!) a few mm's of cancer in my internal mammary chain and both the chemo and rads oncs were confident that the rads would zap it, but I couldn't have a CT too soon afterwards to check, so it's been hanging over me. I've been having some counselling through Macmillan and some massages through a local charity and they're helping. How are you? x
Hi Jude, Sue, Jo and Cat, I'm from the Oct '17 thread and also on bishosphonates. (Zoldronic Acid) I have a 6 monthly infusion. I'm also post menopause. I had cancer in 3 lymph nodes and TN. I was told by my onc that it helps to stop bc spreading into the bones, but recent studies had also shown that it also helps to prevent a recurrance xx
So it’s hormone treatment for you, will that put you into the menopause or have you already had that pleasure? If you have been through it, do you go through it again?
Well done for going with the trial, hopefully you’ll get the product rather than the placebo especially if it’s already had good results with secondary bc
Bisphosphanates prevent loss of bone density, I think breast cancer & the treatment of, can cause bone loss. Why some people are put on it & not others I’m not sure - I’m 56 & post menopause so whether that has any relation to it. My cancer was HER2+ & hadn’t spread to my lymph. One of the oncologists has said bisphosphonates can also help mop up any stray cancer cells in the bones but mine hadn’t spread...
To be honest I’ll take anything they suggest if it may help
hope you are ok
I’m on Letrozole (hormone tablet) as mine was hormone positive and I’m also on biosulphates but I’m on a 6monthly infusion. I have to go to the chemo unit to have it administered. Interesting how you are on a daily tablet and I’m a 6monthly infusion.
I was told the biosulphate was because the Letrozole can cause osteoporosis and it is to counteract that SE and also strengthen the bones for any future invasion! Also on Calcium tablets to help the formation of calcium in bones. I will also be on biosulphates for 3years.
Ive also just signed up for a trial so I might be on another drug.....or maybe it, but whatever I will get additional monitoring so quite pleased about that. The trial is for primary hormone positive cancers with 4-9 lymph nodes involved.
It’s using a drug that is already been used for advanced cases of bc and can slow down the spread, they are seeing whether it prevents recurrence in primary cases.
I have been using the Nioxin products so whether they have helped...but it is thickening up more than length.
I spoke to my hairdresser on Friday & she will use a dye suited to white/grey hair, she is confident it will take ok
It’s been a tough gig so I think we are entitled to feel a bit emotional at the end of radiotherapy - what additional treatment / medication are you on now?
I’ve got 3 weekly herceptin injections until September & have just started a daily bisphosphonate tablet which I need to take for 3 years
Take care all
Sunflower18, I was really emotional when I finished rads too. I only made it as far as the reception desk before I burst into tears! You're right, we've been on a very big rollercoaster and I'm not keen on them! xx
Wow Jude, I can’t believe you are getting your hair coloured in a couple of weeks.....my hair is barely visible, not much at all. It is literally just starting to show and very fine.
I finished chemo on 12th Nov but I think I will be getting value for money with my wig!,
I finished radiotherapy today....I’ve thought I would be so happy to finish but I was really emotional and got very tearful when I got home.
I suppose though this whole journey has been a rollercoaster xx
My last chemo was 6 weeks ago and this week I’ve lost the last few remaining top lashes. 🙁 bottom ones have long gone!! I’m willing them to grow back quickly but no idea how long it will take! I had my eyebrows microbladed before chemo and I’m thankful I did as not much eyebrow hair remains either 🙁.... on a plus note, I last epilated my legs around my 1st chemo (16/8) and haven’t seen a hair since! Now that I don’t mind 😂.
Very interested to hear how everyone is finding radiotherapy. I have an appointment with my oncologist tomorrow to discuss it.
Had an appointment yesterday with surgeon and was told they found nothing, no cancer or DCIS, with my last surgery (27/12) so been signed off by him until my next mammogram which he said will be December (a year after last surgery date)!
Take me care all.
I suffered with a sore mouth & mouth ulcers with first chemo, I told the nurses for the second chemo & they prescribed me difflam which is a mouthwash - it did help although it tastes shocking!
Good luck tomorrow
I'm from Dec 2018 thread so hope you don't mind me gatecrashing. Just wondered with all of your experience if anyone used ice chips during chemo sessions to prevent mucositis. I had it really bad after my first one and ended up hospitalised with neutropenic sepsis. Have 2nd FEC tomorrow and wondered if I can take any preventative steps.
Thanks in advance for your wisdom. Sending love xx
Hi Sue & Jo
I’ve been the same during diagnosis & treatment - positive, optimistic & basically just got on with it.
I’m now 2 weeks on from finishing radiotherapy & have had my checkup with my oncologist today - all ok - next checkup in 3 months. I’ve also got my checkup with the surgeon at the end of the month when I’ll be advised of the date of my first mammogram post treatment.
I’ve not had a downer as yet but am expecting one at some point...although I have had odd thoughts of recurrence
Have to say though that the chemo is just like a bad dream now, as if it happened to someone else!
Im hoping I’m on the final hurdle - 3 more days of my radiotherapy booster week.
It is going to seem weird next week- no appts or hospital visits! Strange as well- finish the treatment and then see you again in a month at a check up.....eek scary stuff. I remember reading that some people find the end of treatment a hard thing to deal with- in some ways I will be relieved and really pleased but in other ways.....it is a daunting prospect....or is that just me!
Have you finished your treatment yet Sue x
I have booked a summer holiday to France and managed to get insurance with a company called Insurance Choice. I thought it was a reasonable price and they cover my husband for his diabetes as well!
I got the name from the MacMillan website.
Please see below for a photo of the list of insurers I got from the cancer support center at my hospital. This is based on feedback that has been provided over the years from other patients. If you can't read the attachment send me a private message with an email address and I'll send it to you that way.
Hi Ladies - hope you are all ok
Cat - I’ve been using Nioxin for the last 4 weeks & my hair is coming back quite well - whether it’s from nioxin or it would be ok anyway I don’t know but I’m going to keep using it.
Unfortunately it’s mainly white but I had a patch test at the hairdressers so I’m going to have it coloured at the end of jan
Would appreciate any recommendations for holiday insurance
Hi Tarnia, I'm from the Oct '17 thread and finished chemo the middle of March'18. When I saw my onc at the end of July she said it would be ok to dye my hair in Sept, so that was 6mths after the end of chemo. Don't know if you could dye it earlier if it was chemical free. Might be worth asking on some other threads if anyone knows x
Good to hear you’ve almost finished radiotherapy without any major Se’s!
I had more surgery last week, but doing well no problems so far. Got an appointment next week to discuss my radiotherapy! Can see the light at the end of the tunnel!
My eyes have finally stopped running (5 weeks post chemo) and my taste buds are slowly returning to normal.
Hair isn’t looking too bad either although very grey 😏! Wondering how long I should leave it before dying it! I didn’t lose it all as cold capped just went very thin so had it cut really short.
Hope everyone else is doing well too. Take care all.
Happy New Year to you all. I hope everyone is doing ok and enjoyed the festivities.
I’ve finished my 3week radio sessions and just have the booster week to get through-how is everyone else getting on.
So far my SEs have been pretty good, just a bit of tenderness but nothing really to complain about.