Hope you are all ok and enjoying the summer. Congrats to all of you who have had clear mammograms - it must be such a relief.
Today is the anniversary of my first chemo treatment and whilst on one hand it seems like just yesterday on the other it seems like a lifetime ago.
Myself and my other half have recently come back from a few weeks in France where I surprised myself by becoming a total action girl. I walked up and down mountains, forded streams, canoed down rivers and cycled the length and breadth of the Île de Ré ( admittedly not a huge achievement as it is only tiny but it sounds impressive 🤣).
My hair is now well and truly on its way to becoming a proper hairstyle. I've had it cut and coloured since getting back off holiday. It grew loads whilst I was away and it's even curlier than before. My hairdresser has very patiently shown me techniques for finger drying it straight and I have to say I'm loving my new look. I'm getting loads of compliments and I'm told I look younger. I'd like a bit more length but I'm considering keeping my new look.
My partner of 12 years proposed whilst we were away so we are off to Manchester this weekend to a place where you can custom design rings so I'm very excited.
So I hope you all have a lovely weekend.
Love and hugs, Sue xx
Thanks Tarnia, you have a wonderful time in Tenerife too! In the meantime we can all enjoy the sunshine here! ☀️☀️☀️
Brilliant news that your mammogram was all good 👍 and what better way to celebrate than a week away. Have a fantastic time. 😎☀️🍹
Thanks Jude. No phone call today so in the clear...yeayy! 😀 So lovely to have holidays to look forward to isn’t it 😎
Good to hear you are doing well
Fingers crossed for your mammogram results, it is a bit unsettling waiting for the phone / letter.
Madeira is lovely, we went a couple of years ago & really enjoyed it - Majorca is always fun with the girls!
I've got Santorini in September, can’t wait!
Jude & Tarnia, well done for raising so much money! 👍
Glad you had a lovely time away Jude, we have family in that neck of the woods, love it up there.
My anniversary was last month and it does bring everything flooding back doesn’t it, what a year we’ve all been through, but here we are, out the other side and doing well! 🤗
I had my first mammogram 9 days ago and they said they would phone within 10 days if I was to be called back in (no phone calls so far!) otherwise I will get a letter in 4 weeks.
My hair is growing slowly but surely but I’m considering keeping it short for a while....will see. Jude thick hair is a nice problem to have! 😀
Tarnia, It’s so nice to have a holiday to look forward to. I’m spoiling myself this year, I’m off to Madeira with OH in a week and then back for a few weeks and off to Majorca with some girlfriends 🙊😎
Take care all 😘
Well done on raising the money / that’s a fabulous amount!
The annual memories are a bit tough but we’ve all done really well so should take some comfort from that
My hair is still shocking, not much length but really thick - I had to have it thinned out yesterday! I do miss my bob...
Sounds like a perfectly few days!
Well done on raising £119 that’s fantastic 👍🏽
Me and my daughter did race for life a couple of Weeks ago and between us we raised nearly £500 was such a lovely day too.
Was a year ago yesterday I had my formal cancer diagnosis which brought back not so very nice memories 😩
I’m looking forward to our next holiday in 2 weeks time to Tenerife a bit of sun and relaxation just what’s needed.
How’s everyone’s hair doing? Mine is growing thick and fast but still very very curly 🤨
Hope you are all ok
We had a few days in Glasgow & Edinburgh last week & I really enjoyed it, managed to pace myself well with lots of stops for food & drinks!
Did an afternoon tea today for a few friends which went well & made £119 for breast cancer so I’m really pleased
Thanks Jo & Sue 😀
Hopefully the sun will work miracles Sue!
I’ve had my hair coloured again today & gone for lilac tone to it! x
Excellent news Jude . Fingers crossed for the rest of us when our time comes.
My hair is also really curly around the forehead hairline - my poor excuse of a fringe curls under regardless of what I do and the bit immediately behind it curls backwards so I'm left with a really weird looking gap. I'm hoping the heat and sunshine I'll be exposed to (hopefully)on my holiday in July will encourage it to grow 6inches in 2 weeks 🤣🤣
Looking good Tarnia and Jude! Tarnia, your hair seems to have grown loads and Jude yours is growing too! Mine is also very similar to yours Jude, I just haven’t go quite as much as you at the back yet. I’m having it tinted for the third time next week...hoping to go even blonder 😀
I hope everyone enjoys the gorgeous sunshine over the next few days....it’s going to be a scorcher of a weekend 😎
Take care, Cat xxx
Jo - mine is the same, there’s hardly any length but it is getting thicker by the week, especially on top!
I can’t wait for it to get some length which will hopefully pull the curl out🤞 x
Liking the stories about hair!
Jude, your hair is almost identical to mine......well if you changed the colour to dark brown 😀 but the style and curl is exactly the same.
Tarnia, yours looks really long and thick, well done.
I must add it i was really worried that mine wouldn’t come back, it took ages to come through and even now it doesn’t seem to get any longer, just thicker and more out of control. It’s still really soft though but darker than before and definitely curlier than before!
Take care all.
Jude your hair looks great to me!! Coming along nicely and looks like it’s going to be as curly as mine! I guess we should be grateful our hair is growing, so many people have trouble after chemo 😢 xx
Just been reading all your posts about hair!
Mine is still very poodley at the back but not so much on top and I don’t know if it’s wishful thinking but I’m sure it’s coming through straight again on top but still very curly on the ends! This weather does me no favours either I’m just one big frizz at the moment 😂😂. I bought some travel straighteners which don’t get too hot and are just the right size for shorter hair. Only cost 14.99 from Argos too. I currently don’t know what I’d do without them although I leave the back curly or it looks like I’ve had an old ladies shampoo and set 🙄 I also use Tresemme anti frizz and heat spray by the bucket load!!
Love Tarnia xx
Cat - I’m always scared that I’ll look like an older lady with a bubble perm, so I keep trying to use a side parting & sweep it over a little but it’s not a good look x 😂
Same, my hairline at the front is the curliest part too.
Some times I go for the softer 'au naturale' look and others a straightened more spiky look.
The mini ghds sound a brill idea - think I’ll have to invest in some. My hairline in particular is very tight curls, so if I can straighten that area it would be great
just back from hols and catching up on your news.
Caz, fabulous news about your clear mammogram results, what a great feeling that must be!
Jo, I was the same as you, had my infusion in chemo unit and felt very emotional, had to fight back the tears!
Sue, well done on raising all that money for Cancer research and for ditching the wig!
Tarnia, not sure what the weather was like but hope you had a lovely time in Bude.
Sue and Jude, I may try the V05 putty too. I think it’s trial and error to see what works best for your hair type/length. My hair is very curly, although it was curly before so no real surprise there 😂, but much easier to manage long curly hair than short curly hair it turns out! 😆 I’m using a wax on my hair, very tacky on the hands but feels okay in hair. A friend recommended it, it’s called dfi d.struct and brought it off Amazon. Also brought some mini ghd’s (designed for short hair) as hair is just about long enough to use them but will limit use as don’t want to ruin the condition of my hair. Any other top tips on managing short curly hair welcomed!
Take care all! Cat 😘
I guess it's tacky to the touch in the container but you only need use a very small amount. My hairdresser said to dab it on ur finger and then rub it between your palms before running it through hair. I've found it really helps to add definition to the style and whilst i can tell there's something on my hair I wouldn't say it leaves it tacky but I guess it probably one of those things you could easily over use. I tend to go for a very small amount and then add a bit more if I need to. It's wasn't expensive (I got mine from Superdrug) so if you don't like it you won't have wasted much.
Good luck xx
Just catching up on the responses:
The bisphosphonate infusion sounds worse than the tablets for both side effects & finding suitable veins to use. I’ve got a permanant bruise along a vein on my hand from the cannula from chemo.
Hope the blood test result is ok Tarnia
Think we all have a wobble now & again, I find mine tend to relate to someone else’s problem/loss rather than my own, I think it has to come out somehow & it can only help longterm
Well done on ditching the wig Sue, I’ve tried a lot of hair products but find the ones that work the best are a bit tacky - is the VO5 rework putty tacky?
well done on completing Race for Life and raising £800!! chocolates and wine are well deserved 👏🏼👏🏼
My hair is still very curly although I do think it’s growing straighter from the roots now and I too have looked like one big frizz ball this week with all the wet weather 🙄 I never would have thought curly short hair would be so hard to manage 😂
Hope everyone is ok.
I've done the Race for Life today though due to an Achilles injury it was more of a hobble and a walk than a run but I've raised almost £800 for cancer research and that's what it's all about!!!
I've finally ditched the wig and I'm now sporting blond pixie cut - a little bit curlier than I'd like but drying tips from my hairdresser and some VO5 Rework Putty usually keeps it under control but today's drizzle left me looking like a through back to the 80s 😬.
I'm now treating myself to a glass of wine and a few guylian chocolates.
Take care all
I had to have a blood test yesterday and I’ve never had trouble before but they couldn’t get any blood out my veins....half an hour later left with a very bruised arm 🙄 .
Saw my oncologist on Friday, he examined me and said everything felt as it should which was good to hear. Didn’t seem to know why my muscles/ joints hurt but said if it’s a side effect of chemo it should get better with time and didn’t know why I’m constantly thirsty which is why he sent me for a blood test!
I have a wobble quite often Jo I suppose it’s to be expected after what we’ve been through! I try to reassure myself by reminding myself I’ve done everything I can and today everything is good!
Take care ladies and please pray for a little bit of sunshine as I’m off to Bude on Thursday - taking the dog on her holiday for a few days.
Glad everyone is doing ok and enjoying life.
Im having biosulphates infusions as well- every 6 months for at least 3 years. I had my second dose last week and i had to go back to the chemo u it to have the infusion, which bought the memories flooding back......the nurses struggled to find a vein though as since my chemo my veins have given up! Also as I had a full node clearance I can only use the arm that I had chemo cannula. 3 attempts and a very bruised hand later, I had the infusion.
Yes flu like symptom and achy joints.
Having a wobbly day today, not sure why, just do sometimes.
Doing ok though, started the Couch to 5k the other week- I’m determined to get a base level of fitness back. Week 4 starts tomorrow.
Take care all.
I did feel ropey with flu like symptoms for 24 hours after infusion but fine after that. And I do get some joint pains but not sure if it’s bisophonates or tamoxifen 😂
Good luck for next Sunday. I don’t think it matters if you walk or jog, it’s the fact you’re doing it that counts.
Take care all 😘
I was told that if you have the infusions you don’t have them for as long but they are a stronger dose. I don’t get any side effects other than occasional heartburn but I think you can get joint pain / flu like symptoms with the infusion?
My race for life is a week on Sunday, not really done enough training so it will be a mixture of jogging & walking!
Have a fab holiday x
Thanks, I’m sure it will!
I’m 51 and post menopause and yes I’m having bisophonates by infusion not tablet.
I think you and some others are doing a race for life this month so good luck with that!
Still miserable here too. I’m off to Majorca next week so looking forward to seeing the sun again! ☀️😎
Whilst not swollen my boob is full of lumps & bumps which I think is scar tissue (I do bruise spectacularly) so I’m expecting the mammogram to be a bit more painful than normal. Good luck with yours, fingers crossed
I’m on bisphosphonates by daily tablet - are you having the infusion or tablet? I’m 57 & post menopause, not sure how much difference that makes ..
Still raining here!
Lovely to hear your updates.
I also just received an invite for a mammogram, in July, so a few weeks to wait yet. My breast is quite swollen so I suspect it might hurt a bit but I can live with that 😀
Jude and Caz, good luck with your results, I hope the wait isn’t too awful. Tarnia, sorryvthat yiu have to wait such a long time for you.
Sue, I attended the Moving Forward course recently. Some aspects more beneficial than others but overall I thought it was worthwhile. The group was a lovely open group which I’m sure made a big difference. Jude you’re right about it being emotional, there were a few ladies who got a bit teary when they were talking about their experiences....understandably so.
Jude and Sue, having your hair coloured certainly makes a difference. I’ve had mine coloured twice now and planning to go as blonde as I possibly can using tint 😀. I know what you mean about the curliness Jude, I’m not sure what I’d do without my hair wax!
Jude interesting that you are having bisophanates for another 4.5 years. I’m also on Herceptin until October and was told that I would be on bisophanates for 2 years.
Take care everyone. Fingers crossed that the sunshine comes out again soon! 😎
Take care 😘
Thanks, I think you have told me that before - chemo brain & all that!
Triple negative - that’s a tough one but let’s keep everything crossed for you to get through to the 5 year mark
Take care x
No I’m not taking anything! I was triple negative so there is no targeted treatment! Just got to hope and pray it doesn’t return. After 5 years (if I get to 5 years) the risk of triple negative returning is very low! 🤨
That’s a long wait for you. Are you still having any ongoing treatment? (Apologies if you’ve told me this before). I’m on herceptin until October & bisphosphonates for another 4.5 years!
I'm not as much nervous as almost expecting the worst - which is a bit strange as I’m not a negative person at all
I’m sure the colour will take well 8 you’ll feel loads better about your hair when you are back to your normal colour. I’ve gone blonder now & it almost has a pink tone to it which is quite nice. The curliness is getting on my nerves now, as it is getting thicker & thicker but not much in the length. I look like a badly trimmed poodle!
I’ve heard a few say that the moving forward course can be a bit emotional but that’s not always a bad thing - I’ve yet to cry but do feel more emotional over things on the tv etc. Sounds like you had a good shop, even if not by choice
Hope you cope with the waiting, like Sue suggests plan in some treats along the way - good luck & fingers crossed
Hi there- I had my mammogram on Thursday and they calmly said you should get a letter with your results in the post in 2/3 weeks but if you haven't has it by the time you see your surgeon on 5th July ask him because it will be on the computer!!! This is sure going to be a long wait!!! 🤞 for me and everyone else .
I can understand your nervousness and I know I'll be the same when mine finally comes around but try to stay positive and do nice things to take your mind off it. I've not got mine until January as I've been told it will be a year from my radiotherapy finishing!
In other news my hairdresser has agreed to colour my hair - I had a patch test yesterday and it's all been ok so I'm going to be blonded next week and I just can't wait. I'm grey and curly at the moment so looking forward too no longer being in competition with my nearly 80yr old Mum.
I've also been on my first Moving Forward session today. Quite a mixed group with lots of different experiences - I was one of the youngest and I meet someone I knew at school so had a mini reunion. To be honest I found today a little bit happy clappy but it sounds as though the next few will be more practical and certainly next week is about breast health and what to look for going forward which I'm hoping will be really useful.
I then got trapped in Meadowhall shopping centre after I just called in to get something from M and S as traffic was at a standstill as M1 had seen shut - I ended up having lunch there, doing some pre holiday shopping then coffee and cakes. I had a manicure and then as traffic was still gridlocked i got the tram into Sheffield and met my other half and we went for dinner. We're just back home after retrieving my car and doing the aforementioned shopping in M&S - it's been a long day........
Hope everyone is ok and I hope ur weather is better than what we have here in Sheffield - it's like Nov outside.