Hello ladies, just popped it check your progress. Sorry to hear some of you are suffering with sickness, if is horrible. I found eating little and often helped, mostly salty things and try to drink lots, fizzy water or tonic water helped me. It doss get better after a few days though and you get used to it. Take the meds. I can fully understand the thought of why are we doing this when we felt so well, I still feel like that, j have 3 more T to go and it does seem like a long haul but we can and will get through it all. Also if you can and feel up to it go out for a walk ,(remember your factor 50) even just a short walk makes you feel better and helps with the chemo fuzzy brain. I also find that day 6 and 7 when I come off the steroids is a teary one, .lot of ladies feel the same, you just have to let it pass and you bounce back after, just be prepared. Take care all Kip. Xx
Yes, we are all aboard the ship aren't we, with travel sickness pills too!! Might try the band things tomorrow, if I get up and feel ok to drive to the shops.... it is comforting though to have one another isn't it. I guess the next thing tonight is going to try to sleep... only 17 and a half weeks to go........ night night all, thanks for listening
G G xx
Have to laugh at my post on friday. Literally an hour later massive nausea and cramps set it. I felt like my body was possessed. It was brutal. Took all the meds I could. I felt my body was just cramped all over with nausea a layer on the top.
Thankfully about 2am I could feel it ease off a bit. Come a bit later I could take my first steroids and more anti nausea pills and it all seemed a little bit under control.
Yesterday I was pretty miserable. I was totally questioning what I was doing Georgie Gee too. Before this started I was the fittest and felt the best I had in years and now Im consenting to basically putting poison in my veins.
Hopefully I’m not jinxing myself, but feel an improvement again today - its all realtive bc anything is better than friday night
Other good news is changed the portacath dressings for first time (told to leave for a couple of days) and the wounds are SO much better than Friday (only now I realise how worried Id been about how they were healing, how theyd look etc) so huge weight off mind.
Guess we each have to learn how our bodies rythms work with the chemo drugs. Pretty scared to do it again but hope to talk to nursing team and try some changes to meds and timings. Quite a few posts on the forum about fasting and nausea, though Im not sure Im cut out for that.
Streetfighter, hope tomorrow goes OK for you, sounds like you have already had a long journey.
Has anyone thought of giving up the chemo?...... I have to be honest I'm wondering, if the surgeon says "all the cancer has gone", and then gives us this trauma (and I've only just started....) then why?....
I'm coming up for air after my 1st FEC T on Thursday.
Feel like I have been injected with a time bomb which could go off at any time with side effects, multiple times. Have had the go back for 2nd type of stronger nausea meds as cyclizine didn't work on Friday. Have had last of the stronger ones just now, and steroids have now finished. So I'm wondering what part of the time bomb will go off first..... it's scary isn't it?
I start tomorrow on a trial of Cabazitaxel. Had primary 6 years ago but now have secondaries in lung, bones and lung. Had FEC T for 18 weeks last time followed by 6 years of anastrozole but became resistant to it, big shock with diagnosis. But we keep smiling and taking the medication. Good luck to all other August starters X
Hi very good tip to take steroids morning and lunch time as it helps with sleeping. My nurse writes on the various boxes when to take them as I always get muddled.
Had my first dose of EC this morning. I was real worried about the Portacath but nurses said it was fine to use. Georgie Gee just be prepared for some bruising. The procedure doesnt hurt but a bit disconcerting 😬. the oncologist came round but said once equipment is in, its good to go. He warned that chemo slows down healing so be super careful keeping it clean etc.
Used the cold cap, no lie, its uncomforatble at first - think ice cream headache but after 20 mins I was Ok. Its bulky and gets in the way a bit. Helped that today was so super hot. Just have to wait and see if it helps at all.
Main SE at the mo is extremely light headed. Almost felt like I was coming round from anaesthetic earlier, which Nurse said could also be to do with the cold cap. Still feeling woozy at home now.
Jude, I was told not to take steroids in the evening bc they would stop me sleeping. Maybe something to ask next time?
Sorry to hear you’re feeling sick AMB67 - hopefully they can swop the drugs a bit. It seems everyone is using something different.
Picking my wig up on wednesday, Sunflower. Hope I’m feeling ok.
Good to hear you are doing ok Katluan, and hope your tests come back OK Cat67
thanks for reply.
yes was thinking the same re take home meds. Think they try you on cheaper ones first which is understandable. Will ring them Monday if no better.
Did you feel better or worse when the 3 days of steroids stopped?
Hope you are getting on ok
2 weeks out of 3 feeling Okish would be great!!
All the best for last 3 sessions
This is my first post but have found the forum really useful in the build up to having treatment. So thank you!
I had lumpectomy and node biopsy a month ago, found to be invasive ductal grade 3 negative to all hormones but no spread to lymph nodes.
I had my first FEC of x6 FEC-T on 1st August and so far have survived!! Then it's radiotherapy (80mile round trip everyday for 4 weeks)
The treatment itself went fine, was in the department for 3 hours, was offered lunch whilst there. The other patients seemed quite happy too. I took my 21year old daughter for company which was a good idea. I had decided beforehand not to try the cold cap as my hair is very short and I have just prepared myself for losing it now.
I have bought some nice head wear in readiness and have an appointment to see the hairdresser at the chemo unit next time I go to look at wigs, get some advice etc.
The afternoon I got home The nausea kicked in and I took the metachlorpromide regularly that day. Was awake by 2am pounding headache and nausea so not much sleep had.
Yesterday started the steroids 2mg x3 times a day and have got to say helped the nausea. Started feeling flushed in the face late afternoon and it is still the same this morning. Don't feel unwell though.
Was awake again at 3am last night but did eventually get back to sleep.
Appetite not been too good for a few days(no bad thing as need it to come off, not gain) just drinking lots of fluids to flush toxins through. Pee is less pink today!! Need to eat when take steroid so things like rice cake, banana, yogurt was managed yesterday.
I am lucky to have lots of friends and family support around me and for that I am grateful.
good luck to all you ladies out there going through it as well.
Be brave, strong and take what the hell they throw at us next!!!
My first post..
I had a lumpectomy in July and my treatment plan consists of FEC and T and Herceptin, among other things. I have my chemo assessment on Monday with a view to first chemo session on 10th August (as long as all tests can be completed in time).
Really helpful to read all your updates....sets the scene for what's ahead!
Loving the cocktail shaker idea...if only! :-)
Hi ktk, thanks for replying
They want to do a port cath because I have very poor veins in my right hand and they cannot use my left arm because of the removal of all lymph nodes being risk of lymphedema.
Have another medical condition needing frequent cannula insertions so they are very poor. It took 3 nurses 3 attempts today.
Waiting list is 3 weeks but they have only just put me on it. I asked the oncologist weeks ago and she said to wait to see nurses. I'm praying for a cancellation or something as I need to heal before next treatment apparently... multitasker tell me how it goes after your port and chemo close together... best wishes
Hi SB fabulous about the cocktail shaker... Maybe wishful thinking? You should have taken it along to chemo and got it out ... Would have been funny to see the nurses face!
You all seem to be getting along well, keepnup the drinking they thought maybe not the cocktails!
yes i have also been to the wig shop in Ware. Really nice and the wigs look pretty good. I’ve reserved one and they are getting me another one form the warehouse as they only had the style in blonde.....which being a brunette looked rather silly on me! Hope fully I can pop back next week to pick it up as I am sure my hair will be falling out soon. First chemo on Monday just gone, feeling ok today but just a bit tired.
Good luck tomorrow
Thanks for your chemo bag ideas. Hopefully I am all set for tomorrow.
Had a great day yesterday. I went to an amazing wig shop in Ware with a lovely consultant called Amanda. The experience could not be more different to the shop I went to in London. Thank goodness I tried again. Thats not to say it might prove too much faff in reality but I’ve now orderd one that I am very happy with - in the other shop I just felt I looked my father in drag!!
Today though I feel like I’ve been hit by a truck. I had a portacath inserted this morning and my chest looks like I’ve been punched by a gorilla. Swollen and huge bruising. I cant believe they said I can have this a day before chemo! I don’t care about the discomfort, I’m more worried that they may delay chemo and want it to heal a bit first. It looks so raw. My husband lives in Switzerland and has flown over for 3 nights. He wont be able to be here next week. I guess I just have to wait until the nurse and doctor look at it tomorrow. Despite reading all the literature I didnt expect to feel and look like this.
Has anyone else got a portacath? Did it look horrible after insertion? Did it take long to heal?
Fingers crossed for tomorrow
Just had my first FEC and so far feel fine...... had been t at 11.30 as it took them half an hour to find a vein.....
is my body playing tricks with me or should I see this as the calm before the storm?.......
Hello August ladies, sorry you find yoursleves here and sorry to see some of you are suffering SEs of chemo. I have had 3 Fec and will be having 3 T staring August 13th. I have already had a mx and will be having nodes removed, rads and hormone tabs after that. I've found the worst effects to be nausea bit like being pregnant in waves but I take the meds and they are bearable after that. I've worn anti sickness bands, nibbled anything I fancied and tried to drink lots, important to flush it all through. If you are taking steroids be prepared for an energy and emotional dip for a day or so after you finish them,, for me day 6\7 but it passes too. Just take things easy listen to your body and you will get through. As for hair loss, mine started shedding on day 12 and by 15 it was falling everywhere so had to brave the shave. I won't lie it was tough but once its gone the relief was immense as the waiting and worrying about when will it go was worse. I still have eyebrows and lashes at moment but e everywhere else is gone. .. everywhere as KTK said some of us have posted our baldies on the June thread.
Take care ladies take one day at a time Kip xxxx
So sorry to hear about your SEs Jude and Sunflower. Sending you loads of hugs.
I am trying to drink loads of water in the run up to chemo. Feel like I’m pregnant getting up in the night for the loo. I’ve downloaded the Headspace app too. Lets see how annoyed I can get by punctualtion and voice 😂
Any top tips for my chemo bag? I’ve been told you can feel quite cold? Even in this heat?
Off to look at wigs today. Already tried one place in London last week, so depressing and demoralising but going to give it another go. I think the consultant may have been shoving too small wigs on my enooorrrmous head. I’m six foot so hardly a small frame. Well thats what i am hoping bc they were so tight and just didnt sit right. Fingers crossed.
I'm from Oct thread and finished chemo at the end of Feb. Just wondered if you'd tried wearing travel sickness bands whilst you're having chemo. (I kept wearing them for a few days after chemo as well) I don't know if they did make any difference and it might have been a coincidence, but I wasn't sick at all x
I have just had my first chemo treatment yesterday 6 FEC T - I know I started in July but I am only 2days outside of the August start date!
i was very anxious about it all. Already had surgery Lumpectomy and removal of all nodes -that seemed the easy part.
I hate to say it but last night I felt awful, so sick and threw up a number of times. Luckily this morning I took all of the sickness tablets I was prescribed (3different ones) and been better today, just nausea. Going to bed in a moment as I didn’t really sleep much last night!
I am sure this journey will be a hard and long haul but it is the only option we have so we need to take each day as it comes....well that is what I say on a positive day!
Good luck everyone x
Insight Timer is a free meditation app that i use now as started with Headspace but decided not to pay for it.x
I've found the Headspace 10 days free meditation course really helpful and have returned to it on many occasions. It helped me relax for the radiotherapy sessions on the patient unfriendly couch, and gets me relaxed during the night when I keep waking up in a panic. I also use the breathing exercises (shallow breathing centred on the chest) when people are saying the wrong things with good intentions and I'm conscious of having rather a short fuse!
Morning Ladies, first post.
I start chemo on Friday, 4 cycles of EC and 4 cycles of T to be followed by radiotherapy and endocrine therapy. Ive had a lumpectomey and partial node clearance 3 weeks ago for IDC grade 2.
Feeling v anxious, its awful signing consent forms to put such toxic drugs in your body, when otherwise feeling well. But it is a well trodden path and something that has to be got through.
Having a port fitted on Thursday and hoping to try the cold cap. Feeling a bit queasy about the port insertion but compared to surgery I guess its no big deal.
My husband lives and works in Switzerland. He’s over this weekend for the first chemo session but after that we need to work out when I am feeling worst and need the most support and juggle his visits to fit that. I’ve been following everyones SEs to see how they are finding it.
Sleeping really badly which has been quite exhausting. I need to knock this on the heads bc sleep is essential to recovery. Starting meditation and/or mindfullness - anyones tip gratefully received! Can’t quite belive this is happeneing. My life has turned on its head so quickly. So much information to process.
wishing you all the best