well done on completing Race for Life and raising £800!! chocolates and wine are well deserved 👏🏼👏🏼
My hair is still very curly although I do think it’s growing straighter from the roots now and I too have looked like one big frizz ball this week with all the wet weather 🙄 I never would have thought curly short hair would be so hard to manage 😂
Hope everyone is ok.
I've done the Race for Life today though due to an Achilles injury it was more of a hobble and a walk than a run but I've raised almost £800 for cancer research and that's what it's all about!!!
I've finally ditched the wig and I'm now sporting blond pixie cut - a little bit curlier than I'd like but drying tips from my hairdresser and some VO5 Rework Putty usually keeps it under control but today's drizzle left me looking like a through back to the 80s 😬.
I'm now treating myself to a glass of wine and a few guylian chocolates.
Take care all
I had to have a blood test yesterday and I’ve never had trouble before but they couldn’t get any blood out my veins....half an hour later left with a very bruised arm 🙄 .
Saw my oncologist on Friday, he examined me and said everything felt as it should which was good to hear. Didn’t seem to know why my muscles/ joints hurt but said if it’s a side effect of chemo it should get better with time and didn’t know why I’m constantly thirsty which is why he sent me for a blood test!
I have a wobble quite often Jo I suppose it’s to be expected after what we’ve been through! I try to reassure myself by reminding myself I’ve done everything I can and today everything is good!
Take care ladies and please pray for a little bit of sunshine as I’m off to Bude on Thursday - taking the dog on her holiday for a few days.
Glad everyone is doing ok and enjoying life.
Im having biosulphates infusions as well- every 6 months for at least 3 years. I had my second dose last week and i had to go back to the chemo u it to have the infusion, which bought the memories flooding back......the nurses struggled to find a vein though as since my chemo my veins have given up! Also as I had a full node clearance I can only use the arm that I had chemo cannula. 3 attempts and a very bruised hand later, I had the infusion.
Yes flu like symptom and achy joints.
Having a wobbly day today, not sure why, just do sometimes.
Doing ok though, started the Couch to 5k the other week- I’m determined to get a base level of fitness back. Week 4 starts tomorrow.
Take care all.
I did feel ropey with flu like symptoms for 24 hours after infusion but fine after that. And I do get some joint pains but not sure if it’s bisophonates or tamoxifen 😂
Good luck for next Sunday. I don’t think it matters if you walk or jog, it’s the fact you’re doing it that counts.
Take care all 😘
I was told that if you have the infusions you don’t have them for as long but they are a stronger dose. I don’t get any side effects other than occasional heartburn but I think you can get joint pain / flu like symptoms with the infusion?
My race for life is a week on Sunday, not really done enough training so it will be a mixture of jogging & walking!
Have a fab holiday x
Thanks, I’m sure it will!
I’m 51 and post menopause and yes I’m having bisophonates by infusion not tablet.
I think you and some others are doing a race for life this month so good luck with that!
Still miserable here too. I’m off to Majorca next week so looking forward to seeing the sun again! ☀️😎
Whilst not swollen my boob is full of lumps & bumps which I think is scar tissue (I do bruise spectacularly) so I’m expecting the mammogram to be a bit more painful than normal. Good luck with yours, fingers crossed
I’m on bisphosphonates by daily tablet - are you having the infusion or tablet? I’m 57 & post menopause, not sure how much difference that makes ..
Still raining here!
Lovely to hear your updates.
I also just received an invite for a mammogram, in July, so a few weeks to wait yet. My breast is quite swollen so I suspect it might hurt a bit but I can live with that 😀
Jude and Caz, good luck with your results, I hope the wait isn’t too awful. Tarnia, sorryvthat yiu have to wait such a long time for you.
Sue, I attended the Moving Forward course recently. Some aspects more beneficial than others but overall I thought it was worthwhile. The group was a lovely open group which I’m sure made a big difference. Jude you’re right about it being emotional, there were a few ladies who got a bit teary when they were talking about their experiences....understandably so.
Jude and Sue, having your hair coloured certainly makes a difference. I’ve had mine coloured twice now and planning to go as blonde as I possibly can using tint 😀. I know what you mean about the curliness Jude, I’m not sure what I’d do without my hair wax!
Jude interesting that you are having bisophanates for another 4.5 years. I’m also on Herceptin until October and was told that I would be on bisophanates for 2 years.
Take care everyone. Fingers crossed that the sunshine comes out again soon! 😎
Take care 😘
Thanks, I think you have told me that before - chemo brain & all that!
Triple negative - that’s a tough one but let’s keep everything crossed for you to get through to the 5 year mark
Take care x
No I’m not taking anything! I was triple negative so there is no targeted treatment! Just got to hope and pray it doesn’t return. After 5 years (if I get to 5 years) the risk of triple negative returning is very low! 🤨
That’s a long wait for you. Are you still having any ongoing treatment? (Apologies if you’ve told me this before). I’m on herceptin until October & bisphosphonates for another 4.5 years!
I'm not as much nervous as almost expecting the worst - which is a bit strange as I’m not a negative person at all
I’m sure the colour will take well 8 you’ll feel loads better about your hair when you are back to your normal colour. I’ve gone blonder now & it almost has a pink tone to it which is quite nice. The curliness is getting on my nerves now, as it is getting thicker & thicker but not much in the length. I look like a badly trimmed poodle!
I’ve heard a few say that the moving forward course can be a bit emotional but that’s not always a bad thing - I’ve yet to cry but do feel more emotional over things on the tv etc. Sounds like you had a good shop, even if not by choice
Hope you cope with the waiting, like Sue suggests plan in some treats along the way - good luck & fingers crossed
Hi there- I had my mammogram on Thursday and they calmly said you should get a letter with your results in the post in 2/3 weeks but if you haven't has it by the time you see your surgeon on 5th July ask him because it will be on the computer!!! This is sure going to be a long wait!!! 🤞 for me and everyone else .
I can understand your nervousness and I know I'll be the same when mine finally comes around but try to stay positive and do nice things to take your mind off it. I've not got mine until January as I've been told it will be a year from my radiotherapy finishing!
In other news my hairdresser has agreed to colour my hair - I had a patch test yesterday and it's all been ok so I'm going to be blonded next week and I just can't wait. I'm grey and curly at the moment so looking forward too no longer being in competition with my nearly 80yr old Mum.
I've also been on my first Moving Forward session today. Quite a mixed group with lots of different experiences - I was one of the youngest and I meet someone I knew at school so had a mini reunion. To be honest I found today a little bit happy clappy but it sounds as though the next few will be more practical and certainly next week is about breast health and what to look for going forward which I'm hoping will be really useful.
I then got trapped in Meadowhall shopping centre after I just called in to get something from M and S as traffic was at a standstill as M1 had seen shut - I ended up having lunch there, doing some pre holiday shopping then coffee and cakes. I had a manicure and then as traffic was still gridlocked i got the tram into Sheffield and met my other half and we went for dinner. We're just back home after retrieving my car and doing the aforementioned shopping in M&S - it's been a long day........
Hope everyone is ok and I hope ur weather is better than what we have here in Sheffield - it's like Nov outside.
It is scary but will also be very reassuring when you get the all clear! I won’t get a mammogram until December as was told it will be a year after last surgery. I see my oncologist next week though so I’m hoping she has a good feel around! 🤨
Hope you are all ok
Received my letter for my first mammogram, 2 weeks today...& it say 3-4 weeks for the results!
Feeling a bit nervous
Thanks for all the feedback
Sue - is have a lot of achy joints as well but some days are ok, so very hit & miss. Your holiday sounds like fun, hopefully if you get your hair coloured you may feel ok to ditch the wig. My hair still isn’t a style but does look like a short crop now. I’m thinking of going for a striking blonde colour next time I’m at the hairdressers but may nesh out.
Kip - well done on a clear mammogram, that must have been a relief. I do feel that I’ve mentally moved on from the treatment, the recurrence thoughts may just be as my mammogram is coming up
Cat - your moving forward course sounds interesting, unfortunately I feel that I can’t take time off work to attend for the course duration. Well done on your pink ribbon walk, I bet it was emotional. I doing a 5k race for life in June - it will be a mixture of walking & jogging for me
Take care all
Sounds like we all feel the fear of recurrence. Hopefully in time it will be something that sits at the back of our minds and doesn't consume us as much. I'm in the middle of the ''Moving Forward'' course and last week a BCN talked to us about signs and symptoms to look out for when checking our breasts and differences between a local recurrence, new primary etc. It was clear from the discussion in the room that everybody had the same fears. Next week somebody is coming in to talk about coping strategies so will let you all know how that goes.
I was also advised that my next mammogram will be a year after surgery so that will be July for me.
Kip, that is great news that you got the all clear... although 3 weeks is an awful long time to wait for the results, must have felt like a life time!
I did the Pink Ribbon Walk at Blenheim Palace on Saturday with family and friends - it was a fantastic, and emotional, day and felt very proud when we finished knowing that we had raised money for such a great cause....and knowing my body didn't give up on me before the end (the last few miles were a bit painful!)
Take care everyone, Cat Xxx
Hi ladies, at my hospital I was given my first mammogram exactly 1 year from diagnosis but I think it varies from place to place. It's a difficult time when scans and tests are looming and I wasn't expecting it to be so emotional... That and the 3 week wait for results was tough... All clear though.
Im also having a bit of a tough time going forward and worrying about reoccurance etc, I ache so much from and worry about them all but with time hopefully it gets better.
Just jumping in on the conversation - I was told that my next mammogram would be a year from the end of my radiotherapy. I told them I wasn't happy about this and asked ifI could have one sooner. They said they'd be no point as things need to settle down from the surgery and radiotherapy treatment first before they'd be able to get a good image. They assured me it wouldn't be detrimental. It sounded reasonable at the time but given most of you have been told it's a year from surgery its making me a bit unsettled. I'm a bit lumpy around my scar but I don't think it's changed from since I finished my rads. The oncologist examined me at the appointment where it was diacussed and didn't have any concerns. I examine myself monthly but with chemo brain I'm struggling to remember how I felt previously but there's nothing that has me running for the docs. I did used to get aches and twinges but they've recedeed over last few weeks so it's either things have settled down after radiotherapy or now I'm back at work I don't have as much time to notice and analyse every ache and pain.
Still suffering a bit with achey joints - I feel it's getting better and then end up having a bit of a bad patch. Anyone else like this.
Congrats to those that have ditched the wig. I'm still clinging on to mine - mainly cos I'm very grey and curly tho those that have seen me without says it's just looks like I've had a short crop, that it suits me and that the silver grey brings out the blue in my eyes! I've either got very kind friends are they are just bull$h1tters 😁. I'm back at the hairdresser in a few weeks so I'm hoping I can convince him to colour it for me. I'm off to France in July hiking, rafting, biking and hitting the beach so I'll definitely have to ditch the wig for all of that.
Have a fab week all
Thanks Tarnia and Jude,
That makes me feel a bit better about the lumps and bumps. My shoulder plays up a lot at the moment if I forget to do my exercises.
I had surgery at the end of June, so I will see f I receive anything in the post.
Hi Jo & Tarnia
I’ve still got lumpy & tender areas particularly where the nerves have knitted back together
My surgeon advised that it would be June for the first mammogram, 1 year from surgery - I’ve not had my letter yet though...
My surgeon said your next mammogram is usually a year after your last surgery. I had more surgery in December after chemo so I should be called in December this year! Not sure if it’s the same at all hospitals though 🤔
I sometimes feel tender round by where my surgery was and like you I keep poking at it to see if I can feel anything🙄 It’s only natural to feel concerned about every ache and pain after what we’ve through! I’m hoping it gets better with time.
I also think about a recurrence. I think it is fairly usual in our circumstances but it doesn’t make it any easier. I have a bit of tenderness all around the chest area and shoulder bone but maybe that is because I keep poking it to see if it still hurts!
I haven’t heard anything yet about my mammogram - diagnosed in May 18, finished radio mid Jan 19. Should I have heard anything?
Hope everyone is getting on well and enjoying life.
I won’t be getting a mammogram until December! I wish I could have one sooner to put my mind at rest! I constantly think about a recurrence and I’m definitely not a negative person either. I think it’s completely natural and I also agree that you try and prepare yourself so if anything does show up you won’t feel as devastated as the first time round 🤔 I was a complete mess last year and I was like that until half way through chemo when I realised I could actually do it and it wasn’t as bad as I thought it was going to be.
Good luck for next month 🍀
Thought I’d just mention I’ve dyed my own hair today out of a box like I used to do and it’s been absolutely fine...it’s growing quickly....but a even quicker would be nice😂
Take care all
Cheers Tarnia , I’m feeling a lot more confident now, I still feel inside like the girl with a bob... I’m sure you all know what I mean
Well done on easing back into work Cat, try not to overdo it. It’s easy to think that you are back to normal when you are not quite there
Sorry to bring this up, but how’s every feeling about recurrence?
My first mammogram since diagnosis is due next month & in the back of my mind I’m expecting something to be found. I’m not worried or upset about it, I’m just expecting it. I’m not a negative person at all so I’m not sure whether subconsciously I’m just preparing myself just in case or it’s a little bit of a physic feeling.
I’d be interested to see how anyone else is approaching this milestone
Love to all
Jude, Congratulations! Another milestone to celebrate 🍾. I bet you do look lovely. It’s such a great feeling not having to put a wig on every day isn’t it.
This is is my third week back at work but still only doing a couple of days a week so it’s okay. Will gradually build up to full time over next couple of months although right now I still can’t imagine having the energy and brain power needed to work full time!
Take care everyone and enjoy the sunshine.
Thats brilliant that you feel confident now to ditch the wig. People are really good at saying the right things and it’s because they want to help you to feel confident and good about yourself! ......and who cares if they are lying, we’ve all come such a long way and this is hopefully the end of the journey! .....onwards and upwards as they say.
Love Tarnia xx
Hope you are all ok
I finally ditched the wig for work today!
Felt quite proud of myself, everyone was very kind, I do think they were lying through their teeth but who cares!
I’m still mega tired but am pacing myself better now & have learnt not to overdo it
Sounds like we’re all facing the challenge of short curly hair....I can already tell as mine grows it’s going to get harder to manage! 😳
Jude &Sue, you’ll know when you’re ready to ditch the wig. For me the trigger was having my hair tinted but it will be different for everyone.
I think it’s fab that we’re all getting involved in walks/runs etc just shows how far we’ve all come!! 👍
Enjoy the long weekend!
I have no idea what to do with my curls either! 😂 parts of my hair are still dead straight parts are curly and in damp weather I’m just one big frizz!! Hoping it starts growing straight soon!!
Well done on signing up for Race for life, I wouldn’t worry about how much time you have to jog atm as you can pretty much run, jog or walk round the fact that you’re doing it is fab 👍🏽.
hope you are all ok & looking forward to the long weekend
well done if you’ve binned off the wig - I’m hoping in another week or so I can go to work without mine...
how’s everyone managing the curls? I’m struggling to style it in any shape or form as some areas are a lot thicker than others
I’m also doing a Race for life in June but since been back at work I’m not managing to go for as many walks/jogs due to a mixture of tiredness & can’t be arsed!
So pleased to hear everyone is doing well and well done to those of you who have ditched the wigs - I'm still mainly wearing mine partly cos my head still gets cold but mainly because I just don't like the grey look! I too am quite curly but I've been told a bit of length will pull it out so fingers crossed.
I've been back at work 4 weeks - still on a phased return but boy I'm knackered. We've also got a guy in doing the bathroom so the house is a dust-fest and he's working over the bank holiday weekend so no chance to relax then either.
I'm also doing the race for life in June with friends who did it last year due to my situation. Unfortunately I'll be walking / hobbling due due to an Achilles tendon injury.
So hopefully you'll all have a lovely break over the long weekend - let's hope we get some good weather 🤞🌞😎
Thanks and yes lovely feeling to ditch the wig, although it served me very well when I needed it 😀 My hair is still very short but can already see it’s going to be very curly so it will be very hard to control as it grows!
I felt exactly the same about wanting to give something back. I have a few family few family and friends joining me too which is lovely. Good for you for signing up for the race for life. 👍
Take care everyone, Cat 😘
Its a great feeling ditching the wig isn’t it and so glad your first day back at work was ok.
Good luck with the walking, I’ve signed up to do Race for life in July - feel like I want to give something back. I was looked after so well during treatment makes you appreciate our NHS so much!
Hope everyone is doing well.
I hope you’re all keeping well.
Jude, the thing about being on Herceptin and Tamoxifen is that your never sure which one is causing which side effect! 😂
It was my my first day back at work today. I’m on a phased return which is good but at the moment I can’t even imagine being able to work full time again! Glad to get the first day over with though. I braved it with my short hair....so wig has most definitely been retired for good!
In other news I’ve signed up to do the Breast Cancer Care Pink Ribbon Walk at Blenheim Palace in a few weeks time so trying to walk a few times a week to build up my stamina! 😀
Take care everyone,
Crikey you had a double whammy - on herceptin & tamoxifen. Obviously it’s great having the targeted therapies to treat the specific cancers but you must have side effects galore!
I’ve just been on some of those hairstyle apps where you attach a hairstyle to your photo to see which style/colour looks good & I've decided I look dreadful with all of them 😂😂
I hope you all had a fabulous weekend in the sunshine.
Jo and Sue, I’ve developed fair downy hair on my face too, no idea why (I’m on Herceptin and Tamoxifen).
Jude, I know what you mean, I feel very conscious about my face being exposed, can’t hide behind my hair anymore! Feel like I have to pay more attention to my makeup now....and there’s no hiding my double chin 😂. Sounds like your hair is growing well, a parting is progress. Hoping mine will start to grow a bit quicker now...although that will mean more frequent trips to the hairdressers!
Take care all, Cat 😘
Hi Jo & Sue
I’ve got very fair hair on my face it’s like a fine down! My cancer was HER2+ so I’m on herceptin rather than tamoxifen. I think it might just be hair growth but it could be due to lack of oestrogen as I’m post menopause
Had my hair coloured today & thinned out at the back in the neck area! Didn’t have it trimmed round my ears today as I’ve decided to let the length start to come down & I’ll just tuck it behind my ears until the layers come down.
I’ve also got a side parting!! But it’s on the opposite side to before as my hair is growing the opposite way - very strange
Take care all
I went out today to buy facial hair removal wax strips!
Like you I’m not sure if it is just the luck of hair that makes it more noticeable. I can’t believe I have actually removed hair from my head.....spent the last few months wishing I had some!
Are you on hormone therapy?i wonder if it is the reduction in oestrogen that is causing it?
Have a good Easter
Congrats to those of you that have braved going wigless - it's a big step isn't it? I went wigless in the Peak District last week but not yet ready to do it at work - partly because my head still gets cold. I'm even still sleeping in the caps I bought over winter.
I too am suffering from joint pain so I've been taking glucosamine and chrondrotin for about 3 weeks now and there has been some improvement. Not heard of the magnesium spray so will look into that.
In other news I seem to be developing facial hair - never had this before and the women in my family aren't particularly hairy so not sure if it's some weird chemo side effect or if it's just a menopause thing or if I've always had a hairy face but just not noticed so much when I had hair.
I'm doing the moving forward course in June - mine is also on a Friday so a good excuse for a long weekend - I've got so much leave to use I'm not sure what to do with it. My partner already gets fewer days than I do and I'm running out of friends to have breaks with - I think I'll need to advertise for people to do spa breaks with 😁.
Have a lovely Easter break all - enjoy that sunshine and chocolate
Well done Cat! Good luck, I hope you feel ok
i went wigless to the pub last week & felt ok - but no one knows me there! Might go to work next week wigless but am very conscious of my frown lines which no one saw previously as I had a fringe...
Have a great Easter 🐣 all & eat lots of chocolate
Well, I am now wigless! I had my hair tinted yesterday for the first time, it’s still very short but I’m going for it.
Val, best of luck for the Radiotherapy, it will fly by once you start.
Enjoy the sunshine and chocolate everyone!
Happy Easter, Cat 😘
my fingernails have been fine but lost 3 toes nails and toenails have also discoloured! Joint pain more of an issue however is does seem much better atm but that might be because I’ve had a week in Mexico not doing very much whereas back home I’m extremely active! Next week will tell 🤨 I too like Jude use the glucosamine and chondroitin tablets snd I think they help ....worth a try.
good luck with radiotherapy ... a walk in the park compared with chemo. Just make sure you use the cream regularly,
Good to hear from you
I lost one toenail but by the time it came off luckily one had grown underneath, it is a little tender but other than that it is fine
Joint pain is tricky, not sure how long it lasts but the glucosamine & chondroitin tablets help. I also saw the other day that magnesium spray helps - I bought some & it does work
Hope your recovery from the ops goes ok.
The radiotherapy isn’t too bad as long as you keep hydrated & use lots of moisturisers
Hi, I have exactly the same thing happening to my finger nails, I’ve had to glue one ad it was breaking half way down. My small toe nail looks pretty awful too, I think it might come off.
i actually can’t back on this thread to see if anyone else was having problems with joint pain, I’m glad to see it’s not just me! I can totally associate with the feeling 90 and creeping along for the first few steps. Does anyone know how long it will last for?
I finished chemo in December like most of you but I’ve still got radiotherapy to come in May, chemo was the first treatment for me followed by surgery, twice, now just a few more weeks to go.
Best of luck to you all, I’ve followed you over the months but not posted much.
Cheers Cat, I might make some enquiries re the course
Tarnia we were on the Caribbean side at Riviera Mayo - enjoy
Sue, well done on going back to work, take it easy, I imagine it will be all too easy to take on too much too quickly.
Jo, Devon sounds fantastic. I'm just back from visiting friends in Dunster (Somerset), another beuatiful part of the country. I'm due to attend the Moving Forward course in May so pleased to hear you found it beneficial.
Jude, I'm wating for the details of the course to come through but I think it's once a week (half day) for 4 weeks. Where I live it's on a Friday.
Tarnia, have a fbulous time in Mexico and yes please do bring the sunshine back!
Take care all, Cat xxx