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August 2019 Chemo Starters

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Re: August 2019 Chemo Starters

Hi Lisa

It sounds as though your employer is being really supportive so im sure that will make it easier for you.

 

Good luck with everything

 

Sue xx

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Re: August 2019 Chemo Starters

 

Hi Sue 

 

The problem Iv got is the financial side of it too not just climbing the walls because I’m used to being in the go 24/7.

im on my own with my 2 kids so money has been a worry I really don’t need right now. My money is all that comes in. My daughters 18 and works full time so she looks after herself financially and does give me money for food ect but Iv still got my son. Iv got an appointment through Macmillan to see what financial help I can get so I’ll see what they say. I have got holidays remaining so ill

use some of those for now. My manager has been really good in that he’s saying if I feel like going in just for a few hours even just to see everyone then he’s fine with that and I’ll still get paid. 

 

Lisa xxx

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Re: August 2019 Chemo Starters

Hello Lisa

I took the decision not to work during treatment and was lucky enough that my employer didn't expect me too. I kept in touch with friends at work - lunch dates and a few meetings about really big issues but other than that I stepped away completely. At the outset I did think I'd be climbing walls - I've worked for 30yrs and I love my job - the first few days before I had my surgery I had to fight the temptation not to go onto my emails but decided I'd done a handover, someone was covering my role and they knew if they needed to they could contact me. After my surgery I'd managed to turn completely off and I focused on me, my treatment and my recovery.

I'd say absolutely everyone is different and it obviously depends on your financial situation but it you can afford not to work my advice would be to not. It'll take a little time to adjust but like me you hopefully find it easier than you'd expect and you will find ways to fill your time. Inevitably your treatment will slow you down as it progresses so taking work out of the equation will give you chance to focus on what's important - whethere thats spending quality time with ur kids or parents or just taking time to look after yourself. Looking back there's no way I would have wanted to get up every day and go to work - there were days where I couldn't have done it and days when I just didn't want to. You will be vulnerable to infection and starting chemo in August means you will be vulnerable to infection when the coughs and sneezes season reaches it peak so do think carefully about it. 

There are plenty of groups and classes out there you can join both with people dealing with cancer treatment but also people who just work differently - I certainly had my eyes opened to an alternative lifestyle whilst I was off - there is a whole world you don't realise exists when you're stuck working 9-5. We've all been dealt a 💩 hand - take time off work if you can and enjoy the good bits in-between the rubbish ones. You might not see it now or think it's possible but you will have some good days amongst the rubbish ones so if you can don't spend them behind a desk - fresh air awaits you in the local park!! 

 

Sue xx

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Re: August 2019 Chemo Starters

 

 

Morning 

Thankyou for all the tips and advice. 

Sue so nice of you to jump on here.. I’m going to get a fresh pineapple chopped up ready and I’m liking the idea of pineapple and cheese on cocktail sticks!! Good shout! 

I feel much the same as all you other ladies in that I feel so out of control with my life and i keep thinking I don’t want to do this! But I know I have no choice. I too feel like Iv been put on a rollercoaster I don’t want to be on and I can’t get off it. 

Im going to try and enjoy this last week of “normality” before starting on Friday. Work wise I’m just going to see how I feel, my boss has told me to just let him know how I feel. If I feel like going in for a few hours then I will. What did the ladies that have already gone through it do? Shi did you work while going through chemo? 

 

Lisa xxx

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Re: August 2019 Chemo Starters

❤️blackcat ❤️ you will all be fine, please just treat chemo with a bit of respect don’t get blasé , it’s not like usual you have no immune system and you need to keep safe ❤️I’m sorry to be clucky mother hen, I just want you all through safe which is why I say about temperature taking and even if no temp if something doesn’t feel right please ring your units, also watch out for low temperature reading too, again ring your units 😘😘💕💕Shi xx

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Re: August 2019 Chemo Starters

Hi Sue,

 

Thanks for popping in to this thread to give us such good advice and also to inspire us.  We all have a long way to go yet, but hopefully we will be able to follow in your footsteps and get there too.  I am just going to follow one piece of your advice right now, and get out some pineapple chunks from the freezer to have later.  I have the craving for cheese too, and maybe I will make some cheese and pineapple chunks on sticks (I remember them as a child in the 70s).  

 

All the best to you too - and thanks so much for your support to those of us just starting out on this scary process.

 

Blackcat xx

 

 

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Re: August 2019 Chemo Starters

Ahhh sue, what a lovely post, thankyou so much. 

ive been struggling over the past couple of days but this is just what I needed to hear and at the right time too.

thankyou 😘

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Re: August 2019 Chemo Starters

Hi Shi,

 

Thanks for the useful advice about the yogurt.  I was not told not to eat it by my chemo unit staff, but they did say not to eat soft cheeses and so presumably the same principle applies (due to the live bacteria, as you say). I am not able to check with my unit as they only take urgent queries over the weekend, but I will contact them on Monday.  Ironically, I was actually recently advised to eat this yogurt (it’s one which lowers cholesterol) by my GP, but this was just before my diagnosis.  I have also just checked on a chemo dietary sheet from Guys hospital, for which a Macmillan nurse gave me the link, and I see that it states that that this type of product should definitely be avoided during chemo.  So I will keep off the yogurt for now, and thanks for raising the issue on the thread as other people may also be wondering about this. 

 

Blackcat 

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Re: August 2019 Chemo Starters

Hello all

I'm originally from the August 2018 thread and had my 1st chemo anniversary just last week. I wanted to pop on here and share with you a few tips that I found helped me and well as a bit of info re my experience.

 

1. Drink plenty of water especially the few days around your treatment day - I was getting through around 8 pints per day. You'll pee a lot but it'll help flush the chemo out and staying hydrated helped me with the nausea and fatigue.

 

2. Rest and sleep when ur body tells you it wants to. The dusting and hoovering can't wait and you'll find something on TV to entertain you - i got hooked on 4 in a bed and the secret lives of 6 year olds!

 

3. I found pineapple chunks - fresh or tinned and a tart lemonade helped when my taste buds packed and left. Don't worry they do come back after a few days. I did find that with each cycle it's gets progressively worse and lasts longer but they will come back.

 

4. I developed an urge for anything cheesy in the few days after treatment. Quiche. Pizza. Cheesy crackers. I found eating what you want when you want it for a few days helps.  On my 2nd cycle i got a lust for yorkshire puddings - my partner sat and watched in disbelief whilst I ate them for breakfast covered in gravy bu t - I didn't care. I wanted them. I was hungry. I'd just had my 2nd chemo and I was pandering to my every whim!

 

5. Let other people help. You might be Ms Independent usually but now is the time to take it easy and let others takeover for a bit.

 

6. Take some sweets to suck on. Esp helpful during the C infusion if Ur having EC or FEC. I used to get an awful metallic taste and my nose would run - tissues also handy.

 

8. Take ur meds as instructed.If there is anything that worries you call the helpline - they really do mean it when they say anytime. I once rang at 3 in the morning when I got sudden and excruciating pain from the bone injections (note that not everyone seems to get these). 

I'll be honest as I progressed through the treatments my symptoms did gradually get a little bit worse and did last longer BUT they always did fade. Prepare yourselves for this and plan for it. It took me usually between 3 - 6 days to join the living world and again and generally by day 10 I was back to normal and enjoying the free time I had.

My treatment finished mid Jan (I had radiotherapy after chemo) and 1 year on I'm back at work full time, I've just had a holiday in France where I've climbed mountains, canoed rivers and cycled across islands. My hair is back - albeit it very curly (apparently a common thing post chemo) my hairdresser says it's stronger and thicker than before and every one says the shorter look has knocked years off. Losing my hair was the biggest thing for me - I was heartbroken over it - shaving it helped and very sadly it's inevitable for the vast majority of women in our situation. I did however have a wig that I loved and it looked great and I never thought I'd say that. Anyone who didn't actually know it was a wig couldn't tell. 

 

I'm not gonna lie - you are likely to have a crap time over the coming months but my partner and I were saying only last week that it wasn't as bad as either of us expected. On reflection it passed quickly and hopefully in Aug 2020 you'll all be looking back and being awed at what you've dealt with but looking forward too.

 

Best of luck to you all. My thoughts are with you 

 

Sue xx

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Re: August 2019 Chemo Starters

Please check you are ok to have yoghurt, friendly bacteria and all that during chemo, no soft cheese etc. I had a few wigs, one for treatments, one for best, tinsel, coloured ones the lot. Check your Macmillan’s they have pre loved ones, also luvyababes do a terrific selection of non fancy dress ones now too for under £20 😘😘 get your make up on and get the ones where you still see you ❤️❤️💕💕Shi xx

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Re: August 2019 Chemo Starters

Hi Blackcat

Thanks for the message - you have made me feel better already.  Its good to hear that so far you have had not side effects and hopefully that will continue.  I know what you mean about going to work - not only is it normality but also I expect you miss your friends and colleagues.  I was a nurse before I retired last year so I know what a support the healthcare community can be but you are right about the risk of infection - its time for the carers to care for themselves.  

I went to the wig lady today and that was more positive than I thought it would be - if I can't keep my hair then at least I will be prepared and there are plenty that look like mine does now (better to be honest - ha!).  I have this idea that I can keep this from most people - I love my community but I don't want them to know.  I don't know if I will get away with it but can only try.....  Hope you have a good weekend and manage to get out in the fresh air - its therapeutic value is underrated.  I will let you know about Monday if I don't crack and run out of there screaming! xx

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Re: August 2019 Chemo Starters

Hi Spottycotty

Someone at the gym who had chemo said that they wouldn't let her as "there was no point" (admittedly about 5 years ago) and I read that with FEC-T which looks like the treatment for TN that "you will lose all your hair" whereas the BCC info leaflets for other types of chemo mention the option of the cold cap.  As usual, I am trying to second guess everything!  Its just become a huge thing for me.  However, I went to the salon in town today that does the wigs and it was a lot better than I thought it would be - she is ordering some for me to try and they are not as obvious as I thought.  Have a good weekend and rest up xx

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Re: August 2019 Chemo Starters

Hi Wolvesgirl,

 

Thanks for your message.  It’s now two days after my first EC treatment on Wednesday, and so far so good.   I slept very well last night despite the steroids (which often keep people awake), and today feel OK.   I don’t have any feelings of nausea or tiredness at the moment, and have eaten my usual breakfast (porridge with fruit and a yogurt) without anything tasting horrible.  In fact today I just wish I could go to work as normal, but my oncologist won’t allow it due during chemo to the risk of infection (I work in the health sector with direct contact with patients).

 

It’s good that you have your first oncology appointment on Monday, and will get your treatment dates soon.  I know exactly what you mean about being backed into a corner - after diagnosis, I felt that I had been put on a nightmarish rollercoaster that I couldn’t get off, and that I had no control over anything in my life any more.  I felt very down and depressed, which is not normal for me.   When I got my treatment dates I felt a lot better, because then at least I knew that it was the start of the process of getting well again, even though I knew it was going to be tough.  Now I have started treatment, I feel a lot more positive, because I have got to know other patients in the chemo unit and we are all supporting each other.  Linking up with others on this forum is wonderful too, because we can share experiences and tips.  Like you, I was pretty robust healthwise before diagnosis, and I am still trying to eat healthily (despite weird tastebud changes), to walk each day and to do some yoga/meditation as usual.   I am also trying to do all the normal household tasks, even if more slowly.   I think that seems to be helping me through at the moment, although I am well aware that I may soon be hit with more side effects, and that every cycle will be different.  At the moment, my approach is just to take each day at a a time and try to do my best with whatever happens.

 

All the best with your appointment on Monday, and take care.

 

Blackcat xx

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Re: August 2019 Chemo Starters

Thanks wolvesgirl

 

Have they indicated that they might not let you then ???

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Re: August 2019 Chemo Starters

Hi Spottycotty

 

Poor you - hope all is better now - acute nausea is the worst thing!  Well done with the cold cap - I really hope they let me try it, it will be a massive blow if they don't.  Have a good weekend. xx

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Re: August 2019 Chemo Starters

Hi Blackcat

Its good to read your posts - I hope that you are continuing not to be suffering too much - some people seem to have such a bad time, I really feel for them and, I have to admit, get a bit nervous for myself!  I have my first appt with oncology on Monday so imagine I will know dates etc after that.  I really don't want to do this - I feel that I am backed into a corner I can't get out of which I imagine everyone feels like.  However, if I can get through it relatively unscathed then that will be a positive.  I am pretty robust and fit so hopefully that will go in my favour.  Keep doing well xx

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Re: August 2019 Chemo Starters

Hi Lisaloo

 

Well done - preparations help with not only passing the time but doing something in your control.  I am going to a local salon that does wigs that someone recommended to me.  Keep strong. xx

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Re: August 2019 Chemo Starters

Well, I’m loads better today, I’ve survived the day on salt and vinegar crisps and ice pops. definitely gone off coffee (gutted!) but did manage a cup of tea earlier.

one of my meds makes my lower back ache so much so I’ve had paracetamol for that and feel relatively normal at the minute..

also, picked my precautionary wig up today 🤗

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Re: August 2019 Chemo Starters

Hi Spottycotty,

 

So sorry to hear that you have been having horrible side effects of nausea and vomiting.  I’m pleased that the hospital were able to give you some IV treatment to help, and hopefully for your next cycle they will be able to factor this in and make sure that the same thing does not happen again.  The nurse who gave me my treatment said that vomiting and nausea were the most likely effects of EC, so I have been watching out for the development of these symptoms too.  I did wake up last night at one point with rumblings and discomfort in my stomach and went to take up residence in the bathroom with a sick bucket as a precaution, but for some reason it subsided and I was OK.  Today I have been feeling slightly nauseous/queasy at various points and am definitely more lethargic than usual, but otherwise have been managing to do most things as normal, even if a bit more slowly.  My taste buds have definitely been shot to pieces, though - the smell of my favourite espresso coffee this morning made me feel completely queasy!

 

I hope that you will have a good day tomorrow - each day now for us is one more on the journey to getting better. 

 

Take care,

 

Blackcat xx

 

 

 

 

 

 

 

 

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Re: August 2019 Chemo Starters

 

Hi mimim

 

Sorry you find yourself on here too. If your daughters are willing to help you should take them up on the offer. I’m sure you’d not be a burden to them and they wouldn’t offer otherwise. Take all the help you can get. 

Keep us updated on how you get on.

 

Lisa xxx

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Re: August 2019 Chemo Starters

Hi Spottycotty

 

Awww It sure sounds like you’ve had a bad 24 hours! Hope today’s a bit better for you. 

 

Lisa xxx

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Re: August 2019 Chemo Starters

Good evening Black cat

 

I hope your chemo went well today

 

I have also been diagnosed with HR2 positive cancer last week. I am having a body scan tomorrow as my lump is BIG (That is me I cannot do anything half way!! ) to ensure it has not gone anywhere else although the scan showed that is has not gone to the lymph.  6 session of chemo with herceptine to try to reduce the lump then mastectomy than radiotherapy.

It is such a lot to take in. I am trying really hard to stay positive. It is going to be a long journey!

I also live on my own, my 2 daughters have decided that after chemo I will stay with them but I am not sure I want to especially if I am unwell as I do not want to be a burden.  

Like you were last week I am also deep cleaning. I will also buy a travel sickness bracelet. Last week the nurse asked me re my sickness in pregnancy and as I felt quite nauseous in my pregnancy apparently I will be quite nauseous with chemo. So any advise will be welcomed. 

 Big hugs

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Re: August 2019 Chemo Starters

Hi everyone,

sorry I went missing! 

Well, where do I start? Had chemo Tuesday morning, managed the cold cap too, I didn’t find it as bad as expected, first 15 mins was a bit painful but it was like a challenge!!

Went home for a couple of hours then I started to feel a bit dodgy to say the least!

had the tuna 3 times then the nausea started. I had taken all that had been prescribed to me but I was wretching 2-3 times an hour until I was finally sick between 3 & 4 am. 

rang the hospital and they told me to come in this morning, so that’s where I’ve been, had anti sickness IV then 2 hours of saline.

home now, better but still a bit delicate.

I felt terrible leaving the kids today too.

anyway, hopefully tomorrow will be better.

glad you are ok Blackcat

good luck for tomorrow Em39

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Re: August 2019 Chemo Starters

Hi Lisa,

 

Thanks for your message.  No, I didn’t have anyone with me (everyone who could have come to the session with me is working, like I normally would be, and so I didn’t want to disrupt things more than necessary).  As a nurse has to sit one-to-one with people for the EC infusions which are delivered by hand, there would have been very little space for an additional person in my treatment bay anyway (obviously your unit may be different).   I did have a couple of neighbours ready to come and rescue me by car if I had felt unable to walk home, but I live very near to the hospital (about a 4 minute walk through a small park), and so walking is the quickest way to get there anyway, as I live in a historic city with horrendous traffic jams. I found that the walk cleared my head after being in the hot stuffy ward, and so I went a bit further to some local shops to stock up on different kinds of squash to dilute plain water (which during the treatment started to taste a bit unpleasant).   Everyone is different, though, so I think that it will depend on how far you need to walk, and how you feel after the treatment.  I know that some people feel dizzy afterwards, so it would be good to have a backup plan of someone ready to come and pick you up if need be.  I was told by the nurse that if I had not felt able to walk home, she could have arranged hospital minibus transport for me, so maybe that is an option for you too.  

 

I hope that all goes well with your treatment, and look forward to comparing experiences and tips!  I have just had some dinner (some cold chicken and salad) and am feeling pretty OK so far, but am checking my temperature periodically and am aware that side effects could hit at any time.  

 

Blackcat xx

 

 

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Re: August 2019 Chemo Starters

Hi everyone just to let you know your nadir days are usually 7-14 when your immune systems will be at lowest for those having fec-t on a 21 day cycle, please check with your units everyone so you know when your most vulnerable low immune time is during your cycles, but always take your temp regularly and always check with your units about anything 👍keeping safe during chemo is very important 😘😘💕💕Shi xx

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Re: August 2019 Chemo Starters

 

Hi Blackcat 

 

Thank you for the update.. I’m also having EC so it’s good to get some tips on how other people are finding it. I live not far from my hospital and was wandering about walking there.. I think I will now you seemed to have managed it ok. Did you have someone with you? 

Xxx

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Re: August 2019 Chemo Starters

👭👭👭looking good August thread ❤️if you get thrush mouth make sure you get fluconzole and not fobbed off with drops 👍I know it’s a bit 😳but thrush mouth is common during chemo hence me stressing oral hygiene before 😘 right tune on the chemo jukebox is this is me from the greatest showman 💪💪💪💪help you all 🥊🥊🥊🥊 😘😘💕💕Shi xx

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Re: August 2019 Chemo Starters

Hi EM39 and all on this thread,

 

Thanks so much for your good wishes for today.  Yes, it has been really good to get the treatment started, after a few anxious weeks of waiting for tests and results.  I had my first EC session this morning, and the treatment went well (it only took 2 hours and I was able to walk home afterwards and do a little shopping). So far I the only side effect I have had is a runny, itchy nose which started when the C part of the treatment went in (the nurse said it can affect your sinuses).  I have come home with steroids to take for the next 3 days and anti-sickness pills, and so am just waiting to see if/when other side effects will kick in.  I guess they will at some point soon, but I am grateful that things have been OK so far.  I have found that I am more hungry than normal (starving, actually) which I didn’t expect to be, but I guess that it is probably from the steroids in the pre-treatment drip.  I have been given a set of charts (like a spreadsheet) of boxes to fill in each day for side effects, temperature, exercise taken, food eaten, mood etc, which I think will be quite useful in tracking how things go.  I was also given vouchers for free gym membership and for various complementary therapies, which was nice.  The oncology nurses giving the treatment were lovely and the other people having treatment were full of jokes and useful advice, so the whole process was much less stressful than I had anticipated.  We were offered tea, coffee, juice, biscuits and sandwiches throughout.  At some points we were having such a good time that I forget I had a cannula and that the dreaded red E was being pumped in.   I know that I have definitely had it though, as I have discovered it is quite true that it turns your urine red!

 

All the best to everyone on this thread preparing for, or recovering from, a treatment session.   I hope that your session goes well tomorrow EM39.  This time yesterday I was feeling petrified too, but today I feel much better because I know that the actual treatment process is not nearly as scary as I had imagined. Every day is another step forwards through our treatment and towards being well again - we will get there, even if it takes a while.

 

Blackcat xx

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Re: August 2019 Chemo Starters

Hi wolvesgirl 

 

the community champions on here have been amazing! I scared myself silly looking on dr google when I found out it was TN. I thought well that’s it there’s nothing they can do 😳 Iv now banned myself off google. Half the information on there isn’t accurate or is out of date. My breast nurse assured me whilst it’s not your more common breast cancer it’s something the oncologist deals with day in day out. I’m getting very nervous about starting my chemo now. Having my eyebrows microbladed tomorrow and hair chop this week too in preparation 😳 xxx

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Re: August 2019 Chemo Starters

Big hugs back to you Lisa - we all need them at the moment I think (and I am not a huggy person).  I am TN but have had the surgery first (as they thought it was just DCIS initially) so if you need a chat about surgery (I had a WLE not a mastectomy so I can't talk about the latter) I am very happy to support you - it was really a very easy process.  The TN bit is the worst but talking to the fantastic community champions on here has made it so much better - I think I might have been a nervous wreck otherwise.   Keep in touch xx

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Re: August 2019 Chemo Starters

Hi everyone

 

Got the letter today for my appointment with oncology next week so hopefully will be starting this next bit of the journey in the next couple of weeks.  We have a long weekend away next weekend for our silver wedding so it won't be before then but should be before the end of August - I hope so in a way as I want to stay in this group.  Feeling nervous and a bit grumpy about it to be honest - seriously worried about my hair (don't know why as its hardly gorgeous) and if they don't let me try the cold cap I will be seriously unamused.  Hopefully we can support each other through this and make it just a bit better as a result.  Keep strong and well xx

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Re: August 2019 Chemo Starters

Hi Becky

You sound very organised - kondo-ing the house is a thought......  My step daughter has a business making children clothes and she has brought me some sewing to do which I am hoping I will be able to manage on my less energetic days.  I have my appt next week so presume I will be starting before the end of August which I am pleased (odd thing to say I know) about so that I can get this thing done.  Keep well xx

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Re: August 2019 Chemo Starters

 

Hi Becky 

 

Im also having EC chemo starting in the 16th. I get what everyone’s saying about feeling totally fine other than knowing this critter is in me ( I’m having opp after chemo) so the thought I’m going to be made to feel ill is not nice at all. I think the trying to stay as active as possible is key. 

 

Spottycotty how how are you feeling today? 

I was thinking of you yesterday. 

 

Big hugs to everyone 😘 we sure do need them. Xxx

 

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Re: August 2019 Chemo Starters

Hi Blackcat, Best of luck for you today....will be great to get started!! I'm starting Thursday, petrified but bring it on xxx

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Re: August 2019 Chemo Starters

Spottycotty - hope it's going well today!

 

I'm now day 6 post EC - I've had a rough few days 3-5 with feeling totally exhausted, head achey and also very grim stomach issues (of every variety...historically I have very bad IBS so I had a suspicion that this was going to be my weak point and that has proven very much true...). But today I managed to be SHOWERED BEFORE 9AM (whoop!) and whilst I haven't attempted anything ambitious beyond some pottering around and a bit of cleaning, I'm feeling more like a real human being again rather than a spacey zombie. I've forced myself out for a walk every day, but think tomorrow I might be able to do a bit of work from home if I'm feeling like this, fingers firmly crossed. My eldest has been at her gran's and my 3 year old with her childminder so far this week, but thursday and friday they're both back here (plus my mum), so I'm hoping we can manage to do something fun together before I go back to the zombie mum mode next week (my second cycle is the 16th as I'm on fortnightly).

 

Just hoping that I can adjust my meds a bit to get something for my heartburn which has been utterly horrendous and waking me at night, but hoping that maybe this is going to map out a bit of a pattern for my next cycle.

 

Have started a bit of obsessive cleaning and sorting...determined to marie kondo my house during this process! Also, MY GOODNESS, the hunger! 

 

Feels an awful long way to go still, but happy to be feeling a little more positive today 🙂 Big love to you all x

 

 

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Re: August 2019 Chemo Starters

Hi Spottycotty,

 

All the best with your first session - I’ll be thinking of you.  I had my chemo pre-assessment today, and am feeling nervous about my first session on Wednesday, but I will be glad just to get the treatment started.   Like you, I feel fine now and can’t imagine that in two days time the side effects will be kicking in, whatever they are going to be.    I will keep my fingers crossed that everything goes as well as possible for you tomorrow.

 

Blackcat x

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Re: August 2019 Chemo Starters

 

I’m having EC then paclitaxel. I’m not going to lie I’m 💩 myself about it but it has to be done so not a lot of choice really 😫 

 

Lisa xxx

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Re: August 2019 Chemo Starters

Well I’ve had a red hot spicy curry with mussels 🤣

Thanks for thinking of me, I’ll keep you posted.

Really good that you’ve now got a date to focus on and try to prepare yourself then, how are you feeling about it?

Do you know what drugs you are having then??

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Re: August 2019 Chemo Starters

Hi Spottycotty, I had the same chemo as you in Oct'17 and I'm also TN. One thing I found that helped with sickness was to wear travel sick bands whilst I was having chemo and for a few days afterwards. I don't know if it was definitely that which helped, but I wasn't sick at all and barely nauseous. I hope it goes well for you tomorrow x

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Re: August 2019 Chemo Starters

 

Hi spottycotty

 

iv just got my date for mine today. I’m starting it on the 16th. I hope your having lots of nice food and treats tonight before tomorrow! I’ll be thinking of you. Let us know how you get on 

😘😘 

Lisa xxx

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Re: August 2019 Chemo Starters

Well tomorrow is d day, can’t lie, I’m bricking it 🤣🤣🤣

just cant imagine feeling ill by this time tomorrow. 

How are you feeling Blackcat??

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Re: August 2019 Chemo Starters

Hi Becky

 

How are you feeling now after a few days? xx

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Re: August 2019 Chemo Starters

Hi

 

I am also TNBC - picked up on screening at the beginning of May, followed by WLE and SNB.  Apparently all contained and removed so I am hopeful that this next bit of treatment will ensure that any potential spread will be sorted.  I am nervous but find the support and solidarity on this forum immensely helpful.  Good luck with your treatment - I am hoping (if that is the right word) to start by the end of August.  Just want to get on with it now. xx

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Re: August 2019 Chemo Starters

I hope to cold cap - its worth a try and I will get a wig in case it doesn't work but I am hoping that thick, coarse hair will stand me in good stead (after all these years of cursing it)!  I too, am TNBC and will be a few weeks behind you on this journey but we will all get through this.

 

I hate the idea of making myself ill but accept that I have to do it.  xx

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Re: August 2019 Chemo Starters

Hi Spottycotty,

 

Nice to meet you - I’m in a very similar position to you, in that I am starting chemo (two rounds of EC, then four of Docetaxel plus Herceptin and Perjeta) next week.  My first session is on Wednesday 7 August, so one day after you.  I was diagnosed with HER2+ breast cancer in early June, and will be having neoadjuvant chemo (so the surgery will follow afterwards).  I have decided not to opt for the cold cap, as my oncologist said that the likelihood of success with EC is low.  I went for a wig fitting last week and it was not as bad I had had feared, as I managed to find a wig which is quite like my own hair.  

 

Like you, I am feeling guilty at putting those close to me through this whole process, but it is not our fault that we have been diagnosed with this disease, and so I guess I am just trying to take each step as it comes and do the best I can to get better.   At the moment I am very apprehensive about the side effects of the chemo, and I will be glad to have the first session over just to know what I am going to have to deal with.   

 

I hope that your first session goes well on Tuesday, and look forward to hearing how you got on.  Hopefully we will be able to share experiences and tips!

 

Blackcat x

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Re: August 2019 Chemo Starters

Please cold cap , it is no-where near as awful as it is made out to be. It was easily tolerable for me, yes at the end of each chemo you look like you've just got out of a swimming pool but it's so worth it .Those who persevere do not regret it and it's not just a few who benefit. I've just finished 3 x FEC and 12 x weekly paclitaxel over the past 5 1/2 months and cold capped throughout . I have had thinning on the crown but probably have 80% of my hair remaining and hair loss was a very big issue for me . I didn't start with thick hair.

There's a Paxman (the company that makes the machines) members' group on facebook - if you join it you will see lots of success stories and tips

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Re: August 2019 Chemo Starters

 

Hi spottycotty

 

Sorry that you find yourself on here along with us all. It’s all feeling very surreal for me still but just want to get the chemo started now so I feel like somethings actually happening! I’m sorry you’ll have to put up with me freaking out about every single little thing 😂 I’m hoping you ladies can keep me sane and calm. Some of the lovely ladies that have already been through all this have already been helping me so much with giving me reassurance And help. 

 

Were all here for each other 😘 

Lisa xxx

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Re: August 2019 Chemo Starters

Hi everyone,

 

I’m 45, with 12 year old twins.

I was diagnosed with grade 3 tnbc may 19th.

had lumpectomy with clear nodes and start chemo 6th August.

I too understand the feeling of making yourself ill to get well when I’m fit and active already, very bizarre and frustrating really. 

I’m having 6 rounds, 1 every 3 weeks of FEC then onto docetaxol for the last 3, then 15 radiotherapy sessions.

Im booked in for cold capping but im realistic too, I have fine hair anyway so if I lose 50% I think it will be very noticeable so I’ve ordered my wig and have various scarves on standby, I just feel Ill give it my best shot then what will be will be.

Im quite level headed and taking this all in my stride but I do feel guilty that I’m putting my family through this, does anyone else feel like this??

anyway, nice to meet you all 😀

 

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Community Champion

Re: August 2019 Chemo Starters

Hi remember to book your look good feel better sessions with your local Macmillan centres, they have professionals in to show you how to do your make up to create brows and lashes etc and you also get a goody bag with about £200 of free make up in it 👍💕💕Shi xx