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August 2019 Chemo Starters

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Re: August 2019 Chemo Starters

Morning....spoke to soon, hair shedding 😆

and then, because I probably murdered a frog in another life and need to be punished, I started my period 👍🙄😆

Never mind, can’t tell just yet so I’m off to a bbq with my grilled salmon 😎

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Re: August 2019 Chemo Starters

Hi Spottycotty (and everyone),

 

Good to hear that you enjoyed the rollercoasters without feeling sick, and also without any unexpected hair loss!   I definitely couldn’t have risked going on a rollercoaster over the past few days, as my hair started coming out in handfuls on Friday and today (Day 19) has just about all dropped out.  I was planning to have a headshave at our Cancer Care Centre on Tuesday, but there will be nothing left to shave by then!  I tried out one of my two wigs today for the first time - not the best day to have to do this as it was so hot - and it was OK, so I will venture out of the house with it tomorrow and see how that goes.   Other than the hair loss, I have had a good past few days and have been feeling completely normal.  

 

My next EC chemo is on Wednesday too, so I am also counting down (I have to get bloods done at the hospital on Tuesday).  After a week of feeling full of energy, I am not looking forward to being at the mercy of the side effects again, but on the other hand it will be good to get the second treatment completed.  

 

All the very best for Wednesday, and good luck too to everyone else who is having a treatment in the next few days.  I hope that everyone will also enjoy the Bank Holiday tomorrow!

 

Blackcat xx

 

 

 

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Re: August 2019 Chemo Starters

Hi everyone, 

 

Just checking in, hope everyone is enjoying the bank holiday weather 😎

 

Not much to say really, we went to a theme park Friday and I managed all the rollercoasters without feeling sick 😁 Also, I was slightly worried that my hair might just blow off but fortunately that didn’t happen 🤣

Im now 19 days past 1st chemo so I’ve been expecting the shedding to start from last week really.  I have woken up in the night to check my pillow so it really is on my mind!!

Anyway, everyday is a bonus isn’t it!

 

hope everyone is ok, countdown for number 2 on Wednesday xxxx

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Re: August 2019 Chemo Starters

Thanks very much BOD.  It was great to hear from you, as it sounds as if we're having similar treatments.  My drugs are Ontruzant, Herceptin and 2 types of Zoledronic acid.  I'm seeing the chemo consultant on Wednesday and will ask if she could explain a little more - I'm down for 18 cycles in total, which seems an awful lot, but it's "only" 6 cycles of the chemo.  I haven't had the Zoledronic acid yet as needed to get sign-off from a dentist before they start me on that.  So I go back for the second chemo next Thursday, and assume will be given the Zoledronic acid then.

 

I'm also on steroids the day before, the day of, and the day after treatment.  Then I get a couple of days off and back on steroids for 2 days.  I agree, although my face swelled up on the steroids I did feel much better when taking them.  Then I have to self-inject the drug to help white blood cells for 7 days - not nice, but has to be done!

 

I found Day 10 to be when I started to feel better as well - more energy, less nausea.  And, as you say, diet seems to make a big difference (although I'm either constipated on running to the loo - no happy medium).  It really makes you appreciate how your body copes normally doesn't it?  The hospital are going to change one of my anti-nausea drugs for the next cycle, as I did feel very rough when I ran out of one of the two I was taking (so I think only one was working).

 

I'm pleased to hear you're half way through - I'm looking forward to getting there so that I can start to feel I'm on the downward path!  I hope the rest of your treatment goes well and we can all leave this behind us before too long.  With best wishes, Julie

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Re: August 2019 Chemo Starters

😁wolves girl 👍keep fluids flowing keep taking temp, start watching out for oral thrush, burning pee even with no temp days 7-14 are you nadir days so even with no temp if anything doesn’t feel right phone your unit. Epsom salt baths everyone to deal with bone pain from jabs/t chemo 👍👍it really helps and was a tip passed onto us from May17 thread that looked after us oct17 thread 😘also is your skin drys out and no moisturiser can work get udderly smooth with extra urea from Amazon 👍👍it’s sublime and again another invaluable tip passed to us ❤️❤️💕💕Shi xx

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Re: August 2019 Chemo Starters

Thanks both 

 

So far so good - day 3 today so will be starting the dreaded injections so bit worried about the back pain that may occur. Still, has to be done.  But generally pleasantly surprised that I feel like this - I know the first cycle is the easiest! 

 

I have spent the morning picking plums off our small but prolific tree ready to make into plum gin - should be ready for Christmas!  Now sitting in the shade loving this weather whilst listening to my husband mow the churchyard!

 

Hope you and everyone else are ok and enjoying the sun. Xxxx

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Re: August 2019 Chemo Starters

Hi Wolvesgirl,

 

So glad the treatment went well for you yesterday, and that the cold cap was OK too.  I hope that the nausea and flu-like symptoms will subside very soon.  I think that most of us have had these types of symptoms in the first day or so after the treatment, but then things have got better.  If you find that you are still feeling nauseous as time goes on, it is worth telling your medical team, as they will have a range of medications to help.  My chemo nurse said that they give us the most basic drug to start with as it is all that many people need, but that they can offer other (more expensive) anti-nausea drugs if the first one doesn’t work. 

 

I hope that you will have a good night’s sleep tonight, and that you will enjoy the weekend in the sun!

 

Blackcat xx

 

 

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Re: August 2019 Chemo Starters

 

 

Hi wolvesgirl 

 

So glad your first one is out the way for you! And your not struggling too much with side effects.. hope that continues for you through the week. I’m 1 week post now and feeling pretty much back to myself.. met a friend for coffee and cake this afternoon and now sat in the garden reading a book enjoying this lovely weather. Hope your still feeling ok and enjoy the weekend as much as you can. 

 

Lisa xxx

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Re: August 2019 Chemo Starters

Morning everyone

Thanks again for all your good wishes before yesterday and Monty, I am looking forward to waking up one day next week feeling bouncy!  Yesterday, as you all predicted, went well.  The unit were amazing - so kind and intuitive - the cold cap was actually not bad at all, I certainly would not say it was painful.  The worst thing is its like talking with a pair of earplugs in so I was worried I was shouting!  A really good friend (one of the two I have told) works at the hospital and popped down and took the mickey out of me which helped.

 

The side effects (so far) are manageable - low level nausea is the worst thing at the moment but I am taking everything I have been given and its a bit better today than it was last night.  I woke up hot in the night but that could just be because the room was warm - my temp is normal this morning.  I would describe how I feel as recovering from flu if any of you have experienced that!  Here's hoping that this is the worst I will feel and that every day it will improve.  

 

I hope you are all continuing to do well on the different places on the pathway you are all on - I must admit, during the night I thought it was pretty daunting to consider another five cycles of feeling like that but I tell myself it is worth it!   Have a lovely weekend - the forecast is great for us all I think.  xxxxxx

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Re: August 2019 Chemo Starters

 

Hi JulieME

My original diagnosis was a mirror image of yours. I also am Her2+. I am currently halfway through my pre surgery treaty of  Herceptin, Perjeta, Taxotere and Carboplatin. 

I have steroids the day before treatment for 3 days. I have loads of energy then when I finish the steroids I go very flat and tired. I  manage to go walking everyday as that does lift my tiredness briefly. I have 5 days of injections to target white blood cells. Then on about day 10 I start getting more energy back. My body’s fighting back. 

Also my motions vary between constipation and diarrhoea so I try to manage that through diet ( not always successfully). Lots of vegetables, chicken and fish.

Yesterday following a family get together where I ate beef burgers. chips etc and very little veg I spent a great deal of the night with the trots. Back to simple fair for me. Also the day before chemo I try to keep my food intake light as previous threads have indicated that an empty tummy helps stop the sickness. 

Look at the targeted therapy threads.

Good luck. message me if you want to ask anything else BOD

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Re: August 2019 Chemo Starters

Good Morning,

 

Its a gorgeous morning here in Essex.  I'm not sure where you are all from but hope you have the same glorious weather.

It's really good to hear that the majority of  everyone here this month seem to be doing well.  I started the first of my FEC sessions last Wednesday and feel that I have been so fortunate to have not had many side affects at all. Yesterday I woke up with a real bounce for life and the same today.  I haven't felt this jolly since before diagnosis and surgery in May. It's most Bizarre..  So, I thought I would come back in to the chat room and share the journey with all of you rather than hide behind the front door and lock the world away which I was doing before.

I am also trying the cold cap, so far so good.  I usually wash and blow dry my hair everyday so doing it every few days is a little odd for me.  I had my hair cut form shoulder length hair to a short bob the day before Chemo and when I dry my hair now, I do it at a distance and use the cool/cold setting. 

I read earlier in the Forum that someone was asking for advise on the PICC line covers.  I also ordered some on line and felt they were either too tight or short or loose.  So, I got creative... I ordered some Opaque white Knee high stockings and cut the end off then double folded it.  So smooth and stretchy and stay in place.  Food for thought..  

I was also struggling with the constipation so I spoke to the district nurse, she advised Laxido.. A laxative that finally worked after 5 days  I honestly would recommend this if you can ask you doctor / consultant for a prescription. 

Well, that's my morning blog, now off to do some washing, then open that door to the big lively world and face the supermarket (handbag loaded with Antibacterial gel)

Hope you all have a good day.

Wolvesgirl, wishing you the best for today, you have got this!

 

Monty x 

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Re: August 2019 Chemo Starters

Hi Wolvesgirl,

 

The very best of luck for tomorrow - I’m sure you will be fine.  I’m glad you enjoyed your residential weekend in York, and am interested to hear that you are doing a distance learning degree at the university.  I know it well, as I was a lecturer there for many years before making a career change into the charity sector.  You are right about the hen parties - they seem to be everywhere in our city centre at the moment!   

 

We will all be rooting for you tomorrow, and looking forward to hearing how you got on.  

 

Blackcat xx

 

 

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Re: August 2019 Chemo Starters

Hi Em39

thanks so much for the very supportive message - glad to hear you are feeling so well. Great news about the hair - hope that the next cycle goes as well. Must admit, in a weird way I am quite looking forward to trying the wigs!  Xxx

 

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Re: August 2019 Chemo Starters

Good luck Wolvesgirl, you will be great!!

 

I'm due my next FEC treatment one week tomorrow (on day 13 now)....I cold capped, have a few hairs coming out (a wee clump when I washed on Saturday) but nothing horrendous yet! Got my wig today, its so much nicer than my real hair - so it's ready if and when I need it.  I felt good having it, bit of a weight off my mind as like you lovely ladies, I'm totally paranoid every morning I'll wake up and its all fallen out.

 

Also feeling really quite well....doing lots of usual things (cleaning, running after kids etc.,) and at or around 10,000 steps each day - even ran this mrn with kids to catch school bus lol!!

 

Take care everyone xxx

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Re: August 2019 Chemo Starters

Hi Jencat, 

 

Many thanks xx

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Re: August 2019 Chemo Starters

I hope chemo goes ok for you tomorrow Wolvesgirl x

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Re: August 2019 Chemo Starters

Hi everyone

 

Thanks so much for the messages of support for tomorrow - I really appreciate it.  I am so pleased that everyone seems to be feeling as ok as can be expected given where they are in the cycle and are getting on with life. Particularly good to hear that week three is pretty much normal.  I am hopeful to make it to the gym in week three of each cycle even if its just to do some gentle exercise - its seeing everyone that will be nice.  I did my usual double hit today which was great but accept that might not be a good option for a while.

 

I went for the pre admission thing this morning - it was actually good with a film made by the unit which was informative and then a 1:1 with a lovely staff nurse who was great.  I am feeling OK about it at the moment - I have been given some antiemetic to take tomorrow before I go in and then will get all the other medication that you will all know about.  I am drinking two litres of water a day - bit of a shock for my kidneys which haven't had to work so hard for years!  

 

Spottycotty - I am cold capping too so will be interested in comparing notes in hair loss.  I am a bit worried as I have not been back to the supplier to try on the wigs I ordered - I am going to ring again on Tuesday and even if they have not all arrived (only three have) I think I will go in as I don't want to be caught without one if the worst happens.  

 

Blackcat - how lovely to live in York - I visited there at the end of July as I am doing a distance learning Post Grad Diploma (hopefully to become a Masters) at the university and we had our residential weekend.  It is a lovely place despite the hen parties (!).  I am in Shropshire near Shrewsbury.  

 

Lisaloo - glad you are getting those bowels sorted - it is incredibly debilitating to be constipated!  Not entirely sure I will have that problem!! Slightly too much information from me probably.

 

SB1610 - thanks for the suggestion re the pillow - I am so committed to keeping my hair, I am buying everything people suggest. 

 

All - thanks again for the good wishes - will let you know how it goes. xxxxx

 

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Re: August 2019 Chemo Starters

Hello all

You all seem to be doing incredibly well.

Just wanted to share another few tips with you. A silk pillowcase is useful as it won't pull on your hair - you'll just glide over it. I got mine from Debenhams as a gift from friends but at £50 it was eye wateringly expensive - Amazon has cheaper options.

Also think about investing in some soft cotton sleep caps - again Amazon has loads of different colours. As I lost my hair my head got really cold so I need to have something on my head whilst I slept- it will also capture hairs whilst you are sleeping so you won't wake-up to a bed full of hair which can be upsetting. For those of you cold capping it will also help prevent pull on your hair especially when combined with a silk pillowcase.

 

Good luck all - thinking of you

Sue xx

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Re: August 2019 Chemo Starters

Blackcat...mine 2nd is next Wednesday too,  I’m  also not too far from you as I’m in Hull 😊

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Re: August 2019 Chemo Starters

 

 

Morning ladies 

 

I’m 5 days post EC now and still feeling relatively ok. No more sickness since first night. Just feeling very tired and a little spaced out at times so resting when I feel I need to. I Got some fibrogel and having bran flakes for brekki in hope to sort my constipation out 😆 there’s been a bit of movement so hopefully getting there 😂🙈 I’m not far away from you Blackcat just an hour up the road in Darlington. Wolvesgirl good luck for tomorrow, I’ll be thinking of you. Please let us know how you get on. 

Big hugs xxx

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Re: August 2019 Chemo Starters

Morning everyone,

 

It’s a lovely sunny day here (York), and I hope that it’s the same where you all are.  Like Spottycotty, I’m in the better part of the treatment cycle now, and feeling well.  For the last couple of days I have actually had quite a lot of energy, and am back to cooking and eating normally as all the strange tastebud changes have gone.  My second EC treatment is a week today, so I am making the most of these few days of freedom before it all starts again.  My hair is hanging on in there - I am losing a few hairs every day, but no major fallout yet (Day 15), although I am sure it is imminent. 

 

Good luck Wolvesgirl for tomorrow - we will be thinking of you and cheering you on.  I hope everyone has a good day today.

 

Blackcat xx

 

 

 

 

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Re: August 2019 Chemo Starters

Becky, how are you doing with your hair situation??

I am cold capping and I’m 13 days post 1st chemo so getting a bit nervous when I wake up each morning to be honest!!!

Have you come to terms with it now...how did you feel??

Hope you don’t mind me asking 😬

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Re: August 2019 Chemo Starters

Hi there everyone,

 

Glad to see everyone is as ok as we can be, I feel like I’m back to normal now and have been for the past week really. I reckon I could’ve managed the gym if the children were at school!!

Going to make the most of this week while I can before the next round.

 

Wolvesgirl, good luck for tomorrow, I now how you’re feeling, the anticipation is just the worst!

You’ll be fine and the nurses will soon put you at ease, looking forward to hear how you get on xxxxx

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Re: August 2019 Chemo Starters

Wolvesgirl 💪💪💪it’s a bit like doing that zip wire ever 3 weeks, 1st one you are wearing full combat gear, 2nd one you’ll put a pink top on, 3rd one you’ll get some glittery hot pants on, 4th one you’ll be in your choose life t-shirt, 5th one you’ll be signing karma chameleon on the way Dow and 6th one you’ll be screaming yehhhh wheeeee whoooopp whoooppp and ringing the ding ding out the bell at the end 💪💪💪keep the fluids flowing, keep check on temp, your team and rapid response are you bat phone and must be used as many time as you want, you bccf and all us here 👭😁👭and just you wait till your nose hair goes, it’s the oddest look 🤣😂🤣but I still have to 😁when one of the May17 girls thought Greg Wallace was peering in her kitchen window and it was her own reflection, she posted about it laughing her head off 😂🤣😂🤣keep 😁😁😁💕💕Shi xx

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Re: August 2019 Chemo Starters

Hi Bob123,

Your story is VERY similar to mine:

I too had a mastectomy in May for extensive


@Bob123 wrote:

Hi All

I’m brand new to the forum and looking for others who have just started chemo. I was diagnosed with high grade, extensive DCIS and had a total mastectomy and tram flap reconstruction in May my DCIS had become invasive and was Her2 + so I started chemo yesterday; 12 weekly sessions of  paclitaxel and 3 weekly herceptin. Apart from a sleepless night last night I’m feeling ok today.

I’d love to hear from anyone out there who’s in a similar situation or who wants to share the journey with me.

Hope to hear from you soon

Bob 123 xxx



high grade DCIS (but I've gone for tissue expander). Pathology showed I had HER2+ tumour that is now being treated with 12 weekly paclitaxel and herceptin for a year. I had my second paclitaxel last week. Hope your treatment goes well. How have your hips been on it? Mine were a sore for few days with the first but absolute agony for 5 days following my second one. Xx

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Re: August 2019 Chemo Starters

Thanks Lisa for your reassurance

 

I am sure you are right - so many things in life are terrifying until you get on and do them - last year I did the zipwire which I think is the longest in Europe at Zipworld in Snowdonia (its only about an hour and a half from home) with some friends - I genuinely did not think I could do it but once I got going it was fine.  Whilst I am not directly comparing that with chemo it is a similar concept - managing and accepting fear of the unknown.  xxxx

 

 

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Re: August 2019 Chemo Starters

 

So glad you had a nice time away Wolvesgirl. Yes I think your both right with the fybrogel. That’s what I’m thinking it is as it was a firm favourite of my nanas when she had problems 😆 I’ll give it a whirl. 

Wolvesgirl I promise you’ll feel better once your first session is out the way. I was petrified Friday morning but once I was in there and we got started i was ok. I had to be there for 9.45 and I was out about 12.30. It can be longer some days as it depends how busy the nurses are. But once you’ve got your first one out the way you’ll know what to expect next time and feel more settled. 

 

Lisa xxx

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Re: August 2019 Chemo Starters

Hi everyone

I am back from deepest darkest but incredibly lovely north Wales - we had a good break, lots of walking, eating and drinking and it was good to get away.  The cabin we stayed in had a hot tub with views over Snowdonia which was really nice (not really a hot tub fan but this was gorgeous).  So, I have enjoyed catching up with the discussion and have added anti sickness bands to my shopping list - good tip!  Lisaloo - so very pleased that you are not feeling too bad and that apart from one episode of sickness you have generally been OK.  I agree with Blackcat, I think the orange medicine is Fybogel which can be effective if you are having problems with constipation - its quite gentle so doesn't usually have a dramatic effect!  

 

I am getting very anxious now about this week - I almost want to get it out of the way so I know what to expect.  However much information the unit gives you, until it actually happens it doesn't really sink in.  I don't know about all of you but I just feel this is so surreal - I can't believe its happening.  I am sure after my first session on Thursday it will seem all too real!  

 

I really appreciate this forum - its good to hear how you are all doing, what you find helps (and doesn't) and I feel that we are all very supportive of each other.  Its invaluable. Take care all, xxx

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Re: August 2019 Chemo Starters

Hi Lisaloo,

 

Sorry to hear about the digestive slowdown.  I wonder if the orange powder is Fybogel?  I was advised to buy it in advance by the chemo nurse (also Imodium in case of the opposite problem), but I haven’t had to use either of them so far.  In order to try to keep things moving the natural way, I have been eating about 6 dried prunes plus 6 dried apricots every evening since just before the start of treatment, and this has worked.  I also have a bowl of bran flakes every morning, together with a separate small bowl of pineapple, which may be helping too.  The chemo nurse recommended pineapple to help avoid mouth problems (ulcers), as it has a compound in it which helps to keep the tissues of the mouth healthy.  I bought a few bags of frozen pineapple fingers and put some in the fridge to defrost overnight to have in the morning.   It is delicious, and so far I have managed to avoid getting any mouth problems too.

 

I hope that the problem resolves itself soon, and that things start moving.

 

Blackcat xx

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Re: August 2019 Chemo Starters

 

 

Hi ladies 

 

Thank you for popping on here and giving us some tips! I think I no the orange drink your in about 😆 I’ll definitely mention it next time. I’m eating an orange a day but nothings happening 🙈 might get some prune juice today to see if that helps. 

Iv also heard of the legs raised thing too so I’ll give that ago too.. anything’s worth a try! 

 

Thanks again ladies. 

Lisa xxx

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Re: August 2019 Chemo Starters

Hi lisaloo

I started EC in Aug 2018 and like you struggled with the no2s. Tell them at ur next appointment and they should give you some stuff to help - I had an orange flavoured powder to mix into water ( can't remember what is called - great example of chemo / menopause brain 😁) and took it three times a day after my infusion - I found taking it before I needed to helped a bit). Meanwhile a tip I was given was to raise my knees whilst sat on the loo. I used to stick a couple of thick books under my feet (encyclopedia type thick). This did help so worth a try.

Good luck

 

Sue xx

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Re: August 2019 Chemo Starters

Hi everyone 

 

Just popped from the February group and noticed a post about PICC line covers. I found Annabandana on-line and bought several, very reasonably priced - less than £3 -  ones from them. They sell them in 3 different sizes in a large variety of colours and patterns. Some even have matching bandana scarves. I've been wearing them since February and they will definitely take me through to late September when Klingon the PICC line is taken out. I'm on a trial, chemo, surgery, chemo, rads hence the reason for PICC line being in place for such a long time. 

While I'm here one thing I've found useful is to not only have an overnight  bag packed for any unexpected hospital admissions but I also had a dedicated bag for routine hospital appointments, scans, onco, chemo, etc. All I needed to do prior to each appointment was to pop in my purse and my phone and I was/am ready to go.  Especially helpful when going to hospital every week for PICC line care on top of everything else. xx

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Re: August 2019 Chemo Starters

 

Hi Becki

 

Good to hear your your not feeling as bad as after your first EC. I’m now day 3 post EC and apart from being sick on Friday night Iv haven't felt too bad so far. I felt a bit achy and mega tired yesterday so just had a day of chilling out watching four in a bed and come dine with me 😆 I don’t actually feel too bad this morning either although I haven’t actually rolled myself out of bed yet so that might change once I’m up and about. Iv definitely not lost my appetite and making sure I drink plenty of water and eat lots of fruit and veg. My mum and dad have bought me a soup maker so I’m looking forward to trying that out today. I am however the opposite to you and struggling to with the number 2’s 💩😬 

 

hope your feeling a bit better today. 

Big hugs to all 

Lisa xxx

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Re: August 2019 Chemo Starters

Hi EM39,

I bought my travel sickness bands from my local chemist x

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Re: August 2019 Chemo Starters


@Bob123 wrote:

Hi All

Hope you’re all feeling ok today.

I just wondered if anyone has had any success with PICC line covers? I’ve got 2 from annabandana that get baggy and fall down my arm and 2 from piccme that roll down 🤪 any suggestions would be greatly received.

Good luck for tomorrow Lisaloo, I’m sure you’ll smash it. I’m in for my second weekly chemo tomorrow, fingers crossed it goes as smoothly as last week.

Take care everyone

Bob xx


Hey Bob - just a picc line cover note - I bought a couple from etsy and eBay but they haven't been great TBH, the only ones that seem to be the right tightness and length are the ones I made myself from some old fishnet glittery tights! They look pretty good too and I used the whole leg and then double rolled them up. From afar apparently they look like an iPhone jogging cover 🙂 I might pop to primark for some more tights and make some in different colours. 

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Re: August 2019 Chemo Starters


@Blackcat wrote:

Hi EM39,

 

Mine are Sea Bands nausea relief acupressure wrist bands, and cost about £6-7 from Amazon.  Obviously other brands/retailers are available!  Mine are comfortable to wear and seem very robust.  I was quite sceptical before I bought them about whether they would work, but they definitely make a difference for me.  


Blackcat xx


Definitely going to try these too! Thanks for the tip

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Re: August 2019 Chemo Starters

Hi All,

 

Sorry haven't checked in here for a week or so, but I've had a good read through and hello again to you all! I'm now on day 3 after my second EC, and like last time, this day seems to be my total knock-out day, all I'm really capable of is telly and slobbery! But I wasn't anywhere near as bad this time straight after treatment or yesterday though, so I'm wondering if it's the first filgastrim injection that has toppled me over!  Anyhoo, yesterday I awoke to hair shedding EVERYWHERE (I'm not cold-capping, and this was exactly 16 days after my first treatment) so I made it up the road for buzz cut from my local hairdressers (which whilst I'm not exactly rocking, it's not as bad as I feared!), and today am lying in bed watching telly in full make-up and my most glamorous wig and turban combi to try and make myself feeling a bit zazzy today...

 

Anyhoo, I had a pretty rough ride for the first week last time - lots of heartburn, diarrhoea and general exhaustedness, but my meds have been tweaked a bit this time (omeprazole has done wonders for the heartburn - which I never realised could be so painful!) so I'm hoping it won't be such a tough week this time... But if it is, I'm much more confident it won't last, as I'm really happy to report that in week two I felt almost fully back to my normal self! We even booked a spontaneous air b n b in Margate, had a rainy day on the beach with my 3 and 6 year old, and made it out for dinner in the evening, and in week two nearly got my 10,000 steps each day! So the fear is a bit less this time, and just trying to sit it out through the crappy days and then I'm hoping next week I can do a bit of work, see some friends and do a little bit of living, all fingers crossed the pattern remains the same. 2 more fortnightly EC to go and then 12 weekly pac, boy oh boy, it's still a long path ahead! 

 

Hating today leaving my husband to do all parenting whilst I'm drooping away upstairs, but he's doing wonders, I owe him a MASSIVE celebration next year for his 40th birthday and our 10th wedding anniversary once through all of this, having some fun doing some mental planning for a better 2020!

 

Sending you all love and strength 🙂

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Re: August 2019 Chemo Starters

Hi EM39,

 

Mine are Sea Bands nausea relief acupressure wrist bands, and cost about £6-7 from Amazon.  Obviously other brands/retailers are available!  Mine are comfortable to wear and seem very robust.  I was quite sceptical before I bought them about whether they would work, but they definitely make a difference for me.  


Blackcat xx

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Re: August 2019 Chemo Starters

Mrn ladies, I’ve just looked online for travel sickness bands....so so many, is there any particular ones you would recommend? I’m definitely getting them for my next cycle 👍👍 thanks xxx

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Re: August 2019 Chemo Starters

Hi all,

 

I’m another fan of the anti-sickness bands.  I wore them throughout my first treatment and in the days afterwards, and found that they had a better effect on the queasy/nauseous feeling than the pills I had been prescribed to take if necessary after the steroids had finished (metaclopramide - I only took one of these, but found the bands were better, for whatever reason).

 

I also found that eating a couple of mini breadsticks really helped if I ever felt a bit nauseous, and seemed to settle my stomach from any churning feelings.   

 

Blackcat xx

 

 

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Re: August 2019 Chemo Starters

👏👏👏lisaloo, don’t forget to let your units know if your antisickness meds don’t work all of you, they will tweak them till they find right combo for you, you don’t need to try and cope with sickness. Keep the water flowing as you are and rest and sleep as your body tells you 😘😘💕💕Shi xx

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Re: August 2019 Chemo Starters

 

Hi Monty

 

Yes I’m definitely going to give them a go and I’m making the most of feeling ok while I can. I’m even just about to pop to the local supermarket with my daughter. I’m not being complacent though im just trying to do “normal things” just waiting for the side effects to kick in. I’m taking my temp regularly and drinking plenty of water (which I do anyway to be honest so not finding a struggle) trying to pack myself with lots of fruit and veg also. 

It’ll do you good to try and get out in the fresh air if your feeling up to it monty.. I don’t know where abouts you are but it’s a lovely day here today. 

 

Hope you have as good a day as possible.

 

Lisa xxx

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Re: August 2019 Chemo Starters

Hi Lisa, 

 

hlad you managed to Get to get some sleep and you seem to be doing well so far. I haven’t taken my sickness bands of for more than an hour each time (when showering) otherwise I sleep in them aswell. Worth a go. 

 

I suspect the fresh air with do you good when your feeling strong enough to take your dog out. I haven’t been out of the house since my first FEC Chemo on Wednesday soo I’m going to give it a go after some brunch (still in bed as didn’t manage to get to sleep until 4am (ish). 

Hope you and everyone else in this forum has a day of feeling normal (as we know it ) with minimal side effects. Xx

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Re: August 2019 Chemo Starters

 

Morning ladies 

 

oh I think I’ll give the travel sickness bands a try! I felt ok after my first Ec yesterday until about 5pm when I started to feel really nauseous.. then was sick about 7.30. Nothing since though so fingers crossed 🤞🏽. Iv actually slept ok too apart from up a couple of times weeing because of all the water Iv drank. Don’t feel too bad this morning although I’m still laid in bed at the minute. Going to attempt to take the dog out for a little walk once Iv had some breakfast. 

 

Hope everyones as well as can be expected. 

Lisa xxx

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Re: August 2019 Chemo Starters

Very true Spottycotty! Smiley HappySmiley Happy

As you say, the bands working might be a coincidence, but l didn't want to risk it either! x

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Re: August 2019 Chemo Starters

My friend sent me some travel sickness bands actually, I did start to feel better when I used them, not sure if it’s coincidence or not but I was nervous to take them off too!!

Bit like using anti wrinkle cream, we’ll never really know if it works will we but it makes us feel better 🤣

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Re: August 2019 Chemo Starters

I hope they work for you JulieME, they're definitely worth a try. I used to be nervous to take them off, so probably kept them on longer than I needed to! xx

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Re: August 2019 Chemo Starters

Thank you Jencat - I'll definitely give the travel sickness bands a try.  xx

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Re: August 2019 Chemo Starters

Thank you BOD

That does sound like a long road but, as you say, it will be worth it in the end.  Thank you for letting me know how it's affected you each time, and I hope the 3rd cycle this week was OK... and you're not suffering too much now.

I too am eating as healthily as I can - lots of fruit and veg, but have found I can only manage white bread which I don't usually like at all.  It's the days when everything makes me feel nauseous that are difficult because even a banana refused to stay put recently.

 

I think I'll get some Lucozade sport (thanks for the tip) - can't hurt to try, and my dog might appreciate a slightly faster walk than he's been getting recently!  I wasn't able to take him for a couple of days, but family stepped in so he didn't miss out.  It's the perfect reason to get out in the fresh air, which as you say definitely makes me feel better.

 

This forum is great for stopping us feeling alone, and I'm sure I'll be looking at it often.  With very best wishes, xx

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Re: August 2019 Chemo Starters

Just to add to Monty19's comment about the travel sickness bands. I wore them when I had chemo in Oct'17 and I wasn't sick at all. I used to wear them whilst I was having chemo and then for a few days afterwards until I'd finished taking the anti-sickness tablets. I don't know if it was the bands that made the difference with me, but they're definitely worth a try x