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August 2019 Chemo Starters

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Re: August 2019 Chemo Starters

Hi All,

 

Another newbie here - I had my first chemo this morning so just made it to the August group 🙂 Writing this slightly whoozy in my bed, as it feels like the side effects are just kicking in, currently feeling as if I have I downed an inadvisable number of gin and tonics over lunch time - head is a bit fuzzy, a little touch of nausea and everything is a wee bit slow and befuddled. 

 

I was diagnosed in April with hormone positive lobular cancer, had a mastectomy and immediate implant reconstruction in May, and they found macromets in a node, so this was followed by full node clearance at the end of June. Luckily other nodes were clear - I was borderline for chemo and they had discussed the Optima trial (the tumour would be sent for the Prosigna test to determine likely benefit of chemo) with me before realising I was too young (to go on the trial you need to be over 40 and I'm 36), so after getting my CT scan results this Tuesday (full body scan was clear) it was full steam ahead today! I'm on accelerated EC, so 4 fortnightly doses, and then 12 weekly paclitaxel, so feels a long old slog ahead, but I'm pleased to be onto this phase and cracking on with it now, and hoping I get through without too many delays so I'm done for Christmas. 

 

All feels a real unknown about how my body will cope at the moment - cancer aside (ha!) I'm fit and well, and I've gotta say it feels very alien to be subjecting my body to something that will make it feel ill, as aside from the obvious physical after affects of surgery and being pretty generally anxious, I've been quite 'well' through this process so far. I have two young daughters (3 and 6) so home life is hectic. Work wise, I'm a self-employed storyteller and musician running workshops and groups for families, so I've had to take a few months off already and dep out my work (I've done odd sessions when I can). I'm working on some recording and digital content whilst I'm off regular work, but I'm hoping on better days I might be able to do some sessions, but just trying to take it day by day. Finances aside, it's so frustrating to be forced away from the job I love and business I've built up, but I think I will approach things differently (in a positive way!) when I go back rather than rushing back at full pelt. 

 

Oh, and I went for the big hair chop yesterday and am not cold capping (my raggedy mum hair wasn't really my crowning glory, and I figured I'd get very frustrated not being able to style, and a wee bit obsessive about watching for shedding, so going to embrace the wigs, scarves and bald look for a while) so will be watching my head with interest and go for the full shave. Quite enjoying my funky short 'do in the interim though!  

 

Sorry, this was a mega post 🙂 Look forward to meet you all on here, good luck and love to everyone 

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Community Champion
Community Champion

Re: August 2019 Chemo Starters

Hi wolves girl ❤️Glad you’ve found the thread ok 👍just need lisaloo79 to climb on board the chemo cruise ship 🚢 as you all set sail in August ❤️❤️ Take notes at your meeting and have questions ready at each appointment. Take your temperatures regularly during chemo and drink at least 8 glasses of water a day too 👍 If your antisickness meds don’t work ring your units you should get a rapid response card so you are seen within an hour during chemo 👍 always ring your units for anything during chemo, they want to keep you safe 👍if your pee burns but no temperature ring them, it’ll be a uti and will need treating ASAP. See your dentists before starting, oral hygiene is very important during chemo. You get lots of ❤️👭on here 💕💕Shi xx

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Re: August 2019 Chemo Starters

Hi

I have joined this thread as I might be starting chemo in late August or early September.  I was recalled from screening at the beginning of May.  To all intents it was DCIS but on histology showed a small (11mm) Grade 3 in the middle of it.  I found out today that nodes were clear so am hopeful that it has all been removed.  Sadly it is TNBC so only chemo and radiotherapy as treatment options but I remain positive that this will work given that it seems to have been caught early.  It has been a long three months but the care I have had is excellent.  Just need to get on with this now and get this thing sorted.  Hope that we will be able to support each other through this challenging time. xx

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Re: August 2019 Chemo Starters

Hi everyone

 

I’m new here too - I was diagnosed with HER2+ breast cancer three weeks ago, and will be having neo-adjuvant chemotherapy (two cycles of EC then four of docetaxel plus Herceptin and Perjeta, I think) before surgery.  I just received the date for my first chemo session today, and it will be a week today (Wed 7 August, with the pre-assessment on Mon 5 August).  I am glad finally to have a date for treatment to start after days of waiting for scans/tests and results, but I am terrified at the same time!  I am trying to be prepared (deep cleaning the house, freezing some home-made soups, and buying an ear thermometer plus lots of supplies to help with side effects as suggested on the forum threads), but it is all so unknown and I feel out of my depth.  My job is in the health sector and involves lots of public contact, long-distance travel and working with patients in GP clinics/hospitals, so my oncologist has said I cannot work at all during treatment due to the danger of infection.  This is getting me down, as I know that I will really miss my work and the feeling of being useful.  I also live on my own (although luckily only 4 minutes walk from the  hospital where I will have treatment), so I am worried about how I will cope with the side effects if they are really bad.  I do have good help from friends and neighbours, but they all work so are not available all the time.

 

It would be great to link up with others who are also about to start chemo, and hopefully we can support each other and share experiences as we go through the next few weeks!  I know it will be challenging, but I am sure we can do it!

 

Blackcat

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Re: August 2019 Chemo Starters

Hi New here not sure how it works...I had my mastectomy in June and lymph node surgery July I was offered chemo and due to start.. in few weeks...which I’m unsure of as I was told it was my decision to take treatment 

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Community Manager

Re: August 2019 Chemo Starters

Hi @Mai7 

 

Thank you for getting in touch. I am sorry you've not yet had a response to your comment. I'm sure someone will be along shortly to continue the conversation. 

 

Kind regards,

Shareena 

Social Media Officer

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Community Champion

August 2019 Chemo Starters

This thread is for anyone due to start chemotherapy in August 2019.  Others will be here soon but please come on here and introduce yourself and you can all help one another through this phase of your treatment.  If you have any questions please post away on here and others in the community will watch over you whilst you are getting started.  Once you are into it you'll be pretty good at helping each other.  You can also ask the nurses on this forum if you have any concerns.  In the meantime, the top tip is always to stay well hydrated throughout chemo, aiming for 2 litres of water per day.

 

Here is the BCC guide on chemo:

https://www.breastcancercare.org.uk/information-support/facing-breast-cancer/going-through-treatment...

 

I finished my chemo over a year ago and doing very well again now.  Here is my story which has some chemo tips on how I coped which were collectively shared from others who had gone through the same from this forum: http://lifeafterlola.com/

 

Best wishes xx