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August 2021 Chemo Starters

HighlandGirl
Member

Re: August 2021 Chemo Starters

I got given some soup, a sandwich and a yoghurt for lunch, but I did check beforehand and had taken snacks just in case! They were also really good at bringing tea and coffee throughout.

I do hope it goes well for you on Monday. I'm now on day 3 and have been out for a short walk this morning and am going out for lunch with friends. I haven't had any sickness issues and the tablets they gave me to bring home have been great. I don't have much appitite and haven't slept well but still felling pretty good despite all that.

 

All the best and let us know how you get on on Monday. 

Tizzy
Member

Re: August 2021 Chemo Starters

Hi ladies

Well I've come to join the group as I start chemo this month. I had my excision on 2 July and the operation went well and my lymph nodes were clear, which is great, but as I'm Her2 Positive I have to have chemo before radiotherapy.

I've had a phone oncology appointment and now I'm going in for my pre-chemo appointment on 19 Aug, then bloods and covid swab and then an appointment on 23 Aug (my wedding anniversary!), which I think is the actual start. I'm having TCarboH (Docetaxel-Carboplatin-Trastuzumab). The Her2 Positive means I have to have the Trastuzumab, which is the one I'm most worried about. Is anyone else on here having similar. I know we will all have our own journeys, but I just wonder if anyone else is having the works like me? 

No doubt I'll be on this group a lot.

Good luck everyone

Tizzy x

SlightlyBewildered
Member

Re: August 2021 Chemo Starters

Morning Everyone

I start x4 rounds of TC chemo this Friday. 
I’ve tried not to read too much as I know it effects people in different ways. 

This is the most scared I’ve been so far though. I’m a single Mum with two teenage sons. The boys are being amazing and I have close friends helping me. Plus my own Mum is coming to look after me for the first few days. I’m mostly worried about the nighttime for some reason! I think potentially feeling really poorly, not being able to sleep etc! I will be super glad to get the first one done as nurse said that should give me a general idea of how the others will pan out. 


I’m going to try the cold cap. I have a couple of friends that have used it successfully. They have given me a list as long as my arm of things to prepare for and to help me get through it! It sounds joyous! 

I’m so glad this little Aug group exists. Thank you xx Horrid that it has to. But for me, having others that are going through similar is really helpful. For info/advice But mostly for the amazing support.

Sending my love to you all. I’ll keep you posted ……. 

Sarah xxx 

MargoB
Member

Re: August 2021 Chemo Starters

Hi 

I am also wondering if you can have someone with you during chemotherapy - the Oncologist did say that you are ok to drive and having chemotherapy doesn't affect you car insurance 

Xxxx

purpleworld
Member

Re: August 2021 Chemo Starters

Sorry - pressed post before wishing you all the best for your treatment and recovery!!

purpleworld
Member

Re: August 2021 Chemo Starters

Hi HighlandGirl

Thanks for taking the time to reply. After I’d posted the message I then had to go to the hospital for bloods and realised I was right outside the oncology department so went in and asked my questions. Nobody’s allowed with me and I was advised to get lifts as the session on Monday will be five hours!! Hope you don’t mind asking this silly question but I’m there over lunch - do I take a picnic!! 🤣

HighlandGirl
Member

Re: August 2021 Chemo Starters

Hi Purpleworld (what a great name, I also love purple!),

I had my first chemo session yesterday. I wasn't allowed anyone to sit with me, but each hospital will be different so it's worth asking. I'm in Scotland so it might be different if you're in England. I fully recommend someone to drive you home afterwards. Personally I've had a cracking headache ever since and I wouldn't have wanted to drive home alone. Is there anyone who can help you with the boys, at least for a couple of days till you see how you feel? Again everyone is different so I can't say whether you'll cope or not.

Sorry not very helpful but I hope it goes well on Monday. Just keep thinking you'll be one step closer to being healthy again and running around after your boys. Many blessings. 

purpleworld
Member

Re: August 2021 Chemo Starters

Hi all

I start chemo this Monday 9th. Feeling scared about feeling unwell (3 boys at home with me, 1 who has additional needs). Does anyone know if I can take someone to sit with me and if not will I feel ok to drive home after the session. 
Thank you 😊 

HighlandGirl
Member

Re: August 2021 Chemo Starters

Hi MargoB,

My oncologist said to ask my GP for the note. She said anyone going through Chemo is entitled to ask for the whole time off if they want and that the GP shouldn't even question it. That's what I'm going to do but not yet as my company have said I can use all my holiday allowance first as I'll most likely be off for the rest of the year. I only get 6 weeks sick leave on full pay so using holiday will extend the time I can get full pay. I spoke to someone from Macmillan about it and they advised me to do it that way too. 

justine1970
Member

Re: August 2021 Chemo Starters

Hi

I start on 17 August. In prep I have had my teeth cleaned, had my eyebrows micro powdered and am sorting a wig! Not sure about anything else although I am going to batch cook some soups!

 

Kitkat23
Member

Re: August 2021 Chemo Starters

Hi Margo....ask your GP for a fit note.....mine just said ‘how long do you want’ ....I think I had one for 3 months....2 for 2 months and 2 for 1 month.....it was up to me....I didn’t actually speak to the GP ....just asked reception to pass on request....then it was emailed to me .    I had chemo last July to November .... I didn’t want to work during chemo either.....hope you don’t get too many side effects.

MargoB
Member

Re: August 2021 Chemo Starters

Hi 

I'm due to start EC in next 2 weeks haven't got a date yet  - I don't do well on medication and I'm thinking of stopping working till ive finished chemo Who issues the sick note thou ? Is it the hospital or GP and can you get a note to cover the whole 18 weeks ? 

Xxx

MargoB
Member

Re: August 2021 Chemo Starters

Hi 

I'm due to start Chemo this month- is there any advice for things I need to do before I get started x TIA 

Shi
Community Champion
Community Champion

Re: August 2021 Chemo Starters

Sorry you all find yourselves on here ❤️ Step by step together 👭 you will get through. Hang on tight to each other, be kind to yourselves and ask away on here, there are lots who will jump on the threads and help ❤️ Do it your way and what works for you, there are no right or wrongs, getting through safely is what matters ❤️ If your antisickness meds don’t work phone your rapid response number, don’t think oh it Chemo and out up with it, they will tweak your meds till they get combination right for you and mostly they get combination right straight away ❤️ Book yourselves on a look good feel better course at your local Macmillan ❤️ Do read mountain lion by strawberry blonde in hope and inspiration ❤️ It’s helped lots of us over the years. Get thermometer to keep track on your temperature during chemo and phone rapid response to check anything with your teams while on chemo, they want you to do they get you safely through ❤️ I did charts so I could keep check on meds taken during chemo because it can give you chemo brain ❤️ Hope this helps a bit, do ask away ❤️Everyone is here for you and please use all the support Breast Cancer Now has here too. Please look at donating hair to little Princess trust ❤️ Makes wigs for children ❤️ It helped turn a negative of loosing locks into a positive because it was going to help a child ❤️💕💕Shi xx

HighlandGirl
Member

Re: August 2021 Chemo Starters

Hi, I'm due to have my first round of EC next Tuesday. It's all a bit of a whirlwind at the moment and reading all the information about the drugs is a bit overwhelming but I'm ready to get started. I was diagnosed about 6 weeks ago so this is my first step on the treatment plan.

I'm thinking I'll probably stop working till after chemo so Monday will be my last day, which feels a bit weird when I don't even feel sick yet! 

justine1970
Member

Re: August 2021 Chemo Starters

Hi

I am due to start in August however do not have a date as yet.  I have been asked to consider a trial and my plan would be:-

Cycle 1 Day 1 Carboplatin and paclitaxel, Cycle 1 day 8 paclitaxel and Cycle 1 Day 15 Paclitaxel and then same until Cycle 4.  Cycle 5, 6 and 7 is anthracyclines.  There is then 12 days of 2 tablets a day called Olaparib then 6 days off and then back on the 12 days and so on.

I feel super scared and like this is a huge amount of chemo compared to others I have read about.  Really panicking that I will be bed ridden for 6 months.

😞

 

Kelcancer36
Member

Re: August 2021 Chemo Starters

Starting chemo in Aug for breast cancer. Feel like I've dealt with everything this far OK but I'm struggling now, chemo seems so frightening 

Mai7
Community Champion

August 2021 Chemo Starters

Hi 

 

This thread is for anyone due to start chemotherapy this month.  I’m sure others will be here soon but please introduce yourself and you can all help one another through this phase of your treatment.  If you have any questions please post away on here and others in the community will watch over you whilst you are getting started.  Once you are into it you'll be pretty good at helping each other.  You can also ask the nurses on this forum if you have any concerns.  In the meantime, the top tip is always to stay well hydrated throughout chemo, aiming for 2 litres of water per day and get a thermometer and check your temperature every day.

 

Here is the BCN guide on chemo:

https://breastcancernow.org/information-support/facing-breast-cancer/going-through-treatment-breast-...

 

Here are some apps which can help to keep you on track: 

 

https://breastcancernow.org/information-support/support-you/becca

 

https://www.nhs.uk/apps-library/owise-breast-cancer/

 

https://www.careology.health/

 

I finished my chemo in October 2017 and doing very well again now.  Here is my story which has some chemo tips on how I coped which were collectively shared from others who had gone through the same from this forum:

http://lifeafterlola.com/


If you decide to set up a private group its good to stay on here also during treatment as I know from experience there are some people who watch but don't immediately pluck up the courage to join in.  Your conversations can be a real comfort to others.

If you’re new to the forum, here’s the “Getting Started” advice:

 https://forum.breastcancernow.org/t5/How-to-get-started/bd-p/welcomegetstarted