Thanks Gem for your honest post.
Had my second round of chemo this morning, as usually the nurses were fantastic and I will clap for front line workers without a scarf tonight.
I found my lump 27mm totally unexpected my treatment is to shrink first with chemo then surgery then radio. I can feel that my tumour has definatley shrunk which is fantastic.
Getting more used to life with no hair blimey it's cold without it,understand now why my partner always wears a beanie.
Keep well everyone and stay safe.💚
Hi Daisy D,
yes I totally get everything you said...I had long hair too and have had for the past 10 years so it feels tough...also I have bouts of bad skin which has reared it’s head at this time as well as the worst period I’ve ever had 🤦🏻♀️...hoping after cycle 2 tomorrow my period stops!
I’m using the cold cap but I started shedding badly 3/4 days ago...like you I had mine cut into a Bob too...love my wig but need to practise sticking the lace front down and parting it so it feels more ‘me’.
I had surgery first...I found my lump (something/someone told me to check when I was up in the night for a wee) then was referred had a biopsy then lumpectomy and now 6 rounds of chemo then radio...a total shock too.
I'm sorry yours was misdiagnosed first ☹️
I think I’ll shave if mine gets too thin or patchy but we’ll see...if my skin were better that might give me a bit more confidence?!? Maybe...
take good care...and yes...always honest and heart on sleeve...mostly positive but recognising more and more we are allowed our bumps too xx
That was such a honest post. I feel exactly like that . I find it hard to look in the mirror and not see me back . I found getting the wig not as traumatic as i first thought it would be but i dont really like wearing it as feels to hot but getting used to it when i go out. I havent lost all of my hair yet but its very thin . it will be my 10th treatment tomorrow although i had cut in a short bob back in January. Ive always had long blonde hair for years! My children had never seen me with short hair ! I just think how hard it is loosing your hair and it worried me a lot. I just didnt want to look ill either.
It so difficult to take in from diagnosis and if like me my emotions are all over the place.
Are you having chemo treatment prior to surgery ? Im having chemo to try to shrink tumour prior to surgery. Mine was a shock as misdiagnosed for 3months as chostocondrotis its was only by chance referred to Breast clinic . Didnt really have time to process or ask enough questions but just keep plodding onwards and upwards through treatment each week.
Gem333 ❤️ Step by step and one day at a time ❤️ I had a silk pillowcase more gentle on scalp and the beauty despite cancer scalp care kit, if you are lucky you might keep your hair like jaybro 👍 you always do what’s right for you, everyone has their own journey ❤️ We just try and help with any tips and our own experience of the journey we had ❤️ I had some great wigs off amazon, coloured bobs, tinsel wigs the lot 😁😁 the chemo steroids made my shopping finger go crazy 🤭 there are some good videos online of how to do scarves for your head too if you want to try and think some people had a soft sleep cap off amazon too ❤️ There are some good online makeup tutorials too, a lady with alopecia did some really good ones for faking eyelashes and eyebrows, but again you could be lucky like jaybro and keep them, everyone is different ❤️ 💕💕✨✨Shi xx
it’s not a downer of a message - it’s honest and vulnerable.
I don’t think anything prepares most of us...even digging deep and reminding myself I’m more than my physical appearance it’s not easy is it...in fact that is a total understatement, it is very tough, very. I see it a bit like a grief...having to lose something that helps us feel like ‘us’ and attachment to ourselves as we were.
there’s so little time between diagnosis, treatment, surgery that there isn’t much processing time is there...no wonder we’re feeling a bit all over the place.
Shaving my head is also something I’m currently considering and it’s not easy...I know people might say it’s only hair...it’ll grow back but it doesn’t feel that way...
I ordered a wig from Mila on amazon...they take a while to arrive but it’s my current back up plan if I have to shave - the other is to put my makeup on every day and to do things/distract myself with ‘me’ things so I don’t dwell too much on not feeling good enough which I’ve struggled with most of my life (in terms of physical appearance).
i don’t think there’s an easy answer to any of this as it’s not an easy time and it’s not made easier due to current circumstances.
All I can say is massive hugs...I get it...I’m with you in the fear and wish things weren’t this way.
For myself (as I said) I’m recognising it’s a grief, a loss and all I can do is try to deal with each moment (happy or sad...or however I need the feel in that moment) and know that if I’m sad I’ll again feel ok enough...
Interesting how we all seem to get different information, Vornsta. I was advised to leave my head alone. Initially I spread Simple Shampoo over it without any rubbing, rinsed it off and did the same with conditioner. Eventually, I didn’t bother with the shampoo - I just let the hot water shower down on me and then put some conditioner on. Maybe not rubbing or brushing is why I kept quite a lot of it. I have thick shortish hair now and maybe use shampoo 2-3 times a month. I always use conditioner tho.
Keep safe everyone and good luck to you xx
I was advised to keep my bald head gently exfoliated to prevent chemo curls - only just shaved myself so not sure if is true but I will try it. Go well ❤️
Thank you both for the great tips.
Shi I did put some make up on beforehand and agree it did help.❤
Jaybro thanks I went for a no.3 in the end to help me adjust from long thick hair to minimal hair. If I then need to shave it off it won't be such a shock.
Don't have a wig yet but am becoming obsessed with scarves.❤
Keep well and stay safe 🌈☺
I didn’t go for a shave. I had a no 6 and absolutely loved it. There’s a picture of me grinning like mad because I hadn’t realised what a beautiful-shaped head I had! You never know, you may like what you see. And if you don’t, presumably you have a good wig by now (I only wore mine about 5 times). It’s the hair falling out that undermines, I believe. I confess I was unmanned by the loss of eyelashes but stubborn ones, like in my eyebrows and my head, stayed on to the end. And I still put mascara on them, even when I was down to 5 lashes in total. Thicker-framed glasses helped me.
I also felt infantilised by the loss of pubic hair but found that more amusing than upsetting.
In answer to your question, radiotherapy doesn’t affect your hair. It will start regrowing once the effects of the last chemo wear off, maybe three weeks. I felt a thick stubble of lashes that were totally invisible but my heart soared. They grew fast and thick and then fell out as a fresh growth came along. Head hair will grow either at its usual rate or a little faster and it probably will be thick and incredibly soft. I would stroke my head, like stroking a pet! Then come the chemo curls. No matter how straight your hair, initially it’s likely to grow in whatever direction it chooses and it may be a different colour too - some find it’s a lot darker, some lose white hair to steel grey... A good cut will keep it under control till the curls grow out.
I just would like to say that one of the most beautiful women I know is suffering with secondary cancer in her early 30s. She is completely bald and accentuates that. She positively glows with energy (I was like a zombie during chemo) and optimism. There’s something inside her, besides the cancer, that makes you want to smile. I felt and looked like s*** but I really didn’t care. Maybe both approaches work. I hope you find an approach that helps you accept the inevitable and go with the flow. Emotional health is as important as physical health at this stage of treatment.
Take care xx
Sparkle54 ❤️ Get a bit of make up on before your daughter shaved your hair ❤️ It does make a difference ❤️I shaved mine without my face on and felt better when I’d put my face on ❤️ Sending you 👭💪💪 it’s a hurdle that you will get over in your own way and in your own time ❤️ Do what’s right for you ❤️ It can be tough to not recognise yourself in the mirror, it was hard for me and I’m sure others found it hard too but look deep into your eyes when you look in their mirror, you are still there ❤️ You are amazing and beautiful and I just thought of it like a catapillar going into chrysalis phase before coming back out as butterfly once chemo was finished ❤️I don’t know if this helps ❤️ I am sending you big ❤️❤️ Lots of ✨✨✨✨ for tomorrow 😘💕💕✨✨Shi xx
Hope your enjoying the weekend and especially the glorious weather,Bristol has been basking in sunshine for a week or so now.
Tomorrow my daughter is going to shave my few remaining bits of hair off. Knowing this was an inevitability doesn't make it any easier and I am freaking out inside.
I've suffered with body image issues for over 40 years and strangely it's only since being diagnosed with breast cancer last month and having the numerous scans and examinations that I have had to talk about it which has helped. I am anxious that losing my remaining hair may put me back to where I was before.
My treatment p!man is chemo 6 cycles of which number 2 is on the 16th then surgery,then radio therapy.
Does anyone know if my hair starts growing back after chemo ends will I lose it again when I have radiotherapy?
Sorry this is a bit of a downer of a post, I have been staying really upbeat and positive up to this point.
On the plus side I left some of my hair around the garden for the birds to use in their nests.
Anyway stay safe everyone.🌞❤