CBD oil to help with cancer

[MsGooner]

Hi

My sister has recently been diagnosed with HR2 breast cancer.  In the past I have read many blogs about CBD Oil and have been looking into this for her.

Does anyone have views on how CBD can work with HR2 and if you can use iit alongside Chemo (which she starts next Tuesday).

If anyone knows of places to purchase, or indeed where to look to purchase this, i would be really very grateful.

Thanks

[Daisyboo]

Hi I am 36 years old. I was diagnosed with grade 1 bc last week. I am in the process of getting some oil. I have to have a lumpectomy and radiotherapy. My operation is at the end of this month
When should I start taking this and what dosage?
Thanks for help in advance

[Jackie75]

Hi Red Robin,

How do I private message you please?

[red_robin]

Btw I can tell you who I use if you pm me. I won't put it on the main page as that isn't really encouraged. Anyone wants to know pm me as some of you haven't got settings enabled for me to pm you. Xx

[red_robin]

Knitwit_ni sorry haven't been on for a while. I will ask my holistic therapist friend. There are few drug interactions apparently but I'm not sure about the hormone tablet ones as I am er- so not on any of that.

[Kirstyelliott]

Hi, could somebody please pm where to get cannabis oil from please? I would be very grateful. Thank you x

[zena75]

No sorry that was just a link for info
Mine is made by cibdol ..
Sorry for confusion- I am in no way recommending oil to anyone- it's up to the individual.
I was just putting my 2 pence in as I am trying it .
All this is just about trying to live and get thru treatment and I guess we all do what we feel may help.
Good luck to anyone and interesting to hear results and feedback good and bad I reckon.
Zx

[angelSam]

I would be very careful where you buy the oil from. it's so difficult to know what your really buying.

Potential Risks of Choosing Pure Science Lab Products
Might Not Be Safe – Although Pure Science Lab claims to care about testing at all levels, they do not provide any proof of the contents of their product. For a business with ‘Lab’ in their name, this seems fishy.
Transparency Troubles – Pure Science Lab has very little information about their business online making it difficult to trust them as the business they claim to be.

[zena75]

Hi ,
I've been using cbd oil for 4 weeks , I'm sure n paciltacel for weekly x12 and am on week 3 . I have no neuropathy at all and my SEs are almost nothing.. only hot sweats ( about 6 a day ) and awake a bit a night but I always did that anyway..
il post link for taking it with paciltacel and find out where my friend gets the oil .
Zena x
https://puresciencelab.com/cbd-can-protect-breast-cancer-patients-from-chemotherapy-induced-side-eff...

[Pretty_Pink]

Hi I would be interested in hearing form anyone that is able to provide me with a UK distributor for good quality CBD oil. Thank you in advance.

[Knitwit_ni]

Hi redrobin just found this thread. Had read up alot on cbd oil too and just started using today.....But having read your information will now stop as I'm still getting chemo!  Save it for later I think, but will need to find out if it can be taken with tamoxifen and herceptin. Anyone got any ideas on that front? 

[red_robin]

I can't pm you. It won't let me! Says your profile doesn't allow it. You will need to sort out your settings first or maybe you could try messaging me. It isn't hard to find it online and it is on some pretty well known sites.

[Pigglypots]

Hi...am looking into cbd oil for my sister (triple negative) where do you get it from and what sort of doses? Can you pm me? 

Am new on the forum and not sure how it all works.

thanks in advance...

[red_robin]

Hi it won't let me send you a private message and I can't put it on here. The powers that be don't allow it.
If you want me to message you, you will have to make sure you have it enabled on your profile. If you pm me first I can reply xx

[Margb5343]

Hi, please can you message me to tell me who you order your cbd oil from. Many thanks

[red_robin]

Sorry Peta. I made a typo on your name. Xx

[red_robin]

You stay well and happy too Petra xx

[Peta]

Hi red robin, 

Yes, I absolutely agree with you on the diet and healthy eating, for all the reasons that you've said.  :-D   

I'll look up the CBD oil too, thanks for that, it's really good to see that so many serious cancer research institutes are investigating whether cannabis should have a serious role in cancer treatment. 

Best wishes - stay well and happy xx

[red_robin]

I have that one too. Tastes foul but as my Nan always said and Dad still does if it tastes foul it is doing you good! Lol xx

[johnswife]

hi red robin sheena aka fredflowerpot here. can i ask what one you take . i have just brought cbd brothers white ,, so far since monday take just two drops in the morning. not the nicest thing to taste but if it helps . i can put up with that .....

[red_robin]

Thanks Peta I will take a look. Yes it is hard to know exactly what to believe but I do believe that a lot of things a holistic therapist will tell you, especially about dietary changes, are definitely worth following. Lots of leafy green vegetables for instance help cells regenerate properly which can help against the bad regenerations that cause cancer. It is certainly worth trying because of nothing else you will be eating healthier. There are a lot of studies that eating healthier and maintaining a healthy weight helps reduce the chances of reoccurrence. It also helps DNA repair itself so will help reduce the chances of braca mutations. Even if it is only a tiny bit anything that helps reduce chances of it coming back has to be a good thing right? I mean nobody wants to go through all this c**p again do they. If there are less toxins in your body, which pollution and poor diet cause, then there is less of a chance of things going wrong inside your body.

[Peta]

Hi Red robin

I completely get why you're interested in looking into alternative/homeopathic remedies.  I've taken loads of interest in these things since I was diagnosed 2 years ago (surgery/chemo/rads).  I'm not a believer in homeopathy, because it's basically one or two molecules of active ingredient x added to as much was as the Atlantic.  Medical studies, using statistically representative groups of people have never been able to show that homeopathy works, other than possibly as a placebo.  You can take a Smartie as a placebo and it'd be a lot cheaper.   

I don't know if you've heard of Australian Jessica Ainscough, the wellness warrior?  I can't add links but you can read about her quest to cure her own cancer (and later on her mother's breast cancer) through alternative means.  The story makes interesting reading. 

I think the difficulty is working out which alternative therapies might work.  Cannabis in it's many forms has quite a good reputation and I know a lot of the major cancer research studies are really looking into it, there are many clinical trials into it going on at the moment, you can find them on the web.  You'll all have seen all the claims for coffee grounds, curcumin and tumeric and garlic and vitamin C, maybe some of them work, but you've probably heard the line

" What do you can an alternative health product that works?

Medicine."

 If they're that good then I figure that the drugs companies would be looking into them, which in some cases they are I believe, but no way are all the claims true, the hard bit is working out which ones!

Anyway read the Jessica Ainscough story - it's interesting whatever you take from it. ~

xxxx

[red_robin]

I think you are thinking more of actual cannabis. This is the CBD oil, cannabis oil with no high, the compounds that cause it have been removed in the extraction process. It is the high part that helps with pain relief so you won't get that from CBD oil! Think you need to do some more research. I know the powers that be on the forum needed to as well because like you they thought I was on about the 'high' form of cannabis until ai explained it to them. There are plenty of studies online.

[xcancer]

From what I have read CBD oil, cannibis, marijuanna is only effective for pain. I hear some people saying they take it to help with cancer? Can someone provide links to studies performed that show CBD oil is benificial for cancer patients? 

If not, then we are just flying blind here. 

The only thing that i know cannibis is effective for is pain. That is what is proven. 

[red_robin]

I have messaged you xxx

[Tina Jinks]

Can you message me about where its from please 

[red_robin]

I did try to send it as a private message but for some reason it wouldn't let me.

[red_robin]

Here ia the site you wanted Amylou

http://www.xandriawilliams.co.uk/

She has tips on there for helping yourself, if you look on the menu, to eliminate toxins and things in the body. It is mainly lifestyle changes at first but then she talks about homeopathic remedies too.
I have a natural health centre down the road from me so going to go at some point to check it out and see if it's any good. If you do go looking for a homeopath then make sure they are properly qualified and registered. There are a few people set up that aren't and you can't trust them to know what they are doing.

I have been put right off of going to the doctors for mainstream medicine with all this. I am going to try the homeopathic approach with as much as I can from now on. Only take things from the doctors if I really have to.

Hope the info on the site helps. Xx

[Amylou]

Yes please. I'm up for trying anything (once I finish chemo) xx

[red_robin]

I think she is more of a uni professor now xx

[red_robin]

Too right Amylou but unless its so called "modern medicine" then most mainstream doctors aren't interested. Wish they had said we don't know so wouldn't recommend it. Wouldn't have taken he cbd then. Looks like it could be dodgy whilst on chemotherapy.
I have been taking CBD since the middle of October. A couple of weeks after my surgery. Started my chemo on 18th December. Just had 5 of 6 cycles today so nearly finished. Maybe thats why I have had so many se's. Who knows.
Won't be making that mistake any more. Will let you know if se's any better or worse or the same.
There is a lady based in London who is a holistic therapist who has treated a lot of people with cancer with CBD. To far for me to go for a consultation but she has a website with a lot of info on CBD studies. I can find out the website or her name for you if you want to read some more on the subject.
Xx

[Amylou]

Red Robin just read the article. How long have you been taking CBD? How far into your chemotherapy are you? Think that just highlights that unless it's mainstream treatment then the oncologist really don't have the answer. More research is definitely needed. X

[red_robin]

Please read! Highly important information!

I had this link messaged to me from my friend who has done a lot of research.

https://www.projectcbd.org/article/cbd-drug-interactions-role-cytochrome-p450

Wish I had spoken to him about if it is safe to take while on chemo rather than my oncologist who said he doesn't know of any interactions so I could take it if I wish.
There is an interesting paragraph on cbd and cancsr towards the bottom that says this...

In cancer treatment, the precise dosing of chemotherapy is extremely important; doctors often struggle to find the maximum dose that will not be catastrophically toxic. Many chemotherapy agents are oxidized by CYPs before their inactivation or excretion. This means that for patients using CBD, the same dose of chemotherapy may produce higher blood concentrations. If CBD inhibits the cytochrome-mediated metabolism of the chemotherapy and dosage adjustments aren’t made, the chemotherapy agent could accumulate within the body to highly toxic levels.

By and large, however, there have been few reported adverse cannabinoid-drug interactions among the many cancer patients who use cannabis to cope with the wrenching side effects of chemotherapy. It is possible that whole plant cannabis, with its rich compensatory synergies, interacts differently than the isolated CBD that is administered in most research settings. As well, the cytoprotective effects of the cannabinoids may mitigate some of the chemotherapeutic toxicity.

So basically no it isn't a good idea to take it while on chemotherapy! Can't believe my onc said I could if I wanted to. Stopping it immediately and going to take it after the chemo has gone out of my system completely.
There are a lot of benefits from it. Just take it either before or after chemo and not while on it!

[red_robin]

Thanks Amylou will read it all later when the kids in bed. I can tell you though that cancer research quite often twists CBD oil around to THC research. The THC is a separate compound and not the one I was talking about. The THC is the part of cannabis gets you high.
Will get back to you on it.

[Amylou]

This is a very interesting topic ladies and I just thought I would add this anyone who is interested. Realise its a few years old but research takes time.

http://scienceblog.cancerresearchuk.org/2012/07/25/cannabis-cannabinoids-and-cancer-the-evidence-so-...

[red_robin]

I know someone who has done even more research than me. He is training to be an holistic therapist and did a paper on it for his dissertation. I have posed the question to him about long term use. My oncologist said I can take it while on the chemo but I am afraid I don't know about the hormone tablets. I'm not going to be on them so didn't look into it. I don't think it interacts with other medicines although always best to speak to the oncologist. If they don't know ask them to find out. My onc asked the pharmaceutical team as he hadn't any idea and then told me it was ok.
I hope to hear from my friend soon. Will let you know what he says.

[catokitty]

Thanks. I'll see what I can find out. I haven't been able to prise much information about any kind of supplements from the team I have been under.

[red_robin]

Well I know that a lot of people have taken it over years. Not sure if as long as 10. I do have my sources though and can ask someone.
Not sure about taking it alongside the hormone tablets. It is always best to ask your doctor that. I don't believe it interacts with them but check with your oncologist or a practitioner who deals with natural medicines.

[catokitty]

Thanks for the information you have put put up. Should it be taken long term like the hormone tablets tamoxifen etc and do you know if it is okay to take them together?  At my first annual check up I asked doctor about taking aspirin daily and he said Letrozole which I am on for 10 years is very powerful and anything else would not have nearly so much effect.  Thanks and all the best.

[red_robin]

Can't believe no one wants to talk about it. It's a hot topic!

[red_robin]

Thanks Anna.
That it will! I hope people take the time to read it and give their opinions and experiences too.

I only post this to help people have more informed choices as so many don't want to talk about it because they think it's illegal when it isn't.
There is no high from CBD oil as the THC that causes that is removed in the process of making it.

DON'T be tempted to try and make it yourself though peeps as growing cannabis in the uk is illegal. Just buy the oil ready made if you want it! Saves time and hassle.

[Anna_BCC]

Hi Red Robin

Thank you for sharing your personal experience of using this product.  It will be interesting to read others opinions.  

If anyone has any questions regarding personal treatment options, please do discuss them with your medical team and you can call our Helpline too, 0808 800 6000.

Best wishes
Anna
Digital Community Officer

[red_robin]

Paragraph 5 supposed to read...


I personally because have already had surgery only do 1 drop morning and night. If the cancer is still there or has spread I would have thought it is best to do 2 drops 3 times a day. I have never had any side effects from the CBD oil. It says it has no side effects on the literature I have and that it is not possible to overdose.

[red_robin]

I wanted to share some little known information on something that may help.

I have also enlightened the forum moderators on this so much so that is is now allowed to be talked about! Hope this helps them understand it even more too.

I take CBD oil to help with my cancer.

Cbd oil is taken by a dropper (bit like eye and nasel drops) but you put 1-2 drops under the tongue, hold there for 3 minutes then swollow, effects start after 20 minutes and last for 6-8 hours, so this can be repeated 2 or 3 times a day depending on condition. It says if no improvement is found the dose can be upped until a suitable level is found. And that these are recommended doseages and can be altered to suit each individual.

I personally because have already had surgery only do 1 drop morning and night. If the cancer is still there or I have never had any side effects from the CBD oil. It has spread I would have thought it is best to do 2 drops 3 times a day. It says it has no side effects on the literature I have and that it is not possible to overdose.

CBD oil works with your bodys natural system. The endocannabinoid system is a central regulatory system found in all mammels that affects a wide range of biological processes. It consists of a group of molecules known as cannabinoids as well as the cannabinoid receptors that they bind to.

Cannabinoid binding sites exist throughout the central and peripheral nervous systems. The two most relevant are CB1 and CB2 receptors, which are expressed predominantly in the brain and immune system.

So basically it helps your body to destroy the cancer cells and stop them growing. People have reported when they have lumps that they have shrunk and dissappeared over time. Some people prefer, like me, to do the chemo and cbd to make sure. I have no lump left to tell if it is shrinking it as have already had surgery to remove my affected breast.

After loosing my mum 10 years ago and realising that there are no negative effects from trying CBD oil I thought what the hell might as well give it a go. After finding out it is genetic I will be making sure any relatives have the info on it and I would highly recommend I to them. It certainly hasn't done me any harm and I will probably keep on taking it after the chemo so that no cells have a chance on my other breast while I work out if to have surgery or not on that one.

It can also be taken to help with a lot of other conditions such as epilepsy, rheumatism, psoriasis, diabetes, anxiety, acne, depression, neuropathic pain, obesity, autism (assuming you can get an autistic person to take it, it doesn't taste nice), MS, motor neuron disease, antibiotic resistant illnesses and the list goes on.

My step sister in Holland took cbd oil for a rash that was all over her body and debilitatingly itchy. The doctors tried everything and couldn't make it go. The CBD oil cleared it up within a few days to a week my Dad said. It is amazing what it can help with.

I get mine from (removed due to T and Cs) as after researching it found they have the best systems in place to make sure it has a full profile of the 80 cannabinoids from medical grade cannabis plants and they use no chemicals as it isn't mass produced. That is why it costs a little more but I think under the circumstances that less chemicals is better for our bodies and at least you know you are getting a good product. It is purely organic.

I have done a lot of research on it and if anyone has any questions I will do my best to answer them.