Hi holliepea .... definitely the club we wanted to avoid!
Are you triple negative(TN)?
I have grade 3 TN with 2/13 lyphm nodes, so far had a lumpectomy and total axilla clearance and am going for chemo 3 today, the last FEC ...... I will be well and truly FEC'd by the end of it.
I have been up to Guys for the genetic testing and just awaiting results - due at the end of the month 😞
I know it's very easy to say and very hard to do, but try not to think about the testing and what might happen. You have enough going on at the moment, dealing with the initial diagnosis and chemo. I found my lump in June, surgery in Sept and first chemo in Nov, so lots of time to come to terms with it.
Keep in touch with your BCN and talk to her about how you are feeling.
And it's ok to have bad days. This is **bleep**, there is no getting away from it. Your beautiful children will have their strong, beautiful mum back in no time.
If you are anything like me you will find you have days when you just cant imagine being normal again.... but literally 2/3 days you are normal!!!
You will get a lot of love and hugs from us all on here as well.
Take care of yourself and be kind!! xx
Hi Hollipea to the club no one wants to join! I'm from the October thread but pop on here every now and again to see how everyone's doing and to try and offer words of wisdom if I can. I've done 4 of fecx6 so far. Well done on first chemo today, make sure you drink loads to get rid of the tizer pee! Just rest up and listen to your body. Try and eat if you can as this helps with the 🤢🤢🤢. Make sure to also take meds as prescribed even if you don't feel sick as it's easier to prevent sickness than treat it if it starts. If meds don't work call your team don't suffer! They can adjust them for you. Oh and make sure to get on to the laxatives if you don't 💩as normal especially if you're on ordansetron as it can bung up your botty pretty quick.
Feel free to pop pop over to oct thread and post there, we're a friendly bunch and will try and help.
Well done Dec ladies you're doing really well stay 💪🏻💪🏻💪🏻💪🏻 Here's some ✨🌟⭐️🌟✨🌟⭐️🌟✨⭐️⭐️and 🦄 🦄🦄🦄🦄🦄🦄hugs from oct ladies to help you on your way.
Hello Otter, I also am FEC T and had the first 2 days ago. So far, feel mosly 'normal' still apart from being awake all the first night. How has it gone for you?
Hello Otter, I also am FEC T and had the first 2 days ago. So far, feel mosly 'normal' still apart from being awake all the first night. How has it gone for you.
Thanks Shi, no I dont get the injections on FEC but they told me I will be getting them when I move on to tax, so I can always ask about them tomorrow if my levels havent come back up. Do you know what yours were at when they were really low the first time?
I was eating the manuka honey but was only 5+ stuff from Aldi, but on monday my order of 20+ arrived from online so I will maybe see a difference with that x
So just had a call from the hospital to tell me my neutophils are too low from my bloods yesterday morning, so I have to go in early tomorrow before my treatment to get repeat bloods done, so frustrating! as I feel totally fine. And I have been eating mauka honey every day as well lol. They were at 0.54 and need to be up to 1, anyone any idea if they can go up that much in the space of a few days? x
Hi Karebare, I also didnt sleep well on the night of first Chemo, maily due to them giving the big bag of IV steroids at about 4pm I think. The following night was better as had my steroid tablets with breakfast and lunch instead of late on in the day. Def drink lots to flush things round, I waited and waited on side effects to hit and felt like I was waiting for a train to hit and luckily nothing really happened, so try to relax and take each day as it comes instead of expecing and waiting on all sorts of things that may not happen. Round 2 for me tomorrow as well! Take care x
Morning Karebear, try and rest up and keep your fluids up. The more you can get in and flush your system out the better.
It is hard not to sit there waiting for the next side effect to kick in but try and relax..... easier said then done I know! and let your body do what it needs to do. Lots of nibbles if you have nausea and if you can manage some exercise it will help with the fatigue and your moods as well.
But if all else fails ..... remember they invented day time tv for a reason...... snuggle up and indulge in some cr*p tv!! There are bound to be some slushy films on at the mo!!
You December girls are doing really well - hugs to you all
Well done Karebear, rest up now and remember to drink loads.
sam, Kirsty I also came up in a few pussy whiteheads on my cheeks cycles 1 and 2 and I don't normally suffer with spots either. Don't seem to have had them cycles 3&4 although came up in a rash across my chest last week which resulted to trip to chemo unit, all ok now! This is just the 🎁 that keeps on giving 🙄
Well done camilla, rest up and make sure you drink plenty of water.
good luck for tomorrow karebear hope the chemomtreats you kindly 😘😘🤗🤗
Hi Sam, sorry to hear you're having a low day. I also had some low days just after cycle 2, it is perfectly normal as this journey is really 💩💩💩just let yourself feel what you need to. I know it's hard but try to think about some positive things. I keep thinking that I would never have met the lovely ladies on the oct thread, they really are fabulous and have been my lifesavers. At the moment we're plotting to tie a bloke, that was mean to Lovely Karen, to our 🚂 and drag behind so he can get a feel for what this journey is like!
Sam, this will pass, I promise!
I suffered with this on chemo 2 and felt awful, as you say it's the feeling that things will never be the same and normality will never resume.
A week after my couple of days feeling like this I was completely back to normal
I know it doesnt make you feel better at the mo, but knowing it will pass I hope is reassuring.
Hi Sam, we’re allowed to have a blip day, we didn’t want to be in this club, we don’t like the game and it sucks. We’re all in a big team though and we know that tomorrow is another day. Don’t beat yourself up, be kind to yourself. Sending hugs. X
Sorry to hear that Sam, sending hugs. I know how you feel as I had one last night after going to visit my sister in laws new baby, then seeing new pregnancy announcements on my FB newsfeed, ended up crying for a couple of hours, this wasnt how it was supposed to go! but I am feeling better today though, so I hope your blip passes as well. It is such a rollercoaster between feeling positive and stong then breaking down over things x
Hi camilla, I also think it depends on whether they get your antisickness meds right and would recommend taking the meds as they prescribe them don't wait until you feel sick as they say it's easier to prevent than stop it when it starts. I normally try and spread them out during the day. If you do find you're suffering tell your team straight away don't suffer as nausea and sickness is one of the SEs that is treatable.
Cycle 2 I got the munchies for sweet stuff and ended up eating whole packets of fig rolls and Jaffa cakes in one go! Hence trying to put myself off sweet stuff!
Good luck 🍀🍀🍀🍀with your treatment hope it goes well for you and the chemo treats you kindly 😘😘🤗🤗
Hi all, thank you.
Meesh, you mad me laugh, too and I feel more relaxed.
I assumed with possible nausea I wouldn't want to eat so that was a surprise. The ice lolly suggestion a good one. My chemo 11 30 tomorrow will also take some ice cubes. The journey begins!
Hi camilla I'm also from oct thread have done 4 rounds of 6 fec. I think it depends on what time your treatment is, mine has been at 9:30am each time so far. I've had breakfast before I go with my steroids and I'm cold capping so normally there until lunchtime. I normally try to eat a good lunch too as I found the only cycle I didn't I felt rough fir a week, but everyone is different. I wouldn't eat your favourite food on chemo day as it puts you right off it, mind you last chemo day I ate chocolate muffins in an attempt to put me off cakes but it didn't work 😂🤣😂😂
Thanks for hat! I'm someone who likes to be organised and know what's happening. Good luck with your next cycle.
I have my first chemo tomorrow (FEC T) and feel as if I'm jumping off a cliff and not knowing how far down I have to go..
Whenand what should I eat before chemo? Will I start having side-effects while I am sitting having the chemo? When will 'things start to happen?'' Should I go to bed on getting home or does the body react gradually?
I feel so in the dark.