Merry Christmas to you all, hope you can enjoy the day without too many se's. xx
Morning and merry Xmas eve, December ladies!
Karebear, I would echo Shi's wise words. I called my chemo unit nearly everyday after first chemo with little concerns, they know what is normal and what isn't and can advise you what to do. It is better to be safe than sorry and also it stops you from worrying too and we don't need any unnecessary stress on this journey, it's tough enough as it is.
Keep 💪🏻 💪🏻 💪🏻 ladies you will get there!
Also awake through the night which doesn't help...
I was told by the oncologist 'I have good juicy veins' not sure how they'll hold up over 12 weeks though. Fiona I was told can't have anything done on the arm which was the side of surgery as you risk getting lymphodema. I never had any underarm swelling or problems after op, had three lymph nodes removed. Definitely worth you asking the oncologist. xx
Sam - I’m hoping if veins no longer bruised next wk all will be well but see onc following wk before that chemo so will definitely bring it up at that point as they’ll have had 3 strikes by then. I’m just a tad concerned as they’re doing it weekly and in only 1 arm, thinking I’ll ask as only sentinel lymph removed and was clear can they not use other arm too. Can only ask and see what he suggests, happy to go with pic line if it’s on offer tho.
Hi Rabbit, the actual chemo infusion takes about an hour but they have the hunt the vein game for a bit 🤪 then flush, then pre chemo taster cocktail followed by a wait for the crap to circulate into your system them another flush followed by chemo infusion. I’ve not been there for less than 4 hours yet but live in hope.
This time round I’d already drunk 2ltrs, was holding hand warmer and had one strapped to arm in attempt to coax veins out but ended up getting it in hand rather than arm.
If they are diluting yours it may take longer - hope they give you early appointment to allow for the extra time you may need. Fingers crossed it all goes well for you, be sure to let us know. x
Hi Fiona, Glad your'e weekly chemo is going ok. I am hoping this will be ok for me if it's not they will try abraxane and if that's no good then the chemo will be stopped altogether. How long do your infusions take? The oncologist said as they are going to water it down it will be four bags over a long time, about eight hours I think. Not sure whether this will be the case each time or if its just for the first one.
Like your idea of an advent calendar, think you should have a treat each time though, I'm thinking maybe a glass of wine!! Can't believe my second herceptin is next week already, time flies. xx
Mamadeacs - Glad you made the escape hatch 😀 hope it all works with the next cocktail.
KirstyH & Sam87 - I’ve got a countdown in post it’s on my fridge 1 for Herceptin 17 to go and 1 for chemo 10 to go. Somehow once I get back and get to rip another number off I get a bit of a buzz 😋 double one next week as I get to take 1 of each off yay. Maybe I’m nuts it’s a bit like a treatment advent calendar but without choccies and works for me.
Rabbit - I had 2/12 Tax yesterday, I’ve not had any reactions at the time of treatment. SE for me seem to be dizziness when walking any distance but stopping and sitting for a couple of mins sorts it just a weird feeling and a bit tired on and off. I know we all react differently but BCN says the weekly taxol is a bit kinder onSE same ones but not severe. Apart from feel bit wobbly occasionally touch wood i feel ok. Finding veins is becoming a pain ended up with it in back of hand yesterday as arm still black n blue from last week 😏. Hope it’s kinder to you this way round, just shout if I can help in any way.
Hello all hope you're all going ok. I saw the Oncologist today and they are switching me to paclitaxel weekly for 12 weeks following my severe reaction to the t. The herceptin will be the day before just to rule out it wasn't a delayed reaction to that. Weekly chemo sounds quite daunting, guess I'll just have to see how I cope with it and hope I Don't react to that as week as it's still the same group of drugs but they are going to densensitise it. Has anyone else had this? xx
Evening December ladies!
Mamadeacs that's a shame about delay but at least it's Xmas week so you don't mind the delay so much. My unit won't give it if you're under 1.5 but I do know others have said their cut off is 1 just seems to depend on where you are.
Kirsty, well done on chemo 2 rest up now, drink loads and try to get some food in you!