Aww Camilla what a shame. You could try throwing yourself at their mercy, I’ve done it before. Said I’m on cancer drugs, and sometimes not well...worth a shotxx
Kirsty, really hope you start to feel better soon, I've had the joint and muscle pain to the extent I could barely walk in the first cycle and the last cycle couldn't move my arms or neck fortunately it only lasted a few hours, its awful.
Bed is the best place for you in this weather, especially with the forecast for Scotland!! xx
Hi Moijan. Thanks for this, The ulcers from my previous treatment are almost gone now, and when I start the paclitaxel I will have the treatments for ulcers ready - the mouthwash I use anyway..hoping for prevention instead of cure. I have started using the aloe Vera organic. toothpaste from Holland & Barrett. I am using an extra soft toothbrush but someone suggested using a toddler one, so I bought one yesterday. Very soft and has a small head so should be able to avoid the gums. It also is pink with a lovely Disney Prinvess design.
i have seen your post on the secondaries forums and would be good to compare notes etc. How was your first week?
SamH87 - you will have your lymph nodes tested as part of the surgery. You'll have a raduoactive isotope injected near your tumour site before your surgery (mine was an hour before and did sting a bit but hey ho...our breasts are aensitive areas!) which gives off a "signal" which they trace in surgery. Which ever nodes the signal flows to via your breast fluid will likely be the nodes that are removed. The surgeon may well put a blue dye in as well if the signal isnt strong which can stain your breast though.
I had surgery before chemo as my tumour was classed as being under 2cm. I was lucky that I didnt need the blue dye as the isotope signal was strong. I had only the sentinel lymph node removed and had a micromet in it of 0.66mm which the team at Leeds class as a negative node (if micromet) so no other nodes to be removed or any radiotherapy to the nodes for me apparently.
For all ladies awaiting surgery, some good advice is deffo to rest up but try and use your arm as much as you can (unless you have a drain then follow your Team's advice) and do the arm exercises that are given to you - they really do make a difference! Be prepared for numbness and tingling nerve pain afterwards around the scar site. This is pretty normal as the nerves in those areas are moved about during surgery but it should settle down. I had the nerve pain for a good few weeks but it settled down then. I still have some numbness around the scar site and I had surgery in mid October. As with anything though, you know your own body and if something doesnt feel right or worries you thwn contact your surgical team.
Good luck to all those ladies who are to embark on surgery after chemo ❤❤
Camilla - you really have had a rough time with your chemo and I must say I admire your determination throughout it all! Hope you are feeling a little better this eve.
Still nauseous, no appetite, was up most of last night so v tired today.
Did not phone unit, they had given me diarrhea meds after last chemo so obv tht it might happen. I didn't bring myself to take the meds- up to 8 in a day. Chose to give my sickly stomach a break from more pills.
Runs seem to have stopped. Will take sleeping pill tonight.
Ultrasound tom to see if tumour has shrunk.
I booked a ho in Skiathosl last Aug for the end of this May but won't be able to go as will have had op.
Had not taken out ins as felt too soon at the time so will now lose all the money. Currently hardly want to leave the house so no hol not a prob.
Hi Lynn q
just to mention that I am on my second three week cycle( of 6-8) of Paclitaxel. So I will be on it for the duration of your treatment and beyond....if it works for me. So we can jolly each other along if you like.
re the mouth ulcers, so sorry about that...it’s really important to rinse your mouth after each eating and drinking.i did have sore spots in my mouth but I now rinse with. The mouthwash prescribed and floss each day when I’m up to it. And try to clean my teeth properly......lots of extra mouth care.....tend to floss when relaxing as I find everything takes so much more time now.
Best of luck and let us know how it’s goingxx
Hi Sam, my sentinel node biopsy was done when I had surgery and I think this is the same for everyone in that they test the sentinel node at the time of surgery and if this is clear then others will also be clear. I had three removed altogether one being the sentinel node and two others. One of mine had micro micrometastases but the consultant said they do not class these as a positive node.
Try not to worry as I'm sure they will test them when you have surgery, probably best to ask your consultant when they plan your surgery so you know for sure and tell them your concerns. Hope this helps xx
Hello drbexi. I hope you don’t mind me joining in. I have just joined the March 2018 group and I am to start Paclitaxel x 12 on the 13th. I have been searching the forums but I don’t see many using this treatment. I wonder how you have found it. One of my main worries is mouth ulcers. I was on an oral chemo for three months, it didn’t work but gave me horrid mouth ulcers. This time I want to be prepared for them before I start,
I will go back and read your other posts - might find more info there.
Having terrible 'runs' tonight, no idea what brought it on as I can hardly eat. Can't sleep, waiting for the next urgent dash to the bathroom.
Feeling sick as well so at my most miserable...
and Mine is3weeks on one off, which might be easier but I’m left wondering during the off week....13 days is along time without a blood check!
This chemo is a long old journey isn't it ... kept myself occupied so far by planning a new kitchen, as was left an unexpected legacy ... so that's been exciting! Managed to go out yesterday for a friend's surprise 50th, and somewhat paying for it today ... sleep sleep sleep!
5 more weekly paclitaxel to go, then rads, then tamoxifen... x
I was sent home same day, but I do hate having to go in....actually, I might not have needed to...just felt so awful and wondered if I was nutrapenic....Thank God I wasntxx
Jaw pain comes and goes but I have very dry, achey throat. Also dreadful taste in mouth, all food tastes awful.
I have lost 9 kilos since chemo started, have no appetite at all and always slightly nauseous.
But - hopefully, halfway through chemo now so just getting through each day as best I can. How some of you manage to work as well I have no idea.
No snow yet here on the Kent coast, will try to get out for a walk today. Thinking of you all.
Hi ladies, I was feeling a bit left out, so I ended up in a&e today, but my neuts had actually risen since last wed, so they gave me a huge dose of iv antibiotic and threw me out...my arm was red and it’s likely cellulitis and normally they kept me in for 4 days but seems the policy has changed... can’t say I mind much about that...tho I hate taking antibiotic even by mouth...I think I’ve had far too many, so I’m drowning myself in Kefir which my onc is quite happy about....I just don’t need diarrhoea.
anyway, I’ve got some filgrastim, so hopefully I won’t need admitting again.
im very envious of Fiona, lucky lady, but sorry for all my friends who have this continuous nausea xx
Mamadeacs, you poor thing. What a horrible time you've had with mouth/throat. Really feel for you, hope it heals up quickly.
Lots of hugs xxx