Unicornmummy, I'm from the Oct thread and also TN. I just wanted to say how sorry I am to read that your bc has returned again and that I'm thinking of you xx
Hi Karebear, congrats on finishing your chemo. I didn't get to finish mine, but managed four out of six. My poor body was quite intolerant of both the chemo and the Hickman line I had inserted. I met a number of ladies in the same position as myself, and I think it's important to reassure your friend that we are all individuals and our bodies respond differently. My Onco was very reassuring and said four cycles was enough, and that my body was obviously responding to treatment. He also reduced my dosage so that I managed four, although I rather think I staggered over that finishing line! 😱 He talked about the quality of life, and not exhausting the body so that I was ready for my rads. I've just had my first mammogram and the primary site looks ok.
I attended a Maggie's centre all the way through, and took support from them, my lovely chemo nurse and my rads nurse. Is there any professional advice available for your friend? Don't forget the super lot here on the help line. They do a great job and no doubt have plenty of different cases to recount. In the meantime, a big hug to you both. Good luck and best wishes for future treatments. You know it's worth it! X
Hi Kirsty, well done on your first op and good luck for the second one.
Camilla sorry to hear you've got to have another chemo. I'm like you behind everyone else, had my penultimate chemo yesterday, it's been a long road since I started at the beginning of December.
Hope everyone else is ok. xx
Well I'm turning green, Kirsty, with envy that ur op is over while I have another chemo to come. I so thought I was having the op next I already have my pillow!
Pleased you're home and it's all behind you. You, too Cathsin, great you're finally out of hospital.
Now all we need is the sun to shine!
My Onc turns out to be on holiday. A nurse from the chemo unit phoned today and gave me April 25th for my extra chemo. She cldnt tell me why, in my case, but said it was common for people to have extra cycles and that some had 4 extra.
I know it's for my own good but I'm disappointed all the same. It's such a long session too - 7 hrs.
Husband away golfing in Portugal too, as he thought my chemo was over.
Moan over, there's worse off than me!
How are you all? Great to see you getting over that finish line.
Cathsid sorry to see you are stuck in hospital. At least you havev your own room, i was on a ward when I was in and it was just so noisy. They told me that if my bloods would have dropped any lower then they would have given me a transfusion.
Camilla that must have been a shock to find out you had another chemo like that. Have they said why yet?
Keep your heads up girls. Not long to go now, you can do it
Oh no Camilla 😞 that is rubbish having that sprung on you without any warning! I wonder why the have decided that when you havent had any other checks to give them reason. Its annoying when the goal posts move
How are you cathsin? are you home yet or still in hospital? xx
Am gutted everybody.
Have had 6th chemo and have been trying to org an appt with the breast surgeon re my op and been perplexed as to why one not forthcoming, when today, had a call from BC nurse to say I have to have another chemo.
When I left the chemo unit last Weds, they did not give me bloods and next chemo dates just said my 1st of 18 thigh herceptin inj wld start in 3 wks. They obv didn't know.
I have not had any recent tests or scans on which this dec cld be based. Have asked that someone from Onc dept phones me.
Karebear - sorry to hear of your news 😕 hope you are OK xx
Dramaminx - sorry to hear that you have further chemo to go through that must have been a blow! You sound very strong though and we ladies are all hear to help you as much as we can.
I had a moan this morning but was having a bit of an off day. I know 1 additional week is nothing in the grand scheme of things I was just moaning as Ive had to move the finishing line a little farther away 😊 Had my planning scan and as I said I wasnt comfortable in having to hold my breath for 25 seconds each time to protect the heart, the radiographer said other arrangement can be made to protect the heart i.e. lead lined cover. My radiotherapy will start on the 24th April - I also saw the bell to ring at the end of treatment in the radiotherapy waiting lounge so am going to count down the days to ringing that bell now!!
Cathsin - hope you are starting to feel better and that your temperature is getting under control.
I have posted this elsewhere too on the forum but I had a meeting with my Oncologist yesterday and found out that I will be having 3 weeks of radiotherapy as I was originally told back at diagnosis but an additional booster week has been sprung on me which targets the actual tumour site rather than the whole breast due to me being under the age of 50...Im 39. My Oncologist said it is common practice for younger ladies to have booster sessions. To be honest Im feeling a bit peed off as I feel the finishing line has slipped away again, I know its only by an additional week but still its like something else sprung on me at the last minute! My tumour was highly ER+ (score 8/8), grade 3, 16.5mm with excellwnt clearance margins and a small micromet (0.66mm) in the removed SLN.
I had my Planning meeting later today and because tumour was in the left breast, I will be taught the breath holding technique. Am a little concerned after reading some peoples comments that some ladies are having to hold their breath for up to 20 seconds and with a machine?? My Onologist said yesterday it would be for around 5-6 seconds! Maybe it is different for everyone?? My treatment is all at St James Hospital, Leeds.
I am only on day 12 of my final chemo cycle 6 so still really feeling the cumulative effects of all the chemo including the tiredness, fatigue, nausea, bad throat, digestive tract and bladder irritation and yet I was told rads due to start 23 April and my body still not feeling uo to it. I guess I will get definite dates at the Planning meeting today. It just seems very soon and 2 other ladies on the same cycle dates as me dont have their Radiotherapy meeting until 16 April. Really dont understand sometimes how they work it all out!
Hope everyone on their last or nearly last cycle of chemo are OK!