The Royal Marsden ? Well, if you do have to be referred....they do have loads of trials going on...rather like the Christie. But. I hope you are lucky this time.
I have three monthlyscans, but last time was a bit inconclusive so next one after two months...am praying for a better result as the side effects aren’t pleasant.xx
love and hugsxx
Unicorngirl mummy, how are things now? Hoping you feel ok? Lots of love😘🤗
since ivehad had mets I find my swear meter registers much higher...
you know yesterday, I got frustrated with my phone and said S**t ! as one does.......and Siri said
’I hope you don’t kiss your mother with that mouth’!
‘I did laugh. I hadn’t realised he’d. herd me!
anyway, do Keep in touchxx
Hi Cathy, I requested to be a friend on FB to join you and the others from the forum. Real name Jane Wilkins.
Hi Unicorngirlmummy. So sorry cancer yet again. The Royal Marsden is excellent so if you have the chance to be seen there that would be good.
Yes, I have been allowed next week with no medical appts to go and see my daughter and bahy grandson in Cornwall. I will be able to pick him up while I stll have a good left arm before the op.
I didn't know some of you now contact on Facebook. I do have a page but haven't used it in years. Can you message me contact details? I thought this site was rather quiet compared to other months.
Thanks for suggestions.
The reason I don't like my wig is because it looks like one and I just want to blend in and not stand out - so I feel uncomfortable. I shouldn't care what strangers think I suppose! I look like an ancient Cleopatra.
just to say, I had full axilliary clearance. Had 12/13 l/n pos so was likely best thing.
‘Take good care of that arm afterwards. Wear gloves if there’s a small chance you might get cut or scratched. I had an infection and have lymphoedema in that arm. No bloods from that arm or Bp measurements.
Having said that...I’m quite used to it...but prevention is a good thing
Hi Camilla, was just wondering if you could get a letter from your GP or onc to explain you've just had chemo which you could take with you incase your passport is questioned xx
So sorry to hear of your scan result Camilla and am thinking of you. Good to hear that your medical team are going ahead with the planned operation though ❤ Sending you a big virtual ((hug)) x
Hi Camilla, popping in to give support. I'm ER+, HR-, and had complete LN clearance. It was a bit more of a problem for me than the booby stuff. It's more a smash and grab. 7/15 LN proved cancerous, so that was the right decision. My first CT scan showed an 'anomaly' in one lung, nothing to worry about (!) and I plodded on with the planned treatment, op, chemo, rads. Two mets were found in each lung one week before the end of my rads in October last year. I totally sympathise with where you are. I think devastated does not begin to describe your feelings at the moment. However, if I can echo my Onco, there are loads of tricks in the bag! My treatment continued - so I finished my 5 boost rads, and then went straight onto a drug called Palbociclib. This works with the aromatise inhibitor Letrozole to restrict the growth of tumours. I had started Letrozole before my radiotherapy, so that was always the long term plan. I have finished three cycles ( 12 weeks) of the Palbociclib and my CT scan shows all four mets have shrunk. So yay me! 😍 . I have accessed my Maggies centre who have provided a great deal of support throughout my whole journey. My GP also offered access to their Macmillan nurse, but I get all my support from Maggies . I go to the monthly secondary BC group meeting and find strength and support from other members. Our motto is - we're living with cancer not dying from it. Have faith in your medical team. They will be discussing your case, taking all the facts into account, and working out your treatment. Please PM me, Camilla if you need to talk. X
Well, had my scan results..
The lung nodule is cancerous. Am gutted.
To my surprise they are still doing my op and I am to have a lumpectomy and complete axilla clearance on May 23rd.
A lot to take in.
Has anyone else had an axilla clearance...?
Glad you haven't got to wait long for the scan results Camilla, you are in my thoughts and praying that you get good results on Fri x