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December 2019 Chemo Starters

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Re: December 2019 Chemo Starters

Thought I'd say hi.  Feeling I need a bit of solidarity. 

 

Had my op on the 11th Nov (double mastectomy and lymph dissection) and I'm tender but up and about and even went back to work yesterday. 

 

I've got a long road ahead and seems I'm going to be given a truck load of chemo - 24 weeks worth.  Initially every 3 weeks then weekly for 12 weeks.... I was pretty disappointed but it is what it is. I'm going to do all I can to try to keep healthy and as active as possible. 

 

You're all asking similar questions to the ones I have floating around my head so it's really helpful and reassuring. Port insertion on the 16th and chemo starts on the 17th Dec.  I'm going to attempt the cold cap so would be interested to hear your experiences. 

 

Good luck everyone!  I look forward to going on this unenviable journey with you..... x

Shi Community Champion
Community Champion

Re: December 2019 Chemo Starters

Took the senokot not the senior 🙄sorry text gremlins 💕💕✨✨Shi xx

Shi Community Champion
Community Champion

Re: December 2019 Chemo Starters

Hi chaffinch ❤️ Dec thread our Oct17 gang still talk daily and laugh daily 👭👭and 👭👭 our Jencat and buddyfan are on the threads too. Great wig 👍 they are so amazing now, no one can tell 👍 take it one treatment at a time, keep focused and laugh through this together, and you will laugh, the steroids will get you bouncing off the walls be ready for 2 am chats with each other on here and partners telling you to put your phone down as you chat away to each other all the time ❤️❤️ But who else can you share botty trouble stories with but your chemo gang who will understand when the steroid block you up, get senokot and movicol and anosol. I had chemo on a Thursday and took the senior for a few days from the sundays during fec. On t it was the other way 🌪🌪🌪botty 😳 carbs had to be upped 😳 but remember we are all individual and it can be different for each of you ❤️💕💕✨✨Shi xx

Member

Re: December 2019 Chemo Starters

Start chemo in the morning all I can do is eat kettle crisps. 2 big bags so far 😀🤣😀

Member

Re: December 2019 Chemo Starters

Your wig looks fabulous, really natural. Is is synthetic or real hair?

Mc22

Member

Re: December 2019 Chemo Starters

Fantastic Dj43 looks totally natural 

xxx

Member

Re: December 2019 Chemo Starters

Dj43.. looks fab xx

Member

Re: December 2019 Chemo Starters

Looks great, DJ43 Smiley Happy

Member

Re: December 2019 Chemo Starters

I haven't had it cut to shape yet but this is the one I got today. We get a wig voucher up here and a list of hairdressers that participate. This should've bee £320!! It's really great though, I can pull the fringe back and you'd never know, the hairline is invisible. So at least if the cold cap doesn't work. I have a wig ready. It's lighter than my own hair, I'm strawberry blonde kinda colour, pale ginger so they didn't have one my colour, this looks like I've had my hair highlighted.x

 

Member

Re: December 2019 Chemo Starters

IMG_20191205_151641.jpg

 

Member

Re: December 2019 Chemo Starters

Just popping in to say hello. Made me quite emotional reading your thread. Shi & I & our October 17 chemo group were a couple of months in at this stage 2 years ago. Hang in there ladies it’s doable but take time out and take care of yourselves. Ignore as much as you can the demands of everyday life and do only as much as you feel you can. It helped me to try and keep up a normalish routine but everyone is different just do what feels right. After I came out the other side of each cycle which was usually after about 5-6 days I would take myself outside for a short walk each day which helped no end with my mental and physical well being. Even in the days after chemo I’d make sure I walked around the house a bit each hour or so, seemed to stop me feeling too sorry for myself. You really appreciate the simple things like a bath and getting dressed and when you actually fancy food and enjoy it. Take your anti sickness meds regularly fir longer than you think you need them if they don’t work ask for stronger ones don’t suffer in silence. I found a few almonds helped when I was feeling hollow and nauseous I felt like I had morning sickness 🙄. Take Manuka honey at least 10+ to support your immune system it worked for me after borderline low white cells after first cycle never had the problem again. Use the support here. We have made true life long friendship that totally get each other. Cone here anytime for support such a great resource for advice and laughter. We laughed way more than any of us thought possible at first. Wishing you all well 😘
Member

Re: December 2019 Chemo Starters

Blimey must be good quality. I’ve no experience of wigs never felt fake hair so had no comparisons. Haven’t tried mine on yet. Hoping I won’t need em. 

Xx

Member

Re: December 2019 Chemo Starters

Lady34

i got mind from a special wig place near where I live. It’s nice, long and dark like my own.. it cost me £230.. not cheap! Xx

Member

Re: December 2019 Chemo Starters

What wig place dyu mean the hospitals provision. Nurse told me they had this but I couldn’t be bothered to go there so got em from wish.com. Ones a bit plasticky but the long hair ones ok looks ok. Been looking at ladies with false hair as their everyday norm and decided to be creative with it. Not quite Cher more like Sonny 🤣

Member

Re: December 2019 Chemo Starters

Lady34

i only have 1 for now.. I’ll wait and see if I need it 🤞🤞

Are yours nice? It’s so hard isn’t it.. and I did have a mini meltdown in the wig place 😢x

Member

Re: December 2019 Chemo Starters

Dj43 I bought 2 wigs couldn’t decide so ones a bob ones shoulder length. Start chemo tomorrow with cold cap. 

 

BW

xxx

Member

Re: December 2019 Chemo Starters

Blimey I’m longing for a swim. Anyway guess you know best. The thermometer I got one yesterday guess you’ve got one. Ring your nurse if needed. 

BW 

xxx

Member

Re: December 2019 Chemo Starters

Lady 34.      Nah, I’ll see how it is.. they only strap up a broken toe anyway, which is what I’ve already done.

i was told by my oncologist def no swimming or jacuzzi/ hot tub xx

Member

Re: December 2019 Chemo Starters

Human again! Fantastic and so soon. Hoping I’m the same want to get back to swim and sauna. Will see. Your toe! You going to hospital I guess ASAP. 

Best wishes

xxx

Member

Re: December 2019 Chemo Starters

Dj43 Great to know this love these words shrunk, disappeared......😀

yes wishing us all positive reactions to chemo 

xx

Member

Re: December 2019 Chemo Starters

Dj43

my Xmas do is Saturday night this week, and I certainly won’t feel up to it.. still not quite feeling myself yet, but you may be different. 
I have a wig in place too (not Brian May or Bowie tho 😂😂) and a few hats. 
do try the cold cap.. u will tolerate it, after the 1st 15 mins, it’s just a little uncomfortable but you’ll get used to it.. def worth a try! 
xx

Member

Re: December 2019 Chemo Starters

Oh no Carolyn99! Hope it's not broken, maybe just staved (don't know if that's just a Scottish word, lol, so hope it makes sense).

I'm so glad the side effects cleared quite quickly but you're right I really don't fancy weekly either! She felt ok throughout though so that's good.

I don't start mine til next week (Thurs) had booked my Xmas night out with work on the Saturday but I don't think I'll be up for it. I'll see how I feel on the Saturday morning. If I'm not too nauseated I might go along just for the meal and come away before the drinking starts 😁.  Hate to miss my Xmas night out.🎄 Going for my wig consultation today, although I will try the cold cap, I thought I might as well get  the wig incase the cold cap isn't successful or I don't tolerate it well.

Not sure which wig to go for... can't decide between Brian may or David Bowie circa 1980, lol.

Member

Re: December 2019 Chemo Starters

Dj43

oh, that sounds very positive. 
hope all ours behave like that! I don’t think I’d fancy weekly chemo, 3 weekly is enough for anyone.

had mine on tues afternoon, and I’m feeling almost Human now, so not so bad ladies. Xx

although I stubbed my little toe last night, and pretty sure it’s broken ( I’m the clumsiest person ever) xx

Member

Re: December 2019 Chemo Starters

My marker was put in when they took the biopsies, I think the radiographer was so sure the lump was sinister.  I didn't feel it in the slightest. 

My friends' colleague recently had chemo before surgery for triple negative BC, the tumour had halved in size after one pulse. She was getting hers weekly though. By the time she had completed the chemo they couldn't see it at all so the surgery was guided by the marker that they had put in!

Hope we all have such a good response to treatment. 🤞

 

Member

Re: December 2019 Chemo Starters

Me too.. there’s that many different drugs and treatments, it’s mind blowing. 
when I went for my chemo yesterday, there were so many different cancers being treated and so many different types of chemo. 
keep in touch on here ladies, and we can share our journey together (the good, the bad and the ugly) xx

Member

Re: December 2019 Chemo Starters

Yes hopeful and I’m also grateful that all these treatment options exist. 

 

Xxx

Member

Re: December 2019 Chemo Starters

Also did have a scan not sure if it was ultra sound. It was to get clear images of where the clip was 

Member

Re: December 2019 Chemo Starters

Thank u ladies.. fingers crossed for us all xx🤞

Member

Re: December 2019 Chemo Starters

Lady34 - I have to say, they do seem to be very positive about shrinking things. It does make you feel hopeful which can only be good!

Member

Re: December 2019 Chemo Starters

Carolyn99 - my marker coil was done with guided ultrasound (I think!) and they give you a good dose of local anaesthetic so it doesn't hurt, you are just aware of them manoeuvring. You'll be fine Smiley Happy Oh and if you need painkillers after they said to take paracetemol, not aspirin or ibuprofen as that is more likely to bring out the bruises.

Member

Re: December 2019 Chemo Starters

Ultra sound not mine. Mine was put in by a radiologist slight sting that’s all then cotton wool wipe due to spot of blood. Then plaster on it. I asked him if he’d pierced the actual tumor. He said yes. I asked if this could cause cells to spread from it. He said no. 

Xxx

Member

Re: December 2019 Chemo Starters

Lady34 

I’m getting a marker clip put in on fri under ultrasound.. is it the same thing? And does it hurt? Xx

 

Highlighted
Member

Re: December 2019 Chemo Starters

Same here fec-t chemo 3 lots before surgery in February. Had a pin put in where the Tumor is told this is needed as after chemo tumor can disappear so they can’t see where it was. I said what even after just the first dose! Yes it does happen 

 

Felt hopeful hearing this. 

Member

Re: December 2019 Chemo Starters

That’s all we can do.

im having my chemo before surgery too. Hoping this thing shrinks enough and does what it’s meant to do 🤞xx

will need radiotherapy after surgery. It’s a long road isn’t it.. but we’ll get there xx

Member

Re: December 2019 Chemo Starters

Carolyn99 I hope the cold capping works for you. Keep us posted!

 

I've got 3 cycles of EC to be followed by 4 cycles of Pertuzumab, Trastuzumab and Docetaxel... then surgery... then 14 more PTD. Can't look too far ahead atm though, just dealing with each stage at a time.

 

Member

Re: December 2019 Chemo Starters

Silvertong

i have injections from tomorrow for just 3 days. 
which chemo are u having? mines 3x FEC, 3x t

i was told I’ll prob lose at least 30-40% of my hair (maybe all) who knows?

but as I have lots of hair, I thought I’d give cold capping a go. I was there 3.5 hours in all xx

 

Member

Re: December 2019 Chemo Starters

Glad you had your friend with you Carolyn99 Woman Happy I decided against cold capping as I currently have very long hair and I'm pretty much guaranteed to lose it. So, time for a change! (although not quite yet...)

 

Although I was going to have someone with me I went it alone which was probably just as well as my treatment is administered by the nurse very slowly pushing the plunger on about 5 syringes. She was lovely. I seemed to be okay whilst it was happening although possibly a little metallic taste at the back of my mouth and at the end my nose felt a bit weird, like it was going to run.

 

Not looking forward to starting on the 'goody bag' of meds. Especially not the injections - I've got 7 days of those!!! Woman Surprised

Member

Re: December 2019 Chemo Starters

Hi girls, just a quick update after my 1st chemo yesterday afternoon.

i didn’t manage to eat my dinner last night, felt too nauseous. Managed 1 crumpet this morning, and ha d just eaten a tin on tomato soup, which tasted heavenly.. just what I needed.

diorrhea finished by this morning, thank goodness. Only vomited last night once, around midnight.
Are any of u trying the cold cap? I did, and wasn’t anywhere as bad as I expected it to be.. more uncomfortable than painful. 
my best friend came with me, so kept me entertained xx

Member

Re: December 2019 Chemo Starters

Thanks for the diet link very useful. 

Member

Re: December 2019 Chemo Starters

Hi Carolyn

great you’ve done the first. Doesn’t sound too bad. Have a good rest. 

 

Xxx

Member

Re: December 2019 Chemo Starters

https://www.breastcancer.org/tips/nutrition/during_treat/expert-qa

 

Found this which might be useful for anyone wondering about diet.

Member

Re: December 2019 Chemo Starters

Thanks fluffball,

I'll eat like I did in pregnancy then, just to be safe but surprised that there was absolutely no mention of this at my chemo prep meeting and nothing about it in the booklets ( well not that I've seen so far... still wading through them) but yeah I'm with you I'm thinking surely turmeric or matcha present in small amounts in diet must be fine. Obviously I won't take supplements with more concentrated doses (I don't anyway) but a healthy diet with no unpasteurised foods should be ok.

I'll avoid pomegranate and grapefruit just incase, don't want anything to interfere with the chemo working as it should 🤞.

Xxx

Member

Re: December 2019 Chemo Starters

Dj43, I think for the most part be guided by a pregnancy diet - ie you avoid foods with a higher risk of giving you food poisoning  so most soft cheeses, soft ice cream from a machine, cold or reheated rice etc etc. It's been a long time since I was pregnant, but most of that I found was common sense. Anything with live bacteria culture, live yoghurt etc is recommended to be avoided, similar to any live virus inoculation, just don't have the ability to fight and use the culture's in the right way at various points of your treatment. Grapefruit and pomegranate are both well known fruits that interfere with a lot of drugs and seem to be advised against on chemotherapy vy many doctors, as is turmeric and a few of the stronger spices around, they can be pretty potent, but I can't see how a slice of grapefruit in a fruit salad or a sprinkle of turmeric within a meal would make too much difference  I'm treating things like that more as an "intolerant" rather than "allergic" guideline myself. 

Problem is, this sort of advice seems to differ from area to area, and doctor to doctor, the number of times I've seen different people being told quite contradicting advice over diet etc from different consultants is astonishing.

 

Overall, just remember your ability to fight even a mild food poisoning is going to be very low, especially for the first couple of weeks of your cycle, so if you want to treat yourself to some soft cheese, make it a small amount, in the third week of your cycle to get rid of that cheese craving (it's Christmas - my cheese board!! 😭) - simply exercise common sense, if you get a tummy issue, make a note of what you've eaten in case there is a link.

Green teas I've never seen mentioned as a don't drink, if anything they are recommended, I have a variety flavour pack in to compensate for changing taste buds.. 

 

Carolyn, here's hoping today is kind to you, take it easy, be nice to yourself and be sure to tell us when you're pleasantly surprised at how few problems you get! 🤗 💖 😘

 

Me, off with some work friends for brekkie and cocktails before all this starts! 😁 

Shi Community Champion
Community Champion

Re: December 2019 Chemo Starters

Turmeric, matcha powder are no no’s too as is Brie. Wash all salad and veg too ❤️ Glad you’ve already got your team on it 👍👍 😘💕💕✨✨Shi xx

Member

Re: December 2019 Chemo Starters

Best of luck for tomorrow Silvertong.  Hope it all goes well and you feel ok with it.xx

 

Member

Re: December 2019 Chemo Starters

Hi ladies,

I had my oncologist appointment today to go over chemo plan. I start next Thursday.  They never said anything about foods so now I'm wondering what things are restricted and why. I drink green tea with lemon a couple of times a day, is it not allowed?? What's wrong with pomegranate? I thought plenty fruit n veg was recommended for vitamins and minerals 🤔.

Member

Re: December 2019 Chemo Starters

Hi Carolyn99,

Glad it wasn't too bad, hope you're feeling better after a good sleep. Xx

 

Member

Re: December 2019 Chemo Starters

Hi girls.. well had my first chemo session this afternoon.. was ok.. felt fine during. 
cold cap a little uncomfortable, but very doable.. just wrap yourself up warm and sip a warm drink.

about an hour after I got home, had a few bouts of diarrhoea and very sleepy.. felt sick, but wasn’t.

been drinking plenty of fluids. Just got into bed now.. hopefully I have a good nights sleep. Temp a little low.

ill see how I feel tomorrow.

i had FEC xx

Member

Re: December 2019 Chemo Starters

Thanks Shi will check already gave in a list of stuff I have including green tea. They’re going to let me know what I can continue or stop having. Pomegranate and grapefruit is definitely not allowed. 

 

Xxx

Shi Community Champion
Community Champion

Re: December 2019 Chemo Starters

Please check with your oncs about any supplements and kimchi stuff you have to avoid certain things during chemo, so please keep safe 👍😘💕💕✨✨Shi xx