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December 2019 Chemo Starters

Madcatlady
Member

Re: December 2019 Chemo Starters

Thanks rizzer! 

Just one more week...then you can ring that chemo bell! 

I think I overdid it a bit today, so will be sat with my book tomorrow. It's just too tempting to get outside when it's the only place to go.

I love that description - 'I'm Mrs Zero Boob' !!! 🀣 

Sending lots of love πŸ’œ

xx

Madcatlady
Member

Re: December 2019 Chemo Starters

Woo hoo, MrsS1968! Well done πŸ›Ž

At least you've got a break before radiotherapy, although it's a shame you have to have 15 and not 5.

I've got antibiotics for a week, so hopefully that will sort things. Thanks for clarifying about the leg size!

Let's hope the side effects aren't too bad, and you can just enjoy no more weekly trips to hospital.

Hope you manage some sleep.

xx

Shi
Community Champion
Community Champion

Re: December 2019 Chemo Starters

πŸ’ƒπŸ»πŸ’ƒπŸ»πŸ•ΊπŸ•ΊπŸ’ƒπŸ»πŸ’ƒπŸ»πŸ‘πŸ‘ nearly there πŸ‘πŸ‘ on rads, keep up the drinking water and have a nap when your body tells you to, get your kaftans out to waft around in to get air to skin and slap on your cream πŸ‘πŸ‘ it’s lovely and cool if you can keep it in the fridge ❀️ Your team will keep eye on your skin, but and concerns raise it with them so they can have a look to make sure all ok πŸ‘β€οΈπŸ’•πŸ’•βœ¨βœ¨Shi xx

Adelemck
Member

Re: December 2019 Chemo Starters

Had my last chemo 2nd April - 5 sessions of radiotherapy due to start 30th April had Mastectomy begining of November - then I'm done! As TNBC I won't be on Tamoxifen or similar - they do plan some bone infusions later but that seems fine 😊🀞 I'd planned a break away between chemo and radio - that's not happening now πŸ€” nearly there ladies 😘

MrsS1968
Member

Re: December 2019 Chemo Starters

Rizzer

 

I'm sure you will totally ace it. Only 5 and how lovely to get it all finished πŸ‘πŸ‘πŸ‘

rizzer
Member

Re: December 2019 Chemo Starters

Shame you’ve got the full 15..but then I’m Mrs zero boob.... so swings and roundabouts right?! 😁 🀣 πŸ˜‰. Yeah 4 days after for RT is quick isn’t it. I’m imagining I’ll be on my knees after, but so so grateful πŸ™. Chuffed you’ve finished MrsS 😘

MrsS1968
Member

Re: December 2019 Chemo Starters

Sorry Rizzer- struggling to keep up with everyone. They are starting your radiotherapy quickly, with us they wait 4-6 weeks to allow you to recover from chemo. I thought I might get away with 5 radiotherapy treatments but they have to give 15 at the lower dose through my reconstruction. Waiting for a date x

rizzer
Member

Re: December 2019 Chemo Starters

Woohoo!!!! MrsS! You flipping well did it ❀️Long may the demob-happy feeling continue! 🍹 πŸ·πŸΎπŸ§‰πŸ» πŸ’ƒ
Not got my last till next Thursday (I’m on 2 weekly cycle) 

Radiotherapy starts for 5 days the following Monday! 

So pleased to hear no DVT madcatlady...hope the cellulitis doesn’t keep you from making the most of that garden for too long 🀞. Sending loads of love πŸ’• 

 

MrsS1968
Member

Re: December 2019 Chemo Starters

Madcatlady that's great news that you don't have any DVTs. The difference in size is likely to be random, nothing to do with your heart position (I'm a physio). Hopefully they will settle down soon. Have they given you antibiotics?

Last paclitaxel today πŸ‘πŸ‘πŸ‘. All fine and I have that end if term, breaking up for summer holidays feeling! Until the steroids wear off....

Rizzer's last one today, I think. Hope it all went well Rizzer.

Ladies, we are all getting there. What are next steps for everyone after chemo? I had surgery in November so it's radiotherapy, then tamoxifen and ovarian suppression for me x

Madcatlady
Member

Re: December 2019 Chemo Starters

Hi ladies

How are you all today? It's so beautiful outside with everything growing, and lots to look atπŸŒ·πŸπŸ¦‹

I had a scan on both legs on Tuesday afternoon and there were no signs of blood clots, so I was told to carry on with the antibiotics but to stop the blood thinning injections - whooppee! So looks like cellulitis after all. 

It's not nice, but I'm so relieved it's not anything like DVT. My legs are still tender and my ankles are swollen, but seem a bit less warm and red, just mottled.

Mc22, you've got to keep a sense of humour when you look like a mad professor on the top (odd strands of hair that didn't fall out on the crown that are sticking up now amongst a bit of new fuzz) and fat corned beef legs! It's not a pretty sight.

Lady34, I think what you said about side effects all coming with the last one is interesting. Although my ankles swelled at the end of the fifth cycle it wasn't like this. I feel more tired too although that is probably the cumulative nature of chemo.

Silvertong, it's my left leg and ankle that are worse too. Could it be anything to do with the heart being on the left side? Mine's a social care background, not health, so I could be entirely miaowing up the wrong tree.

Rizzer, the barrel pond is done! It's a bit of a Heath Robinson affair and probably won't last more than a year, but it's kept me out of mischief. Now the veg bed...

MrsS1968, the last paclitaxel today!! I do hope it goes according to plan and safely. Rizzer, is your last one next week? 

Take care, ladies. We're motoring through (even if it feels more like a crawl at times).

xx

Lady34
Member

Re: December 2019 Chemo Starters

Horizon last night on cancer did anyone see it? Prostrate treatable with New radiotherapy robot. Skin liver lungs with a new chemo drug taken by the patient. Both remarkable results 

πŸ™πŸ½πŸ€

Mc22
Member

Re: December 2019 Chemo Starters

Madcatlady - so sorry to hear about your latest hospital drama. I hope you are now feeling better.  It is always the very last part of a journey that is often the toughest.  I get the impression that you have managed to hang on to a sense of humour (albeit the dry variety) which I am sure will see you through.  As Charles Chaplin once said 'humour is a great preserver of sanity'.

Sending lots of love to yourself and all.

Mc22 x

MrsS1968
Member

Re: December 2019 Chemo Starters

Lady34

 

We are all so lucky to be coming to the end of chemo x

Lady34
Member

Re: December 2019 Chemo Starters

Had my last of 3 paclitaxel aka Yew

fortunately only had these se this time so not complaining actually not complaining at all as grateful to be through my chemo. 

 

All the very best for Thursday. Your last one

πŸŒ²πŸ‘πŸ½πŸŒ²πŸ€ž

MrsS1968
Member

Re: December 2019 Chemo Starters

Oh dear Lady34,

 

That sounds awful. What chemo drug have you been on?

 

I have had a lot of pain and fatigue this week, but last paclitaxel on Thursday! X

Lady34
Member

Re: December 2019 Chemo Starters

Evening All

 

Hows everyone doing ?

looks like I’m finishing my chemo with a final finale managed to get all the se I missed out on. Major lower back ache for 2 days Pin’s and needles in fingers and feet plus diorear!  

 

Keeping everything crossed nothing else arrives. 🀞

 

Madcatlady hoping you’re swellings gone and you’re ok 

 

Huge hugs to all 

πŸ™πŸ½πŸ’•πŸ™πŸ½πŸ’•

rizzer
Member

Re: December 2019 Chemo Starters

Hey madcatlady, I’m so sorry to hear about the swollen legs. As you say - it really is the gift that keeps on giving....more drugs, more injections, more scans etc etc just when you thought it was over. So glad to hear you’re home and - I hope - being well taken care of. Sending you lots of love and healing thoughts Xxx

Lady34
Member

Re: December 2019 Chemo Starters

Dear madcatlady 

another brush with nhs casa but great you’re back home. I know what it’s like one phone call to helpline and you’re dealing with a lot more. But chill now you know what it is. Horsefly blimey! 

I also had one swollen foot showed hubby but it then went down. 

 

Fingers crossed we all stay away from nhs. 

 

Hugs to all 

πŸ™πŸ½πŸ’•πŸ™πŸ½

MrsS1968
Member

Re: December 2019 Chemo Starters

Poor you, Madcatlady. Thank goodness you were allowed to come home. Hope it all settles down quickly x

silvertong
Member

Re: December 2019 Chemo Starters

Wow, that really is rotten, Madcatlady. Glad you didn't have to stay in though. 🀞 for your scan. 

 

I've certainly got swollen feet and ankles and have put it down to a combo of the treatment and lack of exercise. My left leg seems a bit worse and my arm seems to have joined the soles of my feet in numbness so I'm wondering if it might be something more/different.

Madcatlady
Member

Re: December 2019 Chemo Starters

Happy Easter, lovely fluffy ladies! 🐣🐀😊

Sorry, I would have said this yesterday, but I ended up at the hospital...chemo really is the gift that keeps on giving, isn't it?...

I started getting swollen feet and ankles on Thursday, but as it had happened on my last cycle at exactly the same time (i.e. just at the end), and it is a common side effect, I wasn't too worried.

But then both lower legs became warm and red yesterday morning, so I rang the chemo unit helpline and they asked me to come in. Both the doctor and nurse thought it was most likely to be cellulitis (which I did get last summer after a horsefly bite). Apparently it can occur from the swelling alone as chemo can make skin drier and more susceptible, and if you've had it once, you can get it again.

I'd taken my hospital bag with me just in case (knowing my track record!), but thankfully I was allowed out with antibiotics and blood thinners. They didn't think it was a clot but I will be contacted for a scan and so the blood thinners are a precaution pending the appointment.

(Just when you thought it was all over and you could hand over your sharps bin....more injections into the tummy 😣).

Hope everyone has been enjoying the lovely weather.

xx

 

Lady34
Member

Re: December 2019 Chemo Starters

🐣 For sure I look like a fluffy chick but not so cute πŸ˜€

 

Enjoy the day ladies xxx

silvertong
Member

Re: December 2019 Chemo Starters

Happy Easter to all, especially if you still look like a fluffy baby chick! (No, I am not posting any photos!)

πŸ€πŸ£πŸ‡πŸ’πŸ₯š

Adelemck
Member

Re: December 2019 Chemo Starters

Happy Easter ladies 🐣🐰 xxx

rizzer
Member

Re: December 2019 Chemo Starters

Happy Easter 🐣 gorgeous ladies! Xxx

livers
Member

Re: December 2019 Chemo Starters

livers_0-1586677151539.png

Happy Easter everyone 🍫🍫 x

MrsS1968
Member

Re: December 2019 Chemo Starters

Great news livers. I have one more weekly paclitaxel next Thursday. Waiting for appointment for radiotherapy which will be at least 3 weeks after finishing chemo. I will be having 15 as they cant give 5 through my reconstruction as they give 5 at a higher dose.

livers
Member

Re: December 2019 Chemo Starters

I have had steroids by IV with both my 3 x EC and 3 x T (Docetaxel) treatments, then tablet form for 3 days followed by the filigstram injections for 7 days.

 

I’m sorry but I’ve completely lost track of what stage everybody is at with their treatment - I think most of us are just waiting to start radiotherapy now?  My 1st radio is on 24/4 and I was told they will confirm at that appointment whether I will have 5 or 15 days of treatment 🀞

 

Have a great Easter everyone πŸ«πŸ«πŸ·πŸ’•

MrsS1968
Member

Re: December 2019 Chemo Starters

Thanks Rizzer. Only one more to go is what is keeping me going right now. Hope you get a good night's sleep too x

rizzer
Member

Re: December 2019 Chemo Starters

Hey mrsS, I’m with you on the pains now...Felt like a very old frail person today. For some reason my left side is far worse than my right. Take care love, hope you can get some sleep tonight X

MrsS1968
Member

Re: December 2019 Chemo Starters

Hi madacatlady

Had the best night's sleep in ages with a temazapam and back to my normal routine of leaving my phone downstairs.

SEs kicking in now. Pains big time 😒

Lady34
Member

Re: December 2019 Chemo Starters

Hi Madcatlady on day 4 been struggling with similar swollen ankles, mouth, tiredness and pain and anxiety but this price is being paid for the last time. After tomorrow I’ll start to feel better as previous experience has shown. Hope so. In the scheme of things what I’m going through is pale in comparison to what the virus is doing. 

 

I feel so much sorrow and will contribute to help others once I’m on my feet again. For now must get stronger even laugh again.πŸ˜€

 

Longing to just have my morning fresh coffee again. I’ve not had a big salad with lemon dressing even πŸ˜€ not long to wait I hope. 

 

Onco told me not to have grapefruit or pomagrante. Anyone know if we can now?  

 

Ultimately it’s worth going through all the SE to kick it. 

 

Big hugs to all πŸ˜€ 

πŸ™πŸ½β€οΈπŸ™πŸ½

Madcatlady
Member

Re: December 2019 Chemo Starters

Hi MrsS1968

How are you doing? I hope steroid effects are wearing off now and you're able to sleep.

I'm getting out in the garden every day but can't believe how tired I am...I keep having to sit down in between jobs.

xx

 

Madcatlady
Member

Re: December 2019 Chemo Starters

Hi again rizzer

I tried to upload a picture of my cat supervising my gardening exploits, but can't get it to load...she was deigning to share the bench with me.

xx

Madcatlady
Member

Re: December 2019 Chemo Starters

Hi rizzer

That sounds like a cool new shed - lights, sign, bench, and freshly painted just in time for summer 🌝 

It's really gratifying when you manage to restore something and give it a new lease of life rather than dismantling and removing it, especially when there's a history attached.

On a much more modest scale, I've spent the past few days on our very old half barrel pond, and have removed overgrown plants and patched the leak, before lining it (hopefully tomorrow) with an old groundsheet, as there's no chance of buying pond liner.

I sympathise about the ground elder. We had it in our last garden. It really is a case of digging out every bit. I did cover the ground with black landscape fabric to try and starve it of light, but it was still a case of dig, dig, dig...

xx

Madcatlady
Member

Re: December 2019 Chemo Starters

Hi MrsS1968

How are you doing? I hope steroid effects are wearing off now and you're able to sleep.

I'm getting out in the garden every day but can't believe how tired I am...I keep having to sit down I between jobs.

xx

 

Madcatlady
Member

Re: December 2019 Chemo Starters

Hi Lady34 

How are you feeling now? I hope you're managing to eat now.

I'm now at the end of the cycle, and like last time, have got sore feet and nails and swollen ankles 😣

But...on the plus side, I can definitely see some distinct fuzz on my head, which my husband says is blonde on top (bless him, I think it's white!) and darker at the sides.

xx

rizzer
Member

Re: December 2019 Chemo Starters

Hey madcatlady, thanks for asking! Well, we’re getting there. My husband has painted the donkey shed and we’ve finished clearing it. Bench outside and a personalised sign, plus solar lights and some pots. Just need to get some sort of floor down like hardcore/type 1 which might have to wait given current situation.  Got some potatoes in, but struggling with ground elder (everywhere!!) and have to clear it out enough at least to plant things that can’t compete with so many weeds! Plan is to cover off some of the beds for a couple of seasons, save the battle digging out nettles etc. 
How are you (and your site manager the cat!) getting on with the gardening? Xxx

B4
Member

Re: December 2019 Chemo Starters

Absolutely Madcatlady

i echo that... Rizzer and Mrs S only 1 to go now... 

best wishes and love

 

B4

Lady34
Member

Re: December 2019 Chemo Starters

Hi madcatlady 

Bit zonked out but doing ok. Urge to clean in every room I go to. Cleared out a few clothes. Not eaten yet. How’re you madcatlady? Penultimates nearly there πŸ˜€ 

Hugs to all πŸ€β€οΈπŸ€

Madcatlady
Member

Re: December 2019 Chemo Starters

Hey rizzer

How's the clearance of your donkey shelter and preparation for veg growing coming along? I've been meaning to ask.

xx

 

Madcatlady
Member

Re: December 2019 Chemo Starters

Hi rizzer and MrsS1968

Only one to go - you can say 'last one' when you go next time. It's a great feeling! 😁

xx

Madcatlady
Member

Re: December 2019 Chemo Starters

How are you doing today, Lady34? Hope the yew is doing its best and you have had a better day and hopefully will get some sleep tonight🌲😊

(Birds - take note. No early morning chorus tomorrow, please!)

xx

Madcatlady
Member

Re: December 2019 Chemo Starters

Hi Adele

Woo hoo - last one! Well done 😁

I know what you mean about not ringing the bell until after the filgrastim injections are done. I did a dance when I did my last one; I hated them and always felt low, hot and bothered whilst taking them.

Hope tonight is a better night for you.

xx

MrsS1968
Member

Re: December 2019 Chemo Starters

Thanks Rizzer. All good! In my way home from 8 of 9. Feeling in quite a party mood!!! Will wait for the steroids to wear off 😁

rizzer
Member

Re: December 2019 Chemo Starters

Just back from number 7 of 8. Hope you’re doing ok mrsS Xxx

Lady34
Member

Re: December 2019 Chemo Starters

Rizzer Mrs 1968

very best for you’re penultimates. It’s a big boost afterwards as only one to go. Yes I’m awake πŸ˜€ did get 4 hours knock out sleep probably cos of painkillers. 

 

Birds chorus so time for sleep πŸ’€ 

 

Hugs to all even the Yew 🌲 tree 🌲 work your targeting magic please. πŸ™πŸ½πŸŒ²πŸ™πŸ½

MrsS1968
Member

Re: December 2019 Chemo Starters

Thinking of you tomorrow, both on our penultimate paclitaxel πŸ‘πŸ‘πŸ‘

rizzer
Member

Re: December 2019 Chemo Starters

Roll on days 5/6 for you lady34...glad you managed to get that bacon sandwich in early doors. Hope you get some sleep πŸ’€ 😘 

I’ve got my penultimate paclitaxel tomorrow, so still a little way to go with the chemo. Take care ladies and catch up tomorrow I hope Xxx

rizzer
Member

Re: December 2019 Chemo Starters

Hey Adele, I know all about those back spasms!! Sorry to hear you’re suffering. On hold to DWP for 4 hours...you must have been 😀 I hope you can get things sorted and feel up to ringing that bell very soon. Wishing you a good night 🀞 ❀️ Xxx