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December 2019 Chemo Starters

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Re: December 2019 Chemo Starters

Hey Lady34, glad to hear you’re home safe and sound and have done number 3. That’s something to celebrate. And what better way to do it! 

I wish FEC actually stood for Fish, (pickled) Egg and Chips... I’d totally smash this if it did.

 

Makes me smile to think of that saveloy, gherkin and pickled onion nestling in there too...

Hope you have a relaxing nap and sending you lots of love X

 

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Re: December 2019 Chemo Starters

Thanks madcatlady xxx

 

Back from chemo chips fish and saveloy pickled onion n gerkin eaten half of all πŸ˜€ 

 

well it was so much easier without the cold cap just a couple of hours but hung about for meds. 

 

Anyway this was my 3rd FEC next I’ll have T for 3. 

 

Feeling ok in bed watching tv May have a nap. 

 

All good so far wig looking good nurses say πŸ˜€πŸ™πŸ½πŸ’•πŸ€  onwards and upwards x

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Re: December 2019 Chemo Starters

Hi Lady34 and B4

Best of luck for tomorrow. And enjoy the chips! 😁

xx

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Re: December 2019 Chemo Starters

B4 all the very best for tomorrow πŸ’• will check in here after chemo and maybe stop at the chip shop on the way home πŸ’•

 

Getting there but maybe fatter πŸ€πŸ’•πŸ˜€

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B4
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Re: December 2019 Chemo Starters

Hi Lady34

im having my chemo tomorrow as well. Long day!

best wishes and loads of love to all. W all will get there eventually.....πŸ˜˜πŸ‘πŸ‘

 

B4

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Re: December 2019 Chemo Starters

Hi all

No question about food is ever trivial, rizzer! I feel like eating my way through the house this week, so I'm relieved to see it's not just me.

Is it the steroids?? I keep blaming them but I only had to take them for three days! 

Reading about everyone's carbohydrate desires brought on a desperate longing for chips, which was satisfied earlier. At least the last mince pie and piece of shortbread got eaten yesterday so they're all gone.

xx

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Re: December 2019 Chemo Starters

Hi ladies 

rizzer debilina and adelemck

thanks for good wishes. It’s gonna take a bit of getting used to as my wig feels like I’m wearing a hat and my face and head gets hot. Really now admire women who normally wear wigs.

 

Ready for tomorrow should be quicker without cold cap. 

Oddly didn’t sleep well last night! Good day today did some cooking. 

Hope today was good for you all and the best for any treatments tomorrow. 

 

πŸ€πŸ’•πŸ™πŸ½πŸ€πŸ’•πŸ™πŸ½ 

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Re: December 2019 Chemo Starters

Hi Carolyn99

I'm really sorry about your hair too, but you gave it a go and may have always wondered otherwise. If it helps hair to grow back strongly, then the benefits will be something to look forward to.

xx

 

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Re: December 2019 Chemo Starters

Good luck lady 34 ..one step closer πŸ’ž I made it out today donned the wig and drove to Hobbycraft! Feel shattered now but quietly please with myself 😊 how's everyone today? X

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Re: December 2019 Chemo Starters

Good luck tomorrow Lady34 Xx 😘 

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Re: December 2019 Chemo Starters

Good evening ladies,

 

Just checking in with you all x

 

Carolyn99 I am sorry the cold cap didn't work.....I think it is as you say chemo is just too destructive to our cells Smiley Embarassed 

 

Lady34 I am going to wear my wig to my next chemo also......my breast cancer nurse called this week to see how I was getting on and I told her my hair is gone and that my wig is short and blonde.....she said she was really surprised as the last time I saw her my hair was long and dark and to meet up with her at chemo to show her so I will be feeling like a peacock showing it off Smiley Very Happy

 

Rizzer & Adelemck my worst days on my 1st & 2nd FEC were days 4,5 & 6.....they are horrendous and I'm going to presume the next FEC cycle will be the same but then when the 4th cycle becomes TH&P for me I am praying that because the chemo drugs have changed there won't be that 'low'...….

 

Adelemck did you get out today?......I drove to Tesco's for the first time since my operation in November......not only on my own but with nobody with me......I have never been so excited going to do such an everyday thing Smiley Very Happy

 

My cravings are horrific and I have already put on over a stone from November......I am really overhauling my diet at the minute because I think my bowel is still in shock from having cancer and my tummy cramps are really difficult to live with so I have now discovered that I love Celery which is def not carbs but I can live with......at the minute Smiley Embarassed

 

Have a restful nite everyone x

 

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B4
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Re: December 2019 Chemo Starters

Hi Rizzer,

I have cravings too... Pizza from Pizza hut and garlic bread... not every day,but nearly every other day and also eating the left overs (next day)... not guilty at present. Once I am a bit more sane (once the chemo finish) then will think about the healthy diet.

 

Loads of love and best wishes 

 

B4

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Re: December 2019 Chemo Starters

Yes definitely craving and eating crap! And I struggle with my weight too 😬

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Re: December 2019 Chemo Starters

Yes Oranges! Love them 😍

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Re: December 2019 Chemo Starters

I don’t have much of an appetite the 1st week, but then the next 2 weeks I do crave carbs.. although I can’t get enough oranges atm x

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Re: December 2019 Chemo Starters

Yes! Chinese takeaway sounds yum...Still got too many chocolates and snacks hanging around. Kind of feel like I need to eat them to get rid?! Trying not to feel guilty about it...I know we have enough to worry about X

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Re: December 2019 Chemo Starters

Yes me! House is still full of Christmas stuff which doesn't help! I have felt low all day today so treated the family to a Chinese takeaway - no going to lie it was Lush! And did cheer me up 😊 I have always struggled with my weight! 

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Re: December 2019 Chemo Starters

I know this might seem like a trivial question, but can I just ask, is anyone else struggling with wanting to eat rubbish all the time? I seem to be just craving sugary/carby junk all the time this cycle! 

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Re: December 2019 Chemo Starters

Carolyn66 that's exactly what I think! My sister in Australia knows an oncology nurse who said they don't even offer the cold cap for breast chemo because they don't really work. I reckon because the drugs are so nasty x

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Re: December 2019 Chemo Starters

I don’t think the cold cap has been successful for many unfortunately.

i tried it twice, would have always wondered otherwise.

these drugs are just too strong, and hair is going to go anyway 😒

at least if it’s killing hair cells, it’s killing cancer cells πŸ‘πŸΌ

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Re: December 2019 Chemo Starters

I also had mastectomy with reconstruction on 12th November. Had some tightness in the axilla but have been doing loads of stretching, saw the physio last week and almost have full range of motion. My axillary scar is more tender than other scars but massaging them all.

Carolyn99 I didn't bother with the cold cap from day 1 for exactly those reasons. Hair almost all out now.

I also hot out today. Popped into town for a few messages. It does help mentally to get out x

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Re: December 2019 Chemo Starters

By the way, I had some physio today to help with cording after my axillary node clearance, and it really helped. A bit painful and slightly nauseating having someone massage in to my mastectomy scars an underarm (no recon yet) 🀒, but glad I had it done. If anyone wondering whether worth the bother/wait, I’d recommend it. I’m sure many don’t, but I’d been a bit squeamish about massaging the scar, and I feel it got me past that X

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Re: December 2019 Chemo Starters

Good to hear from you Carolyn99. Thinking of you as you go thru’ the next cycle. Sorry to hear about the cold cap - lots of love ❀️

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Re: December 2019 Chemo Starters

Lady 34

i has my 3rd chemo yesterday and didn’t cold cap.. have lost so much hair now I didn’t see the point. I didn’t want it to be more painful either.

it was nice to only be there 1.5 hours too. And I felt better not having that horrid cap in. Good luck for Friday xx

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Re: December 2019 Chemo Starters

2 rounds down for me and full Mastectomy was in November - I'm hoping to get out of the house later even if its just a ride in the car! Reassuring to know I'm not alone in this! Hope we are all feeling brighter soon x 

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Re: December 2019 Chemo Starters

Hey adelemc and mrss1968, yes days 5&6 are low points for me. Even adjusting/reducing steroids didn’t stop my tears on day 5 evening this cycle. I think I’m on day 7 now. Just went for a walk, and can almost see that things might pick up. Big hug to you both Xx 

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Re: December 2019 Chemo Starters

What round are you adelemc? I'm round 2 EC, day 6 and feel dreadful. Have felt like this for a couple of days. Tired, no energy, little taste, aching from firmagastrin injections. Totally fed up x

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Re: December 2019 Chemo Starters

Does anyone one else take a dip about 5/6 days post Chemo - feel so drained and want to have a word with myself! 

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Re: December 2019 Chemo Starters

Onwards and upwards lady34 x

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Re: December 2019 Chemo Starters

Hi madcatlady 

Blood test ok. Felt a bit of anxiety just going to the hospital realised I was breathing differently. Stood in the foyer saw many people. Had a word with my frightened self. Asked her to respect that many of these people are here fighting for their lives and I’m one of them. 

 

I must battle my way forward like the 70,000 other women with cancer in the uk are doing.

 

Big girl pants time πŸ˜€ I’m on it.

Going to wear my nice bob wig on Friday and decided not to have the cold cap.

 

Onwards ladies πŸ€β˜˜οΈπŸŒΏπŸ™πŸ½πŸ’•πŸˆ 

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Re: December 2019 Chemo Starters

Hi Lady34

Hope you got on okay with your blood test and are set for chemo no.3. 

xx

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Re: December 2019 Chemo Starters

Ha, Debbie, yeah, to be fair, he's a good kid, plus he gets paid by us for various chores etc just before he goes on holiday each year so he has some extra spending money - kids know which side their breads buttered on!! 😁 

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Re: December 2019 Chemo Starters

Aaahhhhhhh Fluffball.......sorry ten year old thinks ur old πŸ™ˆ On the positive side at least you were β€˜cool’ enough for a 10 year old to even exchange a few words with 😘


@Fluffball wrote:

Needed someone to dash to the chemist for me today, my neighbour sent round her 10 year old lad for instructions, I know him pretty well, watched him grow up...

 

 *rather annoyed looking ten year old rings the doorbell*

10yr old - "mum says you wanted something and told me to get a list from you"

Me - "thanks *name*, it's not much, I won't keep you from your girlfriend"

10yr old - "eeeuwww, girls! Girls are awful!"

Me - "gee, thanks for that!"

10yr old - "well, you're not a girl, you're old!"

Me - "yeah, Ummm, that's all right then!β€œ

 

 

Gosh, I'm glad mines grown up!!! 😁 πŸ˜‚ 


 

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Re: December 2019 Chemo Starters

Needed someone to dash to the chemist for me today, my neighbour sent round her 10 year old lad for instructions, I know him pretty well, watched him grow up...

 

 *rather annoyed looking ten year old rings the doorbell*

10yr old - "mum says you wanted something and told me to get a list from you"

Me - "thanks *name*, it's not much, I won't keep you from your girlfriend"

10yr old - "eeeuwww, girls! Girls are awful!"

Me - "gee, thanks for that!"

10yr old - "well, you're not a girl, you're old!"

Me - "yeah, Ummm, that's all right then!β€œ

 

 

Gosh, I'm glad mines grown up!!! 😁 πŸ˜‚ 

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Shi Community Champion
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Re: December 2019 Chemo Starters

Glad you are ok but during chemo best to always ring your rapid response just to be safe β€οΈπŸ˜˜πŸ’•πŸ’•βœ¨βœ¨shi xx

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Re: December 2019 Chemo Starters

Ladiessssss.........thank you for your advice.......I am truly amazed to tell you that omg I dont know if I can.....ok I’ll just go for it.......my itchiness had disappeared this morning when I woke up.......along with most of hair in that particular area......as with my head hair and eyebrows..... no thinning......it just left......the nurse at the chemo unit told me in her 20+ years I was one of the very few people whose hair reacted so quickly and without mercy πŸ™ˆ However after taking Shi’s advice I did put a call into oncology......thank you Shi x

Today I woke up like Debbie again so hopefully the angry steroid β€˜come down’ has been avoided this cycle......I celebrated by drawing on some eyebrows, ironing (I am a real home bird and actually love having the energy for housework) and slathering the last of my eyelashes in Mascara as I know they will probably be away tomorrow and wanted a diva moment with them until they return!!!!!!

I hope we all manage to have a restful nite.

Debbie x

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Re: December 2019 Chemo Starters

Lynlucy yes our lives have changed so much. Mine has anyway. I’m not doing most things I used to and I can’t wait for this intensive treatment part to be behind me. 

Clyclizine 50mg is the nausea my consultant offered instead of domperione cos I asked her if she had anything better. Trouble is it makes me drowsy for an hour or so but works a bit better. 

One tip for mouth issues nurse told me salt water and warm water rinse the mouth a few times a day especially if rash is arriving. 

πŸ˜€πŸ€ Onwards ladies πŸ€πŸ˜€

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Re: December 2019 Chemo Starters

Lady34.  Seems you are finding some things that are working for you. Isn’t that how our lives have become? I developed very bad heartburn and now just added Prilosec to my morning routine. It seems to keep it at bay for the most part. 
Good luck on your chemo #3. We are moving along ladies. Soon this part will be in our rear view mirrors! Xxx

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Re: December 2019 Chemo Starters

Hi Ladies old and new 

Bloating issues I’ve managed to keep at bay after trail and error I take a dulcolax it’s a light laxative just enough to keep everything moving wind too. 

 

Been having an an ice lolly before I eat to shock tastebuds! Works a bit. Sleeping as much as needed ready for 3rd chemo on 18th

got blood test tomorrow. 

 

Not sure if I’ll bother with cold cap as hairs dropped a lot. 

 

3rd chemo? Seems like times moved fast. 

 

Sending best wishes to all in the group good luck πŸ€πŸ€πŸ€ on our unique journeys πŸ€πŸ€πŸ€

 

 

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Re: December 2019 Chemo Starters

Hi Fluffball 

Ten years without medication for depression and anxiety just shows how strong you are. As Debelina says, it's one day at a time with this awful situation we're in.

xx

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Re: December 2019 Chemo Starters

Hiya Debbie

Really laughed when you described your head...I look like some kind of pointy alien with fluffy bits. I had hoped to look more sophisticated but clearly I've been pointy-headed all along...

I echo what the others have said about thrush - the cream helps and I have had the need to dab some on but it's best to check if antibiotics are needed as well. (Although they gave me thrush last time so it's a bit of a vicious circle...)

Really pleased to hear you feel better mentally this time πŸ‘πŸ˜

xx

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Re: December 2019 Chemo Starters

Sorry, just to clarify debelina... realised my response was confusing about the thrush.

 

I meant you can get a canesten treatment that comes in the form of a single tablet (hence it’s called β€˜once’) not that it’s for treatment of oral thrush (which is what it looks like I meant πŸ™„) I only mention it as it may be suitable and save you a load of additional applications etc. 

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Re: December 2019 Chemo Starters

Debelina, please phone your rapid response number and discuss with them, if it is thrush it will need antibiotics and with you being day 6 you need to keep safe ❀️ Better to make that call and be sure. Please don’t delay till morning. Being on chemo and something β€˜cropping up’ no matter how insignificant you might think it is, it is not like usual when bodies immune system is firing on all cylinders, the chemo wipes your immune system. Sending ❀️Please make the call and check, your team will be glad you are being vigilant. πŸ’•πŸ’•βœ¨βœ¨shi xx

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Re: December 2019 Chemo Starters

Hey debelina, I think it sounds like thrush too. I think canesten do a β€˜once’ oral treatment they may or may not be suitable with chemo, but worth checking if it is. From memory, another lady on the forum enquired about something very similar a few weeks back, and someone else with similar symptoms said hers had happened before losing her hair down there, but the itchiness has gone away after the hair had all fallen out. Either way, I’m sure you can get this sorted. Best to check in with the chemo nurses.

Fiona, I know exactly what you mean about the relentless shedding everywhere. I got my husband to take mine down to a grade 3 from 6, but it’s still somehow all over the place...
I feel for you fluffball about taking the medication again. Taking them if you feel you need to, doesn’t diminish your achievement though. This bloody disease just feels like it takes you everywhere you really don’t want to go physically and mentally. 

On the old Hobson’s choice with the steroids, I’ve chosen not to take anywhere near as many and tail them off. I took just 2 at breakfast day 2 (instead of 2 at breakkie 2 at lunch) and only one yesterday and another today. Undecided whether I’ll do another one tomorrow with breakfast or just stop...
Hope is still there that I might make it through day 5 this time without a mental crash. Time will tell!  X

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Re: December 2019 Chemo Starters

Mrs1968 I too cannot cope without sleep and the first thing I said at my last chemo appointment was that I needed sleeping tablets.....I had been taking nytol before my operation but knew they weren’t seeing me thru the nite......I had been given zopiclone 7.5mg and am taking one for the three nights after my steroids finish......first FEC they didn’t work the nights I was on steroids so for me it was an unnecessary prescription.

Fluffball I totally understand what you mean about the anti depressants....I was on Sertraline for anxiety for many years and came off them just prior to beginning chemo and I am so proud (actually a bit like a peacock) of myself for being able to feel that I was strong enough to do this.....however truth be told I don’t how long I will last but one day at a time 😘

Thanks for you advice re the cream application.....I am off Boots tomorrow first thing 😊😊😊

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Re: December 2019 Chemo Starters

Thanks Fluffball. Well done for managing without the depression and anxiety meds but don't beat yourself up if you do need them. This is such a mind game (not the word I really want to use). It's a tough marathon.

I did have my hair cut very short but considering getting my husband to cut it on s grade 1/2 with his clippers.

Keep taking duvet days whenever you need them x

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Re: December 2019 Chemo Starters


@MrsS1968 wrote:

Hi Debelina

 

I have a gorgeous wig that looks like my hair used to. I'm on EC and I think the hair loss is a bit slower than FEC. I have accepted it, but it's the mess that's getting on my nerves.

 

Definitely feeling rougher this time. Mild nausea. I have taken the steroids but have been taking a temazapam those nights to help me sleep. I'm useless without sleep. 

 

Xxx


Yup, I thing the "F" in FEC stands for "**bleep** off hair"  I'm on EC too and although I shaved to start my hair is still regrowing in patches!! 😁 Bloody nuisance, having to shave now! 😲

 

Almost five weeks in and yet to have my second EC though and getting very frustrated at delays.. Determined not to resort to anti depressants and anti anxiety tablets etc as I've battled depression all my life and the beginning of this year was so chuffed to say I've been tablet free for ten years! Makes it far tougher to go back...

 

I'm lucky in the sense that I have no children that depend on me and if I need to take a duvet day it's rarely a problem, just trying no to let that become a habit! But have accepted the occasional (and so far it is occasional thankfully) sleepless night and find the key is not worrying about it for me, easier said than done though...

 

Hugs and hopes it stays manageable.. Xx

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Re: December 2019 Chemo Starters

Hi Debelina

 

I have a gorgeous wig that looks like my hair used to. I'm on EC and I think the hair loss is a bit slower than FEC. I have accepted it, but it's the mess that's getting on my nerves.

 

Definitely feeling rougher this time. Mild nausea. I have taken the steroids but have been taking a temazapam those nights to help me sleep. I'm useless without sleep. 

 

Xxx

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Re: December 2019 Chemo Starters

I echo fiona, it does sound like thrush, I got the duo with the duo creams, one for internal, one external before I started all this as I know for me, stress triggers thrush πŸ˜” 

 

Warning - next bit descriptive personally:

 

All I do nowadays at the first sign of itchiness etc is get ou a pack and use a little of the external with my fingers inside me coating myself and then use the external around all my external bits, with a nice clean panty liner, then whenever I need a wee I reuse the external each time and change panty liner, using the external around three times a day.

If I catch this at the start of it I tend to find it keeps it from getting full on. 

 

If I've not had a chance to do this within 24 hours of feeling itchy I follow the instructions and use it as instructed, with a spare pack to use the extra external cream.

 

The pack with the tablet is probably an idea too, as I imagine it will help if you're developing it in the mouth, however - ALL of this I know can be provided by your team via prescription, so what I've done is had plenty in to start then if I've used it asked for a prescription to replace it, therefore no waiting!

 

Gish... Does any of that make sense??

 

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Re: December 2019 Chemo Starters

Hi Mrs1968......Thank you I am going to phone in the morning.....especially it that’s all I need to clear it up!

I am on day 6 after my 2nd FEC and definitely coping better mentally this time but the sickness is really horrible but I knew it was going to be because I asked for a reduction in my steroids.....to be honest I am so happy not feeling black that I don’t even worry about having to scoot into the bathroom now. Are you able to sleep at all Mrs1968?

My hair literally fell out on Day 12 of my first FEC followed by my eyebrows on Day 13......it was very traumatic but all gone by day 18.....I have a few eyelashes left but to be honest I am more traumatised by the fact that my head has been shaped like a cone all my life and I never even knew πŸ˜‚πŸ˜‚πŸ˜‚πŸ˜‚ My wig is blonde and a bob.......I had long dark hair before and I am neverrrrrr having long hair again.....I love being blonde and short......I took my wig to a lady who steamed and cut it to suit my face better......omg she is an Angel......how r u getting on with yours......I feel bad for you if it’s just coming out in bits......looking back I’m kinda lucky I didn’t got thru the shedding phase 😳