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February 2019 chemo starters

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Re: February 2019 chemo starters

Good Morning Trixielady

I am so pleased your chemo experience was a positive one. Sorry you were so Sick, what antiemetic did they give you. Reading all the threads it seems that Emend is the gold standard. I can imahini me fasting too but probably not out of choice I can never eat when is am worried and stressed. Rest up now and get over this first cycle. Take care x

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Re: February 2019 chemo starters

Morning Stargazer1, I painted my nails a dark purple, wigs in ready for a week on Wednesday as nurse says it will start coming out then, can't decide whether to shave it ASAP when it starts.I did Fast for the day before and drank plenty nurse said to drink 2 litres a day of which I find difficult.big hugs Thursday will soon be here , don't stop enjoying the days in between, have fun with wig shopping tomorrow xx

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Re: February 2019 chemo starters

Morning Trixie, glad it went well yesterday  and hope you have the sickness under control now. Good luck for Thursday Stargazer x

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Re: February 2019 chemo starters

Thanks Jencat, it went well until 7pm last night but days another day, I had Cold Feet playing in the back ground last night and my ears prick up whilst throwing up, it was about a breast cancer diagnosis. I eventually stopped being sick at 12. Hope you OK? Xx

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Re: February 2019 chemo starters

Morning Trixielady, I'm so glad your chemo went ok yesterday and thank you for your kind message. I've replied to you on the Oct '18 thread x

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Re: February 2019 chemo starters

Morning Trixielady

I was so glad to see your post to SeasideSar and that yesterday went well for you. I’m hanging on to every positive post. I’m doing final preparations ready for Thursday, I am so nervous 😬. I had a scan yesterday, having nails painted today a dark colour & wig shopping tomorrow and then it will be ‘C’ day. Like you I will be counting down the weeks. Xxx

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Re: February 2019 chemo starters

Morning Stargazer1, how it going with you? Xx

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Re: February 2019 chemo starters

Morning Seaside Sar good luck for today, I found the whole procedure pleasant appointment was 11.30am got seen at 12 pm all finished by 2pm enjoyed my soup & sandwich provided.They are brilliant double checked all mediation to be used  Nurse sat with me during epirubicin, otherwise no worries 5FU  cycloposphamide and docetaxel went it pretty quick  sat talking to my hubby & mam, I was given injection to take home and start on Wednesday for 7 days to apparently help raise my white blood cells, steroids to be taken twice today, prepare yourself to be feeling sickly about 5 hours after treatment doesn't happen to all but it definitely did to me but I was OK by 12pm and able to have some sleep xx 1 down 5 to go, be smiles you can do it xx

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Re: February 2019 chemo starters

Hi SeasideSar

Best wishes for today. Hope it all goes well for you. I’ll be thinking of you xx

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Re: February 2019 chemo starters

‘Mildred goes to war’ is my favourite bit. It is so short ( half way through where the music has more ‘punch’ ) don’t know why they didn’t make this section longer. 

Actually the soundtrack to the film ‘Three Billboards Outside Ebbing Missouri’ is quite amazing. I have watched the film twice.

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Re: February 2019 chemo starters

Hi Sonia28

It’s a tough time isn’t it? I am a mum of 4 girls, 30, twins 19 and 15, they have been marvellous through all this as has my husband but I can’t help feeling guilty that I’m putting them all through this.

I start my chemo on Thursday and am going to try and use the cold cap too. I’ve been looking for tips on the forums about using it. I can’t seem to find out if it’s advisable to wear a sleep cap when using the cold cap. I also have a wig appointment on Wednesday. Xx

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Re: February 2019 chemo starters

To all the ladies about to start chemo: you got this and I am keeping my fingers crossed for you.

You are all immensely brave!

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Re: February 2019 chemo starters

Hi all,

I also start chemo on Wednesday. It's great to read everyones thoughts and feeling, it makes me feel that mine are normal.

I usually work with the health visitors as a Family Health Worker, and I was doing a uni course which has had to go on hold, but I am even more determained to finish it than I was before. Im a mum to 3 children 19,16, and 14. I'm keeping busy running around after them. 

I'm planning to try the cold cap, so any tips will be greatfully recieved.

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Re: February 2019 chemo starters

Seaside sar, thanks hun enjoy trying on wigs, my first time was difficult should have embraced it not worried about what was to come but the second time was funny and my friend asked all the questions before I even got the chance to think ie: washing  styling, what happens if it get wet in the rain, how to dry it, what kind of brush, can you stick it to your head if it's windy, how will wearing a hat affect it. I finally chose a wig from Hothair called infinity shoulder length & straight in a brown and was so pleased my son thought I'd just had my hair done xx

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Re: February 2019 chemo starters

Thanks Rosina, how beautiful and relaxing xx will have to remember my ear phones & phone charger xx

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Re: February 2019 chemo starters

Hi Seaside Sa 

I hope your wig buying goes well. I bought one in a salon a few weeks ago. But of course I could not stop there and bought one on line. It's a lovely wig except for the colour!! I looked like Tina Turner 😂 not a good look for me as I am really blonde. Maybe I need to stick to the shop. Let us know how your fitting goes. 

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Re: February 2019 chemo starters

Hi Trixielady

All the best for tomorrow. We can all travel this journey into the unknown together 💪🏼 If you feel up to it let us know how you get on 😘😘

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Re: February 2019 chemo starters

Evening everyone

 

First of all, I am so grateful for all of you who are posting on here as it makes me realise I am not alone.

 

MBJ - I'm really glad my blog was helpful and sorry to hear you were given so little detail from your onco. I'm impressed with your shopping spree! A lady after my own heart.

 

Trixielady - Like others have said, I feel your pain. I've had a weekend of feeling low, sad, depressed, hopeful and somehwere in between. It's so hard when we don't know what to expect. Hopefully we will feel more in control after cycle 1 as we will have some idea of what to expect. Good luck for tomorrow.

 

Tomorrow is my last day before chemo starts and I have booked a wig consultation. I am also planning to paint my nails in a dark colour to try to prevent the damage that the chemo drugs can cause. I feel a bit like I'm preparing for a prom, not for a nasty dose of treatment!

 

Big hugs to you all.

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Re: February 2019 chemo starters

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Re: February 2019 chemo starters

MBJ ,will be thinking about you too, this looks like how we're going to be doesn't it waiting & waiting even once it starts I don't think it will be any different,hopefully we'll fly through it and will wounder what we were so tormented and  stressed about xx

 

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Re: February 2019 chemo starters

Trixie, wishing you all the best for tomorrow, you've got this. xxx

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Re: February 2019 chemo starters

Thanks Neecy, I'm pleased your boys have been home  I think it definitely helps. Banana loaf sounds lovely . I hope your next chemo doesn't throw up any nasty surprises fingers crossed for you. Hopefully you'll manage to get plenty of rest, So far I've managed to fast and trying to drink plenty, the thought of being sick or constipation is awful. Here's hoping the time in between chemo is good to us all xx

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Re: February 2019 chemo starters

Hi Trixie, crying as I read your post. You are definitely doing the right thing, by keeping busy and surrounding yourself with family. I'm day 5 following first cycle and I'm doing fine at the mo, just feel washed out. Both my boys came home from uni for the weekend and we've had a lazy time and I've even baked a banana loaf this morning for them to take back tonight... Though I'm lying down now, knackered now. Will be thinking about you tomorrow and all of you waiting. 

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Re: February 2019 chemo starters

Oh Trixielady I am right there will all those mixed up emotions. Good luck for tomorrow. I think a productive day is a good idea. Bed changing always gives a sense of achievement. I have two long more weeks to wait before my chemo starts. The waiting is torture. Hope to hear how everything goes and how you feel. 

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Re: February 2019 chemo starters

Morning Trixie, I hadn't realised your chemo was tomorrow, I don't know why, but I'd thought it was the 18th. Anyway, just wanted to let you know that I was thinking of you and sending a hug. I'm sure spending time with your family today will help xx

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Re: February 2019 chemo starters

Well here goes ! The morning before chemo sat here looking at my keyboard deciding what to write, feeling I'm not even sure what it is I'm feeling is it low, sad, annoyed  anxiety, scared do I even have the right to feel like this as there are people with a lot worse happening to them and having to cope with a lot more  but this is a but and  it's a big but and unfortunately, I now have to admit something awful is happening to me I can't see the keyboard for tears because it will soon be tomorrow and I'm scared and as scared as I've ever been so I've decided to change the bedding, go shopping collect my son from work later today and make is dinner (he doesn't live with us) but having my family around will definitely help. To all you lovely brave strangers I wish you all the love in the world because this is one hell of a journey and theses are wonderful threads. Hopefully I will manage to drink plenty and fast as I read this really helps so here goes xx

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Re: February 2019 chemo starters

Hi Seaside Sa

I read your blog and thought it was really great. (I posted earlier today or at least I thought I did, I can't have passed the robot test!). My story is very similar although my BC was detected on a routine mammogram. My tumor was 30mm and I decided to have a mastectomy with reconstruction. I have also had a lymph node clearance and I also decided not to do the POSNOC trial. I did have an ONCODX test done (as I am 65 then they will do it with a positive lymph node). My score was 27. I saw the oncologist 2,weeks ago and my experience was very different to yours. He just said oh you have come for chemotherapy this is what you will have these are the sideffects sign here. I will weigh you now. Out in about 5minutes. When I got home I looked up all the drugs and started to panic worrying about if the risks outweighed the benefits. In the end I had to ring my BC nurse for advice. I have to wait until 18 February for chemo, the wait is endless feel as if I am living in limbo. Also my pre chemo check is one hour before my treatment starts so I am not going in prepared. Therefore your blog has been fantastic for me. Please let us know how treatment day goes. 

Like you I stress shop, before Christmas I bought a 65"QLED TV whilst sitting on the settee (now there's a challenge to beat😆). Well my excuse was we had to cancel our holiday to Australia. 

I have also bought makeup, bedding, wigs, and hats. At this rate I will be broke. 

Good luck to you and Trixielady for Tuesday. I will be thinking about you. 

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Re: February 2019 chemo starters

Thanks Anniej for your reassurance and helpful tips. I had heard about honey being beneficial and have a local supplier near us so will get some.  I haven’t been given any anti sickness meds yet maybe I will at appt on Thursday. Xxx

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Re: February 2019 chemo starters

Hi SeasideSar Thankyou for the link to your blog. It does sound as though we will be having similar treatment. I too am having 3 FEC & 3 T but not herceptin and received very similar information. I haven’t been given any meds for nausea or mouth ulcers yet as I’ve seen some have. I’m having a weekend of indulgence, takeaways, meals out & wine 🍷😂 xx

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Re: February 2019 chemo starters

Hi sandraindurham 

I have been having 3 cycles of FEC so haven't had the need to use it yet. I have bought it in preparation for next 3 cycles of THP as it's the T that causes the problem.

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Re: February 2019 chemo starters

Hi Kitkat, thanks for your post, it was really helpful. Having had one round of EC on Wednesday, I seem to have new symptoms everyday. Today I've had a dead arm and feeling of light headedness on and off. I'm finding it all overwhelming but your post was reassuring xxx

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Re: February 2019 chemo starters

Hello ladies, just popping in to say that while I am sorry you find yourself on here, welcome to the club! It is great as a support group and if you read previous months threads you will get lot of your questions answered. Feel free to drop in to other threads with any queries as someone will have been there and done that. I found that this time before you start is probably the worst bit as you really don't know what to expect, followed by the first cycle because you don’t know what your new normal is going to be, so if it helps I would offer the following:-

Don’t suffer in silence, if your team don’t know you have a problem they can’t help fix it and they have lots they can do so don’t wait til your next appointment to discuss.

Drink, drink, drink, chemo is quite dehydrating and I find I need to drink 3 litres starting the day before you are dosed (to plump your veins) for 3 days (flushes the chemo out) then at least 2 litres a day throughout.

Keep a diary of how you feel throughout with chemo day being day1. This gives you evidence to talk to your team but also helps with getting ahead of any side effects before they kick in, as on further cycles you will recognise the pattern e.g. constipation (usually caused by anti nausea meds, needs to be treated asap). Don't worry that you are going to feel ill all the time for the next few months - there will be good days and weeks during your treatment and keeping the diary will help you identify and plan for them. 

Cold capping or not, everyone dreads losing their hair which is such a big part of our identity. For those who don’t cold cap, many of us found that the worrying about when and if to shave was the worst part and actually doing it brought a huge sense of relief, but do what is right for you if and when the time comes

I notice a few queries about nails and having just completed 4 fec my nails are longer and stronger than they have been for years. That’s because I have started using rubber gloves, and a good quality hand cream and nail oil several times a day without any polish. It is the T that does the damage apparently and I will be trying polybalm and/or dark polish during the next phase of treatment.

Wishing you all well ladies, keep talking and we will get through this x

 

 

 

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Re: February 2019 chemo starters

Hi Seaside Sa.

I have just been reading your blog and really enjoyed it. It brought back so many memories and feelings of my own cancer experience. Some the same and a few different. Mine was diagnosed from a routine mamogramme in October. It was bigger than yours 30mm so  I decided to have a mastectomy and reconstruction (not an easy decision and my pain and recovery  have been challenging) Like you I also decided against the POSNOC  trial but did do the ONCO DX trial (I am 65 so having a positive lymph node was acceptable for the trial) .My score came back as 27 so I am now waiting for FEC-T to start on 18th February. My oncologist appointment was nowhere near as informative as yours he just said oh you have come to me for chemotherapy here are the sideffects let me weigh and measure you, job done. I spent the next 4 days worrying whether to have the chemo after reading all the awful sideffects. In the end I had to ring my BC nurse to discuss my worries. I am not having my pre chemo appointment until an hour before my treatment begins which I think seems a bit pointless. So it's great to read your experience as it gives me something to work with to prepare myself. I am not sure about the cold cap as I spoke to my hairdresser and she said in her experience the hair is not good and grows back better when shaved. But I am still not sure. I have bought 2 wigs though and hats. Like you I am a stress shopper. I bought a 65" QLED TV before Christmas whilst sitting on my settee (now you need to beat that!). I look forward to reading more episodes of your blog, please write about your day on Tuesday. Good luck I will be thinking about you and Trixielady. 

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Re: February 2019 chemo starters

Hi DiKat, does it really work?

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Re: February 2019 chemo starters

Hi Stargazer1, yes I could not find anywhere else, so I will buy it from the website, if it is a way of helping my daughter's nails.

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Re: February 2019 chemo starters

Morning Seaside sar, I've read your blog and you appeared to get a lot more information then myself. Like yourself I start my first round of Fec on Monday the Nurse said she wouldn't go into the T just yet!! Like you I already know that herceptin will start with my first T, but I'm also having an injection with Fec to help my White blood cells as they are already low. The nurse said nothing about getting bloods before appointment so hopefully she will say more on Monday .I got One Netupitant/Palonoestron of which will cover me for 5 days & 2 Dexamethasone to take One hour before chemo on Monday. & free parking,my voucher was £150. Best of luck that all goes well on Tuesday xx

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Re: February 2019 chemo starters

Stargazer 1 - It looks like you and I will be going through this at the same time. Please let us know how it goes. How many cycles of FEC are you having? I'm having 3 FEC and 3 T along with Herceptin.

 

There was certainly a lot of information to take in at the pre-chemo apointment. I have put all the detail into my blog which you are welcome to read: 

 

https://breastcancer1.home.blog

 

I started writing the blog because I wanted to keep track of everything that was happening. I hope it will help some of you going through the same thing.

 

Hope you all have a good weekend with minimal or preferrably no worries. X

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Re: February 2019 chemo starters

Hello lovely Feb Ladies,

 

just popped in from Oct 18 chemo to wish you all the best for your treatments this month. I will be have my last chemo this month, ️🤪🎉but I can sympathise with you all at the the beginning of your journey. It’s hard but doable! 💪👍

 

Chins up! 😉

 

Keep safe.

Hugs x

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Re: February 2019 chemo starters

Hi Ladies,

 I am 49 years old. I am married with 2 teenagers and I am a full time special needs teacher (currently signed off). 

I am grateful for my my friends, family and the breast care team here in Sussex.

 I am grateful for this forum too as I wouldn’t have voluntarily taken up this adventure!!!!

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Re: February 2019 chemo starters

Thanks Trixielady,

did you swim during chemotherapy? I used to swim x3 every week but I have currently frozen my membership.  

I have been advised against swimming during chemotherapy.

I am walking and doing a daily routine of stretching instead.

 I also massage my arm from hand upwards (in the shower, at bedtime).

 

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Re: February 2019 chemo starters

Hi Stargazer1

I bought the poly balm direct from their website. You need 2 tubes as you have to use one for fingers and one for toes. It says it only lasts for 2 months once opened x

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Re: February 2019 chemo starters

Hi everyone, just popping in from the May 2017 thread to wish you all good luck.🍀 Emend was prescribed for me pre chemo session and i found it wonderful. No sickness at all. Just remember to take all your meds as prescribed. Do get as organised as possible with care and comfort items. Some ladies will just sail through, and for others it will be more strenuous . I found excellent toothpaste, natural  deoderants and Manuka honey 15+ at that big shop we all know and love. Wait for the penny sale for the honey, though. Never had any mouth ulcers or thrush taking a tea spoonful every day. As my hospital recommended Aveeno cream I just changed all my bath stuff to that brand. My best ever pressy from a friend were a handful of baby terry face mits. So lovely and soft for a quick wipe down when you're wiped out! Best of luck ladies, it's not easy but doable. X

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Re: February 2019 chemo starters

Hi Trixielady 

Thanks for the info pre chemo. I suppose it will be similar everywhere. I have already bought a tympanic thermometer to monitor my temperature. At least you got your info before your chemo mine is just an hour before they attack me. Well I am sure it will be ok. I am glad you like your wig. The waiting is never ending I almost feel envious of everyone starting before me as at least you will have one done out of the way. 

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Re: February 2019 chemo starters

Are you looking for the poly balm? I am too, I can only find it on their actual website where you have to buy 2 tubes for £39, I can’t find it on amazon xx

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Re: February 2019 chemo starters

Hi Sarah

Lovely to hear from you. Im starting FEC on Thursday. I feel a little prepared, I haven’t been given any medications yet, maybe I’ll get them on the day. 

Im going to try the cold cap too, I’m so hoping it will work. 

Theres a lot to take in at pre-chemo appt isn’t there, it felt like brain overload! I’ve been scouring the forums & the Internet for every tip possible to help, it’s such unknown territory.

Good luck for Tuesday, if you are up to it let us know how you get on. 😘😘

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Re: February 2019 chemo starters

Hi, could not find at amazon, do you know where I can find this? Thank you

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Re: February 2019 chemo starters

Good luck, Sarah, keep us posted 🙂

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Re: February 2019 chemo starters

Hi everyone,

 

I'm Sarah and I was diagnosed with grade 3, HER 2+, ER+, ductal invasive breast cancer in October last year. So far I've had a lumpectomy with 2 lymph nodes removed, followed by a full axillary lymph node clearance as one of my nodes was positive. 

 

Today I had my pre-chemo appointment and I will be starting my first cycle of FEC on Tuesday 5th February. The nurse gave me Emend to to take on the day to prevent nausea and she went through lots information with me, including what to bring, etc. I have decided to try the cold cap, so I will be taking painkillers beforehand to combat the ice cream headache!

 

I am feeling quite well prepared at the moment but I wil let you know how it goes.

 

Good luck to all of you starting treatment this month/going through treatment at the moment.

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Re: February 2019 chemo starters

Hi Rosina, this is a lovely forum very supportive , my doctors advised that If applying cream or massageing do it from the hand upwards  never carry your shopping bags on the affected arm, exercise it slowly and don't let it hang down unnecessary,I found swimming helpful breast stroke  Good luck for starting your chemo, hope you get a better valentine's present next year xx

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Re: February 2019 chemo starters

Hi MBJ, it amazing how the word chemo works, pleased you're getting yourself sorted, my doctors been great. Booking in went well weight, height, bloods medical history ailments. Voucher for wig, mouth wash, steroids & anti sickness tablet for Monday and a free parking arrangement, oh and a red emergency alert card and an oncologist appointment for after first chemo. She also highlighted the serious risk of an infection & the importance of checking your temperature no higher than 37.5 lucky all this information is given via leaflet because my head was done in, I think this was the first day since being diagnosed it felt real. I got my wig today and for now actually love it

Neecy hope your chemo is going OK? and you get plenty of sleep it's awful not sleeping well, xx