I’m def up for complementary therapies. And I love Alan watts! Haven’t listened yet but will later. My nephew teaches reiki so will get some with him and I’m seeing an acupuncturist who will do pressure not needles and a kinesiology osteopath! Who lived in India and is old and so cool and spiritual and full of wise words ! I trained as a reflexologist years ago so might get that too! And going to do yoga nidra and restorative in my shed with a yoga teacher pal if I can go in there and not cry or not be too ill. I think we need all this support... the medics are so clinical ....I always feel better after a good old Eckhart Tolle talk on youtube too! Trying days indeed 🙇♀️If there’s anything else you recommend do say:) Well done for the swim!! Xx
My goodness so many topics today that I can identify with, I'll write the one feed rather than individual replies.
Firstly, apologies to Ally2019. I wrote to you earlier and suggested you join our group, then later remembered you're already here. And there's me thinking chemo brain had disappeared over the weekend.😴.
I have my 26 year old son still living at home and he's been ok since my diagnosis.Ithink it helped that one of his best friend's Dad had cancer (who sadly passed away, that's not the good bid), and his mother was able to reassure my son in small ways such don't be worried if there's a change of plan during treatment as everyone responds in different ways. My son, bless him, even made sure his work knew the situation so that if my husband was away he could step up and take me to appointments. We've also been sure to keep him in the loop with all that is happening since my diagnosis.
As for post chemo which I had on the 8th (1st of 4 rounds of FEC) I faired pretty well. I had plenty of top notch anti sick meds which worked really well. The fatigue wasn't too bad apart from Wednesday (sorry Ally2019 I've already told you this)when I took a massive dip. When I saw a nurse on Friday for my PICC to be cleaned she put it down to ending the steroids too quickly. Then we get onto the strange taste from the chemo. My poor husband had to go out on Sunday to buy biscuits. I don't do biscuits😝. Infact I don't have a sweet tooth at all. Well I didn't until Sunday. Coffee I was ok with but that tasted weak but back to its normal strength by Friday. Still can't drink coke and yoghurt still iffy. All very strange. Looking forward to next round...... not
Also cold-capping. That was fine for me, just waiting to see how well it's worked. I know I'll lose some hair it's just a case of how much😨.
Like some of you I've also had a couple of moments. Yesterday was the first when I was simply looking through my wardrobe I suddenly felt really low. It didn't last long but a bit depressing after such a good week. Today I started feeling anxious and don't know why. Just hope I don't need to start taking my meds again for anxiety.
Anyway folks good luck to you all who are starting their first and second round of chemo this week.
Ive just got some wide hairbands in preparation for hair loss and I look like Ken Dodd on a bad day. Now its my turn to howl!
Yes it's strange how so d dates are so significant in family life.
Well I had my pre assessment this morning, asked what antiemetics I would be on , not Emend so I requested it, hopefully it will be on my treatment plan on Wednesday. Also asked about the injections for WBC and again no I was only on them for the T cycles. So again the nurse was going to see if she could get them added. So thanks girls for all the information I would not have got these without you. Depends strange not to have the WBC injections straight away as you would expect it to be better to prevent a low white cell count straight from the beginning.
So I feel a bit more settled now I have been, I saw the cold cap gosh it was so heavy, the treatment rooms were fairly small the one I am going to had three beds in. My husband was told he could come back and forth but not really room for him to stay. So I think he will go home and then come back for me (as long as he remembers😀).
Good luck to everyone else starting or continuing this week. X
Anobody trying out some complementary therapy?
I had reiki 3 days before my first dose on the 14th.
I came out zonked. I could feel the heat coming from the therapist hands.
As I have to see the oncologist on March 4th I thought may as well see if I can book in for another reiki session on that same day and got one, before my next dose (March 7th) .
I am very fortunate to have a Macmillan Cancer Support Centre at the Hospital that I go to for all the other stuff.
Glad that I did an ‘All Out Swim’ for Macmillan Cancer 2 years ago at Pells Pool in Lewes. Little did I know then that I would be accessing their services!!
Thanks:) yes waiting is no fun. I think I start day after you! A week Thursday and you on 27th if I remember rightly. Which ones you doing? X
sometimes a good howl can be therapeutic. I’ve had a few. The waiting is so hard isn’t it? 9 days to go for my 1st one and anxiety levels rising. Glad we all have each other. Good luck to everyone starting this week. You have so many people on this thread who are thinking of you and care deeply. You are never alone. Jeanette x
Good luck and everything crossed for you starting this week.🤞💝
My daughter came from Uni this weekend and just came back from seeing GP with her as she’s lost her voice no cold or anything. Doc asked her if she was stressed and she said well my mum has breast cancer and started crying. God I feel so sad and guilty. She’s not one to display emotions unless it’s bad unlike her emotional mum, so it made it worse. Poor girl has got time off to come and look after me post chemo sessions as my husband has a busy job with travel. She’s not used to seeing her mum not jolly:( not sure if she’ll cope with me vomiting either!
I had a total meltdown yesterday and have a lovely ‘she shed’ in my garden, I adore it ..such a calming yoga place! I haven’t been in it since diagnosis and yesterday decided to Hoover and put the fire on in there. I went in collapsed in a heap and howled for ages. I associate it with such happy times. I feel sick and ill today already 🤦♀️ Oh and MBJ my mum died in Feb two ago and my late dad’s birthday in feb and my husband’s ...and my sister died late Jan twenty yrs ago...and other stuff so it’s a weird time of year too!.
Portacath on Wednesday under local ... dreading this. Will it stop me doing stuff?
Tried to meditate and my mantra changed from shanti to chemo.😳 almost funny. So hoping once first one is done it’s on the way...moving forward.
wishing you all a good week and sorry for misery - want to be uplifting for everyone !! But glad it’s a place to come where we ‘get it’.🥰
Hi Seaside sar,
I've got pink nail polish at the moment but have a sparkling black one to put back on for Monday .
My son appeared to take it off the cuff but later showed more interest and care cuddles and I love you have been heard and felt at various unexpected times
I'm gonna pass an hour today by going to tidy up his home that's proving I still have the energy after walking Trixie around the green luckily for me it's right in front of our home, as last week I had the same plans but they just didn't happen ended up a heep on the floor xx wish me luck
Yes, my next one is Tuesday. Sorry to hear your hair is going but good that you've had success with the wig. I am ready to leap into action with that, especially these next few days. I washed my hair very carefully this morning, half expecting to pull out some tufts, but nothing happened. It is constantly on my mind though. Might paint my nails as a distraction 😁
Hi Implausible, I have a 19 year old son who is also being quite laid back in his comments. Things like, "You'll be alright." I think it's just his way of dealing with it. He doesn't like it when my husband gets upset and anxious so it is quite difficult to get the balance right in my house these days. Oh what fun!
My eldest sons (27 and 28) seem to have shrugged it off, they aren't in any more regular contact than usual, the gits 🙂 and their initial reaction to me telling them the diagnosis was "ah don't worry they fix it easy nowadays, you'll be fine".
To be honest I'd rather they act like it's no big deal than get all upset.
My 16 year old who is still at home is a little more worried. It's just me and him, so I get that. (I have a fella but he doesn't live with us). My son is definitely hugging me a lot more recently. But he seems ok. When I was in overnight on Thursday to have the portacath thing put in he thought I was starting the actual chemo and he was super worried. But once I was home he chilled out again. He will be glad once I'm through the first cycle I think because he knows I'm a bit apprehensive about it, and he isn't really used to seeing me be apprehensive about anything!
Hi Seaside sar, pleased to hear your doing well for now..When's your next one ? Is it Tuesday ? Its so funny the cravings I had similar xx I've been out nd about but only rsik a few hours as I find my energy levels drop.I still have my hair but think it's on the move on holiday without me haha starting to feel sore uncomfortable and more in the hair brush, I gave my wig an outing on Friday night,, I've left a photo on here, I loved it was scary at first incase it fell off xx
Good morning lovely ladies,
Best of luck to those of you starting this week. Try not to worry too much - easier said than done, I know. I can honestly say I only felt grotty for a few days after chemo and then got through it with various meds, etc. Right now I'm feeling fine and very hungry after a bit of a small appetite week. I'm finding the cravings hilarious! Poor hubby doesn't know whether he's coming or going, what with krispy creme doughnuts one day to salted peanuts the next. Yesterday, I really wanted parsnips but it was far too late as my roast dinner was nearly ready 😂
Oh, and my hair is still there 👩
Going to make the most of this week by having lunch out with friends and doing some normal things.
Next week it starts all over again.
Hi Ally2019, how old is your daughter? It's never easy my son is 28 but we can never be sure about the impact our diagnosis have whatever their ages, I spent a lot of time worrying about my parents having to cope with their baby at 50 having to go through this my parents seemed to have aged over night our family believes in honest feeling telling letting it all out but once you get a diagnosis it feels really different because families hate pain and looking more than one day at a time hurts because of the unknown but staying positive getting to know about your diagnosis treatment and expected outcome don't be worried about asking your oncologist question xx
Hello my lovely beauties,
just want to say good luck to all starting chemo this week ( and of course other weeks) the actual chemo day was fine, I even left on a high ( think it was steroids) I'm not sure but I have a feeling my meal when I got back was too much ( large soup and a wholemeal roll) I ate almost straight away ....with meds...then promptly threw it all back up and continued doing so all night...however..let's fast forward to today...feeling loads better, eating drinking....but not pooping...hoping senna will sort that one out! Still got the ninger nose, all smells are in technicolor and tastes are odd too...but cheesy mash wins every time...
one down five to go ....come on lasses...together we are strong....xxxxx
Good morning Trixielady,
Thank you for your positive words.
How are you today?
I am feeling nervous, but I’m ok. I understand that this is a process to be ridden free of the awful tumour, so I’m looking at the outcome opposed to the here and now. I agree re reading stories, so I know what to expect either way 😁
I am more worried for my family though, but my daughter is in good spirits at the moment. So that definitely helps.
I will keep everyone updated. Edinbird, please do so as well xxxx
you are not too old for you tube.
I use it ,when I need to double check stuff and usually there are many versions of the same item.
Depends if you like pictures or reading.
I had never heard this story before, it came up one morning during a Calm meditation (narrated by the lovely Tamara Levitt).
For example here is Alan Watts telling the same story:
Morning Ally2019, hope you're OK ? Its so difficult at the moment for everyone but being on here seems to help a lot, as you'll read some have it really easy some middleish and some really hard but the support of the nurses really helps and if you find yourself struggling your oncologist can play about to make your next session easier xx Good luck
Good morning Edinbird,
Thank you xx
Good luck too, I’m nervous but ok. I’m staying positive, as so many lovely ladies have shared their stories and some are very positive xx
I am sending you a huge hug 🤗
Hi implausible haha think that's probably what we all said Good luck for tomorrow once your first chemo is behind you hopefully you'll feel more in control again xx
My 2nd one is a week today xx
Rosina, thanks for the story
You really do have to take the rough with the smooth. Maybe 🙂
Youtube things like this do drive me mad, though. They tell the story so slowly! I coukd have read it in under a minute 🙂 my kids love YouTube. I think I'm too old for it 😄
Hmmm I didn't get any of those things at my pre assessment, Trixie. Just leaflets. I feel like I've missed out on a goodie bag!! 🙂
MBJ best of luck with yours. When does your actual chemo start? Mine is tomorrow and I'm getting increasingly nervous!
Edinbird huge good luck vibes for today. Hope everything goes smoothly. Imagine we are all there in the corner of the room with pompoms cheering you on 🏋️♀️ (I couldn't find a cheerleader emoji so here's a weightlifter instead)
It's funny when my BC nurse first suggested me looking at and joining in in this forum I was all "that's not really for me, I've already got a good support network, I don't need it"..... and now I feel so darned invested in everyone here.... we really are all in this together. And in a way that nobody else in our lives can fully comprehend.
Wishing you all a good start to your week:
A story that I like ‘ Maybe’ , hope you enjoy it :
Morning MBJ, you'll feel much happier hopefully once you've had it, and then it's surprisinly weird how strangely we just can't wait for it to start,, hopefully they run you through the cold cap, take weight, temp BM, bloods, give you steroids anti sickness mouth wash cream for dry skin and show you around the unit,, oh you might even get a voucher for a wig and leaflets about the makeup session feel good session xx big hug they say nurses make the worst patients haha xx
Good luck to everyone starting today - I’ve felt sick and stressed and crampy stomach since yesterday so not sure if it will just continue like this! Just need to get on and hope I don’t feel too awful when I’ve got to drag myself to another scan some time soon.
Jencat, I can understand your fears sadly this seems to happen far to often, sometimes the quicker people get out of hospital the better , It's possible he could have a care package put in place to help him remain at home enabling him to remain independent and encouraging his recovery if he doesn't already it's worth looking into xx
Thank you Trixielady x Although dad is 91, until Christmas he was still driving down to me once a week for Sunday tea! Myself and two daughters are so close to him and it's hard seeing him becoming more frail. I worry that the longer Dad's in hospital, the more instutionlised he seems to be coming and that we won't be able to get him home. Yesterday he seemed very drugged up-my cousin is an ex-nurse and another cousin works at the hospital, so I'm going to ask them to look at his notes xx
Hi Jencat, thought I hadn't seen any posts from you, so sorry to hear about your Dad hope he's comfortable after his fall and so sorry to hear about his diagnosis xx big hug
Dear ladies, just wanted to let you know that I'm still thinking of you and hoping you're all ok. I haven't been able to come on to the forum recently as my elderly dad had a fall 12days ago and was admitted to hospital and we were told he's got cancer on Wednesday. As you can imagine, we're devastated.
Hi Sandraindurham, I’m from June!! I found FEC pretty predictable. I felt a bit rough for a few days but could guarantee that I would be fine for the second two weeks so could make plans. I expected it to be the same on Docetaxol Although I didn’t feel sick it did leave me feeling rough and was cumulative. Kxx
Eee baked potato with cheese & beans was my thing too, I kept asking my sister if Trixie smelt or if the house did. I've never stopped washing my hair tho, mouth has been delicate , sometimes dry sometimes I've been really thirsty, also fancied cheese & onion pasty,, pineapple, mints ice lollies really helped, ginger and lemon tea xx
Eyes slight dry, head starting to feel sore and colder xx Dreading 25th but needs must xx Big hugs to all you brave ladies and the supporters out there xx
Second was painful due to vein issues then neutropenic so multiple hospital admissions around cycle three. My cancer centre is all nurse led so if it's not on the protocol it doesn't happen which is not always helpful. After I managed to see an oncologist dosage was tweaked, Hickman line inserted and four to six were comparitively easy. I also relaxed my self imposed rules about exercising through chemo, obsessively watching diet etc and had the occasional glass of wine! Three months post chemo I still can't stand the smell of coffee or fried food. I have developed a taste for silver skin pickled onions which I could still taste when the taste buds died. I was lucky to have no nausea but I would reiterate keep your bowels moving. Chemo and the steroids have unfortunate effects. My centre presrcipef Laxido as a matter of course. Tastes horrible even without taste buds but does work.