Oh Nettie 😞 😞 😞
Fingers and toes and everything else crossed for tomorrow! Xx
And Edinbird, I'm glad everything went well for the rest of the day
I’m still in hospital. Loose stools (sorry too much info probably) feel like my counts may be dipping again as feel a bit rough. See what morning blood test shows.
Well done everyone for getting through today. X
I’m home... I was the last one on the ward 🙄 went to the chippy and managed to get sausages straight out of the fryer so I should be safe!
Two sore hands instead of one but lesson learned must must must drink more!! The actual chemo wasn’t as sore so some consolation.
There is a volunteer woman who gives massages and my day got infinitely better when she came! Ended up yacking on to her and the nurse as the bright red one went in... talked too much I have a sore throat now! But I know it’s just from the drugs making it go yucky
When I’m stressed I chatter so thank you everyone who put up with me earlier! My friend loved the dogs doing selfies too 😂
Off to bed with the sleeping tablet assuming my temperature is behaving. Then another fun hair wash scheduled for the morning after I call in sick. Good luck tomorrow’s ladies if I’m knocked out for a while xxxx
Oh, and I've just realised that I had no phone call..... so I guess that must mean that my bloods were ok enough to go ahead tomorrow. Yay! I kind of forgot to worry about that from mid afternoon 😄
Yup I read that but there didn't seem to be any UV light involved in the treatment? Unless it means afterwards, going out in the sun? I dunno.
Don't dread it, I'm not, another one down is another step closer to it all being over and us all getting our lives back x
Good luck for tomorrow Sarah. Edinbird and Ally hope all went ok. The nail varnish thing is something to do with stopping UV light getting to the nails but dont really know what thats got to do with anything! Already dreading next Monday xx
"Massage lady"??? Fancy!
Hope everything improved for you as the day went on, Edinbird, and that Ally's day went ok too.
Nettie, dare I ask, are you home yet?
I just went to see Captain Marvel again as I found out after I went the first time, that a friend (well, someone I've met once and chat to occasionally on twitter) is in it! For like about half a second. But I wanted to see her so I went back (I have a Cineworld unlimited card and can walk to the cinema so it costs me diddly squat)
My plan was to leave after her bit which is early on in the movie. But there were people sat directly behind me and I didn't want to disturb them so I watched the whole thing again:)
Now I need to get home and touch up my goth nail varnish ready for chemo day tomorrow (I still don't know what it's supposed to do to help!)
As for finding veins for the cannula. My veins are flipping useless which is why they said I had to have the portacath. It meant another general anaesthetic and more surgery and another overnight in the hospital. But I have to admit it has been a godsend.
Giving blood this morning took maybe 30 seconds. It used to take over an hour and a parade of frustrated nurses and doctors.....
Ouch💉💉💉. You poor thing. I didn't want one, but I'm glad now, my onc's weapon of choice was a PICC line. Mind you one of the vampire nurses, the ones that take blood, gave me a huge bruise before I had my PICC line so I soon came round to his way of thinking.
Sonia28 you look too young to have a son that age.
Edinbird, hang in there honey. Not long now. Xxx
I feel your pain, it took 3 nurses with 2 turns each to get mine in, I now have a PICC line, which although inconvenient at times is a life saver for blood test and chemo days.
Hope the rest of the day goes better xx
I’m too hot and took 3 goes to get a cannula in... this is awful but will grit my teeth...! Cannula feels sore and they have bruised me. It’s being temperamental with the drip. Can’t wait to get this over with
Wow so much to catch up on.
Good luck to those having chemo this week,
number 3 for me next Wednesday. The cold cap seems to be helping with the hair loss, I’m definitely thinning. I think the hair loss is the hardest part of the whole cancer thing, as there’s no fixed time when it will happen and how it will affect me.
My son was back from uni for a few days and went back this morning so that was lovely.
Don't blame you for getting off early🚍, you really can't take any chances. Hope your session goes ok and yes the cold cap will definitely cool you down❄❄❄.
Oh edinbird, not a good start to chemo day, if anyone sneezes near me I give em daggers! I go all diva...really can't be doing with people while I'm on it....glad you got a lift home....xxx
It must be such a relief to know that you have come to a well thought out, measured decision regarding continuing or ending chemo. As you say it's a bit of a bummer when your hair starts to fall out. It's now going to be a constant reminder of what you've been through for the next few weeks, but just remember it'll soon grow and the memory of your ordeal will become a distant memory. Good luck with everything and please keep in touch.❤❤❤❤❤❤
Ugh horrible bus journey to the hospital
Sat up the back to avoid people and it was boiling must have been on top of the radiator or something made me feel throughly sick. Tried to drink my water to help and moved seats halfway. Still hot
Then a boy of about 3 and his mum got on sat right in front of me (facing me cos that’s how the back seats are) so I thought I’ll get off a couple of stops early and walk. Just as I had that thought he sneezed twice straight at me 😷
The walk helped but I’m really not feeling how I wanted to feel going in!! Hopefully I’ll be fine that cap will cool me down eh 😬
You must be feeling bored stiff stuck in your little room😩, especially if you're feeling much better.Hope you escape soonest☺ xx
I've heard of the herceptin trial which is mentioned in the paperwork concerning my trial. I wasn't too sure about doing a trial at first, especially as the original hospital I attended were really pushy about it. My husband called the staff there the ROSCO sales reps. Anyway I soon realised I could and should have been refered to my local hospital as soon as bc confirmed. Somehow I initially fell through the net. Anyway my local hospital, Yeovil, made it clear it was entirely my decision, plus we'd been given advice from his work colleague and good friend whose wife was a nurse. Basically, going on a trial you will be well looked after and will be closely monitored. At my first onc appt after my 1st chemo session, the trials nurse was also in attendance, and I was asked loads of questions re side effects, had I noticed any changes in Gremlim, etc, etc. The onc can't rush the appt and send you on your way. So, so long as you don't mind the the extra reviews and follow up appts in the future I think it's well worth going on a trial. Good luck with it👍☺
Rosina here tucked in bed after a good lunch and walk to park and back.
I have installed a step app on my phone and my target is 10,000 steps.
9,887 today. I aim to walk because I believe it gets all those chemicals in my body moving around. I also seem to have a fair amount of gas ( which is not a good feeling) and that sorts that out too. I am also freaked out about developing lymphodema in my right arm and everything that I have read states keeping your weight down so the walking is for this too. In my head I picture myself returning to work fitter than I was before. With a better diet ( this Dr Greger plan that I follow has really pushed up my fruit and veg) and keeping a check on my stress levels.
Swimming is great for preventing lymphodema so I definitely will be returning to the pool.
I am viewing all of this as a lifestyle overhaul.
I am also thinking about the message I want to share with my colleagues and the kids I teach when I return to work.
I have always been a ‘solution focused person ‘ so this is a good test.
So far so good,
Implausible, I wonder how they choose what you get to go on? I know my surgeon said letrozole and anastrozole were very similar, and I think tamoxifen is for pre menopause? I stopped reading up on all the side effects....don't want to plant seeds in my already hypochondriac brain! Xxx
I know I have to take hormone tablets for 10 years too, but I don't know which ones yet as they don't kick in until after chemo I don't think.....
Mjb, I bet you feel some sense of relief now you have come to your decision....will be interesting to hear how you get on with the letrozole, I will be on anastrozole...very similar I think....
glad your not leaving us, we still need you....xxxxx
Keeping everything crossed for you Sarah. I hope this afternoon goes ok Edinbird, I’ll be thinking of you. Marlyn appetite fine thank goodness. It’s the only normal thing about me at the moment. Just had lunch. Hoping it stays in my tum otherwise no chance of going home. X
Well had my oncologist appointment this morning. Made a mutual decision to stop chemo. I am now going to take Letrozole for 10years (well let's hope hey). So time to move on now and get over this sepsis. I am still really weak and going out this morning had really tired me out. My hair is falling out all over the place but of a bummer after only one dose. Good luck to all of you preparing for your next round. I will still be here checking up on you all! Feel you are friends now who I would really miss if I did not chat to you all.
Going to wait a week or two before taking the tablets as I need to be well to cope with any side effects. God I hope I won't react badly to these as well.
Good luck on your bloods Sarah! They call beforehand every time up here. Check how you got on and what adjustments to make. But I don’t have an oncologist appointment until next Friday. Everyone has such different experiences.
just getting some lunch before I get the bus. Feeling nervous but I’ll be ok. Even did some sneaky work this morning!!
Yeah I think service is the right word technically we are Police Service of Scotland but force is fine 😏
Ally and Edinbird, thinking of you both right now, hope today goes smoothly
It's a bit mean they don't let you have anyone in there with you after the first time, Edinbird 😞 Although, I say that, but I kept trying to get my fella to go home last time because I just wanted to read my book and I feel rude reading when someone else is sat there! I'm an antisocial so and so at the best of times though 🙂
And Nettienoo, I hope you get to go home!! I would go stir crazy stuck in one room for so long 😞 😞 😞
As for all this talk of policemen, *fans self* 🙂 I'm glad to see you all call it the police force as my bestie tells me off if I ever say it. Apparently it's the "police service" now and by calling it police force I am "showing my age" 🙂 but Edinbird is way younger than me and she said it too so that makes me feel better 😄
I had my bloods taken this morning so now I'm anxiously watching the phone to see if I'm go go go for tomorrow. Apparently they only call you if they are NOT ok, so no news is good news....
Nettienoo.....hoping you get home as soon as safely possible.....good to know your cells are on the up, I bet you feel as weak as a kitten....how's your appetite? Xxx
Marlyn, Thank you sweetheart. I’m waiting for today’s blood results but they’d rose a bit more yesterday and are ok. Don’t feel particularly well and very weak but they’re not really doing much now. IV antibiotics stopped. As far as I know sodium and potassium levels up so I might as well be at home. Ok, just heard not now having a drip so maybe they will change their minds at keeping me in. X
Oh nettienoo....that's just crap on a stick!!! Blimmin stools....I'm not surprised your fed up, oh darling I really feel for you, I thought it was bad enough going in for one day after first cycle.....how you feeling otherwise? Do you you feel like you could go home? Or does it defo feel there's something wrong? Xxxx
my her2 neg changed to pos....hence chemo.....I already had lumpectomy with no lymph node involvement.....however I am ( fingers crossed) on the herceptin trial, where I will only ( only) have it for 6 months instead of a year...defo up for that!
Goodluck sweetheart....I really don't know what I would do without all you gorgeous ladies xxxxxx
I’m not allowed to leave room still even though counts up. Probably fearing I’ll pick something up I suppose. I can see the little garden below my window though.
I’m sending you a huge hug, are you able to leave your ward and take a walk in the hospital gardens if they have any? Xx
😢😢😢😢😢 looks like I’m not being discharged today. Loose stools so sodium chloride drip going up. One chemo session resulting in 8 days in hospital. Something is very wrong somewhere. Four handfuls of hair have come out this morning. Fed up today girls. Glad I have all of you. It helps knowing you are there for me. X
Now I'm feeling guilty. I'm on a trial, ROSCO, and currently scheduled to have 4 cycles of FEC, then surgery. I'm HER2 (pos/neg inconclusive) with some nodal involvement. I had heart ECG on Sat, and due to have ultrasound on Gremlin next Mon, followed by onc appt Weds. The downside of the trial is that I have been randomised so me and my onc don't know if I'm on the best chemo for me. If things don't meet trial or onc's expectations I will go on to have 4 cycles of CT☹. Sorry I don't know or can't remember if you're HER2 or if your bc is hormonal based. Let me know and can give you a bit more info about the trial. Perhaps you could mention the trial to your onc? Take care xx
I don’t get anyone in with me! 😞 just on your first go. So just me and my phone today. My sister says she’ll chat to me whilst I’m getting it done
Well I just looked in the mirror and the good boob just looks deflated and the bad boob looks no different! Doesn’t feel any different where the lump is and my nipple is no better.
The surgeon was hopeful that it would return to normal after just two sessions! So I feel pretty rubbish when I can see no change 😞
I agree, my work is my life too. I am hoping to go back, my job gives me purpose. I’m a Team Manager for a Youth Service. I take my hat off to you though, as my challenges are not compared to yours. Xx
I don’t think my hospital is like that, ha ha. I’m only allowed one person in, but on my first visit that were kind enough to let my daughter and mother in law in. Unfortunately, both my parents have passed away. My mother in law is very supportive xx
It sounds like you have a lovely day ahead of you, please give us any tips for make up xx
I agree, I’m hoping things change on my 3 month scan.. the lumps seems to be smaller.. my sister in law is a cancer specialist in Australia. Plus my onco was my dad’s too, so she knows my sister in law well and I will push for a different treatment plan if needed xx
I will let you know, I think it will take 3 hours including the dreaded cold cap! Just remembered I forgot my herbal tea, I’m sure they have some there xx
Morning all, for those having Chemo today, my heart is with you and I am praying thatctge burden will not be so heavy.
Lots of uniform here, that is great to know, had loads in my family so it is always special for me.
MBJ, yes our cutie pie knows what to do to have her way with things.
Trixielady, we just have one BC nurse here and she says that having cancer, Chemo, mastectomy or anything related should not make someone anxious, and if they are itvis because there is something wrong with them.
How's that for a BC nurse, hey?
We have just one onco, and we have an appointment this week before going ahead with Chemo, also scheduled for this week.
My daughter is poorly, lots of previous health issues awakened with Chemo.
For everyone, another day, another step on the ladder for recovery, please think about this.
Trixielady do let us know how the makeup session goes. I’m on a waiting list for mine 😕 because my treatment happened in a flash I hadn’t booked up and they’re hoping to bump me up... I don’t want anyone else to pull out but I really want to go before my eyebrows and eyelashes vanish. I’m fingers crossed on at the start of April but could be May 😬
Thanks Nettie xx
I’m a civvie but got nearly 12 years service so I’ve seen plenty! Currently watching Crimewatch Roadshow they’re showing one of the first cases I did the publicity for when I came to Scotland, World’s End murders. You think you’ve seen it all and then something comes along that challenges you. No day the same. I don’t have children so my work is my life and you understand why I’m desperate to work through this!