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February 2019 chemo starters

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Re: February starters 2019 - yes, we rule!

Susie, sorry your rough too....oh just for some good uninterrupted sleep! Everything tastes so slimey too...but have managed a pkt of salt and vinegar crisps......even water is yak! But we need to drink....hate to think what cycle 5 will be like....

 

xxxx

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Re: February starters 2019 - yes, we rule!

Hi Marlyn 

Snap! I'm not feeling too good after 4th round of FEC either๐Ÿ˜ช. Been sat down either inside or outside so far today. Got knackered popping upstairs just now. My taste buds aren't wonderful either. Not sure if feeling grotty because of the FEC or the culmination of lack of sleep๐Ÿ˜ด. Usually by day 8 after chemo I start to regain some energy and by the 10th day I'm pretty much back to normal. Hope you feel better soon. Take care xxxxxx 

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Re: February starters 2019 - yes, we rule!

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Re: February starters 2019 - yes, we rule!

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We both didnโ€™t think of taking money or water so we stopped by Crawley Hospital so that H1 could get a drink!

It definitely helps that I wasnโ€™t โ€˜dosedโ€™ on Wednesday last.

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Re: February starters 2019 - yes, we rule!

Well, I'm still in bed and feeling pretty groggy . Just looked on and seen so many posts. First, trixelady, so sorry you ended up in hospital! Please update us when you can? 

Rosina...your yoga nidra link was fab....just what I needed yesterday, I had my windows open and all I could hear for the first few minutes were a couple arguing and if they were having a Chinese or an Indian for dinner...thank god it didn't go on for long...

all those switching to T good luck....will be interesting to see how it goes, I'm fec all the way...

feel sad I'm missing out on the beautiful weather but really can't do much moving around or eating! My taste buds are far worse on cycle 4....

remember I love you all.....keep trucking sisters xxxx

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Re: February starters 2019 - yes, we rule!

Sounds like bodily functions are the order of the day again! ๐Ÿ˜ฌ

 

Keep getting stomach cramps my period should be due soon depending on what my body decides to do. I donโ€™t know if it sounds daft but stopping my contraceptive pills after nearly 25 years was a big deal for me!

 

My husbandโ€™s friends brought me these yesterday... I think each looks like itโ€™s on a different drug of the less prescription kind! Or I guess they could represent different chemo symptoms and feelings ๐Ÿ˜‚

 

Anyway Iโ€™ll wear some to my session on Monday!

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Re: February starters 2019 - yes, we rule!

Hi Trixielady,

 

So sorry to hear you're in hospital ๐Ÿ˜”

 

Scary stuff, this chemo and all its side effects. Has your temperature returned back to normal now?

 

I hope you're being looked after well and that you're on your way home as soon as possible.

 

Sending big hugs xxx

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Re: February starters 2019 - yes, we rule!

Morning Hope you have a very Happy Birthday Sarah.  At least its at a good time in the chemo calendar.  Rosina you made me laugh with the farts.  I am the same.  Trixie sorry to hear that you are unwell.   Hope you get better soon.  I had the best nights sleep for months.  I slept for 6 hours without needing to pee.  Thats a record.  Nettie I love that fart picture.  Definitely sums me up!  Going for breakfast at the new river cafe on the Broads now.   Have a good day everyone.  Catch you all later xxxx

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Re: February starters 2019 - yes, we rule!

Happy Birthday Implausible (Sarah).๐ŸŽ‚๐Ÿพ๐ŸŽˆ๐ŸŽŠโš˜๐ŸŒป๐ŸŒน๐Ÿ’โค

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Re: February starters 2019 - yes, we rule!

Hi all

Can I join the Wide Awake Club too? I'm so glad it's not just me who's waking up at all hours and buzzing. Also thirsty and needing to go to the loo rather too frequently. If  it wasn't for all you wonderful ladies I'd be quite frustrated and concerned. 

Rosina I've got the opposite problem, belching and burping alongside mild heartburn and indigestion.

As for the farting there's something my other half read once which was basically "Don't hold a fart in. It'll only go to your head and you'll come up with a ๐Ÿ’ฉidea".

I'll leave it there.xxxxx   

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Re: February starters 2019 - yes, we rule!

Implausible, I showed my husband the photo of your smashing wig fringe last night whilst you were out in Birmingham and he guessed your age at 30-35 at most.......and he has been to Specsavers! What is your secret? Enjoy your cupcake but donโ€™t set light to your fringe with the candles. ๐Ÿง๐Ÿ”ฅ๐Ÿ˜˜ x

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Re: February starters 2019 - yes, we rule!

Oh Trixielady so sorry to hear you are in hospital. I thought you were quiet but hoped it was that you were just busy with other stuff. I hope you are being well looked after and get to come home very soon sweetheart.  Please keep us updated with your progress when you feel up to it. Xxx

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Re: February starters 2019 - yes, we rule!

Ah no Trixielady Smiley Sad Smiley Sad Smiley Sad

Your new regime was going so well too! Smiley Sad  glad you are on the mend and I hope you get home soon x

 

Thanks to all for the birthday wishes.  I'm off to find a nice bakery so I can buy a cupcake and put 52 candles in it! Smiley Very Happy

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Re: February starters 2019 - yes, we rule!

Hi Trixielady 

So sorry to hear you're in hospital๐Ÿค’โ˜น. I had noticed we hadn't heard from you recently. Get well soon. Sending you hugs and flowers โคโคโคโคโค๐Ÿ’๐ŸŒน๐ŸŒป๐ŸŒท๐Ÿต. Take care xxxx  

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Re: February starters 2019 - yes, we rule!

Morning ladies

I've been in hospital since Thursday afternoon due to shortness of breath and chest pains with a temp of 38.3 and diarrhoea stopped now, had all the tests under the sun done and very lucky for me the only thing that is wrong is my oxygen levels so now on oxygen for awhile plus terrible aches & pains in joints and muscles , taking oxoycodone for them xx at least I'll have time to read back over, big hugs to all you special lovely ladies xx

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Re: February starters 2019 - yes, we rule!

Seaside, same here. Awake at 2.30am. Sweaty, thirsty, needed a wee, didnโ€™t get back to sleep until 5.30am and now awake again at 7.30am. Husband definitely on dog duty this morning before he goes to golf. Iโ€™m staying put for as long as I can get away with it. Gee, feel like I was โ€œout outโ€ last night painting the town red and all I did was lie in bed!. ๐Ÿ™„๐Ÿ˜ด xx

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Re: February starters 2019 - yes, we rule!

Happy birthday to you,

Happy birthday to you,

Happy birthday dear Sarah....

Happy birthday to you! ๐ŸŽ‚๐ŸŽ๐ŸŽˆ๐ŸŽถ๐ŸŽ‰

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Re: February starters 2019 - yes, we rule!

Ugh what a rubbish night again. Awake every hour, sweating and thirsty. Then I hop onto the forum and find some of you are early birds too. Hopefully I'll catch up on some sleep later in the sunshine.

 

How have you got the energy to walk, Rosina? Impressive!

 

I'm not moving out of my bed purely on principle as it's Saturday and too early.

 

Love you all xxx

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Re: February starters 2019 - yes, we rule!

Morning all,

 I managed to get back to sleep last night. Farts have stopped and my tummy is flat ๐Ÿคช

Off to breakfast and a long hike before it gets too hot.

Edinbird good luck with T today.

Very pretty birthday card Nettinoo , for Implausible.

Happy belated birthday from me too.

Hugs to all,

Rosina

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Re: February starters 2019 - yes, we rule!

Nettienoo, welcome to the club!

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Re: February starters 2019 - yes, we rule!

Edinbird, well done on getting the drinks down and the socialising done. I hope you are managing to sleep now. 

Iโ€™m in the wide awake club tonight hence the bombardment of posts. Iโ€™ll pipe down now! ๐Ÿค๐Ÿค๐Ÿค๐Ÿ˜ด๐Ÿ˜ด๐Ÿ˜ด๐Ÿ˜ด. Love you all. Xxxxx

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Re: February starters 2019 - yes, we rule!

Implausible/Sarah,

 

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Re: February starters 2019 - yes, we rule!

Rosina, I couldnโ€™t resist twice it appears? ๐Ÿค”๐Ÿ˜‚ x

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Re: February starters 2019 - yes, we rule!

Rosina, all that farting is healthy. Iโ€™m surprised Iโ€™m not joining you tonight. My vegan son is here for the day and night and has loaded me with healthy green packed smoothies and a jackfruit and other veggies paprika dish (my first time having jackfruit, bit weird but I liked it).

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Sorry couldnโ€™t resist! ๐Ÿ˜‚๐Ÿ˜‚๐Ÿ˜‚ xxxxx

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Re: February starters 2019 - yes, we rule!

Rosina, all that farting is healthy. Iโ€™m surprised Iโ€™m not joining you tonight. My vegan son is here for the day and night and has loaded me with healthy green packed smoothies and a jackfruit and other veggies paprika dish (my first time having jackfruit, bit weird but I liked it).

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Sorry couldnโ€™t resist! ๐Ÿ˜‚๐Ÿ˜‚๐Ÿ˜‚

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Re: February starters 2019 - yes, we rule!

Hi donโ€™t know how you do it Edinbird.

 I am up at 00.35 am due to my super turbo farts that came back with a vengeance today.

This is what I have eaten : breakfast- 1 orange and a bowl of granola cereal with soya milk, tea, lunch - 1 bowl of spinach soup, 1 banana and a handful of peanuts, dinner 1 whole grapefruit and 3 dates. Green tea (x mugs).

It canโ€™t be the chemotherapy any more can it?

Canโ€™t think of what would happen to me if I indulged and didnโ€™t walk. I would probably launch into space propelled by fart gas ๐Ÿคช 

Will try to go back to sleep although the farts keep coming - thankfully this started after I had bought my trainers!!!!

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Re: February starters 2019 - yes, we rule!


@Rosina wrote:

Wow great photos.

 Is the last image , of the woman surrounded by peonies ( thatโ€™s what they look like to me) somebody I should recognise?

I also liked the orange splat ( or starfish or star ) on the metal fence.


I think the yarnbombed splat is supposed to be the sun?  It's cute regardless Smiley Happy

 

As for peony lady, I know the chap who painted that one, guy called Nathan who paints under the name NeverReady.  He usually uses his own photos as reference so I don't think she is anyone famous....

 

Like the blue trainers btw Rosina!  And you outstepped me by 5k Smiley Happy

 

I have just been to Jamie's Italian for the first time (it's a bit posher than the places I usually go! Smiley Happy ) for my birthday dinner.  It was really nice.  And I had 2 bucks fizzes, first alcohol I've had since before Christmas Smiley Happy ).  Edinbird, I am also flipping exhausted - yawn.  Sleep well! 

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Re: February starters 2019 - yes, we rule!

Iโ€™m soooo tired ๐Ÿ˜ด

 

Was so hungry and sleepy I struggled with the fondue and especially the wine. Also had Disaronno and cranberry juice before the food.

 

Clearly I cant manage all these drinks and sitting in the sun and engaging with people for hours and waiting so long for something substantial to eat ๐Ÿ˜• I have felt more tired than normal at bedtime lately I just wish I could stay asleep all night! I didnโ€™t want to get up this morning but had to for bloods so I will be staying in bed as long as possible in the morning I think!

 

Snooze.... ๐Ÿ’ค 

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Re: February starters 2019 - yes, we rule!

AF03761B-5BB8-45E9-B6CB-A2F73E53A458.jpegBlue shoes for walking

 

0A3B9B0A-7A94-4C87-9DD1-8392DA6B0491.pngA good result today

 

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Re: February starters 2019 - yes, we rule!

Wow great photos.

 Is the last image , of the woman surrounded by peonies ( thatโ€™s what they look like to me) somebody I should recognise?

I also liked the orange splat ( or starfish or star ) on the metal fence.

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Re: February starters 2019 - yes, we rule!

Edinbird, I'm hungry now๐Ÿฉ๐Ÿฐ๐Ÿฎ. I don't have a sweet tooth except during Dec when it's my birthday and Xmas and florentines  are an absolute must. Then you mention crisps AND fondue. How could you? As for the drinks๐Ÿน๐Ÿน๐Ÿน. Yummmmeeeee๐Ÿ˜Š

Implausible your walk around Birmingham looked interesting, some of the artwork looked pretty good. All I've ever seen of Birmingham in the train station and the Bull Ring. Well maybe a bit more but that was years ago when I went there for a couple of training courses. Love the new bathroom and the door sign. Well worth the wait I hope. xx   

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Re: February starters 2019 - yes, we rule!

Hi Edinbird 

Yep, you're definitely the T testerโ˜บ and I'd be wary too. I expect it's a bit like going back to the beginning and wandering what the first chemo session would be like๐Ÿค”. I think I'm at the end of the queue๐Ÿ•ด๐Ÿ•ด๐Ÿ•ด๐Ÿ•ด๐Ÿ•ด๐Ÿ•ดโ˜น. Good luck for Monday.๐Ÿคž๐Ÿคž

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Re: February starters 2019 - yes, we rule!

Am out for a wander in Birmingham with my fake fringe checking out the street art.

 

It is such a lovely sunny evening!

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Re: February starters 2019 - yes, we rule!

We have some friends round. I have had one Pimms and two sangria two florentines and a large bowl of crisps ๐Ÿ˜ฌ๐Ÿ˜‚

 

Fondue still to come! Iโ€™m going to sleep well tonight!

 

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Re: February starters 2019 - yes, we rule!

This is a lovely relaxing yoga Nidra meditation:

Yoga Nidra - 48 minutes

I didnโ€™t think I could last this long without falling asleep but although I did drift I also kept returning to the voice and the instructions.

Off to walk now in my new trainers which feel fab. I went to a proper running shop and had my gait analyses.

Tried on 4 pairs. I decided on the ones that feel like slippers with support.

Canโ€™t believe the difference!

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Re: February starters 2019 - yes, we rule!

What a beautiful day. Hope  you're all managing to get a bit of sunshine having cleared various piles of dog poo etc. Glad to report my cat has behaved so far today despite nibbling some grass earlier.

 

The bathroom looks fab Sarah. I love the door sign. Very cool. Sorry some of your colleagues are being so inconsiderate. Not what you need.

 

Your morning routine sounds delightful Rosina. I just about managed the stretches today and that was at lunchtime. Going for a walk soon.

 

Edinbird you are leading the way for us all girl. Wishing you super strength. Remember we're with you all the way.

 

Hope you cope alright with the injections Nettie. The things we have to put up with right now. It just doesn't seem fair ๐Ÿ˜“

 

I'm off to find some shade before I frazzle!

 

Love to all.

 

Sar xxx

 

 

 

 

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Re: February starters 2019 - yes, we rule!

Implausible,

great toilet sign- ๐Ÿ˜ 

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Re: February starters 2019 - yes, we rule!

Hi Edinbird, 

yes you are our first terrific T tester. 

All feedback will be appreciated.

Go girl.

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Re: February starters 2019 - yes, we rule!

Awesome news.  You are indeed our T-tester!  I'll only be one day behind you, fingers crossed.  

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Re: February starters 2019 - yes, we rule!

Well Iโ€™ve had my assessment call already! Blood trickled out just enough for the test, half is back ok and they were happy to do the assessment from that and Iโ€™m in as planned 11am on Monday

 

So am I the T tester for everyone?! ๐Ÿ˜ฑ eek! ๐Ÿ˜ฌ am very wary but hopefully will be fine. Everyone else can enjoy their chocolate hangovers Iโ€™ll be up bright and early to eat and drink and steroid up ๐Ÿ’ช๐Ÿป

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Re: February starters 2019 - yes, we rule!

And the finishing touches Smiley Happy

 

I found the sign in an antique shop and the boys provided the stickers Smiley Very Happy

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Re: February starters 2019 - yes, we rule!

Implausible, love love love the bathroom. White with a bit of black is very stylish and you can always add a bit of colour with towels if you wanted too. X

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Re: February starters 2019 - yes, we rule!

Eek! Even I would struggle to get through 7 eggs in one sitting!  Glad they got the dog to the vets, I know chocolate is super bad for them Smiley Sad

 

Pleased to report that the bathroom is near enough done.  Still needs lino and there is a mirror and shelf to go up above the sink, but the building work is finished anyway.  Peace in my house againSmiley Happy

20190419_112058-picsay.jpgIt is all rather plain white and chrome. Lino is going to be black and white checkerboard.... this is the boys' bathroom as I have my own en suite, so no need for frills

 

20190419_112103-picsay.jpgBath still full of water while sealant fully dries....

 

20190419_112113-picsay.jpgFunky heated towel rail thingummy

 

 

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Re: February starters 2019 - yes, we rule!

Implausible, heartless sods. Iโ€™m glad you told them to Barry off. They need to understand if they overwork you now you may be unavailable for a while. I think you are amazing to be doing what you are doing.

Marlyn, hope your night went ok. I was awake from 2-4am with the steroids but donโ€™t feel too bad. Start 7 daysWBC injections this evening so expecting that to change. Have a lovely sunny day those of you that feel up to getting out and about. 

Ocean whatโ€™s your weather like in France. Glorious I hope. 

Os Just seen a post on Facebook from my vets. They had a Labrador in who ate 7 Easter eggs. Luckily owners got her to the vets quickly where she was made sick and is recovering. Iโ€™m making sure mine are well out of doggies way at all times. Xxx

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Re: February starters 2019 - yes, we rule!

Most of them are being more considerate.  This is someone from another department who probably just thinks I'm back and doesn't realise I'm not at full strength....  still a bit of a cheek!

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Re: February starters 2019 - yes, we rule!

Please update later Edinbird. ๐Ÿ€ xx

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Re: February starters 2019 - yes, we rule!

Good luck Edinbird.  What a cheek Sarah 10pm the night before a bank holiday.  They are having a laugh.  Even if you wanted to do it you physically wont be able to.  Do they not understand what you are going through?

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Re: February starters 2019 - yes, we rule!

I'm rather relieved to report that my cat has been well behaved overnight and there is neither poop nor puke for me to clean Smiley Happy

 

The teenagers, however, have made a bit of a mess 

 

And I have woken to an email from work sent to me last night at 10pm assigning me an urgent client job due by end of play Tuesday.  Now given it is now the Easter weekend, and I am in hospital most of the day on Tuesday getting (hopefully, bloods willing) chemo number 4, and it is at least a 2 day job, I'm not sure how they expect me to do it!

 

I have sent a rather snotty email back saying that , whereas I have worked through the weekend many times in the past to solve our clients' crises, I am simply not up to that right now, as I am already exhausted from 3 days in the office this week, and that I'm going to have to say sorry but no chance.

 

I've never said no before in 11 years, they ain't gonna like it!  As knowing them they will have already told the client it'll be done.

 

Sorry work, I've got to put myself first at the moment.....

 

PS good luck with your bloods Edinbird!

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Re: February starters 2019 - yes, we rule!

Morning xx Iโ€™ve been drinking water, tea, juice, and more water...

 

Aiming for 1500ml by the time I get to hospital. And I bet they still struggle for a vein... wish me luck ๐Ÿ˜ฌ

MBJ
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Re: February starters 2019 - yes, we rule!

Update Rosina and Daisydi

Just been cleaning up cat vomit off my kitchen floor, only fed him 15mins ago and this is the healthy one! They are too greedy and I am probably feeding them too much.