66992members
310online
353521posts
Evening all,
How lovely to see al your photos, they give a real window into your worlds. Wonderful. Love the fact that they show we’re looking out into the world. I think that this bc business can make us all have moments where we just turn inwards because there’s so much stuff we’re trying to unravel and process .Through this bc journey finding that delicate balance between necessary inward reflections and connections to our outside worlds can be a bit of a challenge sometimes.
Edinbird , Taxol number one under your belt. Well done.
Trixielady, the postponement is no doubt a disappointment but next week will be upon us soon enough so like all the other lovelies have said take the opportunity to rest up.
Loved the talk about body hair and farting. My armpit hair disappeared pretty quickly as did my pubes. My nose can be like a dripping tap so the hairs there have gone. Same with inside my ears. I get blocked ears and when bending down I have to watch the angle of my head because coming back up I can have a real dizzy spell. Body generally very smooth.
No hair on head. Strangely, its felt like the few hairs I do have left have got a tiny bit longer. I’ve had some terrible sensitivity and numbness on the crown of my head so I’ve been massaging it daily in an effort to desensitise it. Normally, it just feels really smooth over most of my head and just a little rough over the bits where there are some hairs. Noticed these last couple of days my scalp has felt a bit prickly. My first Taxol treatment is scheduled for 30th so whether this new prickliness continues into growth it disappears is anyone’s guess.
On the farting front thankfully I haven’t experienced too many rocket launchers. I think taking a course of microbiotic tablets every three weeks or so helps get my gut microbes in balance. Had quite bad constipation after last chemo. Took matters in hand, coffee enema and microbiotics and things are flowing nicely!
Sweating. Goodness me ,where does it come from. At some point during the day I have rivers running off my head and I feel like I’m burning up all over. I rarely had a hot flush during menopause , seem to be making up for it now.
Garden pics for you. More stuff out that shouldn’t be.Going to have to give some serious thought as to what I can put in for interest later in the year if things re so ahead of time.
Right, rest well all of you.
Some beautiful pictures taken by people in the village x
Hi all
Gosh I am miles behind with everyone.
Before I do a big catch up, Edinbird a big well done on getting through #4 and I am glad you didn't have a nasty reaction to the T. Very encouraging. Sorry about the cannula troubles though 😞 Do let me know how you get on tonight/ tomorrow as (hopefully) I'll be one day behind you
Trixielady sorry to hear they pushed you back. To be honest I was surprised they wanted you to go in so soon after being in hospital ill! Another week / few days to recover is probably just what you need BUT I know you must be gutted. I would be too.
Ok now back to where I left off....
Rosina, that article about the breast surgeon was so sad. All those years of training and she had to give up just as she got started 😞 Must admit I was very surprised by the first sentence about the fact she never checked her own boobies. You'd think she would be checking them every day with her knowledge of how common bc is and how they can do so much more for you if it is caught early. Just goes to show humans are utterly irrational! I bet Vulcans are more careful. Although I think by star trek time they had cured cancer completely anyway...
MBJ delighted to hear that you have some fresh hair growth on your bonce, even if you do need a magnifying glass 🙂 that's so encouraging. My onco has twice now pointed out that in rare cases hair loss is permanent. I do wish he would stop saying that!!! I love my funky fake fringe but I dont want to still be wearing it in 3 years time! 😄
Here is some encouragement, my pal, face blanked out for privacy, she finished chemo just over 4 years ago. Went totally bald v quickly, didn't cold cap. Her hair has grown back raally lovely. I first met her about 18 months after chemo and it was already at her shoulders.
Seaside Sar. You look the absolute picture of health and vitality on that bike! They could use you in an advert: the little jingle would go "See! Chemo ain't so bad!"
Glad the UK/Hungary game was fun. I'm not great with heat and sunshine, the rink sounds like a nice place to be at the moment:) did you learn any good Hungarian swear words? 🙂 I used to work with a Hungarian lad, he was super nice, his middle initial was A and i asked him once what it stood for. He refused to tell me. Finally got it out of him under the influence of alcohol months later. It was actually Atilla. For real!
Ocean good to hear from you and well done for getting on with the gardening. I kind of did mine by proxy this weekend too, the 2 16 year olds asked me what I wanted for a birthday present so I handed them gardening gloves, trowels and weed killer and told them I expected the garden pristine by the time I got home from Birmingham. They did a not too bad job. I've told them how they can get even higher marks next time 😉
Susie I'm glad you are feeling a little more comfortable about the surgery. I can't stress enough how much of a doddle my lumpectomy was (and my lump was 30mm). Lovely deep refreshing sleep after the general anaesthetic. Day and a half in hospital getting waited on hand and foot and then home with very little pain, all manageable with paracetamol and gentle exercises. And if your surgeon is anything like mine they will do a little nip tuck and lift while they are at it and you get a lovely pert boobie 🙂 people pay good money for that!
Lymph nodes I know less about. They took 2 of my sentinel nodes out to biopsy. I thought they were clear as they had already done a scan and assured me all looked cancer free. But they did find a teeny tiny bit of the nasty stuff in one of the two. As they can't see anything on scans for the rest they have told me I don't need a full node clearance as if there are any more little breakaway cancer cells the chemo and radio should send them packing. I hope they are right!
And I am glad to read that side effect wise you are feeling so much better
Rosina again. Reading about the benefits of meditation for you, that's what painting does for me. Totally empties my brain (in a good way) and calms me down. I get really agitated if I can't do it for a few days. Same with swimming and the gym - although I'm having to live without those for now. I guess painting and exercise must be my yoga nidra!
Talking of painting I finally finished that page I have been working on off and on for everrrrr. So glad it is done!!! One page left of this 5 page story and I'm finished- thankfully as I want to do some different things for a bit, get the easel out and do some big canvasses I think.
Oh and love your photos. I haven't seen any bluebells yet this year. Must get on that.
Sonia - gorgeous seaside photos!!! Oh gosh I wish I lived closer to the sea!
Oh and I am ER plus and HER minus. Nobody has ever mentioned the third one to me.... PR?
I think that is me caught up. I'm just out for a little walk as I didn't leave the house yesterday!!! I worked on that comic page solid from 9am to 10pm do never got out of my jamas 🙂 figured I had earned a lazy day after doing just under 30k steps over 2 days in Birmingham.
Just to prove all my local Swindon views aren't horrid, I am currently sat by the local duck pond and it is quite pretty. Lots of noisy teens here though (out of shot) so not as peaceful as usual 🙂
Only other amusing thing to note is call from my sister:
Sis: " I haven't got you a birthday present"
Me: (thinking , she hasn't for years so what's new!!!) "That's ok"
Sis: "do you wear perfume"
Me: "hardly ever"
Sis: "I'll get you some perfume"
Me: "well the chemo has messed my sense of smell up a bit"
Sis: " I've just Amazon Primed you some perfume"
Looks like I'm getting perfume! Whether I want it or not! 🙂
Love to all of you whether I've mentioned you or not. All of you are in my thoughts all the time. We are family.
Sarah x
Just a few pictures from the weekend,
