I was hoping to have a nice lie in this morning as was totally shattered after 3 whole days at work (that sounds a little pathetic but they were long days and quite busy)... but still woke at 6.
Never mind I've not actually got out of bed yet, I've just been lying here reading my book and chilling out. It is nice to actually be able to read again as during the worst of T my eyes were too blurry.
I don't now have to drive over to Oxford this afternoon, as my onco has cancelled that appointment. Instead he is going to call me at lunchtime. I'm a little miffed as was looking forward to actually getting to speak to him face to face for once. But on the plus side, it means I can go to see the Avengers movie later this afternoon after all 🙂
Talking of Marvel.... the flooring Nettie referred to below was this that MBJ spotted online and shared with me on Facebook:
It is ace! And I have ordered a sample. But I'm not keen on the high gloss finish.... also it is insanely pricey.
Tonight a friend of mine has a gallery show opening in Bristol. I'm hoping I have the energy to drive over there and back after the movie, to show him some support. Feeling so sleepy already today and I haven't done anything yet!!! Maybe that's why. I need to feed my mitochondria or whatever they were called 🙂
Lovely blue skies there in Aix, Susie. Enjoy!!!
And well done on passing your blood test this time Nettie. Enjoy your unexpected extra healthy weekend away in your caravan before it all starts up again on Monday. I'll be one day behind you as I'm due my next dose on Tuesday, bloods permitting.
Oh and I still say funky 🙂
And talking of bloods, good luck with yours today Edinbird
After you mentioned the early days of the thread I went back and looked at the first 4 pages or so. You are right that a lot of names have since disappeared. I hope they are ok. It is also fun to see the first timid hello posts from each of us 🙂 It wasn't that long ago, but now I feel like you are all old friends who I've known for years! 🙂
love to all
Loving Aix. Warm and sunny😎. Haven't caught up with the gossip yet but will do. Take care everyone.
Well I didn’t get a call after bloods yesterday so it looks like I’m on for chemo 4 on Monday. Only 5 days delay this time so not so bad I suppose. As per usual I’m feeling a mixture of relief that I’ll be moving forward and fear and trepidation over what the next 3 weeks may bring. I’ve still got a bit of ear pain but am seeing Onco before chemo on Monday so will ask about it then.
MBJ, I think the short wig looks really funky (do people still use that word or am I showing my age? 😂).
Hi Paulus, tell us a bit about yourself. We love new names popping up/popping in.
Edinbird, you look amazing in any headgear, such a beautiful face. You can rock any look.
Susie, I’m glad you arrived in Aix safely. I can’t wait to see pics when you return.
Implausible, I’m kind of with you on the shiny finish to the floor but maybe you can put a finish on top to mattify it. It’s a bloody brilliant floor though isn’t?
Sonia, you have some hair growth? 🙌🏻 go girl!
Im not sure I’m imagining it but I think I may have a slight fuzz appearing..... might just be wishful thinking.
Marlyn, I’m glad your appt went well love. 😘
I should have been in Amsterdam this weekend with a group of friends, carrying on the 60th celebrations but we obviously had to postpone until after treatment. Nick and I have decided to venture out in the caravan to Love2Stay at Shrewsbury for the weekend. Weather is pants but a change of scenery will do us good and it will be the first time we have used the caravan since last October. I thought we ought to make the most of the treatment delay. I can’t remember what WiFi is like there so don’t worry if I go quiet over weekend.
I love you all so much my little warriors. Have the best weekend you all can. Here’s hoping for some sun. Xxxx
Thanks Rosina xx
Barely slept don’t know why... awake til gone 12 and then couldn’t settle after 4.30... so you know what I did? Read from the start of this thread!
We have lost a good handful of people! Some names I barely recognised having come into the group only a couple of days before chemo started. 18th Feb... a lifetime ago! I wonder where they went they were all so active and saying how vital the group was! A tad worrying...
Well the plan is get up and start on the fluids now so by the time it’s 10.30 I’ll have peed my own weight! These bloods and needles are just getting trickier and trickier...
Had a welcome surprise last night, my aunt called and said she’s up north somewhere birdwatching and she and my uncle are going to come on Saturday on their way back. They did this last year about the same time as I remember all the flowers in the garden were out (name escapes me I’ll take a photo later someone will know!) and they’re out again now. Oh for it to be last year again!
Right best get on with any and all liquids I can find xx
Hairs and hares today!
Well my day was working all morning, junk food and charity shops all afternoon! Cap day today I feel so much better in my hats.
Bestie found a fab Adidas top for me which was perfect and got another couple of things. Should’ve done more work but hey ho.
Ive not really looked at supplements and stuff as my oncologist said avoid everything during chemo.
The wig looks great MBJ. I think my hair loss has slowed down a little. Not really looked to see if it’s trying to grow back!
Need to get up early to drink my weight in water before my bloods at 10.30 tomorrow. Nearly time for T...
it's not the gelatine - it's the fact it's from fish - I don't eat fish either....
Thanks for the tip re Healthspan, Paulus - this looks promising?:
Rosina, the tattoos are tiny wee dots ( 3 of them) so the radiotherapy beams can be lined up.....to be honest I can't even see them.....
implausible...I'm veggie too..and you can get the gelatine free capsules no probs...
sonia....you have so much hair!!! Xxx
I've used the Healthspan company in the past - their mail order service is pretty reliable in my experience, and they do have veggie/vegan alternatives x
With the oil pulling, the oil does mix with the saliva in your mouth and it goes milky in colour.
Spit out, don’t swallow.
With the oil massage, do it before a shower.
I used to spend a lot on perfumed shower/ body oils. Organic sesame oil costs around £6 for 500ml. I don’t need body lotion after this !
I also believe that self massage is good prevention against lymphodema ( my personal belief) but also good for all of my muscles and joints.
The first time I did this I got tearful as I might have discovered my lump sooner 🙄
Marlyn - I'm glad you get a few days off the medical grind! Enjoy them 🙂
I wonder if there is a veggie alternative to fish oil capsules for the nice strong hair growth thing.... I don't suppose your nurse mentioned anything? I'll have a google....
*edited to add - I found this, but it says not suitable for vegetarians - plus they are crazy expensive! https://www.vitabiotics.com/hairfollic/woman
Glad you are having fun in Aix, Susie!
just be aware that sparkling water is acidic so I would switch to still ( to protect your tooth enamel).
I am just squeezing a bit of lemon juice into regular tap water ( warmish) in the morning ( my first drink of the day.
I am having a cup of coffee when I want it too.
Ayruvedic lady advised me to go easy on citrus juice in water as our teeth take a beating with chemotherapy ( as all of our body does) . She suggested fresh mint leaves in water.
She also recommended ‘oil pulling ‘ which is basically swilling a tea spoon of sesame oil in your mouth and then spitting it out. I have tried it so far ( when having my shower and it’s OK - my other half thinks it’s ancient lore with no scientific basis, but I pointed out that it is very soothing to a chemo mouth). I also am continuing with my body brushing followed by warmed organic sesame oil body massage. It’s just lovely self care - my face loves it too ( nasty eczema which normally appears on my legs when I am stressed - so this must be a reaction to T ???).
She was OK with my foraging of Wild greens.
Marlyn what tattoos are you referring to ?
Marilyn, it’s great when you get a break, although it delays things, it’s nice to have some time out. Thanks for the heads up for radiotherapy, everyone has said it’s a breeze after chemo.
I have been using a organic shampoo and conditioner without all the additives and that seems to have helped so far.
My picture didn’t upload last time
MJB, I think the wig looks fab, you suit both styles.
Susie, glad your enjoying your holiday.
Deano, I have my chemo on Wednesday and I had the same thoughts as you. 4 weeks till the end 🎉🎉🎉
just wanted to say I followed your advice of mineral water and fresh lemons and having a bad time last week I can say drinking 3 bottles of sparkling san pellegrino and squeezed lemon a day has made me feel better - I think you said it helps to detox and given I can’t have sugar given i had oral thrush it feels amazing to my dull Taste buds and waxy tongue thank you
Also hope everyone is feeling better after treatment I’ve got mind s week on Friday and tomorrow only 4 wks left till my last treatment - the end is near!!
Take care everyone xxx
Warm and sunny in Aix.😎😎 Can't send photos on new phone. Need to sort. Read some of the posts. Will catch later. Spent money at the market this morning 👕🧣👚🧥☺. Take care everyone xxxxx
well, the nurse wasn't happy to go ahead with herceptin without a heart scan first, sooooo first thing tomorrow I'm having a scan then will start herceptin next Thursday straight after my first radio session. To be honest I'm so damn relieved to be having a week off from any sort of medication! I hugged her...phew.....she was a complete angel.....gave me good advice on bald head/hair growing, she said we need to treat inside as well as outside ( makes total sense) as I don't eat fish I'm now armed with 3 months of high strength Fish capsules and almond oil, she said to rub the oil in everyday twice a day...btw holland and Barrett have the penny sale on now if you want to stock up? She advised against any type of shampoo as the hair begins to sprout....just let the water pour over your head, as it is in such a delicate state and easily broken...and absolutely no sort of colour until at least 6 months ( I'll be as white as snow) and when we do shampoo baby shampoo only.....
As for the ct scan and tattoos .....doddle!!!!! And that's from a certified drama queen.....tattoos don't hurt a bit.....the whole process from beginning to end took around 20 mins....I think the exhausting bit is having to go in every day....
mjb...the wig looks fab, I really like it....xx
well, I'm now going to make the most of the next few days without crap in me.....to all my beautiful sisters.....every single one of you.....I love you to infinity and bloody beyond.....xxxxx
Trixielady this is the old real me pre Barry BC with my own locks.
Yes Implausible once my grey hair is long enough it will get some purple or pink tips I think.
I read up about Masquerade on Wikipedia. Amazing story from all angles. Love the photos you posted.
MBJ, looking great.
I may just be tempted to look into wigs myself. So far , my money is getting spent on other stuff.
Nettienoo hope that you get the blood results you need.
I have had 2 bowls of my very green soup ( I liked it) but would reduce the water content if I made it again. The flavour is a lot more subtle compared to spinach.
The path through to Maidenbower ( suburb of Crawley) to get to where the wild stuff grows:
I could quite happily be a witch 🤪
Wig looks great Dr James!!
I've never seen bake off though so can't confirm or deny resemblance there 🙂
There is a chance here to have some fun and experiment with different hairstyles and colours..
It really does look fantastic but obviously we didn't know you before so was the long blonde hair a wig too have you put a picture of how your hair was before on here? My usual color is brown but i tried my friends short blonde wig on and liked it mind you nobody else did xx
Here is my new short wig I had it cut and styled on Tuesday. I am not sure about it yet I feel like Prue from the Bake Off. It's a bit itchy too. Have not been brave enough to venture out in it yet.
This was on over two nights on ITV men first night for Prostate and Testicular cancer, then women for breast cancer. Victoria Darbyshire was in it. They do a dance routine and get topless or (boottomless for the men) to raise awareness. It was a hard watch in parts as it's so close to home.
good luck with your bloods Nettie
the rain has finally lifted here and it is sunny again - hopefully your weather will soon follow suit
I've googled that Full Monty thing, looks like it was on ITV the night before last. I'll have to see if my telly has it stored on "catch up"
Implausible, love your new bathroom so much.
Marlyn, hope today goes well darling.
Just been for bloods again. I’m not too hopeful that anything will have changed since Tuesday but will find out later of course.
I really can’t wait for this rainy period to do one! It’s so gloomy outside. Even the dogs look depressed.
Love you all. Xxxx
Oh girls I just watched the Full Monty Girls for breast cancer. Had to fast forward a few bits, I had no idea that Martina Navratilova had been treated for breast cancer.
Hard to watch but very well done.
what's that? something on the telly? I pretty much only use Netflix and Amazon Prime so I miss everything that's on "real" tv. Except for Ghosts on BBC on Monday nights which I have fallen in love with 🙂
And Rosina - that Masquerade book literally ate up 100s and 100s of hours of my life as a child. I was so determined to solve the puzzle and find the golden hare! In the end the people who did find it - years later - were accused of cheating! big scandal! Maybe he made the puzzle too difficult....
MJB, I watched them both yesterday and spent most of it in tears. A little close to home now, but I agree it was very well done.
I noticed yesterday my bold patches above my ears have started to grow. Hopefully it will continue. Excuse no make up, I just couldn’t be bothered this morning. My PICC line seems a little less inflamed this morning.
Implausible, the bathroom looks fab, I like the Flooring, and wow they are using the bin, never in my house 😂😂😂
Marilyn good luck today, hope the time goes quickly.
Best get in with a bit of house work while I feel like it, if you know what I mean 🤪
Oh girls I just watched the Full Monty Girls for breast cancer. Had to fast forward a few bits, I had no idea that Martina Navratilova had been treated for breast cancer.
Hard to watch but very well done.
Morning Implausible ( and all),
no I haven’t heard or seen the V series.
I also looked up ‘Masquerade ‘ as I hadn’t heard of that either.
I am learning all the time.
Off to forage for wild garlic and young nettle leaves ( loads around) as I want to cook the recipe mentioned above.
Good Luck to those having chemotherapy today.
Morning all you lovely peoples
Going to try to have a proper catch up before I leave for work.
Nettie - that hair brush looks interesting. I'm going to wait to see how fragile my hair feels when it finally grows back, as I am hoping it will be fairly "sturdy". Friends who have had chemo before keep telling me that it grows back stronger than ever (and sometimes curly!), so let's see....
Edinbird- that's a good question about how to deal with regrowth of different lengths. I guess that will be a question for your hairdresser as to how best blend it all in....
Seaside.... I see drama continues re MKL! Planet Ice throwing their toys out of the pram and threatening to kick Cov and Manchester elite teams out if their rinks unless the MK bid gets approved? Or did I read that implication wrong? Blimey!
Hope you are enjoying Broadstairs if you are there already. I always quite enjoy being at the coast even when the weather is bad. If it is really windy you get those huuuuuge waves. That's when you really see the power of the sea.
Sonia I'm glad the ankles are behaving, hopefully the PICC line will follow suit
Marlyn I hope you are armed with plenty of good books for your 6 hour stint today and your phone so you can pop in here and chat to the gasbags:)
Daisy..... "ONLY a grade 2 reaction" blooming heck, it sounded horrendous to me!!!! I'd hate to see a 3 or 4! Hope the lotions and potions are working and , more importantly, that they can do something to prevent it happening again next time.
Rosina I shouldn't laugh but just as I read your post about reptilian skin I was shelving this DVD that my friend gave me as a present yesterday!!!! 😄
If you remember either the original V or the remake you will know why it made me giggle. I hope you don't eat live rats whole!! 😄
In all seriousness, I hope the new cream soothes your excema
Susie glad you have arrived at your holiday destination after the flight delays, hope the journey wasn't too tiring, have a brilliant time!!!
After I bottled out of going to Edinburgh this weekend (I didn't dare be too far from home so soon after my hospital admission, just in case something went wrong again - although of course now I feel fine and I wish I hadn't been such a coward!!!!), it is so good to see you off on your travels. It gives me hope that it won't take too long once all this treatment is done and dusted, before I'll have the guts to get on a plane again. You are an inspiration!
Edinbird that old reel to reel is gorgeous. I especially love the very retro mint green colour.
Hope your tummy feels better today.
Rosina - the photo of the mummy and baby ducks in silhouette is lovely!!!
Oops look at the time I had better run
Before I go though, couple of pics of the finished bathroom as the builder just popped round to put up the mirror....finishing touch:
Take care all
How wonderful to find something like this. It looks a bit like something a secret agent would have used in WW2.
my Dad used to have something like this. Definitely late 50s to 60s I would guess.
Yes Rosina it’s in the science museum!
Not sure exactly how old it is. I used reel to reel when I was a journalist starting out 20 years ago but not one this old!
Well today improved although my stomach remains bloated and uncomfortable on one side. Got into my work so felt better. I feel so sorry for everyone suffering, a little belly ache is annoying but nothing too bad I should stop moaning!
Stayed in all day as it’s miserable out. So no makeup but here’s band four anyway. I have serious headband hair having not bothered taking it off overnight. I find they make my hair a lot more greasy than the hats.
Cant really see the colours and pattern on it for some reason.
And this is what I managed to rescue from work yesterday! So pleased I was allowed to take it but most things in the cupboard are just going into a skip... would have been a travesty! Given I used to be a radio journalist this is so cool! Need to find somewhere for it now
‘Oh well, one step at a time ‘ it most certainly is 👍👍👍
Enjoy your breaks at home or otherwise.
I visited my class today ( lunch and stayed till 2.45) . Good to see everyone.
Now that I think of it I forgot to promote my hike.
My colleagues know but not the kiddies.
I will have to fix that next time I am in.
Guess I am more interested in what they are all up to .
I drove there and back.
Feeling pretty decent.
Looking at myself was scary this morning ( eczema has erupted on my face so pretty reptilian with a bald patch. Hmmm).
Thank goodness for my Clarins foundation. I use the everlasting cushion foundation with an spf 50.
Once you have the compact you only need to buy the refills.
I am now going to try a new company called Lyonsleaf for a new cleansing balm and moisturiser to soothe my reptilian skin.
Hugs to all
Daisydi, if what you have had is grade 2 I’d hate to think what a grade 4 is! Good news that you have seen the Onco now and have some answers. Xx
SusieB, I hope you will be on your way soon. It will be worth the extra wait when you finally get there. Enjoy every minute. Xxx
Marilyn, chance of an empty house would be great if we ever get to leave the UK! We're stuck on the tarmac awaiting take off - flight delay of around half an hour or more🙁
Just a flying visit as I snuck out of work for an hour and a half this morning to meet a pal for brekkie, which means I am now a bit behind and playing catch up 🙂
Susie.... have a brilliant holiday!
And Seaside too on the way to the seaside 🙂
And Sandra, you really do sound like you are at your wits end 😞 I hope you are getting some emotional support from somewhere. I know you dont work for the church any more but are any of your old friends from the church community still keeping in touch? You need good friends around you at a time like this. There is only so much we can do from a distance 😞
Catch up properly with you all later x
Morning all just been up to onc unit and actually saw a doctor. My neutrophils have gone up to 1 so panic over on that one. I now have so many lotions and potions. Doc said my reaction was almost certainly to T but only a grade 2 reaction. Grade 4 means they would stop so I will have to have another go but they are changing drugs etc. so hopefully I should get through it easier.
Have a lovely holiday Susie and Seaside Sar. Hope all you other ladies are coping well. I already have my radiotherapy dates planning is on 12th July with last treatment on 12th August then or during I will start taking Anastrazole. Good luck for tomrrow Marlyn x
susie...have a smashing holiday, hope you can take advantage of having "an empty house" xx
sandra...what can I say? It does all get too much doesn't it? When I was given a list of everything that needs doing now I crumpled....it's just enormous isn't it....people are telling me now chemo is done I will be able to get on with me life....are they actually kidding??? I smile and fight the urge to give them all the grim details....they have no idea...but, the only way I can get through this is one wee step at a time, I'm not thinking of the biowhatsits, the anastrozole, the herceptin or the rads.....I will go in tomorrow and face what's thrown at me at that moment.....it's the only way xx
nettinoo...thanks for the heads up ref brush.....defo getting me one of them! Xx
rosina...me book on the walks came yesterday, what a great recommendation....thank you muchly xx
trixy...how you getting on love? Xx
daisy......hope the rash is behaving? Xx
seaside..have a lovely break Hun...we control our own weather...so you will be just fine xx
Well, what a morning I've had! Rent day today and it's taken me an hour to get it done ( usually it's 20 mins) and that was with a calculator! My poor brain really is suffering....
to all you beauties who have chemo coming up...good luck....we're actually getting through this aren't we....god knows how but we're bloody doing it...
i love you all.....as I'm in the unit tomorrow for 6 hours I apologise in advance if I pop up all the time on here....blimey....how am I going to kill 6 hours???? Xxxxx
have a lovely time, a few days away will be lovely regardless of the weather.
Thankfully ankles and leg swelling has gone down again. Looks like the area around my PICC is still slightly weeping, will keep any eye on it.
Sandra, thinking of you both.
Susie, had a fab time away xx
Edinbird, enjoy your rest today.
SeasideSar, have a lovely time in Broadstairs. It doesn’t matter what the weather is like, the change of scenery will do wonders I’m sure. Xxo
Just when we think we're getting through this chemo crud, there's more trouble looming. Stark reminder of how much more there is to face. Oh well, one step at a time.
Sandra, it sounds like you're having a tough time but remember, we're here for you both.
Rosina, we'll be having round 5 on the same day, assuming it all goes ahead of course.
Trixielady, how are you feeling after your treatment?
Susie, enjoy your break. Hope you have a fab time.
Edinbird, it must be so hard having to go into work. You've done really well. Just rest when you can.
Sarah, likewise, remember to take regular breaks and look after yourself. Oh and did you hear the MK bid for the elite league failed? Disappointing but not surprising.
Daisy, how are you today? I hope the rash is clearing.
Marlyn, mine is left boob as well so I guess I'll start practising holding my breath. I think I'm having 5 weeks of radio. Can't really think about that yet.
MBJ, hope all went well with your visitors and that the hoovering was appreciated!
Sonia, how are you doing? Has the ankle swelling gone down yet?
Nettie, that's a pain in the wotsit that your treatment has been delayed. I hope it goes ahead next week for you.
As for me, I'm heading to the seaside for a couple of days. Yes, the weather is trying its best to throw a spanner in the works but this is my good week so I was a bit limited with timing. At least it's a change from the routine. Not sure what the wifi is like down there (Broadstairs) so I may be offline until the weekend when I'm back home.
Hope today is good to you all.
Lots of love
Nettie I saw this on the programme... it looked good for shorter hair but I was thinking I don’t know how it would ever have coped with my old hair! I guess that’s the point... it probably would cope with my thinned hair. I also thought I don’t have a problem with my current brushes and I can’t wait to use my old brush again! Was talking with my friend yesterday about what happens when new hair grows through all sticky uppy compared with the rest of my hair, and what if it’s curly?! I could end up looking a real freak! 😂 I’ll have to ask my other forums about when I can go to the hairdressers as the long bits will need cutting and I don’t want anything done to the rest that will make anything worse. Let us know how you get on with that brush.
Groundhog day here... sat in bed could sleep all morning don’t want to get up. Don’t have to go anywhere today though. Lower abdomen still sore am getting tired of it. Not feeling like doing work doesn’t constitute going off sick does it... oh well only three more work days before next cycle fingers crossed. Who thought you’d ever look forward to getting it?!
Will show you all my hairband and my new acquisition later when I’m feeling more lively xx
I’ve ordered myself one of these brushes for when my hair eventually grows back. They are a bit pricey but for the folk who have retained hair, albeit fragile, this brush may help with limiting any future hair loss.
My daughter saw them on a BBC programme - The Customer is always right. The product won apparently.
The brush was invented by the hairdresser husband of a lady who has suffered hair loss during chemo for breast cancer and when it grew back she was scared to brush it in case the new growth fell out.
Anyway, have a google and do your research on them and see what you think.
ps I think you can get them cheaper on Amazon or QVC.